Handbook Of Perinatal And Neonatal Palliative Care

Author : Rana Limbo, PhD, RN, CPLC, FAAN,Charlotte Wool, PhD, RN,Brian S. Carter, MD, FAAP
Publisher : Springer Publishing Company
Page : 440 pages
File Size : 47,7 Mb
Release : 2019-11-11
Category : Medical
ISBN : 9780826138422

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Handbook of Perinatal and Neonatal Palliative Care by Rana Limbo, PhD, RN, CPLC, FAAN,Charlotte Wool, PhD, RN,Brian S. Carter, MD, FAAP Pdf

The first resource of its kind, this authoritative handbook holistically addresses the multidimensional aspects of perinatal and neonatal palliative care. Written by an interprofessional team of renowned specialists, it is both a text and an evidencebased reference for all members of the palliative care team. This book helps individual team members forge interdisciplinary approaches to care, assess current programs, improve the quality of care, and tailor new models of care. Encompassing the perspectives of numerous multidisciplinary healthcare providers, the book underscores the unique aspects of perinatal and neonatal palliative care, with a focus on improving quality of life, as well as comfort at the end of life. It describes healthcare for neonates and pregnant mothers, care and support of the family, planning and decision-making, and effective support for grief and bereavement, addressing all palliative and neonatal care settings. Other chapters focus on the prenatal period after diagnosis of the expected baby's life-threatening condition. These include such topics as care of the mother, delivering devastating news, and advance care planning. Each chapter contains photos, figures, and/or tables and case studies with clinical implications and critical thinking questions. Also included is an extensive listing of relevant palliative care organizations. Paintings and poetry provide an artistic backdrop to the authors' inspiring words. Key Features: Addresses a growing need for specific provider resources in neonatal palliative care Covers the clinical and emotional aspects of palliative care for babies and their families Abundant resources for effective and compassionate family-centered care Case studies with critical thinking questions Accompanying video clips of healthcare and family interactions Supplemental image bank included

Author : Erin M. Denney-Koelsch,Denise Côté-Arsenault
Publisher : Springer Nature
Page : 443 pages
File Size : 45,6 Mb
Release : 2020-02-05
Category : Medical
ISBN : 9783030347512

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Perinatal Palliative Care by Erin M. Denney-Koelsch,Denise Côté-Arsenault Pdf

This unique book is a first-of-its-kind resource that comprehensively covers each facet and challenge of providing optimal perinatal palliative care. Designed for a wide and multi-disciplinary audience, the subjects covered range from theoretical to the clinical and the practically relevant, and all chapters include case studies that provide real-world scenarios as additional teaching tools for the reader. Perinatal Palliative Care: A Clinical Guide is divided into four sections. Part One provides the foundation, covering an overview of the field, key theories that guide the practice of perinatal palliative care, and includes a discussion of perinatal ethics and parental experiences and needs upon receiving a life-limiting fetal diagnosis. Part Two delves further into practical clinical care, guiding readers through issues of obstetrical management, genetic counseling, neonatal pain management, non-pain symptom management, spiritual care, and perinatal bereavement care. Part Three discusses models of perinatal palliative care, closely examining evidence for different types of PPC programs: from hospital-based programs, to community-based care, and examines issues of interdisciplinary PPC care coordination, birth planning, and team support. Finally, Part Four concludes the book with a close look at special considerations in the field. In this section, racial, ethnic, and cultural perspectives and implications for PPC are discussed, along with lessons in how to provide PPC for a wide-range of clinical and other healthcare workers. The book closes with a look to the future of the field of perinatal palliative care. Thorough and practical, Perinatal Palliative Care: A Clinical Guide is an ideal resource for any healthcare practitioner working with these vulnerable patient populations, from palliative care specialists, to obstetricians, midwifes, neonatologists, hospice providers, nurses, doulas, social workers, chaplains, therapists, ethicists, and child life specialists.

Author : Paola Lago,Franca Benini,Elvira Parravicini,Brian S. Carter
Publisher : Frontiers Media SA
Page : 116 pages
File Size : 52,7 Mb
Release : 2021-08-03
Category : Medical
ISBN : 9782889711413

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Perinatal Palliative Care by Paola Lago,Franca Benini,Elvira Parravicini,Brian S. Carter Pdf

Author : Alexandra Mancini,Jayne Price,Tara Kerr-Elliott
Publisher : Springer Nature
Page : 407 pages
File Size : 53,6 Mb
Release : 2020-01-22
Category : Medical
ISBN : 9783030318772

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Neonatal Palliative Care for Nurses by Alexandra Mancini,Jayne Price,Tara Kerr-Elliott Pdf

This textbook details the nursing care of babies with life limiting conditions and sets the context within the philosophy of internationally collaborative neonatal palliative care emphasising emotional and practical support for their families. Currently, increasing interest from nursing and medical fields regarding palliative care for babies in the antenatal and neonatal period is evident. This innovative and unique text provides experienced nurses and student nurses alike with realistic guidance in caring for babies with palliative care needs, alongside the crucial support for their families and identifies important strategies for professional self care. Nursing experts in this field collaborated to develop a reference book which supports holistic and integrated clinical practice. Parents’ experiences of what they consider helpful or not so helpful are interwoven throughout the chapter. There is currently no other textbook which offers the above information and guidance specifically for nurses and allied health professionals. As such this book will appeal to all nurses and health professionals working within the neonatal palliative care specialty in a global context.

Author : Brian S. Carter,Marcia Levetown,Sarah E. Friebert
Publisher : JHU Press
Page : 769 pages
File Size : 47,8 Mb
Release : 2011-10-15
Category : Medical
ISBN : 9781421402130

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Palliative Care for Infants, Children, and Adolescents by Brian S. Carter,Marcia Levetown,Sarah E. Friebert Pdf

There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume. Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips. With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.

Author : Sandra Lee Gardner,Brian S. Carter,Mary I Enzman-Hines,Susan Niermeyer
Publisher : Elsevier Health Sciences
Page : 1267 pages
File Size : 53,6 Mb
Release : 2020-02-05
Category : Medical
ISBN : 9780323570916

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Merenstein & Gardner's Handbook of Neonatal Intensive Care - E-Book by Sandra Lee Gardner,Brian S. Carter,Mary I Enzman-Hines,Susan Niermeyer Pdf

Co-authored by an interprofessional collaborative team of physicians and nurses, Merenstein & Gardner’s Handbook of Neonatal Intensive Care, 9th Edition is the leading resource for interprofessional, collaborative care of critically ill newborns. It offers comprehensive coverage with a unique interprofessional collaborative approach and a real-world perspective that make it a practical guide for both nurses and physicians. The new ninth edition features a wealth of expanded content on delivery-room care; new evidence-based care "bundles"; palliative care in the NICU; interprofessional collaborative care of parents with depression, grief, and complicated grief; and new pain assessment tools. Updated high-quality references have also been reintegrated into the book, making it easier for clinicians to locate research evidence and standards of care with minimal effort. These additions, along with updates throughout, ensure that clinicians are equipped with the very latest clinical care guidelines and practice recommendations — all in a practical quick-reference format for easy retrieval and review. UNIQUE! Core author team of two physicians and two nurses gives this internationally recognized reference a true interprofessional collaborative approach that is unmatched by any other resource. Consistent organization within clinical chapters include Physiology/Pathophysiology, Etiology, Prevention, Data Collection (History, Signs and Symptoms, and Laboratory Data), Treatment/Intervention, Complications, and Parent Teaching sections. UNIQUE! Color-highlighted point-of-care clinical content makes high-priority clinical content quick and easy to find. UNIQUE! Parent Teaching boxes outline the relevant information to be shared with a patient’s caregivers. Critical Findings boxes outline symptoms and diagnostic findings that require immediate attention to help the provider prioritize assessment data and steps in initial care. Case studies demonstrate how to apply essential content to realistic clinical scenarios for application-based learning. NEW! Updated content throughout reflects the latest evidence-based practice, national and international guidelines, and current protocols for interprofessional collaborative practice in the NICU. NEW! Up-to-date, high-quality references are now reintegrated into the text for quick retrieval, making it easier for clinicians to locate research evidence and standards of care with minimal effort. NEW! Expanded content on delivery-room care includes the impact of staffing on quality of care, delayed cord clamping, resuscitation, and more. NEW! Coverage of the new evidence-based care "bundles" keeps clinicians up to date on new guidelines that have demonstrated improved outcomes of very preterm infants. NEW! Coverage of new pain assessment tools equips NICU providers with essential resources for maintaining patient comfort. NEW! Expanded coverage of palliative care in the NICU provides the tools needed to ensure patient comfort. NEW! Expanded coverage of interprofessional collaborative care of parents with depression, grief, and complicated grief prepares clinicians for this essential area of practice.

Author : Kathie Kobler,Rana Kristina Limbo
Publisher : Unknown
Page : 367 pages
File Size : 40,8 Mb
Release : 2017
Category : Hospice care
ISBN : 1934654361

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Conversations in Perinatal, Neonatal, and Pediatric Palliative Care by Kathie Kobler,Rana Kristina Limbo Pdf

Author : Carole Kenner, PhD, NNP, FAAN
Publisher : Springer Publishing Company
Page : 720 pages
File Size : 53,9 Mb
Release : 2016-06-21
Category : Medical
ISBN : 9780826171658

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Neonatal Nursing Care Handbook by Carole Kenner, PhD, NNP, FAAN Pdf

Neonatal nurses face an ever-changing practice landscape that requires swift decisions and actions. This is an up-to-date, comprehensive, quick reference resource written specifically for neonatal nurses throughout the globe. Designed for speedy information retrieval, it encompasses vital information about commonly encountered conditions and procedures on the neonatal unit. The handbook is written by outstanding neonatal practitioners in accessible language and consistently formatted for ease of use. Illustrations, diagrams and flow charts enhance information, which is divided into sections covering Systems Assessment and Management of Disorders, Special Care Considerations, and Procedures and Diagnostic Tests. Appendices deliver such valuable tools for clinical practice as a list of common abbreviations and pertinent web resources. Also included are downloadable, digital, patient management tools, reusable templates, and quick-reference calculation tools. Key Features: Provides quick-access, current information about common neonatal conditions and procedures Assists neonatal nurses in making sound clinical decisions Written by prominent leaders in the neonatal field Delivers information concisely and clearly for neonatal nursing staff and APs worldwide Enhances content with illustrations, diagrams, and flow charts and digital patient management and calculation tools

Author : Klaus Evertz,Ludwig Janus,Rupert Linder
Publisher : Springer Nature
Page : 802 pages
File Size : 51,8 Mb
Release : 2020-10-27
Category : Psychology
ISBN : 9783030417161

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Handbook of Prenatal and Perinatal Psychology by Klaus Evertz,Ludwig Janus,Rupert Linder Pdf

The handbook synthesizes the comprehensive interdisciplinary research on the psychological and behavioral dimensions of life before, during, and immediately after birth. It examines how experiences during the prenatal period are associated with basic physiological and psychological imprints that last a lifetime and explores the ways in which brain networks reflect these experiences. Chapters offer findings on prenatal development, fetal programming, fetal stress, and epigenetics. In addition, chapters discuss psychotherapy for infants – before, during, and after birth – as well as prevention to promote positive health and well-being outcomes. Topics featured in this handbook include: Contemporary environmental stressors and adverse pregnancy outcomes The psychology of newborn intensive care. Art therapy and its use in treating prenatal trauma. The failures and successes of Cathartic Regression Therapy. Prenatal bonding and its positive effects on postnatal health and well-being. The role of family midwives and early prevention. The cultural meaning of prenatal psychology. The Handbook of Prenatal and Perinatal Psychology is an essential resource for researchers, clinicians and related professionals, as well as graduate students in a wide range of interrelated disciplines, including developmental psychology, pediatric and obstetrical medicine, neuroscience, infancy and early child development, obstetrics and gynecology, nursing, social work, and early childhood education.

Author : Betty R. Ferrell
Publisher : Hpna Palliative Nursing Manual
Page : 161 pages
File Size : 46,7 Mb
Release : 2015-08-31
Category : Medical
ISBN : 9780190244187

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Pediatric Palliative Care by Betty R. Ferrell Pdf

'Pediatric Palliative Care', the fourth volume in the 'HPNA Palliative Nursing Manuals' series, addresses paediatric hospice, symptom management, paediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in paediatric palliative care.

Author : Amy Kuebelbeck,Deborah L. Davis
Publisher : JHU Press
Page : 445 pages
File Size : 40,5 Mb
Release : 2023-09-05
Category : Family & Relationships
ISBN : 9781421446707

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A Gift of Time by Amy Kuebelbeck,Deborah L. Davis Pdf

"This book describes and affirms the wide range of experiences and emotions that can follow a life-limiting prenatal diagnosis. It offers encouragement and practical ideas for moving forward, including guidance for decision-making, strategies for coping with the remainder of your pregnancy, and ideas for nurturing and being with your baby, before and after birth and death. This book also describes the concept of perinatal hospice and palliative care, which is a well-established way of supporting parents whose babies are expected to die before or shortly after birth"--

Author : Beth Perry Black, PhD, RN,Dr. Rana Limbo, PhD, RN, CPLC, FAAN,Patricia Moyle Wright, PhD, CRNP, ACNS-BC
Publisher : Springer Publishing Company
Page : 420 pages
File Size : 48,9 Mb
Release : 2015-09-10
Category : Medical
ISBN : 9780826129277

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Perinatal and Pediatric Bereavement in Nursing and Other Health Professions by Beth Perry Black, PhD, RN,Dr. Rana Limbo, PhD, RN, CPLC, FAAN,Patricia Moyle Wright, PhD, CRNP, ACNS-BC Pdf

[This] is a story of love, hope, and healing. There are 18 chapters covering intimate aspects of a young life ending and how those who remain behind can grieve in such a way that they go on living. This book is a collection of clinical wisdom, theoretical knowledge and models of care that can continue to tell the story and change cultures of care. As a palliative care nurse I am honored to write this Foreword and to be included in these pages with the authors who are truly pioneers in perinatal and pediatric bereavement. --Betty Ferrell, PhD, RN, MA, FAAN, FPCN, CHPN From the Foreword This is a definitive, state-of-the-art resource on the vital pieces of perinatal and pediatric palliative care. Culling the most important new evidence-based research and findings from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice to fill a gap in current information. The text is distinguished by its provision of different and even competing perspectives that address the complexities of the tragic human experience of perinatal, neonatal, and pediatric death and the nurses and other healthcare providers who provide care to those involved. Contributors disseminate new theoretical approaches and reexamine current concepts in light of new research. They discuss the theoretical underpinnings of perinatal and pediatric bereavement, examine current thought on the dimensions of loss, deliver evidence-based clinical interventions, and offer the perspective of grieving families regarding their experiences and needs. The book provides both novice and experienced scholars of perinatal and pediatric bereavement with a strong foundation of current knowledge. With clinical interventions derived from research, the book will enhance the expertise of clinicians caring for bereaved women and their families. It Includes case studies, interview excerpts, graphics and review questions to illustrate key points, and summaries demonstrating how theory is translated to clinical practice and informs research. Chapters provide objectives, references, and suggestions for additional study. The book is also a valuable study aid for students preparing for the Pediatric Loss Certification exam. Key Features: Provides high-level but accessible information from renowned scholars in perinatal and pediatric loss Disseminates the newest theoretical frameworks that can be used to create interventions and develop research Includes case studies demonstrating how theory is applicable to research and practice Facilitates critical thinking with different and even competing perspectives Serves as a valuable resource for Pediatric Loss Certification (NBCHPN) preparation

Author : Max Watson,Caroline Lucas,Andrew Hoy,Jo Wells
Publisher : Oxford University Press
Page : 1078 pages
File Size : 50,8 Mb
Release : 2009-03-26
Category : Medical
ISBN : 9780199234356

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Oxford Handbook of Palliative Care by Max Watson,Caroline Lucas,Andrew Hoy,Jo Wells Pdf

This practical guide briefly covers the historical and epidemiological background of palliative care and the growth of palliative medicine as a specialty, before dealing with major physical, psychological, spiritual, and symptom management issues from diagnosis to bereavement care.

Author : David J. Hackam
Publisher : CRC Press
Page : 613 pages
File Size : 41,9 Mb
Release : 2021-03-14
Category : Medical
ISBN : 9781000258325

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Necrotizing Enterocolitis by David J. Hackam Pdf

This is the first textbook devoted entirely to understanding and treating necrotizing enterocolitis (NEC), one of the leading causes of death and disability in premature infants. NEC continues to occur in neonatal units across the world, and the overall mortality has remained stubbornly high since its first description decades ago. Despite significant research into NEC, and a greater understanding of its underlying causes, there is no single source of information to which the care team can turn for guidance. This book fills that important gap in clinical care. In selecting the topics for this inaugural textbook, three guiding principles have been followed. First, to include chapters that provide detailed information for the medical team – the doctors and nurses, the therapists and pharmacists, the chaplains and the child life workers – so that each team member can optimally recognize, prevent and treat patients with this disease. Second, to ensure that chapters cover the depth and breadth of the latest clinical and scientific research into NEC, each selected to identify specific preventative strategies or therapies for this disease. Third, and perhaps most importantly, to focus not only on the child with NEC, but also on the child’s family, in order to provide comprehensive information about a disease that families have barely heard about, until the jarring day when their precious infant is affected by it. This book therefore: serves as a "how-to guide" for the care of the infant with NEC summarises critical new research and offers guidelines for future key research areas addresses the complex and difficult issues surrounding care of the critically ill infant suffering from NEC Written for the entire health care team including paediatric surgeons, neonatologists, developmental paediatricians, epidemiologists, ethicists, child life professionals, therapists and specialist nurses, each team member will find this book of value. This book was written to demystify this cruel disease, and to unlock its closely held secrets of pathogenesis, diagnosis, treatment and prevention.

Author : Claire J. Creutzfeldt,Benzi M. Kluger,Robert G. Holloway
Publisher : Springer
Page : 312 pages
File Size : 54,5 Mb
Release : 2018-10-01
Category : Medical
ISBN : 9783319932156

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Neuropalliative Care by Claire J. Creutzfeldt,Benzi M. Kluger,Robert G. Holloway Pdf

This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.