Interdisciplinary Pediatric Palliative Care

Author : Joanne Wolfe,Pamela S. Hinds,Barbara M. Sourkes
Publisher : Oxford University Press
Page : 625 pages
File Size : 42,9 Mb
Release : 2022
Category : Medical
ISBN : 9780190090012

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Interdisciplinary Pediatric Palliative Care by Joanne Wolfe,Pamela S. Hinds,Barbara M. Sourkes Pdf

"We hope that the lives of all children will be filled with possibility, with open horizons and rainbows into the future. Children with serious illnesses, their families, and those who care for them, confront the realization that "not everything is possible," that despite dramatic scientific and medical advances, the lifespan of some children will be shortened. This threat of premature loss heightens the sense of time for children and families alike, and challenges clinicians to create new pathways of hope for them"--

Author : Joanne Wolfe,Pamela Hinds,Barbara Sourkes
Publisher : Elsevier Health Sciences
Page : 514 pages
File Size : 54,6 Mb
Release : 2011-01-26
Category : Medical
ISBN : 9781437702620

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Textbook of Interdisciplinary Pediatric Palliative Care by Joanne Wolfe,Pamela Hinds,Barbara Sourkes Pdf

The Textbook of Interdisciplinary Pediatric Palliative Care, by Drs. Joanne Wolfe, Pamela Hinds, and Barbara Sourkes, aims to inform interdisciplinary teams about palliative care of children with life-threatening illness. It addresses critical domains such as language and communication, symptoms and quality of life, and the spectrum of life-threatening illnesses in great depth. This comprehensive product takes a first-of-its-kind team approach to the unique needs of critically ill children. It shows how a collaborative, interdisciplinary care strategy benefits patients and their families. If you deal with the complex care of critically ill children, this reference provides a uniquely integrated perspective on complete and effective care. Respect interdisciplinary perspectives, and provide the most comprehensive care. Use an integrated approach to address the physical, psychological, social, and spiritual needs of children and their families. Understand and heed your strengths and vulnerabilities in order to provide the best care for your patients. Recognize the necessity of linking hospital-based palliative care with community resources. Implement consistent terminology for use by the entire palliative care team. Access the full text online with regular updates and supplemental text and image resources.

Author : Joanne Wolfe,Pamela S. Hinds,Barbara M. Sourkes
Publisher : Unknown
Page : 128 pages
File Size : 46,6 Mb
Release : 2021
Category : Electronic
ISBN : 0190090049

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Interdisciplinary Pediatric Palliative Care by Joanne Wolfe,Pamela S. Hinds,Barbara M. Sourkes Pdf

"We hope that the lives of all children will be filled with possibility, with open horizons and rainbows into the future. Children with serious illnesses, their families, and those who care for them, confront the realization that "not everything is possible," that despite dramatic scientific and medical advances, the lifespan of some children will be shortened. This threat of premature loss heightens the sense of time for children and families alike, and challenges clinicians to create new pathways of hope for them"--

Author : Betty R. Ferrell
Publisher : Hpna Palliative Nursing Manual
Page : 161 pages
File Size : 43,5 Mb
Release : 2015-08-31
Category : Medical
ISBN : 9780190244187

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Pediatric Palliative Care by Betty R. Ferrell Pdf

'Pediatric Palliative Care', the fourth volume in the 'HPNA Palliative Nursing Manuals' series, addresses paediatric hospice, symptom management, paediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in paediatric palliative care.

Author : Stefan J. Friedrichsdorf
Publisher : MDPI
Page : 253 pages
File Size : 49,5 Mb
Release : 2019-02-08
Category : Children
ISBN : 9783038973508

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Pediatric Palliative Care by Stefan J. Friedrichsdorf Pdf

This book is a printed edition of the Special Issue "Pediatric Palliative Care" that was published in Children

Author : Brian S. Carter,Marcia Levetown,Sarah E. Friebert
Publisher : JHU Press
Page : 769 pages
File Size : 54,9 Mb
Release : 2011-10-15
Category : Medical
ISBN : 9781421402130

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Palliative Care for Infants, Children, and Adolescents by Brian S. Carter,Marcia Levetown,Sarah E. Friebert Pdf

There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume. Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips. With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.

Author : Joanne Wolfe,Barbara L. Jones,Ulrika Kreicbergs,Momcilo Jankovic
Publisher : Springer
Page : 314 pages
File Size : 55,5 Mb
Release : 2017-12-20
Category : Medical
ISBN : 9783319613918

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Palliative Care in Pediatric Oncology by Joanne Wolfe,Barbara L. Jones,Ulrika Kreicbergs,Momcilo Jankovic Pdf

This textbook is the first to focus on comprehensive interdisciplinary care approaches aimed at enhancing the wellbeing of children with cancer and their families throughout the illness experience. Among the topics addressed are the epidemiology of pediatric cancer distress, including physical, emotional, social, and spiritual dimensions; the role of the interdisciplinary team; communication and advance care planning; symptom prevention and management; care at the end of life; family bereavement care; and approaches to ease clinician distress. The contributing authors are true experts and provide guidance based on the highest available level of evidence in the field. The book has not only an interdisciplinary but also an international perspective; it will appeal globally to all clinicians caring for children with cancer, including physicians, nurses, psychosocial clinicians, and chaplains, among others.

Author : Joanne Wolfe,Pamela Hinds,Barbara Sourkes
Publisher : Elsevier Health Sciences
Page : 512 pages
File Size : 50,9 Mb
Release : 2011-01-26
Category : Medical
ISBN : 9781437736052

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Textbook of Interdisciplinary Pediatric Palliative Care E-Book by Joanne Wolfe,Pamela Hinds,Barbara Sourkes Pdf

The Textbook of Interdisciplinary Pediatric Palliative Care, by Drs. Joanne Wolfe, Pamela Hinds, and Barbara Sourkes, aims to inform interdisciplinary teams about palliative care of children with life-threatening illness. It addresses critical domains such as language and communication, symptoms and quality of life, and the spectrum of life-threatening illnesses in great depth. This comprehensive product takes a first-of-its-kind team approach to the unique needs of critically ill children. It shows how a collaborative, interdisciplinary care strategy benefits patients and their families. If you deal with the complex care of critically ill children, this reference provides a uniquely integrated perspective on complete and effective care. Respect interdisciplinary perspectives, and provide the most comprehensive care. Use an integrated approach to address the physical, psychological, social, and spiritual needs of children and their families. Understand and heed your strengths and vulnerabilities in order to provide the best care for your patients. Recognize the necessity of linking hospital-based palliative care with community resources. Implement consistent terminology for use by the entire palliative care team. Access the full text online with regular updates and supplemental text and image resources.

Author : Lindsay B. Ragsdale,Elissa G. Miller
Publisher : Oxford University Press
Page : 230 pages
File Size : 48,5 Mb
Release : 2020-02-03
Category : Medical
ISBN : 9780190051877

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Pediatric Palliative Care by Lindsay B. Ragsdale,Elissa G. Miller Pdf

The first volume in the "What Do I Do Now?: Palliative Care" series, Pediatric Palliative Care uses a case-based palliative care approach to cover common and important topics in the examination, investigation, and management of children with serious illness. Each chapter provides a discussion of the diagnosis, key points to remember, and selected references for further reading. The book addresses a wide range of topics, including the goals of care, symptom management, care for neonatal and adolescent populations, and the emotional, social, cultural and spiritual needs of ill children and their families. Written by authors from a variety of fields such as nursing, chaplaincy, social work, and psychology, this book is suited for pediatricians, palliative care and hospice providers, nurses, and allied health practitioners. Pediatric Palliative Care is an engaging collection of thought-provoking cases which clinicians can utilize when they encounter difficult patients. The volume is also a self-assessment tool that tests the reader's ability to answer the question, "What do I do now?"

Author : Richard Hain,Ann Goldman,Adam Rapoport,Medical Director Paediatric Advanced Care Team (Pact) Adam Rapoport,Michelle Meiring
Publisher : Oxford University Press
Page : 535 pages
File Size : 47,6 Mb
Release : 2021-03-24
Category : Medical
ISBN : 9780198821311

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Oxford Textbook of Palliative Care for Children by Richard Hain,Ann Goldman,Adam Rapoport,Medical Director Paediatric Advanced Care Team (Pact) Adam Rapoport,Michelle Meiring Pdf

The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.

Author : Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues
Publisher : National Academies Press
Page : 638 pages
File Size : 45,9 Mb
Release : 2015-03-19
Category : Medical
ISBN : 9780309303132

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Dying in America by Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues Pdf

For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Author : Ohio Hospice and Palliative Care Organization Staff,Phyllis Grauer
Publisher : Unknown
Page : 0 pages
File Size : 43,8 Mb
Release : 2010-10-21
Category : Hospice care
ISBN : 0757561845

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Palliative Care Consultant by Ohio Hospice and Palliative Care Organization Staff,Phyllis Grauer Pdf

Author : Caprice Knapp,Vanessa Madden,Susan Fowler-Kerry
Publisher : Springer Science & Business Media
Page : 463 pages
File Size : 50,7 Mb
Release : 2012-01-02
Category : Medical
ISBN : 9789400725706

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Pediatric Palliative Care: Global Perspectives by Caprice Knapp,Vanessa Madden,Susan Fowler-Kerry Pdf

The first of its kind, this book describes pediatric palliative care in more than 23 countries. Each region in the world is covered and countries included are both resource poor and rich. Authors are multidisciplinary and regarded nationally and internationally in their field. Clinicians, advocates, policymakers, funders, and researchers will learn how programs were developed and implemented in each country. Authors describe children for whom pediatric palliative care is needed and provided for in their country. When applicable, a brief history of pediatric palliative care is included noting especially policy changes and legislative acts. For example, the chapter on Poland describes how pediatric palliative care grew from the Catholic church into a national movement spearheaded by several health care workers. The Pole national spirit that brought them through a change in political regime has also been a driving force in the pediatric palliative care movement. The chapter on South Africa, for example, illustrates how a resource poor country has been able to leverage philanthropic and government funding to make its dream of having an infrastructure of pediatric palliative care a reality. These are just a few examples of the inspiring stories that are included in this book. Readers from countries who wish to start a pediatric palliative care program, or advance an existing program, will learn valuable lessons from others who have faced similar barriers. Introduction and concluding chapters highlight the strengths and weaknesses of the modern pediatric palliative care movement.

Author : Mary C. Ottolini,Christina K. Ullrich
Publisher : Elsevier Health Sciences
Page : 257 pages
File Size : 47,5 Mb
Release : 2014-08-12
Category : Medical
ISBN : 9780323320412

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Pediatric Hospital Medicine and Pediatric Palliative Care, An Issue of Pediatric Clinics, by Mary C. Ottolini,Christina K. Ullrich Pdf

For the first time, Pediatric Clinics is devoting one issue to two clinically focused topics: Pediatric Palliative Care and Pediatric Hospital Medicine. Dr. Ottolini has organized her section to focus on a variety of issues of relevant to all pediatricians, but which pose special challenge to the Pediatric Hospitalists. As pediatric care has advanced, children who would not have survived infancy are growing into young adults with complex chronic diseases and dependence upon technology. They frequently require hospitalization to address exacerbation of underlying disease processes and procedures to improve their quality of life. The articles are devoted to patient care challenges of troubleshooting malfunctioning technology, co-managing medically complex patients pre and post-op with surgical colleagues, and the Hospitalist’s evolving role in performing procedures and sedation in this population of vulnerable patients. Also discussed rare strategies to maximize communication with parents, patients and primary care providers during hospitalization, especially for medically complex patients. Dr. Ullrich and Dr. Wolfe Pediatric have worked to bring relevant articles on palliative care to the pediatrician. While life-threatening conditions in childhood are rare, children with LTC account for a high proportion of pediatric hospital care, and about one half of such children die in the inpatient setting. The number of hospital-based pediatric palliative care programs has increased dramatically over the past decade to meet the palliative care needs of hospitalized children including symptom management, facilitation of communication, decision-making and advance care planning support, and coordination of care. Given these considerations, it is evident that the topics of pediatric palliative care and hospital medicine are fitting counterparts for this comprehensive issue.

Author : Barbara Jones
Publisher : Routledge
Page : 149 pages
File Size : 46,7 Mb
Release : 2016-01-22
Category : Medical
ISBN : 9781317676034

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Social Work Practice in Pediatric Palliative and End-of-Life Care by Barbara Jones Pdf

As an essential and emerging practice, Pediatric palliative care seeks to prevent and relieve suffering for children with life-threatening conditions. Palliative care teams are composed of providers of various disciplines, including social workers, who collaborate to address the medical, social-emotional, and spiritual needs of the child, and their families. Social workers are especially accustomed to interdisciplinary care and may counsel, provide resources, facilitate communication, and promote person- and family-centered practices that are the basis of effective pediatric palliative care. This book presents practice strategies, experiential knowledge, and research related to practicing in─collaborative teams, ICU settings, and hospice. It also presents research that is informed by the perceptions and perspectives of bereaved parents, parents who have suffered a stillbirth, and parent caregivers of children with life-limiting illness. This book highlights the unique role social workers play, within care teams and in relationship with children who have life-limiting illness, and their families. This book was originally published as a special issue of the Journal of Social Work in End-of-Life & Palliative Care.