Comprehensive Cancer Care For Children And Their Families

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Comprehensive Cancer Care for Children and Their Families

National Academies of Sciences, Engineering, and Medicine,Institute of Medicine,Board on Health Care Services,National Cancer Policy Forum
Comprehensive Cancer Care for Children and Their Families Book PDF

Author : National Academies of Sciences, Engineering, and Medicine,Institute of Medicine,Board on Health Care Services,National Cancer Policy Forum
Publisher : National Academies Press
Page : 126 pages
File Size : 50,8 Mb
Release : 2015-08-31
Category : Medical
ISBN : 9780309374446

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Comprehensive Cancer Care for Children and Their Families by National Academies of Sciences, Engineering, and Medicine,Institute of Medicine,Board on Health Care Services,National Cancer Policy Forum Pdf

Childhood cancer is an area of oncology that has seen both remarkable progress as well as substantial continuing challenges. While survival rates for some pediatric cancers present a story of success, for many types of pediatric cancers, little progress has been made. Many cancer treatments are known to cause not only significant acute side effects, but also lead to numerous long-term health risks and reduced quality of life. Even in cases where the cancer is considered curable, the consequences of treatment present substantial long-term health and psychosocial concerns for children, their families, their communities, and our health system. To examine specific opportunities and suggestions for driving optimal care delivery supporting survival with high quality of life, the National Cancer Policy Forum of the Institute of Medicine and the American Cancer Society co-hosted a workshop which convened experts and members of the public on March 9 and 10, 2015. At this workshop, clinicians and researchers in pediatric oncology, palliative, and psychosocial care, along with representatives from the U.S. Food and Drug Administration, National Cancer Institute, Children's Oncology Group, pharmaceutical companies, and patient advocacy organizations, discussed and developed a menu of options for action to improve research, quality of care, and outcomes for pediatric cancer patients and their families. In addition, parents of children with cancer and pediatric cancer survivors shared their experiences with care and provided poignant personal perspectives on specific quality of life concerns and support needs for children and families across the life spectrum. This report summarizes the presentations and discussion of the workshop.

Cancer Care for the Whole Patient

Institute of Medicine,Board on Health Care Services,Committee on Psychosocial Services to Cancer Patients/Families in a Community Setting
Cancer Care for the Whole Patient Book PDF

Author : Institute of Medicine,Board on Health Care Services,Committee on Psychosocial Services to Cancer Patients/Families in a Community Setting
Publisher : National Academies Press
Page : 454 pages
File Size : 49,8 Mb
Release : 2008-03-19
Category : Medical
ISBN : 9780309134163

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Cancer Care for the Whole Patient by Institute of Medicine,Board on Health Care Services,Committee on Psychosocial Services to Cancer Patients/Families in a Community Setting Pdf

Cancer care today often provides state-of-the-science biomedical treatment, but fails to address the psychological and social (psychosocial) problems associated with the illness. This failure can compromise the effectiveness of health care and thereby adversely affect the health of cancer patients. Psychological and social problems created or exacerbated by cancer--including depression and other emotional problems; lack of information or skills needed to manage the illness; lack of transportation or other resources; and disruptions in work, school, and family life--cause additional suffering, weaken adherence to prescribed treatments, and threaten patients' return to health. Today, it is not possible to deliver high-quality cancer care without using existing approaches, tools, and resources to address patients' psychosocial health needs. All patients with cancer and their families should expect and receive cancer care that ensures the provision of appropriate psychosocial health services. Cancer Care for the Whole Patient recommends actions that oncology providers, health policy makers, educators, health insurers, health planners, researchers and research sponsors, and consumer advocates should undertake to ensure that this standard is met.

Childhood Cancer Survivors

Nancy Keene,Wendy Hobbie,Kathy Ruccione
Childhood Cancer Survivors Book PDF

Author : Nancy Keene,Wendy Hobbie,Kathy Ruccione
Publisher : Childhood Cancer Guides
Page : 481 pages
File Size : 48,7 Mb
Release : 2014-03-01
Category : Health & Fitness
ISBN : 9781941089149

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Childhood Cancer Survivors by Nancy Keene,Wendy Hobbie,Kathy Ruccione Pdf

More than 325,000 children, teens, and adults in the United States are survivors of childhood cancer. The surgery, radiation, chemotherapy, and stem cell transplants used to cure children can affect growing bodies and developing minds. If survivors know of these potential problems, they can take steps to identify, cope with, or treat them early if they do develop. The third edition of Childhood Cancer Survivors charts the territory for survivors by providing state-of-the-art information about: " Medical late effects from treatment " Emotional aspects of surviving cancer " Schedules for follow-up care " Challenges in the heath-care system " Lifestyle choices to maximize health " Discrimination in employment or insurance Woven throughout the text are stories from more than 100 survivors and parents. Authors Keene, Hobbie, and Ruccione are experts in the field of childhood cancer. Keene is the mother of a survivor of childhood leukemia and the author of several books including Childhood Leukemia, Childhood Cancer, Educating the Child with Cancer, and Chemo, Craziness & Comfort. Hobbie is Associate Director of the Cancer Survivorship Program at Children's Hospital of Philadelphia. Ruccione is Co-Director of the HOPE (Hematology-Oncology Psychosocial and Education) Program in the Children's Center for Cancer and Blood Diseases at Children's Hospital Los Angeles.

Raising an Emotionally Healthy Child When a Parent is Sick (A Harvard Medical School Book)

Paula K. Rauch,Anna C. Muriel
Raising an Emotionally Healthy Child When a Parent is Sick A Harvard Medical School Book Book PDF

Author : Paula K. Rauch,Anna C. Muriel
Publisher : McGraw Hill Professional
Page : 224 pages
File Size : 40,9 Mb
Release : 2005-12-12
Category : Health & Fitness
ISBN : 9780071818544

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Raising an Emotionally Healthy Child When a Parent is Sick (A Harvard Medical School Book) by Paula K. Rauch,Anna C. Muriel Pdf

For families with a seriously ill parent--advice on helping your children cope from two leading Harvard psychiatrists Based on a Massachusetts General Hospital program, Raising an Emotionally Healthy Child When a Parent is Sick covers how you can address children's concerns when a parent is seriously ill, how to determine how children with different temperaments are really feeling and how to draw them out, ways to ensure the child's financial and emotional security and reassure the child that he or she will be taken care of.

Children With Cancer

Jeanne Munn Bracken
Children With Cancer Book PDF

Author : Jeanne Munn Bracken
Publisher : Oxford University Press
Page : 512 pages
File Size : 45,6 Mb
Release : 2010-07-06
Category : Medical
ISBN : 9780199774227

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Children With Cancer by Jeanne Munn Bracken Pdf

Children can and do survive cancer; the last decade has seen many major advancements in treatment. Written honestly, yet in a reassuring tone, by a reference librarian whose child has survived cancer, Children with Cancer draws together a wealth of up-to-date information essential for anyone who wishes to help a child or family through this ordeal--including relatives, friends, teachers, and clergymen, as well as doctors, nurses, and other health care professionals. The information ranges from sophisticated, hard-to-find medical facts to practical tips on how to handle side effects, and much more. Describing in detail the whole range of childhood cancers, Bracken explores how they affect the child, the treatments available, how to cope with the changes this diagnosis will bring to the entire family, and where to go for both medical and emotional help. It also includes an appendix of common medical tests, a glossary of terms, and comprehensive lists of organizations, clinics, and cancer centers, complete with names and addresses. Reviews of the previous edition: "A remarkable job....The technical information is clearly stated, up to date and accurate.....But most of all, this is a human book."--Los Angeles Times "Comprehensive, well written, accurate, and compassionate.... Bracken's book can serve as a primary reference for parents and can be used as well by health care professionals and teachers." --Science Books and Films

Childhood Cancer

Adolf E. Christ,Kalman Flomenhaft
Childhood Cancer Book PDF

Author : Adolf E. Christ,Kalman Flomenhaft
Publisher : Springer Science & Business Media
Page : 305 pages
File Size : 49,8 Mb
Release : 2012-12-06
Category : Science
ISBN : 9781468472660

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Childhood Cancer by Adolf E. Christ,Kalman Flomenhaft Pdf

The past decade has brought extraordinary gains in the outlook for children stricken with cancer. Though cancer remains a leading cause of death for children and young adults, more victims of child hood cancer today will survive than will die. The therapeutic advances and the optimism they instill have prompted researchers and clinicians to analyze the impact of cancer upon young patients and their famil,ies and to devise more effective intervention strategies. Hope and survival, juxtaposed with the continuing high mortality associated with certain forms of the illness, add new challenges to management of the psychosocial aspects of cancer. To respond to these challenges we need research as rigorous as that which continues to make inroads in treating the physical illness. This specific concern for the needs of children suffering from cancer and their families has paralleled an increasing sensitivity on the part of the medical community and the public at large to the limitations of specialized, high technology health care practices.

When a Parent Has Cancer

Wendy Schlessel Harpham
When a Parent Has Cancer Book PDF

Author : Wendy Schlessel Harpham
Publisher : Harper Collins
Page : 295 pages
File Size : 42,5 Mb
Release : 2011-03-22
Category : Family & Relationships
ISBN : 9780062032157

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When a Parent Has Cancer by Wendy Schlessel Harpham Pdf

At some point in our lives, many of us will face the crisis of an unexpected illness. For parents, the fear, anxiety and confusion resulting from a cancer diagnosis can be particularly devastating. When A Parent Has Cancer is a book for families written from the heart of experience. A mother, physician, and cancer survivor, Dr Wendy Harpham offers clear, direct, and sympathetic advice for parents challenged with the task of raising normal, healthy children while they struggle with a potentially life–threatening disease. Dr Harpham lays the groundwork of her book with specific plans for helping children through the upheaval of a parent's diagnosis and treatment, remission and recovery, and if necessary, confronting the possibility of death. She emphasises the importance of being honest with children about the gravity of the illness, while assuring them that their basic needs will always be met. Included is Becky and the Worry Cup, an illustrated children's book that tells the story of a seven–year–old girl's experiences with her mother's cancer.

Children with Cancer: A Guide for Parents

National Cancer Institute (U.S.)
Children with Cancer A Guide for Parents Book PDF

Author : National Cancer Institute (U.S.)
Publisher : Government Printing Office
Page : 110 pages
File Size : 51,5 Mb
Release : 2018-07-18
Category : Health & Fitness
ISBN : 9780160947537

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Children with Cancer: A Guide for Parents by National Cancer Institute (U.S.) Pdf

If your child has cancer – this comprehensive guide can help you learn how childhood cancers are diagnosed and treated, as well as how to manage common health problems during treatment. It shares coping and support strategies for every member of your family. Developed by a multidisciplinary a team of experts from across the National Cancer Institute, and parents who have a child with cancer, this guide was designed as a companion for every family that has a child with cancer. Medical information is explained so it’s easy to understand: • Types of cancer in children • Medical tests and procedures • Treatments, including access to the latest clinical trials • Health issues such as nutrition, infection, and pain • Integrative medicine approaches • Advanced cancer-related issues • Survivorship Practical information is shared to help parents: • Find a doctor and hospital for your child • Talk with your child about cancer • Cope and find support for you and your family • Stay organized and track key information Designed to be used as a tool in consultation with your child’s health care team – each chapter of this guide includes quotes from parents, questions to ask your child’s health care team, and related resources. This guide was a National Health Information Award winner. It received “gold” – an honor given to the nation’s best consumer health programs and materials, by the Health Information Resource Center. Related products: Caring for the Caregiver: Support for Cancer Caregivers – ePub format only – ISBN: 9780160947520 Coping with Advanced Cancer: Support for People with Cancer -- ePub format only ISBN: 9780160947544 Eating Hints: Before, during and after Cancer Treatment -- ePub format only --ISBN: 9780160947551 Life After Cancer Treatment: Facing Forward -- ePub format only -- ISBN: 9780160947568 Pain Control: Support for People with Cancer -- ePub format only -- ISBN: 9780160947575 Radiation Therapy and You: Support for People with Cancer --ePub format only -- ISBN: 9780160947582 Surgery Choice for Women with DCIS and Breast Cancer -- ePub format only -- ISBN: 9780160947599 Taking Part in Cancer Research Studies --ePub format only -- ISBN: 9780160947605 Understanding Breast Changes: A Health Guide for Women --ePub format only -- ISBN: 9780160947612 Understanding Cervical Changes: A Health Guide for Women -- ePub format only -- ISBN: 9780160947629 When Cancer Returns: Support for People with Cancer -- ePub format only -- ISBN: 9780160947636 When Someone You Love Has Advanced Cancer: Support for Caregivers --ePub format only -- ISBN: 9780160947643 When Someone You Love Has Completed Cancer Treatment: Facing Forward --ePub format only -- ISBN: 9780160947650 When Someone You Love Is Being Treated for Cancer: Support for Caregivers --ePub format only -- ISBN: 9780160947667 When Your Brother or Sister Has Cancer: A Guide for Teens --ePub format only -- ISBN: 9780160947674 When Your Parent Has Cancer: A Guide for Teens -- ePub format only -- ISBN: 9780160947681

Childhood Cancer Survivorship

National Research Council,Institute of Medicine,National Cancer Policy Board
Childhood Cancer Survivorship Book PDF

Author : National Research Council,Institute of Medicine,National Cancer Policy Board
Publisher : National Academies Press
Page : 225 pages
File Size : 54,7 Mb
Release : 2003-10-15
Category : Medical
ISBN : 9780309088985

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Childhood Cancer Survivorship by National Research Council,Institute of Medicine,National Cancer Policy Board Pdf

Only more recently has it been realized that the intense effort to care for and cure a child with cancer does not end with survival. Continued surveillance and a variety of interventions may, in many cases, be needed to identify and care for consequences of treatment that can appear early or only after several decades and impair survivors' health and quality of life. The more than two-thirds of childhood cancer survivors who experience late effects-that is, complications, disabilities, or adverse outcomes-as a result of their disease, its treatment, or both, are the focus of this report which outlines a comprehensive policy agenda that links improved health care delivery and follow-up, investments in education and training for health care providers, and expanded research to improve the long-term outlook for this growing population now exceeding 270,000 Americans.

Childhood Cancer and Functional Impacts Across the Care Continuum

National Academies of Sciences Engineering and Medicine,Health and Medicine Division,Board on Health Care Services,Committee on Childhood Cancers and Disability
Childhood Cancer and Functional Impacts Across the Care Continuum Book PDF

Author : National Academies of Sciences Engineering and Medicine,Health and Medicine Division,Board on Health Care Services,Committee on Childhood Cancers and Disability
Publisher : Unknown
Page : 128 pages
File Size : 40,9 Mb
Release : 2021-09-09
Category : Electronic
ISBN : 0309683491

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Childhood Cancer and Functional Impacts Across the Care Continuum by National Academies of Sciences Engineering and Medicine,Health and Medicine Division,Board on Health Care Services,Committee on Childhood Cancers and Disability Pdf

Since the late 1960s, the survival rate in children and adolescents diagnosed with cancer has steadily improved, with a corresponding decline in the cancer-specific death rate. Although the improvements in survival are encouraging, they have come at the cost of acute, chronic, and late adverse effects precipitated by the toxicities associated with the individual or combined use of different types of treatment (e.g., surgery, radiation, chemotherapy). In some cases, the impairments resulting from cancer and its treatment are severe enough to qualify a child for U.S. Social Security Administration disability benefits. At the request of Social Security Administration, Childhood Cancer and Functional Impacts Across the Care Continuum provides current information and findings and conclusions regarding the diagnosis, treatment, and prognosis of selected childhood cancers, including different types of malignant solid tumors, and the effect of those cancers on childrenâ (TM)s health and functional capacity, including the relative levels of functional limitation typically associated with the cancers and their treatment. This report also provides a summary of selected treatments currently being studied in clinical trials and identifies any limitations on the availability of these treatments, such as whether treatments are available only in certain geographic areas.

Pediatric Palliative Care

Betty R. Ferrell
Pediatric Palliative Care Book PDF

Author : Betty R. Ferrell
Publisher : Hpna Palliative Nursing Manual
Page : 161 pages
File Size : 44,9 Mb
Release : 2015-08-31
Category : Medical
ISBN : 9780190244187

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Pediatric Palliative Care by Betty R. Ferrell Pdf

'Pediatric Palliative Care', the fourth volume in the 'HPNA Palliative Nursing Manuals' series, addresses paediatric hospice, symptom management, paediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in paediatric palliative care.

Evidence-Based Practice of Palliative Medicine - E-Book

Nathan E Goldstein,Christopher D. Woodrell,R. Sean Morrison
Evidence Based Practice of Palliative Medicine E Book Book PDF

Author : Nathan E Goldstein,Christopher D. Woodrell,R. Sean Morrison
Publisher : Elsevier Health Sciences
Page : 739 pages
File Size : 47,7 Mb
Release : 2023-11-07
Category : Medical
ISBN : 9780323847032

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Evidence-Based Practice of Palliative Medicine - E-Book by Nathan E Goldstein,Christopher D. Woodrell,R. Sean Morrison Pdf

Using a practical, question-and-answer approach, Evidence-Based Practice of Palliative Medicine, 2nd Edition, helps you provide optimal care for patients and families who are dealing with serious illness. This unique reference focuses on patient and family/caregiver-centered care, highlighting the benefits of palliative care and best practices for delivery. The highly practical, user-friendly format sets it apart from other texts in the field, with concise, readable chapters organized around clinical questions that you’re most likely to encounter in everyday care. Uniquely organized using a question-and-answer approach, making it easy to find answers to common questions asked by practitioners and patients. Up-to-date, reader-friendly chapters explore interventions, assessment techniques, treatment modalities, recommendations and guidelines, communication techniques, and available resources for palliative care. Expanded discussions on hospice in every chapter, and a new emphasis on pediatrics, with increased material on pediatric malignancies, developmental delays, cystic fibrosis, and perinatal palliative care. New chapters on wellness of the palliative care practitioner, patients with opioid use disorders, telehealth in palliative care, health disparities, rural palliative care, caring for people with hematologic malignancies, integrative and alternative therapies, LGBTQ+ populations, mobile health technologies, and national palliative care implementation strategies. High-quality evidence gathered and reviewed by leading experts in palliative medicine, including clinicians, educators, and researchers across a broad range of disciplines. Numerous algorithms throughout help you make informed decisions, and “take-home” points in every chapter provide a quick summary of key content. Any additional digital ancillary content may publish up to 6 weeks following the publication date.

Children With Cancer

Christine Eiser
Children With Cancer Book PDF

Author : Christine Eiser
Publisher : Routledge
Page : 368 pages
File Size : 53,6 Mb
Release : 2004-04-12
Category : Psychology
ISBN : 9781135659691

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Children With Cancer by Christine Eiser Pdf

Cancer is a very rare disease in children. There have been impressive gains in survival in recent years, and these have been achieved through the use of chemotherapy and national and international clinical trials. The diagnosis of cancer in a child imposes considerable stress on the whole family. In the immediate time after diagnosis, parents must learn about the disease and its treatment, explain what is happening to the child, and make arrangements for the care of other children in the family. For the child, treatment is associated with many side effects depending on the specific drugs used. In addition, the child is prone to infection and therefore is likely to miss a lot of school and other activities. For all these reasons, physicians and families have become aware that cancer has huge implications for the quality of the child's life. This book is an attempt to describe how quality of life is affected at different stages of the disease process. Comprehensive reviews are provided of the impact on the child's physical activity, social life, and school and educational achievements. Special consideration is given to children with leukemia (one of the more common cancers) and brain tumors. Cancer does not just affect the child but every member of the family. Consequently there is coverage of the effects on parents and also healthy brothers and sisters. To the extent that improvements in survival have been achieved by national and international collaboration between clinicians, it is concluded that efforts to improve the quality of these children's lives is dependent on collaboration between clinicians, nurses, and behavioral scientists at national and international levels. This book should provide an impetus for such collaboration.

Palliative Care in Pediatric Oncology

Joanne Wolfe,Barbara L. Jones,Ulrika Kreicbergs,Momcilo Jankovic
Palliative Care in Pediatric Oncology Book PDF

Author : Joanne Wolfe,Barbara L. Jones,Ulrika Kreicbergs,Momcilo Jankovic
Publisher : Springer
Page : 314 pages
File Size : 44,5 Mb
Release : 2017-12-20
Category : Medical
ISBN : 9783319613918

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Palliative Care in Pediatric Oncology by Joanne Wolfe,Barbara L. Jones,Ulrika Kreicbergs,Momcilo Jankovic Pdf

This textbook is the first to focus on comprehensive interdisciplinary care approaches aimed at enhancing the wellbeing of children with cancer and their families throughout the illness experience. Among the topics addressed are the epidemiology of pediatric cancer distress, including physical, emotional, social, and spiritual dimensions; the role of the interdisciplinary team; communication and advance care planning; symptom prevention and management; care at the end of life; family bereavement care; and approaches to ease clinician distress. The contributing authors are true experts and provide guidance based on the highest available level of evidence in the field. The book has not only an interdisciplinary but also an international perspective; it will appeal globally to all clinicians caring for children with cancer, including physicians, nurses, psychosocial clinicians, and chaplains, among others.

Your Child in the Hospital

Nancy Keene
Your Child in the Hospital Book PDF

Author : Nancy Keene
Publisher : Childhood Cancer Guides
Page : 178 pages
File Size : 52,7 Mb
Release : 2015-04-01
Category : Family & Relationships
ISBN : 9781941089972

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Your Child in the Hospital by Nancy Keene Pdf

Millions of parents take their child to the hospital each year for stitches, outpatient surgery, or longer stays for serious illnesses. Your Child in the Hospital: A Practical Guide for Parents is packed with sensible tips and home-grown wisdom that will make any visit to the hospital easier. It explains how cope with procedures, plan for surgery, communicate with doctors and nurses, and deal with insurance companies. Woven throughout the text are dozens of practical and encouraging stories from parents who have been through the experience of having a child in the hospital. This new edition contains a packing list, hospital journal for children, and helpful resources for parents.