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Author : SUSAN. LOWEY
Publisher : Unknown
Page : 128 pages
File Size : 45,6 Mb
Release : 2019
Category : Electronic
ISBN : OCLC:1096517749
Author : Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues
Publisher : National Academies Press
Page : 638 pages
File Size : 41,8 Mb
Release : 2015-03-19
Category : Medical
ISBN : 9780309303132
For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
Author : Committee on Care at the End of Life,Institute of Medicine
Publisher : National Academies Press
Page : 457 pages
File Size : 47,7 Mb
Release : 1997-10-30
Category : Medical
ISBN : 9780309518253
When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."
Author : Timothy E. Quill
Publisher : Oxford University Press
Page : 265 pages
File Size : 54,5 Mb
Release : 2001-03-22
Category : Medical
ISBN : 9780199748914
In Caring for Patients at the End of Life: Facing an Uncertain Future Together, Dr. Quill uses his wide range of clinical experience caring for severely ill patients and their families to illustrate the challenges and potential of end-of-life care. Section one utilizes the near death experiences of two patients to explore values underlying medical humanism, and then presents the case of "Diane" to explore the fundamental clinical commitments of partnership and non-abandonment. Section two explores, illustrates, and provides practical guidance for clinicians, patients, and families about critical communication issues including delivering bad news, discussing palliative care, and exploring the wish to die. In section three, difficult ethical and policy challenges inherent in hospice work, including the rule of double effect, terminal sedation, and physician-assisted suicide, are explored using a mix of real cases and an analysis of underlying clinical, ethical, and policy issues. In a final chapter, Dr. Quill discusses the tragic death of his brother which occurred as this book was being completed, and how his family made the most emotionally challenging decisions of their lives. Dr. Quill exposes readers to an internally consistent and practical way of thinking by simultaneously embracing the potential of palliative care, and also acknowledging that it has limitations. His philosophy of offering forthright discussions with patient and family, mutual decision-making, ensuring medical and palliative care expertise and of committing to see the dying process through to the patient's death is vividly illustrated.
Author : Joyce V Zerwekh
Publisher : F.A. Davis
Page : 473 pages
File Size : 50,6 Mb
Release : 2005-12-28
Category : Medical
ISBN : 9780803620285
Nursing Care at the End of Life: Palliative Care for Patients and Families explores the deep issues of caring for the dying and suffering. The book is based on the Hospice Family Caregiving Model previously published by the author and focuses on the practice implications of care for the dying. The book is written in a clear and user-friendly style, and is ideal for undergraduate nursing students learning about dying, suffering, and caring for individuals and their families.
Author : Karen Hertz,Julie Santy-Tomlinson
Publisher : Springer
Page : 169 pages
File Size : 42,6 Mb
Release : 2018-06-15
Category : Medical
ISBN : 9783319766812
This open access book aims to provide a comprehensive but practical overview of the knowledge required for the assessment and management of the older adult with or at risk of fragility fracture. It considers this from the perspectives of all of the settings in which this group of patients receive nursing care. Globally, a fragility fracture is estimated to occur every 3 seconds. This amounts to 25 000 fractures per day or 9 million per year. The financial costs are reported to be: 32 billion EUR per year in Europe and 20 billon USD in the United States. As the population of China ages, the cost of hip fracture care there is likely to reach 1.25 billion USD by 2020 and 265 billion by 2050 (International Osteoporosis Foundation 2016). Consequently, the need for nursing for patients with fragility fracture across the world is immense. Fragility fracture is one of the foremost challenges for health care providers, and the impact of each one of those expected 9 million hip fractures is significant pain, disability, reduced quality of life, loss of independence and decreased life expectancy. There is a need for coordinated, multi-disciplinary models of care for secondary fracture prevention based on the increasing evidence that such models make a difference. There is also a need to promote and facilitate high quality, evidence-based effective care to those who suffer a fragility fracture with a focus on the best outcomes for recovery, rehabilitation and secondary prevention of further fracture. The care community has to understand better the experience of fragility fracture from the perspective of the patient so that direct improvements in care can be based on the perspectives of the users. This book supports these needs by providing a comprehensive approach to nursing practice in fragility fracture care.
Author : Rod MacLeod,Roderick Duncan MacLeod,Lieve Van den Block
Publisher : Unknown
Page : 0 pages
File Size : 48,6 Mb
Release : 2019
Category : Medicine
ISBN : 3319317385
"Textbook of Palliative Care is a comprehensive, clinically relevant and state-of-the art book, aimed at advancing palliative care as a science, a clinical practice and as an art. Palliative care has been part of healthcare for over fifty years but we still find ourselves having to explain its nature and practice to colleagues and to the public in general. Healthcare education and training has been slow to recognize the vital importance of ensuring that all practitioners have a good understanding of what is involved in the care of people with serious or advanced illnesses and their families. However, the science of palliative care is advancing and our understanding concerning many aspects of palliative care is developing rapidly. The book is divided into separate sections for ease of use. Over 100 chapters written by experts in their given fields provide up-to-date information on a wide range of topics of relevance to those providing care towards the end of life no matter what the disease may be. We present a global perspective on contemporary and classic issues in palliative care with authors from a wide range of disciplines involved in this essential aspect of care. The Textbook includes sections addressing aspects such as symptom management and care provision, organization of care in different settings, care in specific disease groups, palliative care emergencies, ethics, public health approaches and research in palliative care. This Textbook will be of value to practitioners in all disciplines and professions where the care of people approaching death is important, specialists as well as non-specialists, in any setting where people with serious advanced illnesses are residing. It is also an important resource for researchers, policy-and decision-makers at national or regional levels. Neither the science nor the art of palliative care will stand still so we aim to keep this Textbook updated as the authors find new evidence and approaches to care. ." - Prové de l'editor.
Author : Mohammad Nadeemullah
Publisher : Xlibris Corporation
Page : 132 pages
File Size : 44,8 Mb
Release : 2022-02-08
Category : Education
ISBN : 9781669804475
Palliative care and hospice emerged as a specialty in 2008, with the need to better understand the pathophysiology of chronic suffering, major symptoms at the end of life, and evidence-based management of these symptoms. The common symptoms at the end of life are few, and if appropriately identified and treated, 90 percent or more of patients experience a comfortable, dignified, and peaceful death at their place of preference. Although traditional medical education and training is focused on curing the patient, often we are faced with situations where a cure is not possible and a patient will suffer due to the disease itself or complications of treatment. This book discusses understanding disease patterns, progression, prognostication, preferences, and goals of treatment. Other topics covered include hospice philosophy, Medicare guidelines, and structure of services.
Author : Roi Livne
Publisher : Unknown
Page : 361 pages
File Size : 47,8 Mb
Release : 2019
Category : Medical
ISBN : 9780674545175
Once defiant of death--or even in denial--many American families and health care professionals are embracing the notion that a life consumed by suffering may not be worth living. Sociologist Roi Livne documents the rise and effectiveness of hospice and palliative care, and the growing acceptance that less treatment may be better near the end of life.
Author : Bronnie Ware
Publisher : Hay House, Inc
Page : 322 pages
File Size : 44,5 Mb
Release : 2019-08-13
Category : Self-Help
ISBN : 9781401956004
Revised edition of the best-selling memoir that has been read by over a million people worldwide with translations in 29 languages. After too many years of unfulfilling work, Bronnie Ware began searching for a job with heart. Despite having no formal qualifications or previous experience in the field, she found herself working in palliative care. During the time she spent tending to those who were dying, Bronnie's life was transformed. Later, she wrote an Internet blog post, outlining the most common regrets that the people she had cared for had expressed. The post gained so much momentum that it was viewed by more than three million readers worldwide in its first year. At the request of many, Bronnie subsequently wrote a book, The Top Five Regrets of the Dying, to share her story. Bronnie has had a colourful and diverse life. By applying the lessons of those nearing their death to her own life, she developed an understanding that it is possible for everyone, if we make the right choices, to die with peace of mind. In this revised edition of the best-selling memoir that has been read by over a million people worldwide, with translations in 29 languages, Bronnie expresses how significant these regrets are and how we can positively address these issues while we still have the time. The Top Five Regrets of the Dying gives hope for a better world. It is a courageous, life-changing book that will leave you feeling more compassionate and inspired to live the life you are truly here to live.
Author : Ira Byock
Publisher : Simon and Schuster
Page : 272 pages
File Size : 44,5 Mb
Release : 2014-06-10
Category : Language Arts & Disciplines
ISBN : 9781476748535
"With a new introduction and additional stories"--Jacket.
Author : Ira Byock
Publisher : Penguin
Page : 338 pages
File Size : 53,8 Mb
Release : 2012-03-15
Category : Social Science
ISBN : 9781101561041
A palliative care doctor on the front lines of hospital care illuminates one of the most important and controversial ethical issues of our time on his quest to transform care through the end of life. It is harder to die in this country than ever before. Statistics show that the vast majority of Americans would prefer to die at home, yet many of us spend our last days fearful and in pain in a healthcare system ruled by high-tech procedures and a philosophy to "fight disease and illness at all cost." Dr. Ira Byock, one of the foremost palliative-care physicians in the country, argues that end-of-life care is among the biggest national crises facing us today. In addressing the crisis, politics has trumped reason. Dr. Byock explains that to ensure the best possible care for those we love-and eventually ourselves- we must not only remake our healthcare system, we must also move past our cultural aversion to talking about death and acknowledge the fact of mortality once and for all. Dr. Byock describes what palliative care really is, and-with a doctor's compassion and insight-puts a human face on the issues by telling richly moving, heart-wrenching, and uplifting stories of real people during the most difficult moments in their lives. Byock takes us inside his busy, cutting-edge academic medical center to show what the best care at the end of life can look like and how doctors and nurses can profoundly shape the way families experience loss. Like books by Atul Gawande and Jerome Groopman, The Best Care Possible is a compelling meditation on medicine and ethics told through page-turning, life or death medical drama. It is passionate and timely, and it has the power to lead a new kind of national conversation.
Author : David A. Fleming,John C. Hagan
Publisher : University of Missouri Press
Page : 172 pages
File Size : 42,5 Mb
Release : 2010-04-15
Category : Medical
ISBN : 9780826272218
Although the need for improved care for dying patients is widely recognized and frequently discussed, few books address the needs of the physicians, nurses, social workers, therapists, hospice team members, and pastoral counselors involved in care. Care of the Dying Patient contains material not found in other sources, offering advice and solutions to anyone—professional caregiver or family member—confronted with incurable illness and death. Its authors have lectured and published extensively on care of the dying patient and here review a wide range of topics to show that relief of physical suffering is not the only concern in providing care. This collection encompasses diverse aspects of end-of-life care across multiple disciplines, offering a broad perspective on such central issues as control of pain and other symptoms, spirituality, the needs of caregivers, and special concerns regarding the elderly. In its pages, readers will find out how to: effectively utilize palliative-care services and activate timely referral to hospice, arrange for care that takes into account patients’ cultural beliefs, and respond to spiritual and psychological distress, including the loss of hope that often overshadows physical suffering. The authors especially emphasize palliative care and hospice, since some physicians fear that such referrals may be viewed by patients and families as abandonment. They also address ethical and legal risks in pain management and warn that fear of overprescribing pain medication may inadvertently lead to ineffective pain relief and even place the treating team at risk of liability for undertreatment of pain. While physicians have the ability to treat disease, they also help to determine the time and place of death, and they must recognize that end-of-life choices are made more complex than ever before by advances in medicine and at the same time increasingly important. Care of the Dying Patient addresses some of the challenges frequently confronted in terminal care and points the way toward a more compassionate way of death.
Author : American Medical Association
Publisher : Unknown
Page : 32 pages
File Size : 47,6 Mb
Release : 1897
Category : Medical ethics
ISBN : NWU:35558005316472
Author : Barry M. Kinzbrunner,Joel Policzer
Publisher : McGraw Hill Professional
Page : 881 pages
File Size : 40,9 Mb
Release : 2011-01-07
Category : Medical
ISBN : 9780071766616
The most thorough text available on providing patients and families with quality end-of-life care "The study/learning questions at the end of each chapter make this book an excellent resource for both faculty who wish to test knowledge, and individual learners who wish to assess their own learning....The book is well written and easy to read. 3 Stars."--Doody's Review Service End of Life Care: A Practical Guide offers solution-oriented coverage of the real-world issues and challenges that arise daily for clinicians caring for those with life-limiting illnesses and conditions. End of Life Care: A Practical Guide includes specific clinical guidance for pain management and other common end of life symptoms. The second edition has been made even more essential with the addition of chapter-ending Q&A for self assessment and board review, new coverage of multicultural medicine, an increased number of algorithms to assist decision making on complicated clinical, legal, and ethical issues. Six sections walk you through the complexities of caring for patients who are nearing the end of life: Preparing Patients for End of Life Management of Symptoms Diagnostic and Invasive Interventions Ethical Dilemmas Special Populations Diversity No other text better assists physicians and other clinicians in providing patients near the end of life with support, guidance, and hope in the face of “hopelessness” than End of Life Care: A Practical Guide.
