Hospice Voices

Author : Eric Lindner
Publisher : Rowman & Littlefield
Page : 233 pages
File Size : 43,7 Mb
Release : 2013-10-08
Category : Medical
ISBN : 9781461742050

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Hospice Voices by Eric Lindner Pdf

As a part-time hospice volunteer, Eric Lindner provides “companion care” to dying strangers. They’re chatterboxes and recluses, religious and irreligious; battered by cancer, congestive heart failure, Alzheimer’s, old age. Some cling to life amazingly. Most pass as they expected. In telling his story, Lindner reveals the thoughts, fears, and lessons of those living the ends of their lives in the care of others, having exhausted their medical options or ceased treatment for their illnesses. In each chapter, Lindner not only reveals the lessons of lives explored in their final days, but zeroes in on how working for hospice can be incredibly fulfilling. As he’s not a doctor, nurse, or professional social worker, just a volunteer lending a hand, offering a respite for other care providers, his charges often reveal more, and in more detail, to him than they do to those with whom they spend the majority of their time. They impart what they feel are life lessons as they reflect on their own lives and the prospect of their last days. Lindner captures it all in his lively storytelling. Anyone who knows or loves someone working through end of life issues, living in hospice or other end of life facilities, or dealing with terminal or chronic illnesses, will find in these pages the wisdom of those who are working through their own end of life issues, tackling life’s big questions, and boiling them down into lessons for anyone as they age or face illness. And those who may feel compelled to volunteer to serve as companions will find motivation, inspiration, and encouragement. Rather than sink under the weight of depression, pity, or sorrow, Lindner celebrates the lives of those who choose to live even as they die.

Author : Eric Lindner
Publisher : Rowman & Littlefield Publishers
Page : 235 pages
File Size : 41,7 Mb
Release : 2013-10-08
Category : Medical
ISBN : 9781442220607

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Hospice Voices by Eric Lindner Pdf

As a part-time hospice volunteer, Eric Lindner provides “companion care” to dying strangers. They’re chatterboxes and recluses, religious and irreligious; battered by cancer, congestive heart failure, Alzheimer’s, old age. Some cling to life amazingly. Most pass as they expected. In telling his story, Lindner reveals the thoughts, fears, and lessons of those living the ends of their lives in the care of others, having exhausted their medical options or ceased treatment for their illnesses. In each chapter, Lindner not only reveals the lessons of lives explored in their final days, but zeroes in on how working for hospice can be incredibly fulfilling. As he’s not a doctor, nurse, or professional social worker, just a volunteer lending a hand, offering a respite for other care providers, his charges often reveal more, and in more detail, to him than they do to those with whom they spend the majority of their time. They impart what they feel are life lessons as they reflect on their own lives and the prospect of their last days. Lindner captures it all in his lively storytelling. Anyone who knows or loves someone working through end of life issues, living in hospice or other end of life facilities, or dealing with terminal or chronic illnesses, will find in these pages the wisdom of those who are working through their own end of life issues, tackling life’s big questions, and boiling them down into lessons for anyone as they age or face illness. And those who may feel compelled to volunteer to serve as companions will find motivation, inspiration, and encouragement. Rather than sink under the weight of depression, pity, or sorrow, Lindner celebrates the lives of those who choose to live even as they die.

Author : Sandra L. Ragan,Elaine M. Wittenberg-Lyles,Joy Goldsmith,Sandra Sanchez Reilly
Publisher : Routledge
Page : 182 pages
File Size : 41,8 Mb
Release : 2008-05-15
Category : Language Arts & Disciplines
ISBN : 9781135597542

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Communication as Comfort by Sandra L. Ragan,Elaine M. Wittenberg-Lyles,Joy Goldsmith,Sandra Sanchez Reilly Pdf

This exceptional work explores the complexities of communication at one of the most critical stages of the life experience--during advanced, serious illness and at the end of life. Challenging the predominantly biomedical model that informs much communication between seriously ill and/or dying patients and their physicians, caregivers, and families, Sandra L. Ragan, Elaine M. Wittenberg-Lyles, Joy Goldsmith, and Sandra Sanchez-Reilly pose palliative care--medical care designed to comfort rather than to cure patients--as an antidote to the experience of most Americans at the most vulnerable juncture of their lives. With an author team comprised of three health communication scholars and one physician certified in geriatrics and palliative medicine, this volume integrates the medical literature on palliative care with that of health communication researchers who advocate a biopsychosocial approach to health care. Applying communication theories and insights to illuminate problems and to explain their complexities, the authors advocate a patient-centered approach to care that recognizes and seeks to lessen patients’ suffering and the many types of pain they may experience (physical, psychological, social, and spiritual) during life-threatening illness.

Author : David Aldridge
Publisher : Jessica Kingsley Publishers
Page : 178 pages
File Size : 48,6 Mb
Release : 1999
Category : Psychology
ISBN : 1853027391

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Music Therapy in Palliative Care by David Aldridge Pdf

Within the last decade music therapists have developed their work with people who have life-threatening illnesses and with those who are dying. This book presents some of that work from music therapists working in different approaches, in different countries, showing how valuable the inclusion of music therapy in palliative care has already proved to be. It is important for the dying, or those with terminal illness, that approaches are used which integrate the physical, psychological, social and spiritual dimensions of their being. The contributors to this book emphasize the importance of working not only with the patient but with the ward situation, friends and family members. By offering patients the chance to be creative they become something other than patients - they become expressive beings, and there is an intimacy in music therapy that is important for those who are suffering. Many of the contributors write in their own personal voice, providing a particular insight which will be valuable not only to other music therapists seeking to enrich their own ways of working, but to all those involved in caring for the sick and the dying. Contributors describe their work with both children and adults living with HIV/AIDS, cancer and other chronic degenerative diseases.

Author : Amy Kuebelbeck,Deborah L. Davis
Publisher : JHU Press
Page : 445 pages
File Size : 46,8 Mb
Release : 2023-09-05
Category : Family & Relationships
ISBN : 9781421446714

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A Gift of Time by Amy Kuebelbeck,Deborah L. Davis Pdf

Now updated and expanded—a gentle and comprehensive guide for parents expecting a baby with a prenatal diagnosis of a life-limiting condition. When prenatal testing reveals that a baby is expected to die before or shortly after birth, many parents choose to proceed with the pregnancy and embrace the time they are able to have with their baby, before birth as well as afterward. With compassion and support, A Gift of Time walks these parents step-by-step through this challenging and emotional experience—from receiving the diagnosis to coping with the pregnancy and making plans for the baby's birth and peaceful death. The second edition of this gentle guide offers inspiration and reassurance through the voices of numerous parents who have walked this path with their beloved baby. Their moving experiences are stories not only of grief but of joy and peace. This edition: • Expands the content substantially to incorporate new research and guidelines • Features additional vignettes from more than 160 parents about their experiences and coping strategies • Offers encouragement and more practical ideas for moving forward, including updated guidance for decision-making and ideas for embracing the time with the baby, from before birth to after death • Describes the importance of perinatal hospice and palliative care, which has continued to grow worldwide since the first edition was published, and how to access this care Drawing from parent experiences and published research, this new edition is full of practical suggestions for parents as well as health care professionals. Caring and thoughtful, A Gift of Time helps parents navigate this difficult news and the journey that follows.

Author : Karen Whitley Bell
Publisher : Union Square & Co.
Page : 209 pages
File Size : 52,9 Mb
Release : 2018-01-02
Category : Family & Relationships
ISBN : 9781454928454

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Living at the End of Life by Karen Whitley Bell Pdf

An updated edition of the most respected book on hospice care—for both patients and caregivers. This warm and informative resource on hospice and other end-of-life care options now gets an update. It receives a new preface and revised guidance on elders who need more long-term care and support, recommendations on pain medications, and advice for those living extended lives with treatable, but not curable, diseases. Written by a hospice nurse, Living at the End of Life reassures us that this difficult time also offers an opportunity to explore and rediscover a richer meaning in life. Drawing on her years of experience, Bell has created a comprehensive, insightful guide to every aspect of hospice care and the final stages of life. For people in hospice, as well as their friends and families, this is an indispensable and trustworthy source of comfort and spiritual healing.

Author : Neil Gadsby
Publisher : Unknown
Page : 79 pages
File Size : 53,5 Mb
Release : 2016
Category : Hospices (Terminal care)
ISBN : 0955519519

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Voices from 25 Years of Hospice Care by Neil Gadsby Pdf

Author : Debra Parker Oliver,George Demiris
Publisher : Unknown
Page : 128 pages
File Size : 54,7 Mb
Release : 2021-10-30
Category : Electronic
ISBN : 0578255723

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Collective Voices by Debra Parker Oliver,George Demiris Pdf

COLLECTIVE VOICES is a set of letters and notesfrom some of the many who have cared for loved onesduring their end-of-life journeys. It is the authors hope that thebrief stories will help support other caregivers as they tryto cope with challenging situations.

Author : Carolyn Banks,Janis Rizzo
Publisher : Macmillan Reference USA
Page : 430 pages
File Size : 40,5 Mb
Release : 1993
Category : American literature
ISBN : 0816156204

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A Loving Voice by Carolyn Banks,Janis Rizzo Pdf

Read-aloud stories for the elderly.

Author : Lucinda Jarrett,Sunderarajan Jayaraman
Publisher : CRC Press
Page : 248 pages
File Size : 49,5 Mb
Release : 2017-11-22
Category : Medical
ISBN : 9781315343082

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Creative Engagement in Palliative Care by Lucinda Jarrett,Sunderarajan Jayaraman Pdf

This book offers an extensive range of ideas and practical developing service users' creativity including songmaking, drama, dance, creative writing, music, video and visual arts. It promotes innovation and encourages a fresh and enthusiastic approach to care that will appeal to anyone with a love of creative arts as a means of expression. The wide-ranging approach encompasses many different voices from patients, artists and healthcare professionals. "Creative Engagement in Palliative Care" is highly recommended for all palliative health and social care professionals and volunteers, including occupational therapists, and art and music therapists. It is a wonderful resource for health and social care educators, teachers and trainers and will be a immense source of inspiration for patients and their families.'This book is about user involvement. It is concerned with sharing knowledge and experience about user involvement in palliative care and making it more real for the future. In modern times, the importance of 'end of life care' was highlighted by the pioneers of the voluntary hospice movement. They emphasised the importance of palliative care being based on an holistic approach that took account of all aspects of people's lives and deaths; medical, social, spiritual and material. More recently the work of the independent hospice movement has been complemented by the development and expansion of specialist palliative care in state provision. The aim has been to enable people to be able to 'do it their way' with a real sense of control and to be able to communicate their unique words, voices and experience. This is and will always be a key potential of user involvement.' - Suzy Croft and Peter Beresford, in the Preface.

Author : Bob Whorton
Publisher : SCM Press
Page : 152 pages
File Size : 51,9 Mb
Release : 2015-09-03
Category : Religion
ISBN : 9780334054283

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Voices from the Hospice by Bob Whorton Pdf

Hospice chaplain Bob Whorton takes us deep into the human experience of suffering and waiting by listening to the voices of patients and family members in a hospice; they become our teachers. And we listen also to the ancient voice of the psalmist who was well versed in the ways of suffering love.

Author : Bronnie Ware
Publisher : Hay House, Inc
Page : 322 pages
File Size : 54,8 Mb
Release : 2019-08-13
Category : Self-Help
ISBN : 9781401956004

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Top Five Regrets of the Dying by Bronnie Ware Pdf

Revised edition of the best-selling memoir that has been read by over a million people worldwide with translations in 29 languages. After too many years of unfulfilling work, Bronnie Ware began searching for a job with heart. Despite having no formal qualifications or previous experience in the field, she found herself working in palliative care. During the time she spent tending to those who were dying, Bronnie's life was transformed. Later, she wrote an Internet blog post, outlining the most common regrets that the people she had cared for had expressed. The post gained so much momentum that it was viewed by more than three million readers worldwide in its first year. At the request of many, Bronnie subsequently wrote a book, The Top Five Regrets of the Dying, to share her story. Bronnie has had a colourful and diverse life. By applying the lessons of those nearing their death to her own life, she developed an understanding that it is possible for everyone, if we make the right choices, to die with peace of mind. In this revised edition of the best-selling memoir that has been read by over a million people worldwide, with translations in 29 languages, Bronnie expresses how significant these regrets are and how we can positively address these issues while we still have the time. The Top Five Regrets of the Dying gives hope for a better world. It is a courageous, life-changing book that will leave you feeling more compassionate and inspired to live the life you are truly here to live.

Author : Andrea Raynor
Publisher : Simon and Schuster
Page : 288 pages
File Size : 45,9 Mb
Release : 2009-11-17
Category : Self-Help
ISBN : 1439100705

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The Voice That Calls You Home by Andrea Raynor Pdf

A positive, affirming collection of essays that teaches how to understand and accept life's darkest hours -- The Voice That Calls You Home will improve the way readers live each and every day. As a hospice chaplain, cancer survivor, and a chaplain at Ground Zero following September 11, Andrea Raynor has gained a keen perspective on the meaning of life and death, comfort and grief. Through her own experiences, Raynor reminds readers that even in the most dire of circumstances, we still have the opportunity to recognize beauty, to be inspired by the tenacity of the human spirit, and to feel connected to something greater. Raynor acknowledges that we may not be able to prevent the difficulties that come in life, but we can always choose the way in which we face them. She urges us not to "live with our heads down, our eyes closed, and our hands in our pockets." Instead, she prompts us to remain open to the blessings that are all around us and to face life's challenges head-on -- "to increase our courage, re-new our hope, and unite us in the knowledge that we are not alone." In the tradition of Anne Lamott and Kate Braestrup, The Voice That Calls You Home is a warm, personal, and practical guide to appreciating the wondrous world we live in, offering perspective on how we can bear the sorrows that are sure to come with a steady eye and a sense of hope, and find the connection between the spiritual and the everyday.

Author : Richard Kitchen,Christina Faull,Sarah Russell,Jo Wilson
Publisher : John Wiley & Sons
Page : 390 pages
File Size : 53,9 Mb
Release : 2024-05-08
Category : Medical
ISBN : 9781119784388

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Handbook of Palliative Care by Richard Kitchen,Christina Faull,Sarah Russell,Jo Wilson Pdf

Handbook of palliative care Comprehensive resource utilising up-to-date evidence and guidelines to support non-specialists in palliative care in both hospital and community settings Building on the success of previous editions, this new edition of the award winning handbook has a practical focus and provides the user with an approach to clinical challenges while also providing enough information to explain why this approach is suggested. The 4th edition of Handbook of Palliative Care supports non-specialists in palliative care in both hospital and community settings and focuses on holistic care and therapeutic interventions. With several new chapters and content significantly updated to reflect new evidence and practice, the 4th edition also presents up-to-date evidence, guidance in a succinct format and utilises flow charts and figures to enhance the accessibility of information. Written by four highly accomplished nursing and medical authors with over 100 years’ experience between them in hospital, hospice, care home and community settings, Handbook of Palliative Care provides: Guidance from clinicians who are experts in their field An acknowledgment of the requirements of healthcare professionals attending to patients with palliative care needs, along with a dedicated chapter addressing this topic Contemporary guidance on medicine management, symptom control and managing complications of cancer Palliative care in heart failure, renal disease and advanced liver, neurological and respiratory diseases An in-depth look at patient and public involvement in palliative care and inequity Skill development including communication, ethical considerations and spiritual care New chapters including frailty, dementia, and multi-morbidity; and palliative care for people living with mental illness and people with intellectual disabilities This 4th edition of Handbook of Palliative Care is an ideal supporting resource for doctors, nurses and other healthcare professionals caring for patients with palliative care needs in the UK and beyond. The 1st edition was the winner of the 1999 BMA Medical Book of the Year Prize.

Author : Gabrielle Jimenez
Publisher : Unknown
Page : 105 pages
File Size : 51,5 Mb
Release : 2019-11-10
Category : Electronic
ISBN : 1706818599

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The Hospice Heart by Gabrielle Jimenez Pdf

Much like her previous book Soft Landing, the author invites you on a personal journey. When she was 8 years old, she experienced her first death and although not realizing it until much later, knew at a very young age how to provide compassionate care to someone who was dying. The first half of this book clearly indicates that she has been on the hospice path a very long time. The second half of the book contains her first blogs. She started writing a blog hoping to educate and inspire anyone who sits at the bedside caring for another as they near the end of their life. She shares her tools and lessons hoping to remove any fear you might have and inspire you to be fully present for someone else. Her heart is a kind and gentle heart and you will see this as you read her words.