Choosing Down Syndrome

Author : Chris Kaposy
Publisher : MIT Press
Page : 237 pages
File Size : 48,8 Mb
Release : 2022-08-09
Category : Science
ISBN : 9780262546249

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Choosing Down Syndrome by Chris Kaposy Pdf

An argument that more people should have children with Down syndrome, written from a pro-choice, disability-positive perspective. The rate at which parents choose to terminate a pregnancy when prenatal tests indicate that the fetus has Down syndrome is between 60 and 90 percent. In Choosing Down Syndrome, Chris Kaposy offers a carefully reasoned ethical argument in favor of choosing to have such a child. Arguing from a pro-choice, disability-positive perspective, Kaposy makes the case that there is a common social bias against cognitive disability that influences decisions about prenatal testing and terminating pregnancies, and that more people should resist this bias by having children with Down syndrome. Drawing on accounts by parents of children with Down syndrome, and arguing for their objectivity, Kaposy finds that these parents see themselves and their families as having benefitted from having a child with Down syndrome. To counter those who might characterize these accounts as based on self-deception or expressing adaptive preference, Kaposy cites supporting evidence, including divorce rates and observational studies showing that families including children with Down syndrome typically function well. Himself the father of a child with Down syndrome, Kaposy argues that cognitive disability associated with Down syndrome does not lead to diminished well-being. He argues further that parental expectations are influenced by neoliberal ideologies that unduly focus on the supposed diminished economic potential of a person with Down syndrome. Kaposy does not advocate restricting access to abortion or prenatal testing for Down syndrome, and he does not argue that it is ethically mandatory in all cases to give birth to a child with Down syndrome. People should be free to make important decisions based on their values. Kaposy's argument shows that it may be consistent with their values to welcome a child with Down syndrome into the family.

Author : Gareth M. Thomas
Publisher : Routledge
Page : 200 pages
File Size : 55,7 Mb
Release : 2017-03-16
Category : Health & Fitness
ISBN : 9781317338208

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Down's Syndrome Screening and Reproductive Politics by Gareth M. Thomas Pdf

Nominated for the Foundation of Sociology of Health and Illness Book Prize 2018 In the UK and beyond, Down’s syndrome screening has become a universal programme in prenatal care. But why does screening persist, particularly in light of research that highlights pregnant women’s ambivalent and problematic experiences with it? Drawing on an ethnography of Down’s syndrome screening in two UK clinics, Thomas explores how and why we are so invested in this practice and what effects this has on those involved. Informed by theoretical approaches that privilege the mundane and micro practices, discourses, materials, and rituals of everyday life, Down’s Syndrome Screening and Reproductive Politics describes the banal world of the clinic and, in particular, the professionals contained within it who are responsible for delivering this programme. In so doing, it illustrates how Down’s syndrome screening is ‘downgraded’ and subsequently stabilised as a ‘routine’ part of a pregnancy. Further, the book captures how this routinisation is deepened by a systematic, but subtle, framing of Down’s syndrome as a negative pregnancy outcome. By unpacking the complex relationships between professionals, parents, technology, policy, and clinical practice, Thomas identifies how and why screening is successfully routinised and how it is embroiled in both new and familiar debates surrounding pregnancy, ethics, choice, diagnosis, care, disability, and parenthood. The book will appeal to academics, students, and professionals interested in medical sociology, medical anthropology, science and technology studies (STS), bioethics, genetics, and/or disability studies.

Author : Mitchell Zuckoff
Publisher : Beacon Press
Page : 318 pages
File Size : 44,6 Mb
Release : 2003-09-02
Category : Family & Relationships
ISBN : 0807028177

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Choosing Naia by Mitchell Zuckoff Pdf

A dramatic and carefully detailed account of one family's journey through the maze of genetic counseling, medical technology, and disability rights; destined to become required reading for anyone touched by any of these issues.

Author : Rayna Rapp
Publisher : Routledge
Page : 377 pages
File Size : 52,8 Mb
Release : 2004-11-23
Category : Social Science
ISBN : 9781135963927

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Testing Women, Testing the Fetus by Rayna Rapp Pdf

Rich with the voices and stories of participants, these touching, firsthand accounts examine how women of diverse racial, ethnic, class and religious backgrounds perceive prenatal testing, the most prevalent and routinized of the new reproducing technologies. Based on the author's decade of research and her own personal experiences with amniocentesis, Testing Women, Testing the Fetus explores the "geneticization" of family life in all its complexity and diversity.

Author : Alison Piepmeier
Publisher : NYU Press
Page : 195 pages
File Size : 46,5 Mb
Release : 2021-02-23
Category : Social Science
ISBN : 9781479816637

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Unexpected by Alison Piepmeier Pdf

What prenatal tests and down syndrome reveal about our reproductive choices When Alison Piepmeier—scholar of feminism and disability studies, and mother of Maybelle, an eight-year-old girl with Down syndrome—died of cancer in August 2016, she left behind an important unfinished manuscript about motherhood, prenatal testing, and disability. In Unexpected, George Estreich and Rachel Adams pick up where she left off, honoring the important research of their friend and colleague, as well as adding new perspectives to her work. Based on interviews with parents of children with Down syndrome, as well as women who terminated their pregnancies because their fetus was identified as having the condition, Unexpected paints an intimate, nuanced picture of reproductive choice in today’s world. Piepmeier takes us inside her own daughter’s life, showing how Down syndrome is misunderstood, stigmatized, and condemned, particularly in the context of prenatal testing. At a time when medical technology is rapidly advancing, Unexpected provides a much-needed perspective on our complex, and frequently troubling, understanding of Down syndrome.

Author : Mari Schuh
Publisher : Amicus Publishing
Page : 28 pages
File Size : 51,5 Mb
Release : 2021
Category : Juvenile Nonfiction
ISBN : 9781645490784

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My Life with Down Syndrome by Mari Schuh Pdf

Meet Peter! He loves the drums and gym class. He also has Down Syndrome. Peter is real and so are his experiences. Learn about his life in this illustrated narrative nonfiction picture book for elementary students. Kids are naturally curious about differences and disabilities. Peter sheds light on his life, with the help of experienced children's author Mari Schuh. He's not defined by his condition, but he does some things differently than neurotypical people. Beautiful illustrations and a dyslexic-friendly font promote accessibility. Includes tips for kids about interacting with someone who has Down Syndrome.

Author : Kathryn Lynard Soper
Publisher : Special Needs Collection
Page : 0 pages
File Size : 49,6 Mb
Release : 2016
Category : Children with disabilities
ISBN : 1606132768

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Gifts by Kathryn Lynard Soper Pdf

This commemorative 10th anniversary edition of Gifts will include 10 new personal stories, along with "where are they now" updates on many of the children and families featured in the first edition. Gifts is the much-loved collection of over 60 essays written by mothers who share their truths about raising children with Down syndrome. Powerful then and powerful now, it affirms over and over that a life with an extra chromosome is one worth living.

Author : Rosamund Scott
Publisher : Bloomsbury Publishing
Page : 390 pages
File Size : 42,6 Mb
Release : 2007-12-20
Category : Law
ISBN : 9781847313805

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Choosing Between Possible Lives by Rosamund Scott Pdf

To what extent should parents be able to choose the kind of child they have? The unfortunate phrase 'designer baby' has become familiar in debates surrounding reproduction. As a reference to current possibilities the term is misleading, but the phrase may indicate a societal concern of some kind about control and choice in the course of reproduction. Typically, people can choose whether to have a child. They may also have an interest in choosing, to some extent, the conditions under which they do so, such as whether they have a child with a serious disability or disease. The purpose of this book is to explore the difficult and controversial question of the appropriate ethical and legal extent of reproductive autonomy in this context. The book examines ethical, legal and public policy issues in prenatal screening, prenatal diagnosis (PND), selective abortion and preimplantation genetic diagnosis (PGD). It explores the ethics of these selection practices and the ability of current ethical guidelines and legal mechanisms, including the law on selective abortion and wrongful birth, to deal with advances in genetic and other knowledge in these areas. Unlike in the United States, in England the relevant law is not inherently rights-based, but the impact of the Human Rights Act 1998 inevitably raises questions about the proper scope of reproductive autonomy in this context. The implications of the analysis are considered for the development of relevant law, public policy and ethical guidelines and will be of interest to academics in medical law and ethics, health professionals, lawyers, those working on public policy and students with an interest in these issues.

Author : Mia Goleniowska,Hayley Goleniowska
Publisher : Unknown
Page : 32 pages
File Size : 55,8 Mb
Release : 2014
Category : Electronic
ISBN : 099292510X

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I Love You Natty by Mia Goleniowska,Hayley Goleniowska Pdf

Author : Qadoshyah Fish
Publisher : Lulu.com
Page : 591 pages
File Size : 49,6 Mb
Release : 2008-11
Category : Family & Relationships
ISBN : 9780979496233

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Down Syndrome by Qadoshyah Fish Pdf

People with Down syndrome can do a lot; this is the reality. We will share with you, in this book, stories from people with Down syndrome who have excelled in many areas and live lives like many other people who do not have Down syndrome. We will also share with you stories about those with Down syndrome who have had medical problems and issues to deal with, yet give joy to those they come in contact with. -- Preface.

Author : William I. Cohen,Lynn Nadel,Myra E. Madnick
Publisher : John Wiley & Sons
Page : 493 pages
File Size : 53,9 Mb
Release : 2003-04-14
Category : Health & Fitness
ISBN : 9780471461227

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Down Syndrome by William I. Cohen,Lynn Nadel,Myra E. Madnick Pdf

Der Band bietet einen aktuellen Überblick über klinische, entwicklungsbezogene, psychosoziale, erziehungs- und berufsbezogene Fragen bei Patienten mit Down Syndrom. Er diskutiert auch die Konsequenzen des Human-Genom-Projektes und die Sequenzierung des Chromosom 21. Erörtert aktuellste Entwicklungen, u.a. zum Thema Sexualität, Einbeziehung, Übergang ins Erwachsenenalter und Rechtsprechung. Behandelt die aktuellsten Neuerungen der "Health Care Guidelines for Individuals with Down Syndrome". Enthält auch Material zu mitunter kontrovers diskutierten alternativen und unkonventionellen Therapieansätzen.

Author : Stephanie Lorenz
Publisher : Routledge
Page : 112 pages
File Size : 44,8 Mb
Release : 2012-10-12
Category : Education
ISBN : 9781136612411

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Children with Down's Syndrome by Stephanie Lorenz Pdf

This practical handbook offers advice on strategies for meeting the special educational needs of children with Down's syndrome in mainstream schools. The aim is to increase the confidence of support assistants, teachers, SENCOs and senior managers in both primary and secondary schools in providing a quality education for these pupils, while using scarce resources to best effect. The author offers an introduction to the particular characteristics of children with Down's syndrome and their impact on learning and behaviour. She considers the benefits of inclusive education and the most effective ways in which the National Curriculum can be made accessible. She also examines working with the whole-school, parents and outside agencies, as well as providing practical resources such as photocopiable proformas and checklists, materials for INSET in schools and support services and a list of reading materials.

Author : Jen Jacob,Mardra Sikora
Publisher : Simon and Schuster
Page : 256 pages
File Size : 46,7 Mb
Release : 2015-12-04
Category : Family & Relationships
ISBN : 9781440592911

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The Parent's Guide to Down Syndrome by Jen Jacob,Mardra Sikora Pdf

Help your child succeed and thrive! As a parent of a child diagnosed with Down syndrome, you may be feeling unsure of what to do next or where your child's journey will take you. In this book, authors Jen Jacob and Mardra Sikora share their experiences and guide you through life with Ds with expert advice from diagnosis to adulthood. Each page teaches you ways to support your child through major milestones; nurture their development; and ensure that they succeed behaviorally, socially, and cognitively. You'll also find valuable information on: Sharing the news with loved ones Transitioning into primary school Developing your child's social skills Discussing future opportunities, including employment and housing options With The Parent's Guide to Down Syndrome, you will have the tools you need to raise a happy, healthy, and thriving child.

Author : Vee P. Prasher,Flavia H. Santos
Publisher : Nova Science Publishers
Page : 0 pages
File Size : 50,5 Mb
Release : 2021
Category : Down syndrome
ISBN : 1536194840

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Excelling in Life with Down Syndrome by Vee P. Prasher,Flavia H. Santos Pdf

"Life expectancy for adults with Down syndrome has dramatically increased over the last 100 years. Many people with Down syndrome are now living into their 60's and 70's. Further, there has been a marked social shift in people with Down syndrome no longer living in large impersonal institutions but now living in the community, often within their family homes or independently. Children are becoming literate and adolescents are acquiring professions and hobbies. This integration into society results in a higher quality of life. Many previously published textbooks have reviewed the medical and psychological conditions associated with Down syndrome. This book aims to highlight the more positive aspects of the life of people with Down syndrome. Fruitful examples, such as the Special Olympics, camping, arts, digital literacy and citizenship actions are included. The book presents early childhood interventions, transition of children to adults, experience with PALS programs, the role of positive behavior support and self-directed support, and finally optimal aging. The aim of this book is primarily to educate families, carers and professionals that people with Down syndrome can achieve excellent well-being in physical, mental and spiritual domains. One's ability to maximize their own well-being is a human right which also reduces risks and costs associated with mental illness. We hope this book highlights the importance for children and adults with Down syndrome to be seen as valued citizens of their community and allows their voices to be heard"--

Author : Terry J. Hassold,David Patterson
Publisher : Wiley-Liss
Page : 312 pages
File Size : 51,6 Mb
Release : 1999-06-15
Category : Medical
ISBN : 0471296872

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Down Syndrome by Terry J. Hassold,David Patterson Pdf

Down Syndrome: A Promising Future, Together provides a comprehensive and up-to-date look at life with Down syndrome. Designed to meet the needs of parents and professionals alike, this edited volume addresses a variety of critical medical, developmental, educational, and vocational issues. It discusses current trends and presents the most recent update of the Health Care Guidelines for Individuals with Down Syndrome: Down Syndrome Preventative Medical Check List, which groups by age medical assessments and other important information. Also covered are the controversial and high-profile issues surrounding alternative and nonconventional therapies. The book concludes with the personal stories of young adults with Down syndrome, including an account by Chris Burke of the television series Life Goes On. Filled with practical advice from leading practitioners and advocates in the field, Down Syndrome: A Promising Future, Together is an essential reference for families of people with Down syndrome, for primary care physicians and other healthcare professionals, and for researchers, educators, social workers, early intervention workers, and students.