Educating Children With Life Limiting Conditions

Author : Alison Ekins,Sally Robinson,Ian Durrant,Kathryn Summers
Publisher : Taylor & Francis
Page : 216 pages
File Size : 45,5 Mb
Release : 2017-05-08
Category : Education
ISBN : 9781317194231

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Educating Children with Life-Limiting Conditions by Alison Ekins,Sally Robinson,Ian Durrant,Kathryn Summers Pdf

Educating Children with Life-Limiting Conditions supports teachers who are working with children with life-limiting or life-threatening conditions in mainstream schools by providing them with the core knowledge and skills that underpin effective practice within a whole-school and cross-agency approach. Mainstream schools now include increasing numbers of children with life-limiting or life-threatening conditions, and this accessible book is written by a team comprised of both education and health professionals, helping to bridge the gap between different services. Recognising the complexity of individual cases, the authors communicate key principles relating to the importance of communication, multi-professional understanding and working and proactive planning for meeting the needs of any child with a life-limiting or life-threatening condition that can be applied to a range of situations. Reflective activities and practical resources are provided and are also available to download. This book will be of interest to teachers in mainstream schools, as well as teachers, SENCOs and senior leaders in all school settings, school nurses, children’s nurses and allied health professionals.

Author : Alison Ekins,Sally Robinson,Ian Durrant,Kathryn Summers
Publisher : Routledge
Page : 278 pages
File Size : 51,6 Mb
Release : 2017-05-08
Category : Education
ISBN : 9781317194224

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Educating Children with Life-Limiting Conditions by Alison Ekins,Sally Robinson,Ian Durrant,Kathryn Summers Pdf

Educating Children with Life-Limiting Conditions supports teachers who are working with children with life-limiting or life-threatening conditions in mainstream schools by providing them with the core knowledge and skills that underpin effective practice within a whole-school and cross-agency approach. Mainstream schools now include increasing numbers of children with life-limiting or life-threatening conditions, and this accessible book is written by a team comprised of both education and health professionals, helping to bridge the gap between different services. Recognising the complexity of individual cases, the authors communicate key principles relating to the importance of communication, multi-professional understanding and working and proactive planning for meeting the needs of any child with a life-limiting or life-threatening condition that can be applied to a range of situations. Reflective activities and practical resources are provided and are also available to download. This book will be of interest to teachers in mainstream schools, as well as teachers, SENCOs and senior leaders in all school settings, school nurses, children’s nurses and allied health professionals.

Author : Richard Hain,Ann Goldman,Adam Rapoport,Michelle Meiring
Publisher : Oxford University Press
Page : 535 pages
File Size : 40,8 Mb
Release : 2021-07-27
Category : Medical
ISBN : 9780192554543

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Oxford Textbook of Palliative Care for Children by Richard Hain,Ann Goldman,Adam Rapoport,Michelle Meiring Pdf

The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.

Author : Richard Hain,Ann Goldman,Adam Rapoport,Medical Director Paediatric Advanced Care Team (Pact) Adam Rapoport,Michelle Meiring
Publisher : Oxford University Press
Page : 535 pages
File Size : 47,7 Mb
Release : 2021-03-24
Category : Medical
ISBN : 9780198821311

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Oxford Textbook of Palliative Care for Children by Richard Hain,Ann Goldman,Adam Rapoport,Medical Director Paediatric Advanced Care Team (Pact) Adam Rapoport,Michelle Meiring Pdf

The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.

Author : Ruth Davies,Alyson Davies
Publisher : CRC Press
Page : 432 pages
File Size : 40,9 Mb
Release : 2011-04-29
Category : Medical
ISBN : 9781444107845

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Children and Young People's Nursing by Ruth Davies,Alyson Davies Pdf

Children and Young People's Nursing provides a comprehensive overview of the issues facing children's nurses today. It focuses on developing best practice and implementing high quality care. This book covers the wide range of general and specialist care settings in which children and young people's nurses work, including schools, the community and mental health. Written by a team of experts from across the UK, it emphasizes throughout the fundamental principles of contemporary children's nursing, such as family-centred care, safeguarding and the need for a culturally sensitive and rights-based approach to care. This is an essential text for all children's nursing students, as well as a useful reference for qualified nurses looking to update their practice. Key features All chapters are underpinned by current policies and the latest research Key points, reflection points, principles for practice boxes and cas studies to aid learning Concludes with a section on building your portfolio and advancing your practice and career

Author : David Widdas,Katrina McNamara,Francis Edwards (Paediatric palliative care liaison nurse),Susannah Woodhead (Communications officer),Together for Short Lives (Charity),Together for Short Lives (Charity) Staff
Publisher : Unknown
Page : 43 pages
File Size : 47,7 Mb
Release : 2013
Category : Terminally ill children
ISBN : 1898447195

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A Core Care Pathway for Children with Life-Limiting and Life-Threatening Conditions by David Widdas,Katrina McNamara,Francis Edwards (Paediatric palliative care liaison nurse),Susannah Woodhead (Communications officer),Together for Short Lives (Charity),Together for Short Lives (Charity) Staff Pdf

Author : Institute of Medicine,Board on Health Sciences Policy,Committee on Palliative and End-of-Life Care for Children and Their Families
Publisher : National Academies Press
Page : 713 pages
File Size : 43,9 Mb
Release : 2003-02-09
Category : Medical
ISBN : 9780309084376

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When Children Die by Institute of Medicine,Board on Health Sciences Policy,Committee on Palliative and End-of-Life Care for Children and Their Families Pdf

The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.

Author : Will Carroll
Publisher : Elsevier Health Sciences
Page : 128 pages
File Size : 42,6 Mb
Release : 2016-10-14
Category : Medical
ISBN : 9780702070853

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Social Paediatrics, Safeguarding Children & Child Abuse by Will Carroll Pdf

Social Paediatrics, Safeguarding Children & Child Abuseis a new e-book in a collection of subject-themed e-books containing relevant key articles from Paediatrics & Child Health. The e-books provide a perfect source of revision for post-graduate exams in paediatrics and portfolio material for life-long learning. As well as mapping to the requirements of post-graduate training in paediatrics, these e-books also enable anyone with a short-term interest in a specific area to buy individual articles at a price-point that will give affordable access to all readers (from medical students to GPs and practitioners in related areas). The quality of user experience on mobiles, tablets and laptops will be an added bonus for learning on the move. About the journal The parent journal (http://www.paediatricsandchildhealthjournal.co.uk/) is a rolling, continuously updated review of clinical medicine over a 4-year cycle covering all the important topics for post-graduate exams in paediatrics. The journal’s articles are refreshed, updated, augmented or replaced as appropriate each time the subject is due for revision to provide a concise overview of knowledge and practice core to the curriculum. Each article is written by invited experts and overseen by the relevant subject specialist on the Board. A trainee representative on the Board ensures relevance and accessibility for exam candidates.

Author : Elizabeth A. West
Publisher : Emerald Group Publishing
Page : 376 pages
File Size : 42,9 Mb
Release : 2015-02-13
Category : Education
ISBN : 9781784412500

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Including Learners with Low-Incidence Disabilities by Elizabeth A. West Pdf

This important book highlights the need to include learners with low-incidence disabilities and provides information related to supports and services to achieve that goal across a variety of contexts.

Author : National Academies of Sciences, Engineering, and Medicine,Division of Behavioral and Social Sciences and Education,Board on Children, Youth, and Families,Committee on Supporting the Parents of Young Children
Publisher : National Academies Press
Page : 525 pages
File Size : 54,8 Mb
Release : 2016-11-21
Category : Social Science
ISBN : 9780309388573

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Parenting Matters by National Academies of Sciences, Engineering, and Medicine,Division of Behavioral and Social Sciences and Education,Board on Children, Youth, and Families,Committee on Supporting the Parents of Young Children Pdf

Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.

Author : Lizzie Chambers,ACT-Association for Children's Palliative Care
Publisher : Unknown
Page : 36 pages
File Size : 50,9 Mb
Release : 2009-12
Category : Chronically ill children
ISBN : 1898447098

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A Guide to the Development of Children's Palliative Care Services by Lizzie Chambers,ACT-Association for Children's Palliative Care Pdf

'A Guide to the Development of Children's Palliative Care Services' is a key resource for all organisations and professionals who have an interest in developing or supporting services for life-limited or life-threatening children and their families.

Author : National Research Council,Institute of Medicine,Board on Children, Youth, and Families,Committee on the Science of Children Birth to Age 8: Deepening and Broadening the Foundation for Success
Publisher : National Academies Press
Page : 706 pages
File Size : 54,7 Mb
Release : 2015-07-23
Category : Social Science
ISBN : 9780309324885

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Transforming the Workforce for Children Birth Through Age 8 by National Research Council,Institute of Medicine,Board on Children, Youth, and Families,Committee on the Science of Children Birth to Age 8: Deepening and Broadening the Foundation for Success Pdf

Children are already learning at birth, and they develop and learn at a rapid pace in their early years. This provides a critical foundation for lifelong progress, and the adults who provide for the care and the education of young children bear a great responsibility for their health, development, and learning. Despite the fact that they share the same objective - to nurture young children and secure their future success - the various practitioners who contribute to the care and the education of children from birth through age 8 are not acknowledged as a workforce unified by the common knowledge and competencies needed to do their jobs well. Transforming the Workforce for Children Birth Through Age 8 explores the science of child development, particularly looking at implications for the professionals who work with children. This report examines the current capacities and practices of the workforce, the settings in which they work, the policies and infrastructure that set qualifications and provide professional learning, and the government agencies and other funders who support and oversee these systems. This book then makes recommendations to improve the quality of professional practice and the practice environment for care and education professionals. These detailed recommendations create a blueprint for action that builds on a unifying foundation of child development and early learning, shared knowledge and competencies for care and education professionals, and principles for effective professional learning. Young children thrive and learn best when they have secure, positive relationships with adults who are knowledgeable about how to support their development and learning and are responsive to their individual progress. Transforming the Workforce for Children Birth Through Age 8 offers guidance on system changes to improve the quality of professional practice, specific actions to improve professional learning systems and workforce development, and research to continue to build the knowledge base in ways that will directly advance and inform future actions. The recommendations of this book provide an opportunity to improve the quality of the care and the education that children receive, and ultimately improve outcomes for children.

Author : Justin Amery
Publisher : Unknown
Page : 448 pages
File Size : 44,8 Mb
Release : 2009
Category : Family & Relationships
ISBN : 9780199567966

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Children's Palliative Care in Africa by Justin Amery Pdf

Childen's palliative care has developed rapidly as a discipline, as health care professionals recognize that the principles of adult palliative care may not always be applicable to children at the end of life. The unique needs of dying children are particularly evident across Africa, where the scale of the problem is overwhelming, and the figures so enormous that they are barely comprehensible: over 400,000 children in Africa died from AIDS in 2003, and out of the 166,000 children a year diagnosed with cancer, 85% of these are in the developing world. Despite the enormous need, provision of children's palliative care in Africa is almost non-existent, with very few health workers trained and confident to provide care for dying children. The challenges of providing palliative care in this setting are different to those in more developed countries, contending with the shortage of physical and human resources in addition to the vast scope of the care needed. Written by a group with wide experience of caring for dying children in Africa, this book provides practical, realistic guidance by improving access to, and delivery of, palliative care in this demanding setting. It looks at the themes common to palliative care--including communication, assessment, symptom management, psychosocial issues, ethical dilemmas, end of life care, and tips for the professional on compassion and conservation of energy--but always retains the focus on the particular needs of the health care professional in Africa. While containing some theory, the emphasis is on practical action throughout the book. Children's Palliative Care in Africa provides health care professionals working in Africa, and other resource-poor settings, with the confidence, knowledge, and capacity to improve care for the terminally ill child in constrained and demanding environments.

Author : Anonim
Publisher : Unknown
Page : 164 pages
File Size : 54,5 Mb
Release : 1893
Category : Electronic
ISBN : BSB:BSB11469782

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Report on education in the United States by Anonim Pdf

Author : Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues
Publisher : National Academies Press
Page : 638 pages
File Size : 40,6 Mb
Release : 2015-03-19
Category : Medical
ISBN : 9780309303132

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Dying in America by Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues Pdf

For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.