Dementia Reconsidered Revisited The Person Still Comes First
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Dementia Reconsidered Revisited: The Person Still Comes First by Tom Kitwood,Dawn Brooker Pdf
The original Dementia Reconsidered: The Person Comes First by Tom Kitwood was published by Open University Press in 1997. It was a seminal text in the field of dementia studies and is still cited and referenced as core reading on person-centred dementia care. Tom died unexpectedly, just 12 months after the book was published. This book continues to inspire many people to challenge simplistic paradigms about dementia. Since the original book was written, however, there have been many changes in our understanding of dementia. The editor of this new edition, Dawn Brooker was mentored by Tom Kitwood. She has drawn together a remarkable group of writers to provide a commentary on Kitwood’s work. This new edition reproduces the original chapters but provides extra content from subject experts to update the book to a contemporary level. Dementia Reconsidered Re-visited is an ideal main text or supplementary text for all those studying or working in nursing, medicine, psychiatry, psychology, occupational therapy, social work, adult education, gerontology and health and social care more generally. “This important book does three things. It brings to a new generation the insight and vision of Tom Kitwood. It highlights the remarkable progress we have made in recent years. But most important of all it reminds us what still needs to be done if we are to fully respect the rights of people with dementia and their family care-givers. Kitwood inspired Alzheimer’s Society to knit together research, care, and societal change. We are now re-inspired to make sure all progress is evidenced and evaluated for its impact. We must realise the enormous opportunities the digital age offers people affected by dementia but in doing so constantly listen to and learn from their many and varied voices across nations and cultures.” Jeremy Hughes CBE, Chief Executive, Alzheimer's Society, UK
"For some years now, Tom Kitwood's work on dementia care has stood out as the most important, innovative and creative development in a field that has for too long been neglected. This book is a landmark in dementia care; it brings together, and elaborates on, Kitwood's theory of dementia and of person-centred care in an accessible fashion, that will make this an essential source for all working and researching in the field of dementia care." Robert Woods, Professor of Clinical Psychology, University of Wales "Over the last ten years or so Tom Kitwood has made a truly remarkable contribution to our understanding of dementia, and to raising expectations of what can be achieved with empathy and skill. This lucid account of his thinking and work will communicate his approach to a yet wider audience. It is to be warmly welcomed." Mary Marshall, Director of the Dementia Services Development Centre, University of Stirling * What is the real nature of the dementing process? * What might we reasonably expect when dementia care is of very high quality? * What is required of organizations and individuals involved in dementia care? Tom Kitwood breaks new ground in this book. Many of the older ideas about dementia are subjected to critical scrutiny and reappraisal, drawing on research evidence, logical analysis and the author's own experience. The unifying theme is the personhood of men and women who have dementia - an issue that was grossly neglected for many years both in psychiatry and care practice. Each chapter provides a definitive statement on a major topic related to dementia, for example: the nature of 'organic mental impairment', the experience of dementia, the agenda for care practice, and the transformation of the culture of care. While recognizing the enormous difficulties of the present day, the book clearly demonstrates the possibility of a better life for people who have dementia, and comes to a cautiously optimistic conclusion. It will be of interest to all professionals involved in dementia care or provision, students on courses involving psychogeriatrics or social work with older people, and family carers of people with dementia. Key features: * One of the few attempts to present the whole picture. * Very readable - many real-life illustrations. * Offers a major alternative to the 'medical model' of dementia. * Tom Kitwood's work on dementia is very well known
Drawing on research evidence, logical analysis and his own experience, Tom Kitwood examines the subject of dementia. Breaking new ground, Kitwood scrutinises and reappraises many of the older ideas concerning dementia.
Creativity and Communication in Persons with Dementia by Claire Craig,John Killick Pdf
Providing people with dementia with opportunities to engage in creative activity can play a crucial role in maintaining and enhancing communication, and in reinforcing personhood and identity. This thoughtful book describes how people with dementia, and the people who work with and care for them, can foster and develop a creative approach, and provides rich and varied ideas for creative activities. The authors explore the concept of creativity - what exactly it is, its particular relevance for people with dementia and how to get into the creative 'flow'. They introduce a range of creative art forms, including poetry and story-telling, collage, drama, music-making, photography, textiles and working with wood and metal, and suggest possibilities for employing them in a range of settings, and with people of all abilities. Consideration is given to the practicalities of facilitating such creative work, including how to organise and run sessions, how to involve people with dementia and their carers, and how to reflect upon the experience. Practice examples are included throughout the book, as well as the comments and observations of people with dementia, and many examples of the artwork and poetry the authors have created with people with dementia over the years. Brimming with ideas, suggestions and helpful guidance, this is an essential resource for all those who work with people with dementia, and an inspiring read for people with dementia and their families.
Tom Kitwood On Dementia: A Reader And Critical Commentary by Baldwin, Clive,Capstick, Andrea Pdf
"The book will be valuable for undergraduate and postgraduate students, researchers and lecturers involved in the field of dementia care and the health-care sciences. Furthermore, it provides a useful resource for clinicians who wish to explore their understanding of 'personhood', person-centred care and the nature of Kitwood's critical appraisal of how 'care' should be constructed and delivered." Ageing and Society "Baldwin and Capstick have produced an honest appraisal that is undeniably a reader and critical commentary, and have not shirked from any responsibilities. ... This paperback would serve two distinct strands of readership equally well - those coming afresh to dementia care, or practitioners steeped in the concepts, who are looking to reanalyse and consider future developments. As such, it is difficult to underestimate its value." Nursing in Practice How does Kitwood’s work contribute to our understanding of ‘the dementing process’ and the essentials of quality care? How was Kitwood’s thinking about dementia influenced by the wider context of his work in theology, psychology and biochemistry? What is the relevance today of key themes and issues in Kitwood’s work? Tom Kitwood was one of the most influential writers on dementia of the last 20 years. Key concepts and approaches from his work on person-centred care and well-being in dementia have gained international recognition and shaped much current thinking about practice development. The complexities of Kitwood’s work and the development of his thinking over time have, however, received less attention. This Reader brings together twenty original publications by Kitwood which span the entire period of his writing on dementia, and the different audiences for whom he wrote. Almost ten years after Kitwood’s death, it is now timely to review his contribution to the field of dementia studies in the light of more recent developments and from a critical and interdisciplinary perspective. The introduction to this Reader summarises and problematises some of the key characteristics of Kitwood’s writing. Each of the four themed sections begins with a commentary offering a balanced consideration of the strengths of Kitwood’s work, but also of its limitations and oversights. The Reader also includes a biography and annotated bibliography. Tom Kitwood on Dementia: A Reader and Critical Commentary is key reading for students of social work or mental health nursing, with an interest in dementia care. Professionals working with people with dementia will also find it invaluable. Additional Contributors: Habib Chaudhury, Deborah O’Connor, Alison Phinney, Barbara Purves, Ruth Bartlett.
Understanding Behaviour in Dementia that Challenges, Second Edition by Ian Andrew James,Louisa Jackman Pdf
The innovative Newcastle Challenging Behaviour Model for dementia care has recently been updated, leading to new advances in the field. This revised second edition guide to assessment and treatment of behaviours that challenge associated with dementia includes these latest developments along with new sections on what have traditionally been considered controversial topics. The new chapters cover issues including: - End of life care - Use of therapeutic dolls - Lies and deception - Physical restraint during personal care - Racism towards care staff With a particular emphasis on non-pharmacological approaches, this book details the range of behaviours common in individuals with dementia, along with the most effective assessment and treatment techniques for health care professionals.
Communication Skills for Effective Dementia Care by Ian Andrew James,Laura Gibbons Pdf
Effective communication is critical for everyone, and this insightful book teaches the skills needed by healthcare staff in their day-to-day interactions with people with dementia and their families. Often when people with dementia exhibit behaviour that challenges, it is an indication that their needs are not being met. The authors illustrate the key aspects of communication for the development of a skilled and confident workforce, capable of providing thoroughly effective care that reduces levels of agitation in people with dementia. The first six chapters describe the CAIT (Communication and Interaction Training) framework established by the authors. This is followed by chapters contributed by experts on the Positive Care ApproachTM, appropriate touch and communication with people in the late stages of dementia. Accessible and practical, it will help caregivers develop and articulate existing skills as well as gain new ones, allowing them to overcome the challenges faced when caring for people with dementia.
Ideal for quick reference, this pocket-sized guide puts all the crucial information on caring for patients with dementia at your fingertips. All you need to know on: Person-centered dementia care Communication and managing behaviour Pain assessment Nutrition and medication Advanced care plans And much more . . .
Creating Moments of Joy Along the Alzheimer's Journey by Jolene Brackey Pdf
The beloved best seller has been revised and expanded for the fifth edition. Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer's disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimer's, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or said, but the feeling that we left them with will linger. The new edition of Creating Moments of Joy is filled with more practical advice sprinkled with hope, encouragement, new stories, and generous helpings of humor. In this volume, Brackey reveals that our greatest teacher is having cared for and loved someone with Alzheimer's and that often what we have most to learn about is ourselves.
A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.
Background: Most people with dementia live in their own homes, often together with their partners, who become informal caregivers. Relationship quality and sense of couplehood can be threatened as a result of the transition from a mutually interdependent relationship to a caregiver-care-receiver relationship. This, in turn, may lead to many negative consequences for both partners. Support provided for couples is often divided into different types for the person with dementia and for the partner without dementia and lacks couple-based support that targets the relationship, resources and the couple’s everyday life together. Aim: The overall aim of this thesis is to explore couple-centred interventions in dementia and to develop and test a salutogenic, resource-oriented and couple-based intervention among couples in which one partner has dementia living at home. Methods and findings: This thesis comprises three parts: The first part Exploring involves two linked reviews, one narrative review (study I A) and one scoping review (study I B) that aim to identify and describe what previous couple-centred interventions comprised and why they were conducted. The results of the reviews revealed a knowledge gap in and a need for easily accessible support that targets couple relationships, resources and everyday life. The second part Developing (study II) refers to the development of an easily accessible resource-oriented couple-management intervention. The first step was to identify priority topics for such an intervention through a co-researcher process with couples living with dementia. This included a comprehensive literature review, interviews with couples in which one partner has dementia, and consultation meetings with expert groups of people with dementia and partners in both Sweden and the UK. The co-researcher process and the expert meetings informed four main themes with corresponding sub-themes that couples with dementia considered as important to their wellbeing in their everyday lives: (1) Home and Neighbourhood, (2) Meaningful Activities and Relationships, (3) Approach and Empowerment, and (4) Couplehood. The themes were further developed and integrated into the multimedia application DemPower, which was developed for the delivery of the intervention. The third part Testing and Evaluating describes a feasibility study (study III) in which the DemPower application was tested for feasibility and acceptability among couples in Sweden and the UK. The results of the feasibility study indicated that the DemPower intervention was feasible and acceptable among couples in which one partner has dementia living at home. The testing and evaluating part also comprise a qualitative study (study IV) that explores the experiences of engaging with DemPower together as a couple living with dementia in Sweden. The findings resulted in the three themes: (1) Growth of the relationship, (2) We are not alone, and (3) Positive approach, which the couples appreciated and associated with the resource-oriented and salutogenic approach of DemPower. The overall findings of the thesis are presented in a concluding synthesis at the end of the thesis. The concluding synthesis, focused on “Meaningfulness”, “Empowering health promotion”, “Normalization” and “Transitions and couplehood”, represents the core findings of this thesis. What this thesis adds: This thesis contributes to research, healthcare and the public by highlighting the need for a salutogenic approach toward couples living with dementia. The DemPower application, with its focus on couples’ relationships, resource-orientation and everyday life, has proven feasibility and acceptability and has meaningfully addressed a gap in the literature and in practice. As researchers, healthcare professionals and the public, we need to support couples where one partner has dementia to continue to live as normal life as possible. This can best be achieved by focusing on what couples can do, by inclusion and by valuing them as the experts within dementia research and of their life experiences. Bakgrund: Majoriteten av personer med demens bor i sitt eget hem och ofta tillsammans med sin partner som blir en informell vårdgivare. Relationens kvalitet och känsla av parskap hotas ofta till följd av övergången från en ömsesidig beroenderelation till en vårdgivare-vårdtagar-relation allt eftersom demenssjukdomen fortskrider. Detta kan innebära många negativa konsekvenser. Stöd för par där ena partnern har demens delas ofta upp i olika former för personen med demens och för partnern utan demens, vilket innebär att det saknas parbaserat resursorienterat stöd med inriktning på att främja parrelationen och parets vardagliga liv. Syfte: Syftet med denna avhandling är att utforska parcentrerade interventioner inom demens och att utveckla och testa ett parbaserat, salutogent och resursorienterat stöd för par där ena partnern har en demenssjukdom och som bor tillsammans i det egna hemmet. Metoder och fynd: Denna avhandling består av tre delar. Den första delen att utforska inkluderar två länkade litteraturöversikter, en narrativ översikt och en kartläggande översikt (studie I) som beskriver tidigare interventioner för par som lever med demens och varför de genomförts. Resultaten av översikterna visade ett kunskapsgap i, och ett behov av lättillgängligt stöd som riktar sig till parförhållanden, parens resurser och att främja det vardagliga livet. Den andra delen, att skapa (studie II) involverar utvecklingen av ett lättillgängligt resursorienterat och parbaserat stöd. Det första steget var att identifiera prioriterade ämnen för en sådan intervention tillsammans med par som lever med demens, genom en så kallad medforskarprocess. Detta inkluderade en omfattande litteraturgenomgång, intervjuer med par där ena partnern har demens, och konsultationsmöten med expertgrupper bestående av personer med demens och partners i Sverige och i Storbritannien. Medforskarprocessen och expertmötena resulterade i fyra huvudteman med motsvarande underteman vilka par med demens ansåg vara viktiga för deras relation och för välbefinnande i vardagen: (1) Hem och grannskap, (2) Meningsfulla aktiviteter och relationer, (3) Förhållningssätt och empowerment och (4) Parskap. Dessa teman vidareutvecklades och integrerades i multimedia-applikationen DemPower, som utvecklades i syfte att erbjuda interventionen till par som lever med demens. Den tredje delen att testa och att utvärdera beskriver genomförbarhetsstudien (studie III) där applikationen DemPower testades med avseende på genomförbarhet och acceptabilitet hos par där en partner har demens i Sverige och i Storbritannien. Resultaten av studien visade att DemPower-interventionen var genomförbar och acceptabel bland par där ena partnern har demens. Denna delen av avhandlingen inkluderar även en kvalitativ studie (studie IV) som undersökte parens erfarenheter av att testa DemPower tillsammans som ett par. De samlade upplevelserna resulterade i tre teman: (1) Utveckling av parrelationen, (2) Vi är inte ensamma och (3) Positivt förhållningssätt. De övergripande resultaten från avhandlingen presenteras även i en konkluderande syntes i slutet av avhandlingen. Den konkluderande syntesen med fokus på Meningsfullhet, Empowerment, Normalisering och Parskap representerar kärnan i denna avhandling. Avhandlingens slutsatser och kunskapsbidrag: DemPower-applikationen med fokus på parförhållanden, hälsofrämjande resurser och vardagen har bidragit med ett stöd som vilar på en genuin parbaserad grund tillämpad i det vardagliga livet för par som lever med demens. Denna avhandling bidrar även med kunskap till forskning, vård och allmänheten genom att lyfta fram ett salutogent förhållningssätt till par som lever med demens. Som forskare, vårdpersonal och allmänhet bör vi stödja par där ena partnern har demens för att de ska kunna fortsätta leva ett så normalt liv som möjligt. Detta kan bäst uppnås genom att fokusera på parens resurser, genom inkludering och genom att värdera dem som experter inom demensforskning och i deras livserfarenheter.
Doing Human Service Ethnography by Jacobsson, Katarina,Gubrium, Jaber Pdf
This book shows researchers how ethnography can be carried out within human service settings, providing an invaluable guide on how to apply ethnographic creativeness and offering a more humanistic and context-sensitive approach to generating valid knowledge about today’s service work.
Person-Centred Dementia Care by Dawn Brooker,Isabelle Latham Pdf
Exploring issues related to person-centred care for people with dementia, this new edition of a bestselling book shows how to provide care services that enable people to live well. The book looks at working in a person-centred way from diagnosis to end-of-life care, referencing recent developments and applications of the VIPS model.
