Family Caregiving

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Families Caring for an Aging America

National Academies of Sciences, Engineering, and Medicine,Health and Medicine Division,Board on Health Care Services,Committee on Family Caregiving for Older Adults
Families Caring for an Aging America Book PDF

Author : National Academies of Sciences, Engineering, and Medicine,Health and Medicine Division,Board on Health Care Services,Committee on Family Caregiving for Older Adults
Publisher : National Academies Press
Page : 367 pages
File Size : 50,7 Mb
Release : 2016-11-08
Category : Medical
ISBN : 9780309448093

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Families Caring for an Aging America by National Academies of Sciences, Engineering, and Medicine,Health and Medicine Division,Board on Health Care Services,Committee on Family Caregiving for Older Adults Pdf

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

Patient Safety and Quality

Ronda Hughes
Patient Safety and Quality Book PDF

Author : Ronda Hughes
Publisher : Department of Health and Human Services
Page : 592 pages
File Size : 45,6 Mb
Release : 2008
Category : Medical
ISBN : IOWA:31858055672798

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Patient Safety and Quality by Ronda Hughes Pdf

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/

Family Caregiving in the New Normal

Joseph Gaugler,Robert L. Kane
Family Caregiving in the New Normal Book PDF

Author : Joseph Gaugler,Robert L. Kane
Publisher : Academic Press
Page : 404 pages
File Size : 54,9 Mb
Release : 2015-05-08
Category : Medical
ISBN : 9780124171299

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Family Caregiving in the New Normal by Joseph Gaugler,Robert L. Kane Pdf

Family Caregiving in the New Normal discusses how the drastic economic changes that have occurred over the past few years have precipitated a new conversation on how family care for older adults will evolve in the future. This text summarizes the challenges and potential solutions scientists, policy makers, and clinical providers must address as they grapple with these changes, with a primary focus given to the elements that may impact how family caregiving is organized and addressed in subsequent decades, including sociodemographic trends like divorce, increased participation of women in the workforce, geographic mobility, fewer children in post-baby boom families, chronic illness trends, economic stressors, and the current policy environment. A section on the support of caregivers includes technology-based solutions that examine existing models, personal health records, and mobile applications, big data issues, decision-making support, person-centered approaches, crowd-sourced caregiving such as blogs and personal websites that have galvanized caregivers, and new methods to combine paid and unpaid forms of care. Provides a concise "roadmap" of the demographic, economic, health trends, and policy challenges facing family caregivers Presents potential solutions to caregiving so that scientists, policymakers, and clinical providers can best meet the needs of families and communities in the upcoming decades Includes in-depth, diverse stories of caregivers of persons with different diseases who share perspectives Covers person-centered care approaches to family caregiving that summarize effective community-based services of psychosocial intervention models Examines how existing efficacious models can more effectively reach and serve individual families

Family Caregiving in Mental Illness

Harriet P. Lefley
Family Caregiving in Mental Illness Book PDF

Author : Harriet P. Lefley
Publisher : SAGE Publications, Incorporated
Page : 280 pages
File Size : 41,9 Mb
Release : 1996-01-19
Category : Psychology
ISBN : UOM:39015037696427

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Family Caregiving in Mental Illness by Harriet P. Lefley Pdf

With the trend of deinstitutionalization, family members are finding themselves increasingly in the position of primary caregivers to mentally ill adults - a role for which they are often untrained and unprepared. This volume explores the experiences of these caregivers. The author: discusses the characteristics and conceptual models related to mental illness; surveys the experience of mental illness in the context of the family life cycle and developmental stages of the illness; appraises the burdens on the family including social stigma, refusal of treatment, stress and the relationship between the mentally ill and caregivers within the family; and reviews family responses including coping strategies and professional and

Bridging the Family Care Gap

Joseph E. Gaugler
Bridging the Family Care Gap Book PDF

Author : Joseph E. Gaugler
Publisher : Academic Press
Page : 498 pages
File Size : 42,5 Mb
Release : 2021-01-09
Category : Psychology
ISBN : 9780128138991

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Bridging the Family Care Gap by Joseph E. Gaugler Pdf

Bridging the Family Care Gap explores expected future shortages of family caregivers of older persons and identifies potential solutions. The book examines the sustainability and availability of care management models and whether they can be effectively scaled up to meet community needs. It identifies newly emerging policy initiatives at local, state, and federal levels. The book addresses the state of family caregiving science, dissemination and implementation of promising programs and supports, technological innovations, and other strategies to offset the family care gap. This edited volume also explores lay healthcare workers as guides, interpreters, and advocates in healthcare systems that provide continuity of contact for family caregivers. Details threats to family caregiving-sociodemographic, chronic disease, and socioeconomic challenges Presents solutions to the caregiving gap in a systematic, synthesized manner Addresses the intersection of family caregiving and technology Discusses chronic disease management to offset and reduce the need for family caregiving Describes models of caregiver support in work settings Reimagines the delivery of long-term services and supports with novel initiatives

Family Caregiving

Brett H. Lewis
Family Caregiving Book PDF

Author : Brett H. Lewis
Publisher : iUniverse
Page : 174 pages
File Size : 47,8 Mb
Release : 2012-10-01
Category : Medical
ISBN : 1475940491

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Family Caregiving by Brett H. Lewis Pdf

Family Caregiving explores one of the most precious and fulfilling gifts of love that can be given to a family member or a friendand also one of the most difficult tasks to undertake. The difficulty increases in magnitude because many family caregivers have no formal medical training other than basic first aid. In most cases, all of their medical knowledge has come from their own life experiences with personal illnesses, accidents, and medications. In Family Caregiving, author Brett Lewis shares his insights and the bounty of information that he learned acting as a family caregiver for both his father and his close friend. He explains that even though caregiving is stressful, being prepared and knowledgeable can reduce stress levels and better position a family member for caregiving success. A caregiver should have a thorough understanding of the patients personal and family medical history, current symptoms, and medical conditions. It is critical to learn how to interact effectively with medical personnel; to become familiar with hospital/rehabilitation center processes and protocols; and to learn about basic medical terminology, equipment, and procedures. By sharing candid, real-world experiencesincluding his mistakesLewis provides a step-by-step guide that can enable the family caregiver to better navigate the journey of caregiving.

Family Caregiving Across the Lifespan

Eva Kahana,David E. Biegel,May Wykle
Family Caregiving Across the Lifespan Book PDF

Author : Eva Kahana,David E. Biegel,May Wykle
Publisher : SAGE Publications
Page : 447 pages
File Size : 52,7 Mb
Release : 1994-03-16
Category : Social Science
ISBN : 9781452254012

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Family Caregiving Across the Lifespan by Eva Kahana,David E. Biegel,May Wykle Pdf

Published in cooperation with the Center for Practice Innovations, Mandel School of Applied Social Sciences, Case Western Reserve University Increased life expectancy, the deinstitutionalization of persons with mental illness, the rise of home health care, and advances in medical technology have resulted in greater numbers of dependent people requiring care by family members. The frail elderly, the chronically mentally ill, and the physically disabled are examples of such groups who now receive their daily care in the community. How do families accept the burden of this care? What are the physical and emotional demands of such caregiving? Are the families prepared to assume this role? Family Caregiving Across the Lifespan considers the broad spectrum of chronic illnesses that necessitate family caregiving throughout the lifespan and expands the caregiving paradigm by including in its focus both members of the caregiving dyad and significant non-family caregivers. It also explores the social context in which care is provided--an entire section of the volume is devoted to discussions of the interface between informal and formal caregivers and society at large. Among the other subjects this volume addresses are the negative consequences of family caregiving, the value of providing support to caregivers, and caregivers of persons living with AIDS. Family Caregiving Across the Lifespan is important reading for those in social work, nursing, family medicine, and clinical psychology. "Family Caregiving Across the Lifespan represents a significant milestone in the continuing maturation of this vital area of long-term care. The title is an understatement of the authors′ accomplishments. . . .Rather than offering narrow boxes or labels, the book invites the reader to join in a broadened perspective on caregiving so that it can more fully reflect the richness of the lives of all involved. . . .For those who encounter Family Caregiving Across the Lifespan as part of their continuing study of caregiving, the book provides the integrating milestone of caregiving literature." --Journal of Case Management "This volume is a useful compendium of articles on family caregiving. The fourteen chapters in this volume address many important topics in family caregiving. One of the book′s major contributions is its clarification that family caregiving to frail or chronically ill people has no age limitation, although there are unique issues at different points in the development of individuals and families. The book has exceptional merit. It expands our understanding of family caregiving, provides important ideas for future research, offers research findings that enhance our understanding of family care, and presents a very useful review of the literature. This book would be a beneficial addition to the library of all researchers in the area of caregiving. They will discover worthwhile conceptualizations and gain new insights that can inform their research. Practitioners should also benefit from this collection. The chapters addressing interaction between forma land informal caregivers should give practitioners a deeper understanding of how to be more effective in dealing with informal caregivers and care recipients." -Ageing & Society "One paper [in this volume] deserves particular notice because it attempts to do what many of the authors feel is most critical in caregiving research but also most difficult, namely, to analyze the effectiveness of caregiving, the effect of provision of care on elder health outcomes. This is an important and original conceptualization of the problem..." -Steven M. Albert, Contemporary Gerontology "This book is both unique and valuable because it embraces Brody′s observation that family caregiving is not limited to a specific segment of the life span. Moreover, the book is not limited to filial caregiving, but entertains an impressive variety of contexts of family caregiving. . . . This book will be a valuable text in graduate-level courses." --Journal of Marriage and the Family

The Spectrum of Family Caregiving for Adults and Elders with Chronic Illness

Louis D. Burgio,Joseph E. Gaugler,Michelle M. Hilgeman
The Spectrum of Family Caregiving for Adults and Elders with Chronic Illness Book PDF

Author : Louis D. Burgio,Joseph E. Gaugler,Michelle M. Hilgeman
Publisher : Oxford University Press
Page : 248 pages
File Size : 43,6 Mb
Release : 2016-01-07
Category : Psychology
ISBN : 9780190455262

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The Spectrum of Family Caregiving for Adults and Elders with Chronic Illness by Louis D. Burgio,Joseph E. Gaugler,Michelle M. Hilgeman Pdf

The vast majority of care provided to adults and elders with chronic illness is given in the home, most often by family members. The caregiver's role is daunting; caregiving is often referred to as a 'career,' requiring long hours and arduous tasks. Primary caregivers show higher rates of morbidity and mortality, and caregiving is a major source of stress and burden to caregiving families. Presently, very little support is available to caregivers from either State or Federal agencies. However, awareness of this worsening problem is growing among health professionals and policy makers. The Spectrum of Family Caregiving for Adults and Elders with Chronic Illness is written for individuals in the helping professions who are in roles that interface with or serve family caregivers who are supporting an adult or elder with a chronic condition. The volume includes eight disease-specific chapters written by experts from various disciplines. Each discusses the caregiving role and includes a thorough review of the literature on the characteristics of caregivers and care-recipients, including related care needs, issues, and challenges unique to that chronic illness. Chapters also review the extant literature on caregiver interventions. An Evidence Table is included in each of these chapters so that the reader can easily judge the quality of evidence supporting the intervention studies. Finally, each chapter includes two case studies describing common problems encountered by caregivers, along with descriptions of interventions used to address these problems. The final chapter summarizes the state of the science on caregiving roles and caregiver interventions and discusses the most relevant challenges and barriers faced by today's caregivers and caregiver advocates. This book will be valuable to clinicians and those in the helping professions, as well as academics and researchers with an interest in the study of family caregiving and caregiver interventions, and to health administrators, public officials, and policy makers concerned with chronic illness care and management.

The Spiritual Journey of Family Caregiving

Sheryl Karas
The Spiritual Journey of Family Caregiving Book PDF

Author : Sheryl Karas
Publisher : Lulu.com
Page : 250 pages
File Size : 42,6 Mb
Release : 2008-01-01
Category : Family & Relationships
ISBN : 9780615186030

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The Spiritual Journey of Family Caregiving by Sheryl Karas Pdf

For five years, ending in 2005, Sheryl Karas worked as a Family Caregiving Consultant at the Alzheimer's Association and Del Mar Caregiver Resource Center helping families taking care of loved ones with incurable progressive memory loss and dementia. Trying to find services needed to provide basic care is what brought people in to see her first, but as the caregivers became more ensconced in their caregiving roles inevitably emotional and spiritual issues would become their primary concerns. Sheryl's role shifted to providing a combination of practical and spiritual care. During this period she wrote a caregiver newsletter every month and this book is the result.The author uses a very open, nondogmatic spiritual frame, appropriate for people of all religious backgrounds or none at all. Inspirational, comforting, and informative--highly recommended for anyone involved with long term care.

Caregiving and Home Care

Mukadder Mollaoglu
Caregiving and Home Care Book PDF

Author : Mukadder Mollaoglu
Publisher : BoD – Books on Demand
Page : 240 pages
File Size : 42,7 Mb
Release : 2018-02-14
Category : Medical
ISBN : 9789535137788

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Caregiving and Home Care by Mukadder Mollaoglu Pdf

The management of chronic diseases is one of the tasks of all members of the health team, and different models need to be applied in the practice of chronic care management. One of these models is home care services. There are two main sections in this book. In the first part of the section, the concept of caregiving and care at home is explained. In the second part, the responsibilities of caregivers at home and the responsibilities of caregivers of people who have health problems that occur during different periods of life are discussed. In the second section, the problems of caregivers are also included. I would like to think that what is quoted in this book, which contains examples from different cultures of the world for home care approaches, will contribute to the development of home care services. This book is presented to all health professionals working in the field of health services as well as health politics professionals and students trained in these areas.

Already Toast

Kate Washington
Already Toast Book PDF

Author : Kate Washington
Publisher : Beacon Press
Page : 226 pages
File Size : 54,9 Mb
Release : 2021-03-16
Category : Medical
ISBN : 9780807011508

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Already Toast by Kate Washington Pdf

The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.

Caring for the Family Caregiver

Elaine Wittenberg,Joy Goldsmith,Sandra L. Ragan,Terri Ann Parnell
Caring for the Family Caregiver Book PDF

Author : Elaine Wittenberg,Joy Goldsmith,Sandra L. Ragan,Terri Ann Parnell
Publisher : Oxford University Press, USA
Page : 241 pages
File Size : 48,5 Mb
Release : 2020-09-11
Category : Medical
ISBN : 9780190055233

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Caring for the Family Caregiver by Elaine Wittenberg,Joy Goldsmith,Sandra L. Ragan,Terri Ann Parnell Pdf

"Caring for the Family Caregiver is an extensive practical tool kit for health care providers across the healthcare continuum. Regardless if it is a mother caring for a child with a developmental disability, a wife caring for a husband with a long term chronic illness, or a daughter sitting at the bedside of her father who is enrolled in hospice, family caregivers are the silent "other patient" in the health care drama. Healthcare providers who do not attend to the needs of the caregiver not only inflict interactional suffering, but dilute their treatment by not engaging the caregiver as a partner. In fact, they may unintentionally do harm as the caregiver flounders and thus patient treatment fails. As noted by one dying cancer patient in an educational YouTube video of his cancer journey, "there are two patients not one." If we are to eliminate the interactional suffering experienced by family caregivers, we must train both the caregiver and the health care team for the important interaction and roles that are required for the successful care of the patient. Caregivers lack information, skills, and emotional support for the tireless task they are volunteering for. They need to be taught how to advocate for themselves and their patients and how to best communicate with the health care team. Likewise, health care providers have the skills and knowledge to provide outstanding patient centered care; however, they are not taught the importance of the family caregiver, nor do they always understand that experience or how to help"--

Dying at Home

Andrea Sankar
Dying at Home Book PDF

Author : Andrea Sankar
Publisher : JHU Press
Page : 485 pages
File Size : 40,6 Mb
Release : 2024-02-20
Category : Family & Relationships
ISBN : 9781421447735

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Dying at Home by Andrea Sankar Pdf

"This will be the third edition of this title, heavily updated from the 1999 second edition"--

Family Care in HIV/AIDS

Premilla D'Cruz
Family Care in HIV AIDS Book PDF

Author : Premilla D'Cruz
Publisher : SAGE
Page : 226 pages
File Size : 48,6 Mb
Release : 2004-06-30
Category : Medical
ISBN : 076193233X

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Family Care in HIV/AIDS by Premilla D'Cruz Pdf

This book vividly describes family care in HIV/AIDS through the lived experiences of caregivers and care receivers. It contributes to our knowledge not only because of the contemporary relevance of family caregiving, but also because of its focus on HIV/AIDS which, being a relatively new disease, is little understood yet poses unique challenges due to its stigmatising, long-drawn, debilitating and terminal nature. Based on a study conducted in Mumbai, Family Care in HIV/AIDS captures the lived experiences of 10 caregivers and seven care receivers belonging to diverse socio-economic groups and traditional as well as non-traditional family settings. Overall, the book provides valuable insights into a range of important issues related to caregiving in family settings while identifying areas for intervention and further research. In addition, it overcomes many gaps identified in the substantive area of family care by Western researchers.

Family Care of Older People in Europe

Ian Philp
Family Care of Older People in Europe Book PDF

Author : Ian Philp
Publisher : IOS Press
Page : 310 pages
File Size : 53,5 Mb
Release : 2001
Category : Family & Relationships
ISBN : 1586031538

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Family Care of Older People in Europe by Ian Philp Pdf

Developing appropriate responses to an ageing population is recognized by policy makers throughout the developed world as a top priority, as is the vital contribution made by family caregivers. However, cultural, demographic and organizational differences between countries have encouraged diverse patterns of response to this common challenge. This book provides a systematic cross-cultural analysis of contemporary patterns and future trends in all major countries of the European Union. Additional interest is provided by including Poland emerging from the post- Communist block as the country at the forefront for joining the European Union. The book should be useful to European policy makers and academies involved in studying the health and social care needs of older people and the capacity, contribution and needs of family caregivers who provide care to older people. The book is also relevant for policy makers and researchers in other countries, mostly in North America and Australia who wish to study European approaches to supporting older people and family caregivers.