Creating Moments Of Joy Along The Alzheimers Journey
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Creating Moments of Joy Along the Alzheimer's Journey by Jolene Brackey Pdf
The beloved best seller has been revised and expanded for the fifth edition. Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer's disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimer's, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or said, but the feeling that we left them with will linger. The new edition of Creating Moments of Joy is filled with more practical advice sprinkled with hope, encouragement, new stories, and generous helpings of humor. In this volume, Brackey reveals that our greatest teacher is having cared for and loved someone with Alzheimer's and that often what we have most to learn about is ourselves.
This book offers many ways to create moments of joy. No matter what the environment or situation is, this book will be a positive tool on a daily basis. This book breaks down the learning process into five sections. Within those five sections are smaller steps. At the end of each step is a place to journal thoughts, ideas, solutions and treasures. With this journal, many moments of joy will be created.
Learning to Speak Alzheimer's by Joanne Koenig Coste Pdf
A guide to more successful communication for the millions of Americans caring for someone with dementia: “Offers a fresh approach and hope.”—NPR Revolutionizing the way we perceive and live with Alzheimer’s, Joanne Koenig Coste offers a practical approach to the emotional well-being of both patients and caregivers that emphasizes relating to patients in their own reality. Her accessible and comprehensive method, which she calls habilitation, works to enhance communication between care partners and patients and has proven successful with thousands of people living with dementia. Learning to Speak Alzheimer’s also offers hundreds of practical tips, including how to: · cope with the diagnosis and adjust to the disease’s progression · help the patient talk about the illness · face the issue of driving · make meals and bath times as pleasant as possible · adjust room design for the patient’s comfort · deal with wandering, paranoia, and aggression “A fine addition to Alzheimer's and caregiving collections.”—Library Journal (starred review) “Promises to transform not only the lives of patients but those of care providers…This book is a gift.”—Sue Levkoff, coauthor of Aging Well
A revolutionary new approach to Alzheimer’s care, focusing on a patient’s strengths to maintain connections with others and the world There currently is no cure for Alzheimer’s disease— though it can be treated. For the last fifteen years, John Zeisel, Ph.D. has spearheaded a movement to treat Alzheimer’s non-pharmacologically by focusing on the mind’s strengths. I’m Still Here is a guidebook to Dr. Zeisel’s treatment ideas, showing the possibility and benefits of connecting with an Alzheimer’s patient through their abilities that don’t diminish with time, such as understanding music, art, facial expressions, and touch. By harnessing these capacities, and by using other strategies, it’s possible to offer the person a quality life with connection to others and to the world. In March 2013, Dr. Zeisel and his work will be the focus of the program airing on public television stations entitled “Hopeful Aging,” bringing his life-changing ideas to a national audience.
Keeping Love Alive as Memories Fade by Gary Chapman,Edward G. Shaw,Debbie Barr Pdf
Across America and around the world, the five love languages have revitalized relationships and saved marriages from the brink of disaster. Can they also help individuals, couples, and families cope with the devastating diagnosis of Alzheimer's disease (AD)? Coauthors Chapman, Shaw, and Barr give a resounding yes. Their innovative application of the five love languages creates an entirely new way to touch the lives of the five million Americans who have Alzheimer’s, as well as their fifteen million caregivers. At its heart, this book is about how love gently lifts a corner of dementia’s dark curtain to cultivate an emotional connection amid memory loss. This collaborative, groundbreaking work between a healthcare professional, caregiver, and relationship expert will: Provide an overview of the love languages and Alzheimer’s disease, correlate the love languages with the developments of the stages of AD, discuss how both the caregiver and care receiver can apply the love languages, address the challenges and stresses of the caregiver journey, offer personal stories and case studies about maintaining emotional intimacy amidst AD. Keeping Love Alive as Memories Fade is heartfelt and easy to apply, providing gentle, focused help for those feeling overwhelmed by the relational toll of Alzheimer’s. Its principles have already helped hundreds of families, and it can help yours, too.
My Bert Has Alzheimer’s is an intimate, detailed account of a wife’s experience with her husband’s dementia. As Paula de Ronde quickly learned, life for two people — patient and caregiver - is thrown into disarray with a diagnosis of Alzheimer’s. Ambushed by the disease, it is a journey into the unknown, but one that features an abundance of love, hope, and support. There is no shying away from the horror of the disease, but its awfulness doesn’t strip from the experience of the powerful companions that accompany those enduring it — namely, love, laughter, and community. Thrust into the caregiver role for her other half who used to be her equal and best buddy, making all kinds of decisions together, Paula now enters a new world of uncertainty and chaos. There is no roadmap. Instead she learns that the disease is as individual as each person who contracts it. Here is a caregiver’s poignant and revealing story of the mental, physical, and emotional stress of caring for the love of her life, her Bert, as he gives over to his neurological disease. The caregiver’s life is far from easy. Yet fueled by love, which never wanes, each step of the way is handled with grace and the help of care partners. Alzheimer’s steals memories but also gives teaching moments. As the disease progresses Paula learns to be more tolerant, patient, compassionate and accepting of human frailties. Alzheimer’s releases an inner strength. She meets each challenge, finds a solution to each issue that arises, then passes on her new-found knowledge to others. She learns the value of having a support group. Alzheimer’s cements the old adage that laughter is the best medicine. Together she and her Bert become stronger than the disease. With humour, compassion, wisdom, and deep feeling, she describes this slice of their conjoined lives. More than a record of the impact of a disease this is, at its essence, also a love story.
As her recent memories fade, Mary lives increasingly in the past — returning to the secrets of her turbulent interracial love story. Coming to terms with advancing dementia, Mary has no choice other than to move into her daughter’s home. Her daughter, Kayla, caught between her cognitively impaired mother and her belligerent teenage son, soon finds caregiving is more challenging than she imagined. Sage, the family’s golden retriever, offers comfort and unconditional love, but she has her own problems, especially when it comes to dealing with Mary’s cat. Throughout it all, Mary struggles to complete her final book — a memoir, the untold story of the love of her life, who died more than forty years earlier. Her confused and tangled tales span Trinidad, England, and Canada, revealing the secrets of a tragic interracial love story in the 1960s and ’70s. But with her writing skills slipping away, it’s a race against time. Heartwarming, funny, and hopeful, Gone but Still Here is an honest, open look at the struggles of one family as they journey into the unknown.
Floating in the Deep End: How Caregivers Can See Beyond Alzheimer's by Patti Davis Pdf
With the heartfelt prose of a loving daughter, Patti Davis provides a life raft for the caregivers of Alzheimer’s patients. “For the decade of my father’s illness, I felt as if I was floating in the deep end, tossed by waves, carried by currents, but not drowning,” writes Patti Davis in this searingly honest and deeply moving account of the challenges involved in taking care of someone stricken with Alzheimer’s. When her father, the fortieth president of the United States, announced his Alzheimer’s diagnosis in an address to the American public in 1994, the world had not yet begun speaking about this cruel, mysterious disease. Yet overnight, Ronald Reagan and his immediate family became the face of Alzheimer’s, and Davis, once content to keep her family at arm’s length, quickly moved across the country to be present during “the journey that would take [him] into the sunset of [his] life.” Empowered by all she learned from caring for her father—about the nature of the illness, but also about the loss of a parent—Davis founded a support group for the family members and friends of Alzheimer’s patients. Along with a medically trained cofacilitator, she met with hundreds of exhausted and devastated attendees to talk through their pain and confusion. While Davis was aware that her own circumstances were uniquely fortunate, she knew there were universal truths about dementia, and even surprising gifts to be found in a long goodbye. With Floating in the Deep End, Davis draws on a welter of experiences to provide a singular account of battling Alzheimer’s. Eloquently woven with personal anecdotes and helpful advice tailored specifically for the overlooked caregiver, this essential guide covers every potential stage of the disease from the initial diagnosis through the ultimate passing and beyond. Including such tips as how to keep a loved one hygienic, and careful responses for when they drift to a time gone by, Davis always stresses the emotional milestones that come with slow-burning grief. Along the way, Davis shares how her own fractured family came together. With unflinching candor, she recalls when her mother, Nancy, who for decades could not show her children compassion or vulnerability, suddenly broke down in her arms. Davis also offers tender moments in which her father, a fabled movie star whom she always longed to know better, revealed his true self—always kind, even when he couldn’t recognize his own daughter. An inherently wise work that promises to become a classic, Floating in the Deep End ultimately provides hope to struggling families while elegantly illuminating the fragile human condition.
The Emotional Journey of the Alzheimer's Family by Robert B. Santulli, MD,Kesstan Blandin, PhD Pdf
Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.
Author : Sarah B. Smith Publisher : Greenleaf Book Group Page : 328 pages File Size : 49,7 Mb Release : 2019-01-15 Category : Biography & Autobiography ISBN : 9781626345980
In the world of Early-onset Alzheimer’s, here is a book all about life, love, and hope. Broken Beauty is the story of Sarah Smith’s mother—known as “Beauty” to her family—and her family’s journey through the devastating world of Early-onset Alzheimer’s. Smith was a young mother in her thirties when her own mother’s illness struck, so the family’s shock and pain at the disease’s manifestations is nearly unbearable. Not only is Beauty still young and fit; she is also Sarah’s best friend. This powerful and personal story about a daughter facing the unthinkable and the love she found to carry her through will touch the hearts of everyone who reads it. Sarah Bearden Smith is a housewife, mother of three, and a woman of deep faith, who has lived in Texas all her life. Sarah was born and raised in the Houston area, and remained there until her departure for the University of Texas at Austin, where she was a speech communications major, varsity cheerleader, and a member of Tri Delta sorority. After her marriage to Thad Smith in 2002, the couple moved to Dallas, Texas. During their years in Dallas, Sarah and her husband have served on various boards and committees, including the Greer Garson Gala, Presbyterian Hospital Healthcare Foundation, East-West Ministries, AWARE Dallas, and Providence Christian School of Texas. They actively serve with their children in assisted living and memory care facilities and support organizations such as Council for Life, Alzheimer’s Association, Women’s Alzheimer’s Movement, and Community Bible Study. Sarah and her family are members of Watermark Community Church.
Author : Mary Ann Drummond Publisher : Morgan James Publishing Page : 140 pages File Size : 55,9 Mb Release : 2018-08-07 Category : Medical ISBN : 9781683509592
Me Where I Am provides knowledge and essential tools to lovingly, confidently and, above all, successfully care for those who live with Alzheimer’s and related dementias. Over 5 million Americans currently live with Alzheimer’s disease. Along with them, 15 million unpaid caregivers seek knowledge and resources to assist them in the journey. The unique care principles found in Meet Me Where I Am help mitigate depression, decrease anxiety, and allow for successful relationships as long as possible in the dementia journey. Mary Ann Drummond, RN credits her unique care philosophy to the greatest teachers of all—the many individuals living with Alzheimer’s and related dementias she has had the pleasure of caring for over the years. Imbuing practical tips with wisdom, respect, and sensibility, Drummond comes full circle by sharing what happened when her own mentor fell prey to the disease. Meet Me Where I Am is a road map that teaches caregivers how to focus on the possibilities, discover the joy in the journey, and prepare for the road ahead.
"'In the world of Alzheimer's memoirs, a rarity-- not, strictly speaking, a 'happy ending,' but a different tale from the usual bleak, grinding, downward spiral into unalloyed misery'"--Cover p. 4.
#1 Amazon Best Seller in Memoirs category (June 2013) #7 Amazon Best Seller in Dementia (June 2013) #3 Amazon's "Most Wished For" in Dementia Category (June 2013) A Daughter's Newfound Love When Lisa Hirsch found out her mother, Ruth, had been diagnosed with Alzheimer's disease, her love, appreciation, and caring for her mother was transformed. To Lisa's surprise, it has brought her and Ruth closer together than they've ever been. My Mom My Hero tells the story of this mother-daughter relationship through a series of entries from Lisa's internationally popular blog. Ultimately this is an uplifting and inspirational book for anyone who's going through the difficult and often lonely ordeal of caring for a loved one who suffers from this devastating illness. "My Mom My Hero is filled with love and a deep appreciation for the human spirit." -Laura Stein, best-selling author "This book is a rare gift for anyone who reads it." -Holly Robinson, author of Sleeping Tigers and The Wishing Hill "My Mom My Hero is a light of inspiration in a world that can be dark and frustrating." -Franz Wisner, New York Times best-selling author of Honeymoon With My Brother and How the World Makes Love
A diagnosis of dementia or Alzheimer's disease doesn't mean you have to give up everything you love. For those who enjoy travel, and want to continue to do so, Travel Well with Dementia: Essential Tips to Enjoy the Journey is a must-read both for patients and their loved ones. Whether visiting family and friends or venturing to a new location for fun, it's packed with practical tips and strategies that will remove many of the stressors created by travel. Find confidence in your ability to stayed engaged with people and places that matter--and continue to create memories It may be difficult to imagine having a fun, successful trip if you're a person living with dementia, or someone caring for an affected person. Whether early in the diagnosis or further along the path of progression, with thoughtful preparation and adaptations travel is possible for many. This is the first book of its kind that considers what people living with dementia may experience during travel and helps travel companions know what to expect before, during, and after a trip. Embrace the concept that it is possible to live well with dementia, and find joy, purpose, and meaning along the way.