Care Of Adults With Chronic Childhood Conditions

Author : Mariecel Pilapil,David E. DeLaet,Alice A. Kuo,Cynthia Peacock,Niraj Sharma
Publisher : Springer
Page : 436 pages
File Size : 52,6 Mb
Release : 2016-11-24
Category : Medical
ISBN : 9783319438276

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Care of Adults with Chronic Childhood Conditions by Mariecel Pilapil,David E. DeLaet,Alice A. Kuo,Cynthia Peacock,Niraj Sharma Pdf

This book addresses the unique healthcare needs of adults with chronic childhood illnesses. It presents a model of primary and secondary prevention for emerging adulthood—primary prevention in which all young adults are screened for high-risk behaviors and health needs and secondary prevention in which young adults with chronic childhood conditions are optimized through coordinated care, connections to community resources and social/family support. This book is organized in five parts. Part I provides a detailed overview of the health care transition from pediatrics to adult medicine from both a policy and practice perspective. In Part II, the concept of emerging adulthood as a developmental period is explored and strategies for providing improved comprehensive care for this age group are discussed. Part III reviews specific chronic childhood conditions, such as attention-deficit/hyperactivity disorder, autism, cystic fibrosis, and diabetes mellitus, and offers clinical cases and summary reports that can be used as a quick guides to each condition. In Part IV, additional clinical considerations that are not necessarily condition-specific but are highly relevant to the care of young adults with chronic childhood conditions are examined. Part V describes the socio-legal issues involved in caring for this population. Care of Adults with Chronic Childhood Conditions provides primary care providers with a new framework for the care of young adults and identifies opportunities to influence patient health outcomes over a life trajectory.

Author : Christine Eiser
Publisher : Cambridge University Press
Page : 190 pages
File Size : 42,9 Mb
Release : 1990-09-27
Category : Family & Relationships
ISBN : 0521386829

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Chronic Childhood Disease by Christine Eiser Pdf

The author draws extensively on the published research findings in child health psychology, and also on her own experience of working with pediatric medical and nursing staff. The emphasis throughout her book is on coping, and helping families to cope, with the stresses imposed by chronic childhood illness. Frequent hospital admissions, pain and its evaluation and control, adjustment and sources of support, communication, education and programs for intervention, all of these topics are discussed sensitively and with authority.

Author : Albert C. Hergenroeder,Constance M. Wiemann
Publisher : Springer
Page : 394 pages
File Size : 50,6 Mb
Release : 2018-05-03
Category : Medical
ISBN : 9783319728681

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Health Care Transition by Albert C. Hergenroeder,Constance M. Wiemann Pdf

This comprehensive book thoroughly addresses all aspects of health care transition of adolescents and young adults with chronic illness or disability; and includes the framework, tools and case-based examples needed to develop and evaluate a Health Care Transition (HCT) planning program that can be implemented regardless of a patient’s disease or disability. Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is a uniquely inclusive resource, incorporating youth/young adult, caregiver, and pediatric and adult provider voices and perspectives. Part I of the book opens by defining Health Care Transition, describing the urgent need for comprehensive transition planning, barriers to HCT and then offering a framework for developing and evaluating health care transition programs. Part II focuses on the anatomic and neuro-chemical changes that occur in the brain during adolescence and young adulthood, and how they affect function and behavior. Part III covers the perspectives of important participants in the HCT transition process – youth and young adults, caregivers, and both pediatric and adult providers. Each chapter in Part IV addresses a unique aspect of developing HCT programs. Part V explores various examples of successful transition from the perspective of five key participants in the transition process - patients, caregivers, pediatric providers, adult providers and third party payers. Related financial matters are covered in part VI, while Part VII explores special issues such as HCT and the medical home, international perspectives, and potential legal issues. Models of HCT programs are presented in Part VIII, utilizing an example case study. Representing perspectives from over 75 authors and more than 100 medical centers in North America and Europe, Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is an ideal resource for any clinician, policy maker, caregiver, or hospitalist working with youth in transition.

Author : Dennis Drotar
Publisher : Psychology Press
Page : 515 pages
File Size : 47,8 Mb
Release : 2000-08
Category : Medical
ISBN : 9781135666422

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Promoting Adherence to Medical Treatment in Chronic Childhood Illness by Dennis Drotar Pdf

This interdisciplinary edited volume addresses critical gaps in scientific understanding of adherence/compliance to treatment regimens in chronic health conditions for children & Ados.

Author : Patricia Jackson Allen,Judith A. Vessey,Naomi Schapiro
Publisher : Elsevier Health Sciences
Page : 880 pages
File Size : 51,9 Mb
Release : 2009-06-25
Category : Medical
ISBN : 9780323080880

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Primary Care of the Child With a Chronic Condition E-Book by Patricia Jackson Allen,Judith A. Vessey,Naomi Schapiro Pdf

Written by nurse practitioners for nurse practitioners, this one-of-a-kind resource provides the expert guidance you need to provide comprehensive primary care to children with special needs and their families. It addresses specific conditions that require alterations in standard primary care and offers practical advice on managing the major issues common to children with chronic conditions. A consistent format makes it easy to locate essential information on each condition. Plus, valuable resources help you manage the issues and gaps in health care coverage that may hinder quality care. This is the only book authored by Nurse Practitioners that focuses on managing the primary health care needs of children with chronic conditions. More than 60 expert contributors provide the most current information available on specific conditions. Comprehensive summary boxes at the end of all chronic conditions chapters provide at-a-glance access to key information. Resource lists at the end of each chronic condition chapter direct you to helpful websites, national organizations, and additional sources of information that you can share with parents and families. Updated references ensure you have access to the most current, evidence-based coverage of the latest research findings and management protocols. Four new chapters — Celiac Disease, Eating Disorders, Muscular Dystrophy, and Obesity — keep you up to date with the latest developments in treating these conditions. Autism content is updated with the latest research on autism spectrum disorders, including current methods of evaluation, identification, and management. Coverage of systems of care features new information on how to help families obtain high-quality and cost-effective coordinated services within our complex health care system. Easy-to-find boxes in the chronic conditions chapters summarize important information on treatment, associated problems, clinical manifestations, and differential diagnosis.

Author : Ruth E. K. Stein
Publisher : Churchill Livingstone
Page : 340 pages
File Size : 44,8 Mb
Release : 1989
Category : Family & Relationships
ISBN : UOM:39015014463627

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Caring for Children with Chronic Illness by Ruth E. K. Stein Pdf

Author : Debra P. Hymovich,Gloria Ann Hagopian
Publisher : Unknown
Page : 356 pages
File Size : 48,8 Mb
Release : 1992
Category : Adaptability (Psychology)
ISBN : UOM:39015020592906

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Chronic Illness in Children and Adults by Debra P. Hymovich,Gloria Ann Hagopian Pdf

Provides a model to analyze the impact of chronic illness on the large population, patients and families, who are affected by it. Illustrates a systematic approach for psychosocial assessment and interventions. This text brings together ideas from extensive research and provides a perspective on chronic illness throughout the lifespan. Through case studies and a well researched nursing model, the book provides innovative approaches for the hospital and community-based nurse. Special features include a review of literature specific to chronicity, excellent diagrams and charts to highlight content, and chapters on time, coping, orientation to life, and stressors.

Author : Roger Bradford
Publisher : Routledge
Page : 242 pages
File Size : 50,5 Mb
Release : 2002-01-04
Category : Psychology
ISBN : 9781134789498

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Children, Families and Chronic Disease by Roger Bradford Pdf

Chronic childhood disease brings psychological challenges for families and carers as well as the children. Roger Bradford explores how they cope with these challenges, the psychological and social factors that influence outcomes and the ways in which the delivery of services can be improved to promote adjustment. Drawing on concepts from health psychology and family therapy, the author proposes a multi-level model of care which takes into account the child, the family and the wider care system and how they interrelate and influence each other.

Author : Frank J. Sileo,Carol S. Potter
Publisher : American Psychological Association
Page : 272 pages
File Size : 48,7 Mb
Release : 2021-03-09
Category : Family & Relationships
ISBN : 9781433833823

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When Your Child Has a Chronic Medical Illness by Frank J. Sileo,Carol S. Potter Pdf

Silver Medal for Parenting in the Independent Publishers Awards "This is an outstanding book that addresses the challenges of chronic disease in children from multiple viewpoints with a great deal of practical knowledge. Given that Diabetes is one of the most common chronic diseases of childhood, this work will serve to guide families in navigating the sometimes challenging journey to ensure the best possible outcomes for all." - Robert Gabbay, MD, PhD, Chief Scientific and Medical Officer for the American Diabetes Association Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you’re focused on ensuring your child gets the best possible treatments for their symptoms, it’s easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Author : Patricia Jackson Allen,Judith A. Vessey
Publisher : Unknown
Page : 904 pages
File Size : 44,7 Mb
Release : 2000
Category : Health & Fitness
ISBN : UOM:39015047845931

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Primary Care of the Child with a Chronic Condition by Patricia Jackson Allen,Judith A. Vessey Pdf

PRIMARY CARE OF THE CHILD WITH A CHRONIC CONDITION provides pediatric health care professionals with the knowledge necessary to give comprehensive primary care to children with special needs and their families. Part I addresses the major issues common to care of all children with chronic conditions: the role of the primary care provider, the impact of a chronic condition on the childs development; the impact on the family; school issues; ethical and cultural concerns; and the financial resources needed to support the care of a child with a chronic condition. Part II identifies specific chronic conditions and the alterations in standard primary care practices needed to promote optimum health. expert contributors to provide the most accurate and current information available. Includes boxes on Clinical Manifestations, Diagnostic Criteria, Differential Diagnosis, and Treatment to highlight these important features and make it easy for the reader to access this information in the Chronic Conditions chapters. Provides comprehensive summary boxes at the end of the chronic condition chapter. Presents all conditions in a consistent format, using the following organizion: Etiology Incidence Clinical Manifestations Treatment Associated Problems Prognosis Primary Care Management: Health Care Maintenance and Common Illness Management Developmental Issues Family Concerns and Resources Provides the latest treatment information available with thoroughly revised andupdated content. Includes thorough revisions to Chapter 7, Financing Health Care for Children With Chronic Conditions, to reflect the many changes in the health care industry, including managed care. Features a new chapter on Transition into Adulthood, Chapter 8, to address this important phase of adolescent development. The chapter addresses the difficulties encountered by children with chronic conditions and coverstransition in health care, transition to independent living, transition to secondary education or vocation, laws regarding transition planning, and the role of primary care providers. Includes a new chapter on Autism, Chapter 10, to focus on the large number of children being diagnosed with autism, and includes information on mainstreaming children with autism, and how this practise is increasing. Provides pertinent web site addresses in the resource lists at the end of each chapter for additional sources of information.

Author : Julie C. Lima,Susan Allen
Publisher : Unknown
Page : 178 pages
File Size : 49,7 Mb
Release : 2008
Category : Medical
ISBN : 1604975768

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The Availability of Care for Late-middle-aged Adults with Chronic Conditions by Julie C. Lima,Susan Allen Pdf

Among the most critical issues facing society today is the provision of community support for people of all ages who require assistance in performing daily living tasks. Researchers have documented the support systems and needs of older persons, children with special health care needs, and young persons transitioning into adulthood. While the United States may not yet have solved many of the challenges of providing adequate supports to these populations, researchers at least have a good sense of the nature of those challenges and are working toward that end. Somewhat surprising, then, is the nearly complete lack of knowledge about the support systems and needs of a rapidly growing population of adults who are not yet considered old but who nevertheless need help due to traumatic injury, the congenital illnesses of childhood and young adulthood, and/or the early onset of chronic diseases typically associated with later life (e.g., arthritis, heart disease and cancer). Specifically, researchers know little about the millions of Americans who require assistance during the period of late middle age, a transition phase between middle age and the older years, when activity limitations associated with a chronic condition escalate sharply. The largest generation in American history to date--the baby boom generation--has begun to enter late middle age, the oldest of whom turned sixty in 2006. While the research community looks ahead to the likely strains this generation will place on the formal long-term care system, Medicare, and the Social Security system in the near future, those who find themselves in need of personal care in late middle age must first pass through a particularly vulnerabletime before they are eligible to benefit from the safety net these systems afford. Because late-middle-aged adults are often considered the "carers" of society (many caring for dependent children or aging parents, and often both), we do not often think of this group as vulnerable and in need of help themselves. They, more than others, are left to rely on their own financial and family support systems to get through their difficult time, while at the same time planning and preparing for the possibility of living another 20 years or more with chronic illnesses and conditions. Up until now, we have known very little about how, and how well, they manage. In this first critical study of the availability and receipt of care for late-middle-aged adults, Julie Lima and Susan Allen uncover a host of vulnerabilities that challenge the wellbeing of those who find themselves in need of personal assistance at a critical point in their lives. Using a lifecourse approach, they outline the care needs of older adults in various stages of life, as well as the sociodemographic and policy trends that influence the amounts and types of care that are available, and that will likely be available in the near future. Since so little was known about the care needs of this group prior to this work, this book is largely descriptive in nature, and the authors intend for it to lay the groundwork for future work in this area. This is an important book for all gerontology, disability, and lifecourse collections.

Author : Nicholas Hobbs
Publisher : Unknown
Page : 1004 pages
File Size : 53,8 Mb
Release : 1985
Category : Children
ISBN : UOM:39015040515440

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Issues in the Care of Children with Chronic Illness by Nicholas Hobbs Pdf

Author : Frank J. Sileo,Carol S. Potter
Publisher : American Psychological Association (APA)
Page : 419 pages
File Size : 52,5 Mb
Release : 2021-01-26
Category : Family & Relationships
ISBN : 1433833816

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When Your Child Has a Chronic Medical Illness by Frank J. Sileo,Carol S. Potter Pdf

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you're focused on ensuring your child gets the best possible treatments for their symptoms, it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Author : Jane N. T. Sattoe,AnneLoes van Staa,Sander R. Hilberink
Publisher : Springer Nature
Page : 179 pages
File Size : 53,8 Mb
Release : 2021-01-28
Category : Medical
ISBN : 9783030642938

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Self-Management of Young People with Chronic Conditions by Jane N. T. Sattoe,AnneLoes van Staa,Sander R. Hilberink Pdf

This book focuses on young people (12-25 years old) growing up with a chronic somatic condition and/or physical disability, facing different challenges during their transition to adulthood and to adult healthcare services. Becoming an adult often proves extra challenging for them, because the adaptive tasks related to living with a chronic condition can clash with developmental milestones. Finding a good balance and integrating these tasks in daily life is also referred to as self-management. This book addresses self-management and empowerment of young people with chronic conditions as well as the Positive Youth Development concept. It elaborates on theories and approaches and offers a complete overview of self-management interventions for young people with chronic conditions, emphasizing on the tasks of medical, emotion and role management. It also elaborates on the roles and tasks of professionals, as well as the patient-provider relationship; the shifting roles between young people and their parents and the role of peer support. This book is unique in its broad view on self-management, i.e. it goes beyond medical management and focuses on young people achieving their maximum potential and a good quality of life. Furthermore, the book employs a positive youth development approach, focusing on empowerment and growth rather than problems or issues. It offers an overview of the state-of-the-art and evidence concerning self-management support for young people with various chronic conditions. As such it is of benefit for all healthcare professionals working in care for young people, but also for researchers interested in this topic.

Author : Yuko Ishizaki,Mitsue Maru,Ryota Ochiai
Publisher : Frontiers Media SA
Page : 158 pages
File Size : 47,7 Mb
Release : 2023-03-16
Category : Medical
ISBN : 9782832517697

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Advances of health care transition for patients with childhood-onset chronic diseases: International perspectives, volume II by Yuko Ishizaki,Mitsue Maru,Ryota Ochiai Pdf