Death Dying And Palliative Care In Children And Young People

Author : Alison M. Rodriguez
Publisher : Taylor & Francis
Page : 215 pages
File Size : 43,7 Mb
Release : 2023-04-07
Category : Health & Fitness
ISBN : 9781000865653

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Death, Dying and Palliative Care in Children and Young People by Alison M. Rodriguez Pdf

Death, Dying and Palliative Care in Children and Young People: Perspectives from Health Psychology examines the issues relevant to children and young people living with serious illness and their families by taking a closer look at the literature and knowledge around the processes of care, health, well-being and development through a health psychology lens. The text introduces readers to the general palliative and holistic care needs of children and young people along with the nuances of caring relationships. The chapters discuss the vulnerabilities encountered in living with serious illness and facing a shortened life prognosis, being at the end of life, and issues relative to the historical concept of the ‘good death’ or ‘dying well’, grief, and bereavement. The author examines how individual and familial experiences can be multi-layered, which can consequently influence perceptions and behaviours. The text therefore offers a deep exploration of the varied ways in which people draw on different resources to navigate their palliative care lived experiences. The book will be beneficial to the students of, and individuals interested in, psychology and nursing along with other health and social care courses. It will further be of interest to individuals interested in gaining more understanding of the experiential aspects of death, dying and palliative care in children and young people from health psychology perspectives.

Author : Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues
Publisher : National Academies Press
Page : 638 pages
File Size : 52,7 Mb
Release : 2015-03-19
Category : Medical
ISBN : 9780309303132

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Dying in America by Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues Pdf

For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Author : Betty R. Ferrell
Publisher : Hpna Palliative Nursing Manual
Page : 161 pages
File Size : 54,9 Mb
Release : 2015-08-31
Category : Medical
ISBN : 9780190244187

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Pediatric Palliative Care by Betty R. Ferrell Pdf

'Pediatric Palliative Care', the fourth volume in the 'HPNA Palliative Nursing Manuals' series, addresses paediatric hospice, symptom management, paediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in paediatric palliative care.

Author : Institute of Medicine,Board on Health Sciences Policy,Committee on Palliative and End of Life Care for Children and Their Families
Publisher : National Academies Press
Page : 16 pages
File Size : 47,7 Mb
Release : 2003-10-30
Category : Medical
ISBN : 9780309182669

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When Children Die by Institute of Medicine,Board on Health Sciences Policy,Committee on Palliative and End of Life Care for Children and Their Families Pdf

This document is a brief summary of the Institute of Medicine report entitled When Children Die: Improving Palliative and End-of-Life Care for Children. Better care is possible now, but current methods of organizing and financing palliative, end-of-life, and bereavement care complicate the provision and coordination of services to help children and families and sometimes require families to choose between curative or life-prolonging care and palliative services, in particular, hospice care. Inadequate data and scientific knowledge impede efforts to deliver effective care, educate professionals to provide such care, and design supportive public policies. Integrating effective palliative care from the time a child's life-threatening medical problem is diagnosed will improve care for children who survive as well as children who die-and will help the families of all these children. The report recognizes that while much can be done now to support children and families, much more needs to be learned. The analysis and recommendations reflect current knowledge and judgments, but new research and insights will undoubtedly suggest modifications and shifts in emphasis in future years.

Author : Rita Pfund
Publisher : CRC Press
Page : 272 pages
File Size : 50,5 Mb
Release : 2018-10-08
Category : Medical
ISBN : 9781498799959

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Palliative Care Nursing of Children and Young People by Rita Pfund Pdf

"Children's palliative care is an evolving specialty and as such our knowledge base cannot remain static. This book constantly challenges the reader to critically analyze their own practices and beliefs within an evidence-based framework and as such makes a valuable contribution to the growing body of knowledge on this important subject." - Susan Fowler-Kerry, in the Foreword. This book caters for readers from different working environments and levels of experience. It is ideal for paediatric nurses with no specialist palliative care knowledge, and also for palliative care nurses with no specialist paediatric experience. Other healthcare professionals and therapists working with children, young people and their families will also find this book invaluable. It will also be ideal for undergraduate and postgraduate health and social care students, and professionals involved in children's hospices, community services and charity groups. "This book captures not just the rapidly evolving evidence base, but also as many current developments as possible and applies them in a meaningful way to the care of infants, children, and young people living with life-limiting illness, and their families. It offers an overview of contemporary issues and helps to stimulate the type of dialogue that can bring about the actions that will make a real difference for the children, young people and families in our care." - Rita Pfund, in the Preface.

Author : Rita Pfund,Susan Kerry-Fowler
Publisher : CRC Press
Page : 348 pages
File Size : 48,8 Mb
Release : 2017-11-22
Category : Medical
ISBN : 9781315346649

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Perspectives on Palliative Care for Children and Young People by Rita Pfund,Susan Kerry-Fowler Pdf

Advances in medical science and technology are saving the lives of more children worldwide than ever. Some survive and live out a normal life expectancy, others have a life-limiting/life-threatening diagnosis where death may come early, and still others will live on well past projected life trajectories into adulthood. With so many different care pathways, children, parents and communities often find themselves facing challenges for which neither they nor their healthcare systems are prepared. This book opens a global discussion of these issues. Extending Rita Pfund's text Palliative Care Nursing of Children and Young People, it invites paediatric palliative care professionals, parents and children from around the globe to share their knowledge and experience. This book is of vital interest to palliative care professionals, parents, policy makers and academics. It is an important move towards ensuring that all children and their families, regardless of geographical location, gender, ethnicity or socio-economic class have equal and guaranteed access to comprehensive paediatric palliative care services.

Author : John D. Morgan
Publisher : Charles Press Pubs(PA)
Page : 228 pages
File Size : 46,9 Mb
Release : 1991
Category : Family & Relationships
ISBN : UOM:39015020668086

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Young People and Death by John D. Morgan Pdf

Author : Institute of Medicine,Board on Health Sciences Policy,Committee on Palliative and End-of-Life Care for Children and Their Families
Publisher : National Academies Press
Page : 712 pages
File Size : 43,6 Mb
Release : 2003-01-09
Category : Medical
ISBN : 9780309169479

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When Children Die by Institute of Medicine,Board on Health Sciences Policy,Committee on Palliative and End-of-Life Care for Children and Their Families Pdf

The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.

Author : No-surname Children’s Health Queensland Hospital and Health Service – Paediatric Palliative Care Service
Publisher : Fontaine Press Pty Ltd
Page : 144 pages
File Size : 42,6 Mb
Release : 2015-10-05
Category : Medical
ISBN : 9781925341645

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A Practical Guide to Palliative Care in Paediatrics by No-surname Children’s Health Queensland Hospital and Health Service – Paediatric Palliative Care Service Pdf

This ebook is a practical guide to all of the issues relating to the care of a child or young person with a life limiting condition. It aims to empower clinicians to care for children at home or as close to home as possible. It is a national resource and a major contribution towards supporting dying children and their families to have the best quality of life. Sections include psychosocial considerations, symptom management, the dying process, bereavement and ethics. New sections for this edition include perinatal palliative care and quality improvement in paediatric palliative care. The booklet includes a number of appendices including commonly used drugs and doses. The booklet where possible tries to be evidence based, and reflects best practice guidelines for the Australian and New Zealand context.

Author : Brian S. Carter,Marcia Levetown,Sarah E. Friebert
Publisher : JHU Press
Page : 556 pages
File Size : 52,6 Mb
Release : 2011-10-15
Category : Medical
ISBN : 9781421401492

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Palliative Care for Infants, Children, and Adolescents by Brian S. Carter,Marcia Levetown,Sarah E. Friebert Pdf

There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. This guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information.

Author : Richard Hain,Ann Goldman,Adam Rapoport,Michelle Meiring
Publisher : Oxford University Press
Page : 535 pages
File Size : 44,9 Mb
Release : 2021-07-27
Category : Medical
ISBN : 9780192554543

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Oxford Textbook of Palliative Care for Children by Richard Hain,Ann Goldman,Adam Rapoport,Michelle Meiring Pdf

The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.

Author : Lindsay B. Ragsdale,Elissa G. Miller
Publisher : Oxford University Press
Page : 230 pages
File Size : 43,8 Mb
Release : 2020-02-03
Category : Medical
ISBN : 9780190051877

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Pediatric Palliative Care by Lindsay B. Ragsdale,Elissa G. Miller Pdf

The first volume in the "What Do I Do Now?: Palliative Care" series, Pediatric Palliative Care uses a case-based palliative care approach to cover common and important topics in the examination, investigation, and management of children with serious illness. Each chapter provides a discussion of the diagnosis, key points to remember, and selected references for further reading. The book addresses a wide range of topics, including the goals of care, symptom management, care for neonatal and adolescent populations, and the emotional, social, cultural and spiritual needs of ill children and their families. Written by authors from a variety of fields such as nursing, chaplaincy, social work, and psychology, this book is suited for pediatricians, palliative care and hospice providers, nurses, and allied health practitioners. Pediatric Palliative Care is an engaging collection of thought-provoking cases which clinicians can utilize when they encounter difficult patients. The volume is also a self-assessment tool that tests the reader's ability to answer the question, "What do I do now?"

Author : Mary Turner
Publisher : Jessica Kingsley Publishers
Page : 160 pages
File Size : 53,5 Mb
Release : 2006-09-28
Category : Social Science
ISBN : 1846425603

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Talking with Children and Young People about Death and Dying by Mary Turner Pdf

Talking with Children and Young People about Death and Dying is a popular resource designed to help adults talk to bereaved children and young people. Mary Turner explains the various aspects and stages of bereavement and offers useful insights into the concerns of children experiencing grief or facing an imminent bereavement. She addresses children's common fears and worries, dreams and nightmares, and acknowledges the effect of trauma on the grief process. This second edition includes a new section for adults on understanding the distress of a bereaved child and also a list of useful contacts. It is a fully photocopiable workbook that enables adults to deal with these issues sensitively and explains, for example, how to choose appropriate words to support the child. It will empower and equip adults working with bereaved children to encourage them to communicate their pain and understand the often contradictory emotions aroused by the death of someone close to them.

Author : Rita Pfund
Publisher : Unknown
Page : 349 pages
File Size : 46,8 Mb
Release : 1900
Category : Electronic
ISBN : OCLC:1027178048

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Perspectives on Palliative Care for Children and Young People by Rita Pfund Pdf

Advances in medical science and technology are saving the lives of more children worldwide than ever. Some survive and live out a normal life expectancy, others have a life-limiting/life-threatening diagnosis where death may come early, and still others will live on well past projected life trajectories into adulthood. With so many different care pathways, children, parents and communities often find themselves facing challenges for which neither they nor their healthcare systems are prepared. This book opens a global discussion of these issues. Extending Rita Pfund's text Palliative Care Nurs.

Author : Mary Turner,Bob Thomas
Publisher : Jessica Kingsley Publishers
Page : 162 pages
File Size : 45,8 Mb
Release : 2006
Category : Psychology
ISBN : 9781843104414

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Talking with Children and Young People about Death and Dying by Mary Turner,Bob Thomas Pdf

This photocopiable workbook is a popular resource designed to help adults talk to bereaved children, in which Mary Turner offers useful insights into the concerns of children experiencing grief. It will equip adults to encourage bereaved children to communicate their pain and understand the emotions aroused by the death of someone close to them.