End Of Life

Author : Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues
Publisher : National Academies Press
Page : 638 pages
File Size : 51,7 Mb
Release : 2015-03-19
Category : Medical
ISBN : 9780309303132

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Dying in America by Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues Pdf

For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Author : Michelle O'Rourke,Eugene Dufour
Publisher : Novalis Press (CN)
Page : 0 pages
File Size : 50,7 Mb
Release : 2012
Category : Death
ISBN : 2896463968

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Embracing the End of Life by Michelle O'Rourke,Eugene Dufour Pdf

Author : U.S. Department of Health and Human Services
Publisher : Lulu.com
Page : 78 pages
File Size : 54,5 Mb
Release : 2019-04-13
Category : Reference
ISBN : 9780359588237

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End of Life: Helping with Comfort and Care by U.S. Department of Health and Human Services Pdf

At the end of life, each story is different. Death comes suddenly, or a person lingers, gradually fading. For some older people, the body weakens while the mind stays alert. Others remain physically strong, but cognitive losses take a huge toll. Although everyone dies, each loss is personally felt by those close to the one who has died. End-of-life care is the term used to describe the support and medical care given during the time surrounding death. Such care does not happen only in the moments before breathing ceases and the heart stops beating. Older people often live with one or more chronic illnesses and need a lot of care for days, weeks, and even months before death. The goal of End of Life: Helping with Comfort and Care is to provide guidance and help in understanding the unfamiliar territory of death. This information is based on research, such as that supported by the National Institute on Aging (NIA), along with other parts of the National Institutes of Health.

Author : Roi Livne
Publisher : Unknown
Page : 361 pages
File Size : 46,9 Mb
Release : 2019
Category : Medical
ISBN : 9780674545175

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Values at the End of Life by Roi Livne Pdf

Once defiant of death--or even in denial--many American families and health care professionals are embracing the notion that a life consumed by suffering may not be worth living. Sociologist Roi Livne documents the rise and effectiveness of hospice and palliative care, and the growing acceptance that less treatment may be better near the end of life.

Author : Karen Whitley Bell
Publisher : Union Square & Co.
Page : 209 pages
File Size : 53,9 Mb
Release : 2018-01-02
Category : Family & Relationships
ISBN : 9781454928454

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Living at the End of Life by Karen Whitley Bell Pdf

An updated edition of the most respected book on hospice care—for both patients and caregivers. This warm and informative resource on hospice and other end-of-life care options now gets an update. It receives a new preface and revised guidance on elders who need more long-term care and support, recommendations on pain medications, and advice for those living extended lives with treatable, but not curable, diseases. Written by a hospice nurse, Living at the End of Life reassures us that this difficult time also offers an opportunity to explore and rediscover a richer meaning in life. Drawing on her years of experience, Bell has created a comprehensive, insightful guide to every aspect of hospice care and the final stages of life. For people in hospice, as well as their friends and families, this is an indispensable and trustworthy source of comfort and spiritual healing.

Author : David Kuhl
Publisher : Unknown
Page : 319 pages
File Size : 55,5 Mb
Release : 2005-02-01
Category : Death
ISBN : 0733315208

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What Dying People Want by David Kuhl Pdf

Facing death results in more fear and anxiety than any other human experience. Though much has been done to address the physical pain suffered by those with a terminal illness, Western medicine has been slow to understand and learn to alleviate the psychological and spiritual distress that comes with the knowledge of death. In What Dying People Want, internationally renowned palliative care physician David Kuhl begins to bridge that gap by addressing end-of-life realities - pra ctical and emotional - through his own experiences as a doctor and through the words and experiences of people who have known they were dying. Dr Kuhl presents ways of finding new life in the process of dying, understanding the inner reality of living with a terminal illness, and addressing the fear of pain, as well as pain itself. He also offers concrete guidance on how to enhance doctor/patient relationships, hold family meetings, and participate in a process of life reviews.

Author : Committee on Care at the End of Life,Institute of Medicine
Publisher : National Academies Press
Page : 425 pages
File Size : 44,9 Mb
Release : 1997-10-30
Category : Medical
ISBN : 9780309518253

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Approaching Death by Committee on Care at the End of Life,Institute of Medicine Pdf

When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."

Author : Allan Kellehear
Publisher : Unknown
Page : 224 pages
File Size : 54,6 Mb
Release : 2020-07-28
Category : Electronic
ISBN : 0231182147

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Visitors at the End of Life - Finding Meaning and Purpose in Near-Death Phenomena by Allan Kellehear Pdf

This book is about how, when, and why our dead visit us. Allan Kellehear--a medical sociologist and expert on death, dying, and palliative care--has gathered data and conducted studies on deathbed visions across cultures.

Author : Institute of Medicine,Board on Health Sciences Policy,Committee on Palliative and End-of-Life Care for Children and Their Families
Publisher : National Academies Press
Page : 713 pages
File Size : 41,8 Mb
Release : 2003-02-09
Category : Medical
ISBN : 9780309084376

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When Children Die by Institute of Medicine,Board on Health Sciences Policy,Committee on Palliative and End-of-Life Care for Children and Their Families Pdf

The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.

Author : Rod MacLeod,Roderick Duncan MacLeod,Lieve Van den Block
Publisher : Unknown
Page : 0 pages
File Size : 48,7 Mb
Release : 2019
Category : Medicine
ISBN : 3319317385

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Textbook of Palliative Care by Rod MacLeod,Roderick Duncan MacLeod,Lieve Van den Block Pdf

"Textbook of Palliative Care is a comprehensive, clinically relevant and state-of-the art book, aimed at advancing palliative care as a science, a clinical practice and as an art. Palliative care has been part of healthcare for over fifty years but we still find ourselves having to explain its nature and practice to colleagues and to the public in general. Healthcare education and training has been slow to recognize the vital importance of ensuring that all practitioners have a good understanding of what is involved in the care of people with serious or advanced illnesses and their families. However, the science of palliative care is advancing and our understanding concerning many aspects of palliative care is developing rapidly. The book is divided into separate sections for ease of use. Over 100 chapters written by experts in their given fields provide up-to-date information on a wide range of topics of relevance to those providing care towards the end of life no matter what the disease may be. We present a global perspective on contemporary and classic issues in palliative care with authors from a wide range of disciplines involved in this essential aspect of care. The Textbook includes sections addressing aspects such as symptom management and care provision, organization of care in different settings, care in specific disease groups, palliative care emergencies, ethics, public health approaches and research in palliative care. This Textbook will be of value to practitioners in all disciplines and professions where the care of people approaching death is important, specialists as well as non-specialists, in any setting where people with serious advanced illnesses are residing. It is also an important resource for researchers, policy-and decision-makers at national or regional levels. Neither the science nor the art of palliative care will stand still so we aim to keep this Textbook updated as the authors find new evidence and approaches to care. ." - Prové de l'editor.

Author : Bronnie Ware
Publisher : Hay House, Inc
Page : 322 pages
File Size : 44,5 Mb
Release : 2019-08-13
Category : Self-Help
ISBN : 9781401956004

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Top Five Regrets of the Dying by Bronnie Ware Pdf

Revised edition of the best-selling memoir that has been read by over a million people worldwide with translations in 29 languages. After too many years of unfulfilling work, Bronnie Ware began searching for a job with heart. Despite having no formal qualifications or previous experience in the field, she found herself working in palliative care. During the time she spent tending to those who were dying, Bronnie's life was transformed. Later, she wrote an Internet blog post, outlining the most common regrets that the people she had cared for had expressed. The post gained so much momentum that it was viewed by more than three million readers worldwide in its first year. At the request of many, Bronnie subsequently wrote a book, The Top Five Regrets of the Dying, to share her story. Bronnie has had a colourful and diverse life. By applying the lessons of those nearing their death to her own life, she developed an understanding that it is possible for everyone, if we make the right choices, to die with peace of mind. In this revised edition of the best-selling memoir that has been read by over a million people worldwide, with translations in 29 languages, Bronnie expresses how significant these regrets are and how we can positively address these issues while we still have the time. The Top Five Regrets of the Dying gives hope for a better world. It is a courageous, life-changing book that will leave you feeling more compassionate and inspired to live the life you are truly here to live.

Author : Kathryn Boog,Claire Tester
Publisher : Elsevier Health Sciences
Page : 226 pages
File Size : 50,7 Mb
Release : 2007-10-23
Category : Medical
ISBN : 9780443103803

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Palliative Care: A Practical Guide for the Health Professional by Kathryn Boog,Claire Tester Pdf

This book encourages health professionals to reconceptualise their practice in the light of the fact that their patients are deteriorating and dying, supporting them in their dichotomous role which involves affirming that person's life whilst acknowledging that that life is ending. Professionals are encouraged to think laterally, to be creative in their use of their core skills, and to use their life skills and experience to change the focus of their interventions. By making these changes, those involved with caring for the dying will be able to address issues related to burnout and feeling de-skilled. The authors share their considerable experience with the reader - what works for both patient and carer/professional when working in this field. By providing workable solutions, they empower those in disempowering situations, such as when working with terminally ill children and adults. The book is truly holistic and client-centred in its approach, upholding the philosophy of palliative care. Aimed at all who interact with children and adults who have a life-limiting condition or who are dying Offers practical examples of approaches to dilemmas and emotional issues commonly face by those working in palliative care Encourages professionals to think laterally, to be creative in their use of core skills, and to use their life skills and experience to change the focus of their interventions Moves the emphasis away from the medical model to the emotional and spiritual influences on quality of life Offers clear, workable guidelines and demonstrates practical solutions, based on proven theory and experience, to problems encountered on a day-to-day basis by patients and those coming into contact with them

Author : Sue Westwood
Publisher : Routledge
Page : 245 pages
File Size : 55,9 Mb
Release : 2021-09-09
Category : Law
ISBN : 9781000439496

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Regulating the End of Life by Sue Westwood Pdf

Regulating the End of Life: Death Rights is a collection of cutting-edge chapters on assisted dying and euthanasia, written by leading authors in the field. Providing an overview of current regulation on assisted dying and euthanasia, both in the UK and internationally, this book also addresses the associated debates on ethical, moral, and rights issues. It considers whether, just as there is a right to life, there should also be a right to death, especially in the context of unbearable human suffering. The unintended consequences of prohibitions on assisted dying and euthanasia are explored, and the argument put forward that knowing one can choose when and how one dies can be life-extending, rather than life-limiting. Key critiques from feminist and disability studies are addressed. The overarching theme of the collection is that death is an embodied right which we should be entitled to exercise, with appropriate safeguards, as and when we choose. Making a novel contribution to the debate on assisted dying, this interdisciplinary book will appeal to those with relevant interests in law, socio-legal studies, applied ethics, medical ethics, politics, philosophy, and sociology.

Author : Lynn Keegan, PhD, RN, AHN-BC, FAAN,Carole Ann Drick, PhD, RN, TNS, TNSCP
Publisher : Springer Publishing Company
Page : 272 pages
File Size : 55,9 Mb
Release : 2010-10-18
Category : Medical
ISBN : 0826107605

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End of Life by Lynn Keegan, PhD, RN, AHN-BC, FAAN,Carole Ann Drick, PhD, RN, TNS, TNSCP Pdf

2011 AJN Book of the Year Winner in both Gerontologic Nursing and Hospice and Palliative Care! "The book is easy to read and is essential to all who work and care for those at the end of life." --David Shields, RN, MSN, QTTT Assistant Professor of Nursing Capital University "The book is thought provoking and, if you are like me, you will be assessing (consciously or subconsciously) how good you or your service are at providing holistic care around the time of death. It deserves to be widely read and I hope it starts many a conversation." IAHPC Newsletter "[This book] is a gem. It is a rare balance of an interesting read with an incredible integration of factual information. I intend to share it in my long term care circles...A wonderful contribution!" Charlotte Eliopoulos,RN, MPH, PhD Executive Director American Association for Long Term Care Nursing "Every once in a long while a short, succinct book comes along that awakens our senses and motivates us to action. [This] is one such book. It cuts right to the chase to offer a new, innovative change for an old, outmoded rite of passage." Barbara Dossey, PhD, RN, AHN-BC, FAAN Co-Director, Nightingale Initiative for Global Health, Canada and Virginia Director, Holistic Nursing Consultants, New Mexico (From the Foreword) This professional clinical guide presents nursing administrators and nurses in acute care agencies, nursing homes, hospice, and palliative care settings with detailed implementation strategies for accommodating dying persons and their loved ones as they make the transition from physical life. It presents the need for and the development of the concept: Golden Room concept: a place for dying that facilitates a dignified, peaceful, and profound experience for dying persons and their loved ones. This book presents a practical solution on multiple levels that will benefit all involved-patient, family, nurses, administrators, policy makers, and insurance companies. It presents the theoretical frameworks for end-of-life care and how the Golden Room concept fits into these frameworks. Published in partnership with the Watson Caring Science Institute, this unique resource: Advocates the use of Golden Rooms, which provide dignified, private, and safe settings for death and dying Presents various cases that illustrate the need for a dignified death, as well as strategies on how to provide for this dignified death Provides questions of concern after each case scenario, suitable for class discussion or personal reflection Offers cost-effective end-of-life solutions for families, the medical establishment, and insurance companies

Author : SUSAN. LOWEY
Publisher : Unknown
Page : 128 pages
File Size : 41,6 Mb
Release : 2019
Category : Electronic
ISBN : OCLC:1096517749

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NURSING CARE AT THE END OF LIFE by SUSAN. LOWEY Pdf