The Emotional Journey Of The Alzheimer S Family

Author : Robert B. Santulli, MD,Kesstan Blandin, PhD
Publisher : Dartmouth College Press
Page : 231 pages
File Size : 52,8 Mb
Release : 2015-03-22
Category : Health & Fitness
ISBN : 9781611687453

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The Emotional Journey of the Alzheimer's Family by Robert B. Santulli, MD,Kesstan Blandin, PhD Pdf

Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.

Author : Mitchell Lykke
Publisher : Unknown
Page : 121 pages
File Size : 44,9 Mb
Release : 2022-01-05
Category : Electronic
ISBN : 9798796203118

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Alzheimer: Helping Your Loved One in the Alzheimer's Journey by Mitchell Lykke Pdf

Caring for someone with Alzheimer's disease or another type of dementia can be a long, stressful, and intensely emotional journey. As there is currently no cure for Alzheimer's or dementia, it is often your caregiving and support that makes the biggest difference to your loved one's quality of life. That is a remarkable gift. If your loved one has been diagnosed with Alzheimer's, be prepared for anything -- it can be a shocking disease. This book walks you through what can happen and prepares you for the challenges you may face on this four- to eight-year journey. It provides practical tips, coping tools for caring for those with Alzheimer's, and conversation starters for those difficult talks you may have with your loved one and family members. What is more, reading this book will help you learn how to communicate with Alzheimer's sufferers, handle disagreements so they result in positive outcomes, and understand the stages and behaviors of Alzheimer's disease. You are able to know a way to look at this journey a bit differently, not as a list of challenges, but as a way to expand your heart and transform the way you treat others.

Author : Lianne Koppang
Publisher : Unknown
Page : 138 pages
File Size : 47,7 Mb
Release : 2021-07-05
Category : Electronic
ISBN : 9798531905697

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Alzheimer: Helping Your Loved One in the Alzheimer's Journey by Lianne Koppang Pdf

Caring for someone with Alzheimer's disease or another type of dementia can be a long, stressful, and intensely emotional journey. As there is currently no cure for Alzheimer's or dementia, it is often your caregiving and support that makes the biggest difference to your loved one's quality of life. That is a remarkable gift. If your loved one has been diagnosed with Alzheimer's, be prepared for anything -- it can be a shocking disease. This book walks you through what can happen and prepares you for the challenges you may face on this four- to eight-year journey. It provides practical tips, coping tools for caring for those with Alzheimer's, and conversation starters for those difficult talks you may have with your loved one and family members. What is more, reading this book will help you learn how to communicate with Alzheimer's sufferers, handle disagreements so they result in positive outcomes, and understand the stages and behaviors of Alzheimer's disease. You are able to know a way to look at this journey a bit differently, not as a list of challenges, but as a way to expand your heart and transform the way you treat others.

Author : Carol B. Amos
Publisher : Morgan James Publishing
Page : 149 pages
File Size : 51,6 Mb
Release : 2018-06-03
Category : Health & Fitness
ISBN : 9781683509042

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H.O.P.E. for the Alzheimer's Journey by Carol B. Amos Pdf

“A useful, step-by-step guide for anyone new to caring for those with Alzheimer’s.” —Library Journal H.O.P.E. for the Alzheimer’s Journey equips Alzheimer’s caregivers with knowledge, tools, and advice for their difficult road ahead. Author Carol B. Amos incorporates her own experience—including her family’s email correspondence illustrating how they coped during this particular challenge. Amos also introduces The Caregiving Principle™: a simple approach that provides a deeper understanding of a person with Alzheimer’s disease and a framework for the caregiver’s role. She provides examples of how The Caregiving Principle™ helped her connect with her mother. H.O.P.E. for the Alzheimer’s Journey encourages caregivers to take care for themselves and provides inspiration for a less stressful, more rewarding journey.

Author : Jolene Brackey
Publisher : Purdue University Press
Page : 298 pages
File Size : 48,5 Mb
Release : 2016-11-15
Category : Family & Relationships
ISBN : 9781612494838

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Creating Moments of Joy Along the Alzheimer's Journey by Jolene Brackey Pdf

The beloved best seller has been revised and expanded for the fifth edition. Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer's disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimer's, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or said, but the feeling that we left them with will linger. The new edition of Creating Moments of Joy is filled with more practical advice sprinkled with hope, encouragement, new stories, and generous helpings of humor. In this volume, Brackey reveals that our greatest teacher is having cared for and loved someone with Alzheimer's and that often what we have most to learn about is ourselves.

Author : Pam Ostrowski
Publisher : Alzheimer's Family Consulting
Page : 322 pages
File Size : 55,5 Mb
Release : 2021-10-12
Category : Family & Relationships
ISBN : 1735709611

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It's Not That Simple: Helping Families Navigate the Alzheimer's Journey by Pam Ostrowski Pdf

This book helps to relieve the fear, anxiety and confusion family member experience when a loved one is diagnosed with dementia. This 3-hour read provides detailed help with skills, tips and guidance based on 14 years of dementia experience.

Author : Wayne A. Caron,James J. Pattee,Orlo Otteson
Publisher : Unknown
Page : 244 pages
File Size : 53,5 Mb
Release : 2001-05
Category : Health & Fitness
ISBN : 0962961426

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Alzheimer's Disease by Wayne A. Caron,James J. Pattee,Orlo Otteson Pdf

Author : Rachael Wonderlin
Publisher : Johns Hopkins University Press
Page : 220 pages
File Size : 53,8 Mb
Release : 2016-11-01
Category : Health & Fitness
ISBN : 9781421420653

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When Someone You Know Is Living in a Dementia Care Community by Rachael Wonderlin Pdf

"When Someone You Know Is Living in a Dementia Care Community is an accessible guide offering answers to such questions as: How do I choose a place for my loved one to live? What can I find out by visiting a candidate memory-care community twice? What do I do if my loved one asks about going home? How can I improve the quality of my visits? What is the best way to handle conflict between residents, or between the resident and staff? How can I cope with my loved one's sundowning? What do I do if my loved one starts a romantic relationship with another resident?An indispensable book for family members and friends of people with dementia, When Someone You Know is Living in a Dementia Care Community touches the heart while explaining how to make a difficult situation better.

Author : Olivia Ames Hoblitzelle
Publisher : Penguin
Page : 354 pages
File Size : 50,5 Mb
Release : 2010-09-30
Category : Health & Fitness
ISBN : 9781101443668

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Ten Thousand Joys & Ten Thousand Sorrows by Olivia Ames Hoblitzelle Pdf

"Ten Thousand Sorrows & Ten Thousand Joys offers a vision of lives well-led, and of love in the thick of crisis and loss. Beyond inspiring."-Daniel Goleman, author of Emotional Intelligence "This beautiful book is unlike any other personal account of living with Alzheimer's disease that I have ever read . . . it offers patients and families practical insights into how they can live their lives more fully amidst the heartbreak of a mind-robbing illness."- Paul Raia, Director of Patient Care and Family Support, Alzheimer's Association, Massachusetts Chapter "A story of courage, love, and growing wisdom in the face of Alzheimer's."-Joseph Goldstein, author of One Dharma, Founder / Director of Insight Meditation Society In this profound and courageous memoir, Olivia Ames Hoblitzelle describes how her husband's Alzheimer's diagnosis at the age of seventy-two challenged them to live the spiritual teachings they had embraced during the course of their life together. Following a midlife career shift, Harrison Hobliztelle, or Hob as he was called, a former professor of comparative literature at Barnard, Columbia, and Brandeis University, became a family therapist and was ordained a Dharmacharya (senior teacher) by Thich Nhat Hanh. Hob comes to life in these pages as an incredibly funny and brilliant man who never stopped enjoying a good philosophical conversation-even as his mind, quite literally, slipped away from him. And yet when they first heard the diagnosis, Olivia and Hob's initial reaction was to cling desperately to the life they had had. But everything had changed, and they knew that the only answer was to greet this last phase of Hob's life consciously and lovingly. Ten Thousand Joys & Ten Thousand Sorrows provides a wise and compassionate vision for maintaining hope and grace in the face of life's greatest challenges. (This memoir was originally self-published as The Majesty of Your Loving.)

Author : Shelly Calcagno
Publisher : Ambassador International
Page : 91 pages
File Size : 50,7 Mb
Release : 2022-11-15
Category : Religion
ISBN : 9781649603371

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The Longest Goodbye: A Family's Hope-Filled Journey Through Alzheimer's by Shelly Calcagno Pdf

Are we ever ready to say goodbye? She looked out into the yard sprinkled with spring dandelions. “Yellow flowers,” she said, searching for her words. We knew something wasn’t right. That’s when things began to fall apart for our family, when our longest goodbye journey began—the defining before-and-after moment. And now, looking back, it’s been almost a decade of slow loss and drawn-out grief as we slowly let go of our beautiful mom. In the middle of it all, though, we have learned to look for hope and chase down joy, discovering that, in spite of our pain, there are always gifts to be found, even on the hardest of days. Alzheimer’s disease affects almost fifty million people worldwide. It touches people across every walk of life. So, how do millions of people figure out how to love as they let go? The Longest Goodbye is a collection of stories and moments not just about the clinical side of memory loss–but the emotional heart journey. It is a story that shows how joy and grief are often intertwined and wrapped up together in the glorious mess of life. The Longest Goodbye encourages readers to remember the ones they love while they are still here and to intentionally celebrate and live through the pain and hard days. It’s filled with tears, hope, and bitter-sweet moments all held together by the beautiful love of a mother and daughter holding onto a life filled with memories, while learning to let go and say goodbye.

Author : Joanne Koenig Coste
Publisher : Houghton Mifflin Harcourt
Page : 177 pages
File Size : 43,6 Mb
Release : 2004-09-08
Category : Health & Fitness
ISBN : 9780547526829

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Learning to Speak Alzheimer's by Joanne Koenig Coste Pdf

A guide to more successful communication for the millions of Americans caring for someone with dementia: “Offers a fresh approach and hope.”—NPR Revolutionizing the way we perceive and live with Alzheimer’s, Joanne Koenig Coste offers a practical approach to the emotional well-being of both patients and caregivers that emphasizes relating to patients in their own reality. Her accessible and comprehensive method, which she calls habilitation, works to enhance communication between care partners and patients and has proven successful with thousands of people living with dementia. Learning to Speak Alzheimer’s also offers hundreds of practical tips, including how to: · cope with the diagnosis and adjust to the disease’s progression · help the patient talk about the illness · face the issue of driving · make meals and bath times as pleasant as possible · adjust room design for the patient’s comfort · deal with wandering, paranoia, and aggression “A fine addition to Alzheimer's and caregiving collections.”—Library Journal (starred review) “Promises to transform not only the lives of patients but those of care providers…This book is a gift.”—Sue Levkoff, coauthor of Aging Well

Author : Tchenn-Dha Nuon
Publisher : Unknown
Page : 0 pages
File Size : 42,9 Mb
Release : 2023-10-27
Category : Electronic
ISBN : 2959025148

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105,000 Hours With a Alzheimer's by Tchenn-Dha Nuon Pdf

My life and that of Prissou can be summed up in an endless cycle, we are two souls united by a fraternal bond. We follow our paths in a spiral of responsibilities, insurmountable challenges, to isolation and loneliness. We are alone in our battle, without moral help, even when the routine seems to never end. Over the years, the disease evolves, but Prissou and I let's stay by his side. We continue to brave the torments. We become his father's primary guardians, dedicating 24 hours a day, 365 days, more than a heartbreaking decade reveals the price of absolute dedication, mixing love and hatred, hope and despair. Our story explores the complexity of our human emotions, where love and dedication become an inspiring example of what it means to be human. Discover this book around the world. "105,000 hours with Alzheimer's" Is a poignant chronicle of a couple confronted with Alzheimer's disease. Immerse yourself in this moving epic that will captivate you from the first page and won't let you go. Much more than just a book, it is an experience that will have a profound impact on you. You will be inspired by the determination of Prissou and Moi to fight against illness to preserve the dignity of their father. This book offers you: ✨ A true story: Based on real events, this authentic tale recounts the courageous fight of two dedicated souls in the face of Alzheimer's disease. ✨ A tribute to family love: Immerse yourself in the world of Prissou and Me, who demonstrate unconditional love and unfailing devotion to their father. ✨ An ode to resilience: Follow their journey, from moments of despair to moments of tenderness, and discover how love can overcome the most daunting challenges. Don't miss this opportunity to own this literary treasure. Order your copy today and immerse yourself in a story that will touch your heart. Join us on this captivating emotional journey. You will be amazed by family love and the resilience of the human soul. A harrowing journey will take you through life, from hope to desolation, from brotherly love to unwavering resilience. ✨ A deeply human and authentic story. ✨ The exploration of family love in the face of adversity. ✨ An inspiring lesson in dedication and sacrifice. ✨ Poignant moments, arguments, but also indestructible bonds. ✨ A dive into financial challenges, loneliness and depression. ✨ The true story of a family ready to do anything to preserve the dignity of a loved one. Because some stories deserve to be told.

Author : Kae Hammond
Publisher : Kae Hammond
Page : 225 pages
File Size : 44,5 Mb
Release : 2012-04-10
Category : Medical
ISBN : 9781432781286

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Pathways by Kae Hammond Pdf

Possibly the best rescue plan you've ever read.If you are caring for someone with Alzheimers Disease or Related Dementias,PathwaysPathwaysPathways"You have straightened out the curves and turns and false roads of the family caregiver maze. Accurate, useful, dependable, relevant, and reliable. You have done a yeoman's job and all of us who care for a person with dementia will be better for your efforts. PathwaysContact Us:For more information or immediate assistance, contact us at (877) 699-3456 or visit www.dementiahelpcenter.com

Author : Claudia Strauss
Publisher : New Harbinger Publications
Page : 192 pages
File Size : 55,7 Mb
Release : 2002-01-01
Category : Family & Relationships
ISBN : 9781608822522

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Talking to Alzheimer's by Claudia Strauss Pdf

Alzheimer's can have a devastating impact on a patient's close relationships and all too often, family members and friends feel so uncomfortable that they end up dreading visits, or simply give up trying to stay in contact with the patient. This book offers a wealth of practical things you can do to stay connected with the Alzheimer's patient in your life. It offers straightforward suggestions and invaluable do's and don'ts, with advice on everything from dealing effectively with the inevitable repetition that occurs in conversations with an Alzheimer's patient to helpful strategies for saying no to unrealistic demands. It also includes thoughtful tips to remind you to take care of your own feelings and suggestions for helping children become comfortable with visiting an Alzheimer's sufferer.

Author : Lori Aden
Publisher : Unknown
Page : 128 pages
File Size : 43,8 Mb
Release : 2021-07
Category : Electronic
ISBN : 1737346311

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I Remember Me - The Mom Chronicles by Lori Aden Pdf

"Your mom got lost on her way back from the nail salon today. She ended up 30 minutes south of town and couldn't remember how to get back home." At this point, we knew Mom's memory problems were severe, so our family decided it was time to move my mother and stepfather back home to Texas from California. This book is a compilation of day-to-day experiences written about our family's journey through my mom's Alzheimer's diagnosis. Using humor and raw emotions, I share lessons learned and mistakes made along the way while caregiving for a loved one living with memory issues. I also provide general information about the stages of Alzheimer's from leading sources coupled with a caregiver's point of view. To provide a personal view of my mother's disease progression, I took a unique approach by adding short video clips using QR code technology. Our family made tough decisions and difficult sacrifices to give her the type of care we believed she needed for 5 1⁄2 years. This book is for: caregivers of loved ones with dementia/Alzheimer's, family members and friends who would like to learn how to support the primary caregiver of people with dementia, and people in general who want to understand typical stages of Alzheimer's.