Making Tough Decisions About End Of Life Care In Dementia

Author : Anne Kenny
Publisher : JHU Press
Page : 233 pages
File Size : 44,6 Mb
Release : 2018-09-03
Category : Family & Relationships
ISBN : 9781421426679

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Making Tough Decisions about End-of-Life Care in Dementia by Anne Kenny Pdf

Practical, essential advice about making tough decisions for people with end-stage dementia. Each year, more than 500,000 people are diagnosed with dementia in the United States. As stunning as that figure is, countless family members and caregivers are also affected by each diagnosis. Families are faced with the need to make vital end-of-life decisions about medical treatment, legal and financial matters, and living situations for those who no longer can; no one is prepared for this process. And many caregivers grapple with sadness, confusion, guilt, anger, and physical and mental exhaustion as dementia enters its final stage. In Making Tough Decisions about End-of-Life Care in Dementia, Dr. Anne Kenny, a skilled palliative care physician, describes how to navigate the difficult journey of late-stage dementia with sensitivity, compassion, and common sense. Combining her personal experience caring for a mother with dementia with her medical expertise in both dementia and end-of-life care, Dr. Kenny helps the reader prepare for a family member's death while managing their own emotional health. Drawing on stories of families that Dr. Kenny has worked with to illustrate common issues, concerns, and situations that occurs in late-stage dementia, this book includes practical advice about • making life-altering decisions while preparing for a loved one's inevitable death • medical care, pain, insomnia, medication, and eating • caring for the caregiver • having conversations about difficult topics with other family members and with health care, legal, and financial professionals Concrete to-do lists and lists of important points provide information at a glance for busy caregivers. Each chapter concludes with a list of additional resources for more information and help. Making Tough Decisions about End-of-Life Care in Dementia is a lifeline, an invaluable guide to assist in the late stage of dementia.

Author : Anne Kenny
Publisher : JHU Press
Page : 232 pages
File Size : 43,7 Mb
Release : 2018-09-03
Category : Health & Fitness
ISBN : 9781421426686

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Making Tough Decisions about End-of-Life Care in Dementia by Anne Kenny Pdf

Making Tough Decisions about End-of-Life Care in Dementia is a lifeline, an invaluable guide to assist in the late stage of dementia.

Author : U.S. Department of Health and Human Services
Publisher : Lulu.com
Page : 78 pages
File Size : 51,8 Mb
Release : 2019-04-13
Category : Reference
ISBN : 9780359588237

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End of Life: Helping with Comfort and Care by U.S. Department of Health and Human Services Pdf

At the end of life, each story is different. Death comes suddenly, or a person lingers, gradually fading. For some older people, the body weakens while the mind stays alert. Others remain physically strong, but cognitive losses take a huge toll. Although everyone dies, each loss is personally felt by those close to the one who has died. End-of-life care is the term used to describe the support and medical care given during the time surrounding death. Such care does not happen only in the moments before breathing ceases and the heart stops beating. Older people often live with one or more chronic illnesses and need a lot of care for days, weeks, and even months before death. The goal of End of Life: Helping with Comfort and Care is to provide guidance and help in understanding the unfamiliar territory of death. This information is based on research, such as that supported by the National Institute on Aging (NIA), along with other parts of the National Institutes of Health.

Author : Rod MacLeod,Roderick Duncan MacLeod,Lieve Van den Block
Publisher : Unknown
Page : 0 pages
File Size : 51,6 Mb
Release : 2019
Category : Medicine
ISBN : 3319317385

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Textbook of Palliative Care by Rod MacLeod,Roderick Duncan MacLeod,Lieve Van den Block Pdf

"Textbook of Palliative Care is a comprehensive, clinically relevant and state-of-the art book, aimed at advancing palliative care as a science, a clinical practice and as an art. Palliative care has been part of healthcare for over fifty years but we still find ourselves having to explain its nature and practice to colleagues and to the public in general. Healthcare education and training has been slow to recognize the vital importance of ensuring that all practitioners have a good understanding of what is involved in the care of people with serious or advanced illnesses and their families. However, the science of palliative care is advancing and our understanding concerning many aspects of palliative care is developing rapidly. The book is divided into separate sections for ease of use. Over 100 chapters written by experts in their given fields provide up-to-date information on a wide range of topics of relevance to those providing care towards the end of life no matter what the disease may be. We present a global perspective on contemporary and classic issues in palliative care with authors from a wide range of disciplines involved in this essential aspect of care. The Textbook includes sections addressing aspects such as symptom management and care provision, organization of care in different settings, care in specific disease groups, palliative care emergencies, ethics, public health approaches and research in palliative care. This Textbook will be of value to practitioners in all disciplines and professions where the care of people approaching death is important, specialists as well as non-specialists, in any setting where people with serious advanced illnesses are residing. It is also an important resource for researchers, policy-and decision-makers at national or regional levels. Neither the science nor the art of palliative care will stand still so we aim to keep this Textbook updated as the authors find new evidence and approaches to care. ." - Prové de l'editor.

Author : Anonim
Publisher : Unknown
Page : 0 pages
File Size : 46,6 Mb
Release : 1999
Category : Electronic
ISBN : OCLC:298644516

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The 36-hour Day by Anonim Pdf

Author : Keri Thomas,Ben Lobo,Karen Detering
Publisher : Oxford University Press
Page : 337 pages
File Size : 44,6 Mb
Release : 2018
Category : MEDICAL
ISBN : 9780198802136

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Advance Care Planning in End of Life Care by Keri Thomas,Ben Lobo,Karen Detering Pdf

Advance Care Planning (ACP) is an essential part of end of life care in the UK and most developed countries. It enables more people to live well and die as they would choose, and has significant implications for the individual person, their family and carers, and our wider society. In the context of an ageing population and increasing possibilities for medical interventions, ACP is a particularly important aspect of quality care. Expanded and fully updated throughout, this new edition gives a comprehensive overview of ACP and explores a wide range of issues and practicalities in providing end of life care. Written by experts from around the world, the book takes a comprehensive look at the subject by exploring the wide range of issues and practicalities in providing ACP; framing the purpose, process, and outcomes of these plans; and providing an important update on national and international research, policy and practice. Chapters also discuss values, goals and priorities, and include detailed case examples to aid best practice. This book is an invaluable resource for all clinicians involved in the caring for people in their final stages of life. It is of particular value to GPs, palliative care specialists, geriatricians, social care teams, researchers and policy leads interested in improving end of life care.

Author : The Expert Panel Working Group on Advance Requests for MAID
Publisher : Council of Canadian Academies
Page : 244 pages
File Size : 43,7 Mb
Release : 2018-12-12
Category : Social Science
ISBN : 9781926522517

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The State of Knowledge on Advance Requests for Medical Assistance in Dying by The Expert Panel Working Group on Advance Requests for MAID Pdf

In December 2016, the CCA was asked by then Minister of Health Jane Philpott and Minister of Justice and Attorney General of Canada Jody Wilson-Raybould to undertake independent reviews related to medical assistance in dying (MAID). Specifically, the CCA was tasked with examining three particularly complex types of requests for MAID that were identified for further review and study in the legislation passed by Parliament in 2016: requests by mature minors, advance requests, and requests where a mental disorder is the sole underlying medical condition. On December 12, 2018 the CCA released the three final reports of the Expert Panel, one on each type of request: The State of Knowledge on Medical Assistance in Dying for Mature Minors; The State of Knowledge on Advance Requests for Medical Assistance in Dying; and The State of Knowledge on Medical Assistance in Dying Where a Mental Disorder is the Sole Underlying Medical Condition.

Author : Rachael Wonderlin
Publisher : JHU Press
Page : 254 pages
File Size : 43,5 Mb
Release : 2022-09-06
Category : Health & Fitness
ISBN : 9781421444338

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The Caregiver's Guide to Memory Care and Dementia Communities by Rachael Wonderlin Pdf

This practical guide provides general caregiving tips and helps you decide when and how to transition your loved one to a dementia care community. Caring for someone with dementia is challenging, especially when it comes time to think about other living arrangements. What do you need to know about dementia, including its different stages? What do you do if the person you're caring for seems to have trouble recognizing you? When is it time to move a person living with dementia into a senior living community? And how can you maintain your relationship with your loved one when you are living apart? Gerontologist and dementia care consultant Rachael Wonderlin has written a compassionate book to help friends and family members of those living with dementia answer these tough questions—and more. In practical, down-to-earth language, The Caregiver's Guide to Memory Care and Dementia Communities walks the reader through key points about dementia care, including • common terminology used by health care workers • strategies for taking care of your loved one • advice for when and how to transition to a dementia care community • understanding how dementia care communities are structured and what to keep in mind when evaluating them • how to help your loved one receive the best possible care while they're living apart • recommendations for handling obstacles involving communication and behavioral issues • information on technology, hospice care, programming and activities, and at-home safety A dedicated section called "Putting It into Practice" in each chapter helps you apply the principles to your own experience, while worksheets present you with questions to consider as part of the caregiving and assessment process.

Author : Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues
Publisher : National Academies Press
Page : 638 pages
File Size : 41,8 Mb
Release : 2015-03-19
Category : Medical
ISBN : 9780309303132

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Dying in America by Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues Pdf

For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Author : Timothy J. Dickey
Publisher : Emerald Group Publishing
Page : 121 pages
File Size : 42,8 Mb
Release : 2020-02-28
Category : Language Arts & Disciplines
ISBN : 9781838676933

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Library Dementia Services by Timothy J. Dickey Pdf

There are 50 million people globally living with Alzheimer’s disease and related dementias, and tens of millions of their caregivers. Library and information professionals must learn to assist those with dementia. This book explores best practice guidelines and concrete ideas for serving those with dementia and their caregivers.

Author : Keri Thomas,Ben Lobo,Karen Detering
Publisher : Oxford University Press
Page : 336 pages
File Size : 44,9 Mb
Release : 2017-11-28
Category : Medical
ISBN : 9780192542366

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Advance Care Planning in End of Life Care by Keri Thomas,Ben Lobo,Karen Detering Pdf

Advance Care Planning (ACP) is an essential part of end of life care in the UK and most developed countries. It enables more people to live well and die as they would choose, and has significant implications for the individual person, their family and carers, and our wider society. In the context of an ageing population and increasing possibilities for medical interventions, ACP is a particularly important aspect of quality care. Expanded and fully updated throughout, this new edition gives a comprehensive overview of ACP and explores a wide range of issues and practicalities in providing end of life care. Written by experts from around the world, the book takes a comprehensive look at the subject by exploring the wide range of issues and practicalities in providing ACP; framing the purpose, process, and outcomes of these plans; and providing an important update on national and international research, policy and practice. Chapters also discuss values, goals and priorities, and include detailed case examples to aid best practice. This book is an invaluable resource for all clinicians involved in the caring for people in their final stages of life. It is of particular value to GPs, palliative care specialists, geriatricians, social care teams, researchers and policy leads interested in improving end of life care.

Author : Tom Kitwood,Dawn Brooker
Publisher : McGraw-Hill Education (UK)
Page : 234 pages
File Size : 48,9 Mb
Release : 2019-01-07
Category : Medical
ISBN : 9780335248032

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Dementia Reconsidered Revisited: The Person Still Comes First by Tom Kitwood,Dawn Brooker Pdf

The original Dementia Reconsidered: The Person Comes First by Tom Kitwood was published by Open University Press in 1997. It was a seminal text in the field of dementia studies and is still cited and referenced as core reading on person-centred dementia care. Tom died unexpectedly, just 12 months after the book was published. This book continues to inspire many people to challenge simplistic paradigms about dementia. Since the original book was written, however, there have been many changes in our understanding of dementia. The editor of this new edition, Dawn Brooker was mentored by Tom Kitwood. She has drawn together a remarkable group of writers to provide a commentary on Kitwood’s work. This new edition reproduces the original chapters but provides extra content from subject experts to update the book to a contemporary level. Dementia Reconsidered Re-visited is an ideal main text or supplementary text for all those studying or working in nursing, medicine, psychiatry, psychology, occupational therapy, social work, adult education, gerontology and health and social care more generally. “This important book does three things. It brings to a new generation the insight and vision of Tom Kitwood. It highlights the remarkable progress we have made in recent years. But most important of all it reminds us what still needs to be done if we are to fully respect the rights of people with dementia and their family care-givers. Kitwood inspired Alzheimer’s Society to knit together research, care, and societal change. We are now re-inspired to make sure all progress is evidenced and evaluated for its impact. We must realise the enormous opportunities the digital age offers people affected by dementia but in doing so constantly listen to and learn from their many and varied voices across nations and cultures.” Jeremy Hughes CBE, Chief Executive, Alzheimer's Society, UK

Author : National Academies of Sciences, Engineering, and Medicine,Health and Medicine Division,Board on Health Care Services,Committee on Family Caregiving for Older Adults
Publisher : National Academies Press
Page : 367 pages
File Size : 50,7 Mb
Release : 2016-11-08
Category : Medical
ISBN : 9780309448093

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Families Caring for an Aging America by National Academies of Sciences, Engineering, and Medicine,Health and Medicine Division,Board on Health Care Services,Committee on Family Caregiving for Older Adults Pdf

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

Author : Rachael Wonderlin
Publisher : Johns Hopkins University Press
Page : 220 pages
File Size : 46,9 Mb
Release : 2016-11-01
Category : Health & Fitness
ISBN : 9781421420653

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When Someone You Know Is Living in a Dementia Care Community by Rachael Wonderlin Pdf

"When Someone You Know Is Living in a Dementia Care Community is an accessible guide offering answers to such questions as: How do I choose a place for my loved one to live? What can I find out by visiting a candidate memory-care community twice? What do I do if my loved one asks about going home? How can I improve the quality of my visits? What is the best way to handle conflict between residents, or between the resident and staff? How can I cope with my loved one's sundowning? What do I do if my loved one starts a romantic relationship with another resident?An indispensable book for family members and friends of people with dementia, When Someone You Know is Living in a Dementia Care Community touches the heart while explaining how to make a difficult situation better.

Author : Nancy L. Mace,Peter V. Rabins
Publisher : JHU Press
Page : 361 pages
File Size : 42,8 Mb
Release : 2021-08-10
Category : Family & Relationships
ISBN : 9781421441702

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The 36-Hour Day by Nancy L. Mace,Peter V. Rabins Pdf

The 36-Hour Day is the definitive dementia care guide.