Before The Diagnosis Stories Of Life And Love Before Dementia
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Before the Diagnosis: Stories of Life and Love Before Dementia by Gincy Heins Pdf
This book is a love story and a labor of love. It is an anthology of stories by 36 authors, each about a relative they have known and loved before that person was diagnosed with Alzheimer's disease or another type of dementia. First and foremost, these stories are about human beings. They are about moms, dads, attorneys, teachers, sailors, dreamers, doers, and lovers. They are about people like you and me; people with hopes and plans for the future who lived, or are still living, a life worth remembering. I hope what you read in these pages touches your life.
Worldwide, there are over 55 million people who have been diagnosed with some form of dementia. Whether it is Alzheimer's, Lewy-body, vascular, mild cognitive impairment, or another type, each of these individuals is more than their diagnosis. They are a person with a rich, vibrant history, and people who love them. It is because of this that Before the Diagnosis: More Stories of Life and Love Before Dementia was written. Continuing in the style of Before the Diagnosis: Stories of Life and Love Before Dementia, the stories of the 23 individuals in this book introduce us to more people with a life worth remembering. In the pages of this book, some of the people you'll meet are a well-loved teacher, a shop owner, a good gift-giver, cyclists, parents, spouses, an acupuncturist, a family physician, a marathoner, and an artistic storyteller. Two women who were both young when they were diagnosed with a type of dementia wrote positively about their lives since their diagnoses, with their first-hand accounts bookending the other essays. We all need to remember that people with any type of diagnosis, whether it is a form of dementia or something else entirely, are so much more than their diagnosis. They are people. Remind people they are so much more than a medical condition. Find out about people. Share their story, and share yours as well. I hope you are touched by what you read on the pages of this book. Your purchase of this book supports the work of Alzheimer's Orange County since 100% of the sales of the book are donated to them. You can find out more about the work they do at www.alzoc.org.
NEW YORK TIMES BESTSELLER • A powerful memoir of a love that leads two people to find a courageous way to part—and a woman’s struggle to go forward in the face of loss—that “enriches the reader’s life with urgency and gratitude” (The Washington Post) “A pleasure to read . . . Rarely has a memoir about death been so full of life. . . . Bloom has a talent for mixing the prosaic and profound, the slapstick and the serious.”—USA Today ONE OF THE BEST BOOKS OF THE YEAR: NPR Amy Bloom began to notice changes in her husband, Brian: He retired early from a new job he loved; he withdrew from close friendships; he talked mostly about the past. Suddenly, it seemed there was a glass wall between them, and their long walks and talks stopped. Their world was altered forever when an MRI confirmed what they could no longer ignore: Brian had Alzheimer’s disease. Forced to confront the truth of the diagnosis and its impact on the future he had envisioned, Brian was determined to die on his feet, not live on his knees. Supporting each other in their last journey together, Brian and Amy made the unimaginably difficult and painful decision to go to Dignitas, an organization based in Switzerland that empowers a person to end their own life with dignity and peace. In this heartbreaking and surprising memoir, Bloom sheds light on a part of life we so often shy away from discussing—its ending. Written in Bloom’s captivating, insightful voice and with her trademark wit and candor, In Love is an unforgettable portrait of a beautiful marriage, and a boundary-defying love.
Do I Look at You with Love? explores the author’s mother’s dementia during her final years. Part narrative psychology, part memoir, Freeman’s story also highlights the beauty that may be found amidst of the ravages of time and memory.
Keeping Love Alive as Memories Fade by Gary Chapman,Edward G. Shaw,Debbie Barr Pdf
Across America and around the world, the five love languages have revitalized relationships and saved marriages from the brink of disaster. Can they also help individuals, couples, and families cope with the devastating diagnosis of Alzheimer's disease (AD)? Coauthors Chapman, Shaw, and Barr give a resounding yes. Their innovative application of the five love languages creates an entirely new way to touch the lives of the five million Americans who have Alzheimer’s, as well as their fifteen million caregivers. At its heart, this book is about how love gently lifts a corner of dementia’s dark curtain to cultivate an emotional connection amid memory loss. This collaborative, groundbreaking work between a healthcare professional, caregiver, and relationship expert will: Provide an overview of the love languages and Alzheimer’s disease, correlate the love languages with the developments of the stages of AD, discuss how both the caregiver and care receiver can apply the love languages, address the challenges and stresses of the caregiver journey, offer personal stories and case studies about maintaining emotional intimacy amidst AD. Keeping Love Alive as Memories Fade is heartfelt and easy to apply, providing gentle, focused help for those feeling overwhelmed by the relational toll of Alzheimer’s. Its principles have already helped hundreds of families, and it can help yours, too.
Before I Forget by B. Smith,Dan Gasby,Michael Shnayerson Pdf
“A powerful portrait of Alzheimer’s…marked by strong emotions and often bleak honesty.” —The Washington Post “The vulnerability, courage, and honesty in Before I Forget are heart-opening. Fear can be paralyzing…yet B. and Dan beautifully demonstrate that there is a different way to approach this stealthy invader. Alzheimer’s needs to come out of the shadows, and this book is an important step.” —Maria Shriver Restaurateur, magazine publisher, celebrity chef, and nationally known lifestyle maven, B. Smith is struggling at 66 with a tag she never expected to add to that string: Alzheimer's patient. She’s not alone. Every 67 seconds someone newly develops it, and millions of lives are affected by its aftershocks. B. and her husband, Dan, working with Vanity Fair contributing editor Michael Shnayerson, unstintingly share their unfolding story. Crafted in short chapters that interweave their narrative with practical and helpful advice, readers learn about dealing with Alzheimer's day-to-day challenges: the family realities and tensions, ways of coping, coming research that may tip the scale, as well as lessons learned along the way. At its heart, Before I Forget is a love story: illuminating a love of family, life, and hope.
A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.
Dignity & Dementia: Carpe Diem by Mary Beth Wighton Pdf
Dignity & Dementia: Carpe Diem invites you to experience life with dementia through the lens of the author. This easy-to-read book pulls you into the writer’s world with short journal entries, published as written, from the time of her diagnosis through the first six years of her journey with a cognitive impairment. Written with optimism and humour, this book offers a first-hand perspective on the joys and challenges of life and love while living with dementia.
From the award-winning journalist and author, a lyrical, raw and humane investigation of dementia that explores both the journeys of the people who live with the condition and those of their loved ones After a diagnosis of dementia, Nicci Gerrard’s father, John, continued to live life on his own terms, alongside the disease. But when an isolating hospital stay precipitated a dramatic turn for the worse, Gerrard, an award-winning journalist and author, recognized that it was not just the disease, but misguided protocol and harmful practices that cause such pain at the end of life. Gerrard was inspired to seek a better course for all who suffer because of the disease. The Last Ocean is Gerrard’s investigation into what dementia does to both the person who lives with the condition and to their caregivers. Dementia is now one of the leading causes of death in the West, and this necessary book will offer both comfort and a map to those walking through it. While she begins with her father’s long slip into forgetting, Gerrard expands to examine dementia writ large. Gerrard gives raw but literary shape both to the unimaginable loss of one’s own faculties, as well as to the pain of their loved ones. Her lens is unflinching, but Gerrard honors her subjects and finds the beauty and the humanity in their seemingly diminished states. In so doing, she examines the philosophy of what it means to have a self, as well as how we can offer dignity and peace to those who suffer with this terrible disease. Not only will it aid those walking with dementia patients, The Last Ocean will prompt all of us to think on the nature of a life well lived.
'Some days all I want to do is give up the constant, exhausting struggle and stop trying to be normal. But I can't. It's not in me to walk away from a fight. I'll keep fighting and telling my story. Before I forget.' When she was just 46, Christine Bryden – science advisor to the prime minister and single mother of three daughters – was diagnosed with younger-onset dementia. Doctors told her to get her affairs in order as she would soon be incapable of doing so. Twenty years later she is still thriving, still working hard to rewire her brain even as it loses its function. The unusually slow progress of her condition puts Christine in a unique position to describe the lived experience of dementia, a condition affecting tens of millions of people worldwide. In this revealing memoir, she looks back on her life in an effort to understand how her brain – once her greatest asset, now her greatest challenge – works now. She shares what it's like to start grasping for words that used to come easily. To be exhausted from visiting a new place. To suddenly realise you don't remember how to drive. To challenge, every day, the stereotype of the 'empty shell'. Brave and inspiring, this is Christine's legacy for people with dementia and those who care about them. 'Christine teaches us that we are more than what our brains are capable of remembering, that while we can still breathe and love, we all have something important to contribute to this world.' Lisa Genova, author of bestseller Still Alice
What if the person who knew you best and loved you most forgot your face, and couldn't remember your name? A nursing facility is everyone's solution for what to do about Sara, but her husband, Jack, can't bear to live without her. He is committed to saving his marriage, his wife, and their life together from the devastation of Alzheimer's disease. He and Sara retired years ago to the house of their dreams, and operated it as a Cape Cod bed and breakfast named Blue Hydrangeas. Jack has made an impossible promise: He and Sara will stay together in their beautiful home no matter what the disease brings. However, after nine years of selfless caregiving, complicated by her progressing Alzheimer's and his own failing heart, he finally admits he can no longer care for her at home. With reluctance, he arranges to admit her to an assisted living facility. But, on the day of admission, Sara is having one of her few good days, and he is unable to follow through. Instead, he takes them on an impulsive journey to confront their past and reclaim their future. In the end, he realizes that staying together at any cost is what truly matters.
A familiar stranger. That is who my mom became as dementia slowly took hold of her. She was someone I knew and loved but not the same person she had been. A profound sadness hit me when I realized that my daughters may one day have to deal with me in this same condition and I wanted them to know that who I become if this happens is not really who I am. The things I will say and do will be coming from someone who has gradually become a stranger to them. Everything about our life together will change when I have nowhere to go and all day to get there, forgetting that they still have commitments, appointments and things to do. We will experience a sense of time travel as my memories from the past become jumbled up in the happenings of each new day. The change in my language could bring about surprising and sometimes disturbing conversations as the filters from the past wane and they see me in my uncut glory. This is a love letter of instruction to my daughters while I am able to express myself fully with prompts for you to do the same for your children or to chronicle meaningful times in the lives of your parents before the chance is lost forever.
NEW YORK TIMES BESTSELLER • A powerful memoir of a love that leads two people to find a courageous way to part—and a woman’s struggle to go forward in the face of loss—that “enriches the reader’s life with urgency and gratitude” (The Washington Post) “A pleasure to read . . . Rarely has a memoir about death been so full of life. . . . Bloom has a talent for mixing the prosaic and profound, the slapstick and the serious.”—USA Today ONE OF THE TEN BEST BOOKS OF THE YEAR: Publishers Weekly ONE OF THE BEST BOOKS OF THE YEAR: The New York Times Book Review, Time, Entertainment Weekly, NPR, The Washington Post, The Boston Globe, USA Today, Real Simple, Prospect (UK), She Reads, Kirkus Reviews Amy Bloom began to notice changes in her husband, Brian: He retired early from a new job he loved; he withdrew from close friendships; he talked mostly about the past. Suddenly, it seemed there was a glass wall between them, and their long walks and talks stopped. Their world was altered forever when an MRI confirmed what they could no longer ignore: Brian had Alzheimer’s disease. Forced to confront the truth of the diagnosis and its impact on the future he had envisioned, Brian was determined to die on his feet, not live on his knees. Supporting each other in their last journey together, Brian and Amy made the unimaginably difficult and painful decision to go to Dignitas, an organization based in Switzerland that empowers a person to end their own life with dignity and peace. In this heartbreaking and surprising memoir, Bloom sheds light on a part of life we so often shy away from discussing—its ending. Written in Bloom’s captivating, insightful voice and with her trademark wit and candor, In Love is an unforgettable portrait of a beautiful marriage, and a boundary-defying love. Shortlisted for the Rathbones Folio Prize
When Someone You Love Has Dementia by Susan Elliot-Wright Pdf
Dementia affects more than 700,000 people in the UK; Alzheimer's is the most common cause of dementia, affecting around 417,000 people in the UK and some four million in the USA. While dementia affects mostly older people, some 17,000 young people also have dementia in the UK. There are treatments, but no cure. Caring for people with dementia is a well-recognized burden, but recently there have been moves to represent this in a more positive light, emphasising people with dementia as individuals who deserve respect, rather than as the challenge as which they have traditionally been viewed. Nevertheless, for individual carers without enough support, having a loved one with dementia often remains challenging. This book looks at practicalities and relationships, including: Defining Alzheimer's and other dementias; Diagnosis; After diagnosis; planning for the future; Medications to help with symptoms such as memory problems, wandering, and aggressive behavior; Other therapies such as music therapy; Practicalities: coping with strange behaviour, confusion, memory problems. Outside help and services and how to access them; Later stages of dementia; issues to consider such as residential care, financial arrangements, wills and living wills and coping with being a carer.
Love in the Land of Dementia by Deborah Shouse Pdf
Caregiver Shouse celebrates spiritual and practical lessons learned on her unscripted yet rewarding journey with her mother through Alzheimer's disease.