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Can I Tell You about ME/Chronic Fatigue Syndrome? by Jacqueline Rayner Pdf
Mollie and her family help readers to understand what it is like to have ME/CFS and how it can affect their day-to-day family life. They explain what ME/CFS is and how it can affect people in different ways. This illustrated book is packed with accessible information and will be an ideal introduction to this often misunderstood condition.
Institute of Medicine,Board on the Health of Select Populations,Committee on the Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Author : Institute of Medicine,Board on the Health of Select Populations,Committee on the Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Publisher : National Academies Press Page : 304 pages File Size : 54,8 Mb Release : 2015-03-16 Category : Medical ISBN : 9780309316927
Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by Institute of Medicine,Board on the Health of Select Populations,Committee on the Diagnostic Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Pdf
Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment.
Can I tell you about ME/Chronic Fatigue Syndrome? by Jacqueline Rayner Pdf
Meet Mollie – a woman with an illness called ME (Myalgic Encephalomyelitis) or CFS (Chronic Fatigue Syndrome), and her family, Mike, Ellie and Eric. Mollie and her family help readers to understand what ME/CFS is, what it is like to have it and how it can affect their family life. Mollie can't always do things that other mums do because of her illness, which can sometimes be frustrating, but they share strategies that help them all to cope. The family also explain how ME/CFS can affect different people in different ways. This illustrated book is an ideal introduction to this often misunderstood condition. It shows family, friends and anyone who knows someone with the condition how they can support someone with ME/CFS, and their family.
People with Chronic Fatigue Syndrome (CFS)/ME experience extreme tiredness and a range of other symptoms, including pain, headaches, impaired concentration and memory, anxiety, sleep problems, and palpitations. The condition can affect all areas of a sufferer's life and, in turn, the lives of those who are close to them. This book provides the families and friends of people with CFS/ME with an accessible introduction to the condition, and explains what can be done to support those who have it. It offers useful advice on how to help a loved one cope with the illness, and suggests ways to help them with everyday issues such as personal hygeine, nutrition, finances, and relationships. Recognising that coping with the impact of CFS/ME can be just as difficult for the relatives and friends of those with the condition, it addresses the emotional, social, and practical aspects of having a loved one with CFS/ME, explains how to understand the changes in their relationship with the sufferer, how to manage stress, and where to go for further help and support. The book also includes detailed case studies and practical advice from a wide range of people with mild, moderate, and severe CFS/ME, and their loved ones. This book offers much-needed information and support to the friends, families, and carers of people with CFS/ME. It will also be a useful resource for health professionals who wish to deepen their understanding of CFS/ME, including home helps, care staff, counsellors, therapists, doctors, and nurses.
How Many Marbles Do You Have? by Melinda Malott Pdf
This is the book weve been waiting fora story for children of parents with Fibromyalgia or Chronic Fatigue Syndrome. In fact, I plan to buy a copy for all my loved ones, so theyll better understand what my life is like. It all depends on how many marbles are in my jar each daythe perfect metaphor for explaining the unpredictability and the ups and downs of Fibromyalgia and CFS. At the end of the book, Malott writes, a heart full of love is better than a jar full of marbles any day. Not only is this book informative and insightful, its a heart full of love in itself. Toni Bernhard, author of How to Be Sick A mom uses a brilliant jar-and-marble analogy to teach her son about her limitations related to chronic fatigue syndrome (CFS) and fibromyalgia. The book uses marbles, a toy all children are familiar with, as a measure of the mothers limited energy. Using a jar and some marbles, the author conveys difficult concepts in terms that children can understand. These concepts include taking preemptive rests to have more energy later, finding alternate ways to perform tasks that use less energy, and postexertional malaise. The concepts in the book are relevant to someone with one or both illnesses, and it can be applied to other physically limiting conditions as well. The book reminds the reader that although illness may limit a mothers activities, it never diminishes a mothers love for her children. The book is fun and yet realistic and will capture your childs heart.
HELP ME! What I Wish Families Knew About ME/CFS by Dr Cherla Meisterman Lisw, PhD,Michael McVicker Ocpsii Pdf
HELP ME! What I Wish Families Knew About ME/CFS, subtitled, MYALGIC ENCEPHALOMYELITIS (ME) Also Known As: CHRONIC FATIGUE SYNDROME by Rebecca Susan Culbertson, MSW/LISW. Foreword by Dr. Cherla Meisterman, PhD, LISW. HELP ME! This book pleads for families, partners and friends to educate themselves about this horrific illness that literally rips families apart. Divorce rates are over 75% for couples when a spouse has been diagnosed with ME/CFS. A frightening statistic. This book is written for those who have been diagnosed with Chronic Fatigue Syndrome (CFS), Myalgic Encephalomyelitis (ME), Fibromyalgia, or any other chronic debilitating disease. It is written for those who are in limbo, suffering still without a diagnosis, and this book is also written to educate families and friends of persons with ME/CFS. This book will help you learn how to maintain your dignity while dealing with doctors who doubt your illness. You will discover self reporting charts later in this book for use with family, physicians, employers and others. It is difficult to maintain your self confidence if persons in your life do not understand the current state of your functioning. It is of vital importance to educate those around you, when you are able. This book can be a tool to that end. The book provides information about when and how to apply for disability insurance you certainly deserve. Are you watching your former financial security implode right before your eyes? Learn how to deal with creditors and how to manage financial debt with less stress. The book will teach you techniques that the author has used in her Family Therapy Practice with patients in living lives of positivity, seeking happiness, and practicing humility. Learn methods of living with ME/CFS while still setting life goals to realistically achieve your dreams. And importantly, the book is written from the viewpoint of having been diagnosed with ME/CFS herself, and then filtered through her professional perspective as a psychotherapist. Michael McVicker a Prevention Specialist and Family Therapist, concludes this book, (in Chapter 26) with THE IMPORTANCE OF HAVING A PERSONAL SUPPORT SYSTEM. Michael uses true life storytelling mixed with humor to inform families from his section titled, A VIEW FROM THE SIDELINE. He tells his story from watching (at times helplessly) and supporting his spouse, the author of this book, through the misery this illness brings. He also writes through the lens of being a stepfather to their two teenage sons, and watching their ascent into adulthood. He deals with topics not currently addressed in other ME/CFS literature currently available, including sex and intimacy. Divorce is seldom the most ecological solution to this real life crisis. Divorce only exacerbates the familial problems. Dr. Cherla Meisterman, PhD, LISW, (Dr. Cherla's Musings, Chapter 18) offers methods of treating patients with ME/CFS, and attempts to invite other professional therapists to join her in treating this very needy population. With divorce rates so high, questions arise about why more ME/CFS patients do not seek psychotherapy treatment. To me, as a ME/CFS sufferer, it is very clear. Treatment is financially prohibitive, and more importantly persons with this diagnosis have been told verbally and nonverbally, over and over "it's all in your head". So why would any ME/CFS patient want to go to psychotherapy? ("Why go and prove the wrong headed physicians correct - "it's all in my head"?) If the patient is supported by his or her partner, and if the patient feels believed that their illness is real, then psychotherapy may become an option that could potentially save relationships and lower divorce rates. Dr. Cherla addresses how to go about selecting the best therapist for you, and things to consider prior to making that phone call. There are worksheets included for your written expression, and for use with physicians, family members, and others.
A practical guide to overcoming chronic fatigue, adrenaline fatigue syndrome and chronic low energy, by a renowned health expert. Get to the root cause of your chronic fatigue diagnosis and discover a clinically proven 12-step plan to healing, recovery and transformation. Living with fatigue can feel hopeless and confusing, with traditional medical approaches focusing on managing symptoms rather than understanding and addressing underlying causes. But healing is possible when you learn to decode your fatigue and apply the right interventions, in the right sequence, at the right time. After suffering from chronic fatigue for seven years, renowned health expert Alex Howard founded one of the world's leading clinics specializing in fatigue, and has dedicated over 20 years to understanding this condition. This book will guide you through a clinically proven methodology to help you to: · Understand the underlying factors that cause fatigue · Discover the key steps to increasing your energy sustainably · Map out your personalized plan for recovery This revolutionary 12-step approach will not only help you to decode your fatigue, but also start to create your own path to healing and transformation.
Author : David S. Bell Publisher : Da Capo Press, Incorporated Page : 314 pages File Size : 45,9 Mb Release : 1994-01-20 Category : Health & Fitness ISBN : UOM:49015001471672
The Doctor's Guide To Chronic Fatigue Syndrome by David S. Bell Pdf
Written by the nation's most recognized CFIDS' authority, this book is the definitive, up-to-date guide to the history, symptoms, effects, theories, treatment, continuing research, and recent advances on CFIDS. Now anyone touched by this devastating illness can have the solid information they need to understand, treat, and live with CFIDS.
Byron M. Hyde,Jay A. Goldstein,Paul H. Levine,Nightingale Research Foundation
Author : Byron M. Hyde,Jay A. Goldstein,Paul H. Levine,Nightingale Research Foundation Publisher : Unknown Page : 760 pages File Size : 47,6 Mb Release : 1992 Category : Health & Fitness ISBN : UOM:39015029223727
The Nightingale Research Foundation Review of the Clinical and Scientific Basis of Myalgic Encephalomyelitis/chronic Fatigue Syndrome by Byron M. Hyde,Jay A. Goldstein,Paul H. Levine,Nightingale Research Foundation Pdf
See the world from another unique perspective in the thrilling new novel from the author of I Have No Secrets .Nothing ever happens on Kasia's street. Kasia would know because her illness makes her spend days stuck at home, watching the world outside from her bedroom window. So when she sees what looks like a kidnapping, she's not sure whether she can believe her own eyes... There was a girl in the window opposite - she must have seen it too. When Kasia goes to find her she is told the most shocking thing of all: there is no girl.An eye-opening and compulsive page-turner for readers aged 12 and up.
I Have Fibromyalgia / Chronic Fatigue Syndrome, But It Doesn't Have Me! a Memoir by Chantal K. Hoey-Sanders Pdf
You are not alone, you can change your life and reverse this highly frustrating, emotionally confusing, very often unrecognized "invisible" illness, Fibromyalgia and Chronic Fatigue Syndrome. Chantal's book will bring you hope, insightful tips and positive results.
Join Dr. Hng on her tragic and eye-opening journey with Myalgic Encephalomyelitis. Her engaging account provides valuable insight into this misunderstood disease. She follows her story with important information on definitions and treatments, touching on the controversy that mars this field. With humanity, wit, and links to a variety of resources, this little book is the ideal launch pad for health care professionals learning about ME. "Heartbreaking... vivid imagery... Your story will enlighten many who question the existence of ME." Dr. S. Chauwan, Consultant Neurologist. "For the first time I feel like this is a serious illness." Dr Deepak Nama, Consultant Respiratory and Acute Medicine. "The fact that Dr. Hng had to suffer for so long before being diagnosed is a serious reflection on current medical education in the UK." Dr. Nigel Speight, Consultant Paediatrician and ME specialist.
Chronic Fatigue Syndrome (CFS/ME) affects around 250,000 people in the UK, and an estimated one million in the USA. With a characteristic profile of severe exhaustion, flu-like symptoms, and unrefreshing sleep, it has no cure, but often improves with treatment and self-help. This book, by an expert who herself experienced chronic fatigue, presents the latest thinking on the condition, along with tried and tested advice on how to manage it.
Chronic Fatigue Syndrome For Dummies by Susan R. Lisman, M.D.,Karla Dougherty Pdf
You’ve been repeatedly poked, prodded, tested and scanned, yet, despite how awful you feel, your doctor, like many of your friends, co-workers, and family members have begun dropping subtle (and some not-so-subtle) hints that they think it’s “all in your head.” Maybe you’re one of the lucky few CFS sufferers who’ve received an accurate diagnosis but nothing your health care provider does seems to help. Well, you’re not alone. According to recent estimates, of the approximately 800,000 Americans with CFS, more than 90% have been misdiagnosed, dismissed, or are not receiving proper treatment. Don’t despair, help has arrived. Written by a national expert who has successfully treated scores of CFS patients in her own practice, Chronic Fatigue Syndrome for Dummies gives you the knowledge and tools you need to beat CFS and get back to living a normal life. In plain English Doctor Susan Lisman fills you in on: What CFS is, how you get it, and how it effects your body Its major symptoms and warning signs Getting an accurate diagnosis Avoiding situations that might be making you sicker Teaming up with the right doctor and crafting a treatment plan The most effective drugs, therapies and alternative approaches Coping with CFS in your personal and professional lives Packed with checklists, self-tests, questionnaires, and other powerful tools, and featuring many inspiring real-life stories of patients who’ve licked CFS, Chronic Fatigue Syndrome for Dummies puts you on the road to recovery.