It S Not That Simple Helping Families Navigate The Alzheimer S Journey
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It's Not That Simple: Helping Families Navigate the Alzheimer's Journey by Pam Ostrowski Pdf
This book helps to relieve the fear, anxiety and confusion family member experience when a loved one is diagnosed with dementia. This 3-hour read provides detailed help with skills, tips and guidance based on 14 years of dementia experience.
The Longest Goodbye: A Family's Hope-Filled Journey Through Alzheimer's by Shelly Calcagno Pdf
Are we ever ready to say goodbye? She looked out into the yard sprinkled with spring dandelions. “Yellow flowers,” she said, searching for her words. We knew something wasn’t right. That’s when things began to fall apart for our family, when our longest goodbye journey began—the defining before-and-after moment. And now, looking back, it’s been almost a decade of slow loss and drawn-out grief as we slowly let go of our beautiful mom. In the middle of it all, though, we have learned to look for hope and chase down joy, discovering that, in spite of our pain, there are always gifts to be found, even on the hardest of days. Alzheimer’s disease affects almost fifty million people worldwide. It touches people across every walk of life. So, how do millions of people figure out how to love as they let go? The Longest Goodbye is a collection of stories and moments not just about the clinical side of memory loss–but the emotional heart journey. It is a story that shows how joy and grief are often intertwined and wrapped up together in the glorious mess of life. The Longest Goodbye encourages readers to remember the ones they love while they are still here and to intentionally celebrate and live through the pain and hard days. It’s filled with tears, hope, and bitter-sweet moments all held together by the beautiful love of a mother and daughter holding onto a life filled with memories, while learning to let go and say goodbye.
Navigating the Journey of Aging Parents by Cheryl A. Kuba Pdf
Navigating the Journey of Aging Parents proposes an entirely unique approach to the field of gerontology, giving dependent care receivers a voice. Caregivers will be made aware of what care receivers truly want during life's final chapters. Exploring issues of housing, spirituality, personal care and death, Cheryl Kuba has created a testament to the dependent elderly. This book draws on numerous interviews with aging people and discusses common caregiver mistakes and interpretations, what a caregiver should expect when an aging parent moves in, and how to care for an aging parent from afar. Kuba also delves into such phenomena as guilt, role reversal, changing family dynamics, financial stress, and caring for oneself while caring for another. The 22.4 million elderly people being cared for in the United States comprises the fastest growing segment of the population, making this reference on the opinions and concerns of care receivers invaluable.
On Pluto: Inside the Mind of Alzheimer's by Greg O'Brien Pdf
This is a book about living with Alzheimer’s, not dying with it. It is a book about hope, faith, and humor—a prescription far more powerful than the conventional medication available today to fight this disease. Alzheimer’s is the sixth leading cause of death in the US—and the only one of these diseases on the rise. More than 5 million Americans have been diagnosed with Alzheimer’s or a related dementia; about 35 million people worldwide. Greg O’Brien, an award-winning investigative reporter, has been diagnosed with early-onset Alzheimer's and is one of those faceless numbers. Acting on long-term memory and skill coupled with well-developed journalistic grit, O’Brien decided to tackle the disease and his imminent decline by writing frankly about the journey. O’Brien is a master storyteller. His story is naked, wrenching, and soul searching for a generation and their loved ones about to cross the threshold of this death in slow motion. On Pluto: Inside the Mind of Alzheimer’s is a trail-blazing roadmap for a generation—both a “how to” for fighting a disease, and a “how not” to give up!
Hell No I Don't Remember, I Have Alzheimer's! by Beth Withers Banning,Faith Austin,Terri Green,Kenney Hayes Pdf
"Hell No I Don't Remember, I Have Alzheimer's!" were the very words spoken by one of our loved ones when asked if they remembered. Dementia and Alzheimer's are inordinate diseases that steal away the thoughts, memories, and perspectives of those impacted. They are villains that corrode the filters of one's mind leaving them open for more decay. Four authors have collaborated to share their experiences about the reality of caring for loved ones who have dementia/Alzheimer’s. If you are struggling with this disease as a caregiver, you will undoubtedly identify with many of the same experiences. It is our hope that our shared stories give you solace in knowing others are walking this journey with you. You are not alone. Perhaps you can find a respite in each chapter and take away valuable information.
Healing Your Grieving Heart When Someone You Care About Has Alzheimer's by Alan D. Wolfelt,Kirby J. Duvall Pdf
Navigating the challenging journey that families and friends of Alzheimer’s patients must endure, this heartfelt guide reveals how their struggle is as complex and drawn out as the illness itself. Confronting their natural but difficult process of grieving and mourning, the study covers the inevitable feelings of shock, sadness, anger, guilt, and relief, illustrating the initial reactions people commonly feel from the moment of the dementia’s onset. Healthy and productive ways to acknowledge and express these feelings are suggested along with 100 tips and activities that fulfill the emotional, spiritual, cognitive, physical, and social needs of those who care about someone afflicted with this debilitating disease. Special consideration is also shown for caregivers, whose grief is often complicated by the demanding physical attention that patients require.
The book that carers have been waiting for... There are currently an estimated 50 million people worldwide living with dementia. It is anticipated by Alzheimer's Disease International that this number will almost double every 20 years, reaching 74.7 million in 2030 and 131.50 million in 2050. International author Carolyn Cranwell has 18 years experience as a self-taught Alzheimer's carer. This remarkably insightful book is an easy-to-read account of a carer navigating her family through her husband Richard's diagnosis of Alzheimer's when he was in his early fifties. Carolyn's thought-provoking and entertaining style of writing guides the reader gently through sensitive and confronting topics. Her first-hand knowledge and expertise will provide confidence to those wanting to help but feeling uncertain how to approach the person with Alzheimer's, the carer or the family. 'Navigating Alzheimer's' aims to break down the barriers surrounding Alzheimer's disease and make it as familiar a topic of discussion to the public as cancer, heart disease and diabetes. Compelling reading for anyone searching for inspiration, courage and resilience. You'll learn:- That Alzheimer's is the most common type of dementia and how to recognise the top 10 early warning signs- When is the right time to stop driving and travel tips for the unwary- How to maintain balance in your family life while nurturing the person with Alzheimer's independence- The importance of supporting carers to avoid carer burnout and how primary carers can release themselves from carer's guilt- Successful tips for visiting and communicating with someone who has dementia- Suggestions for respite, nursing home entry and coping with loss- How to think and act like a survivor and tips for a resilient lifestyle.
What If It's Not Alzheimer's? by Gary Radin,Lisa Radin Pdf
Although the public most often associates dementia with Alzheimer’s disease, the medical profession continues to advance distinctions of various types of “other” dementias. What If It’s Not Alzheimer’s? is the first and remains the only comprehensive guide dealing with frontotemporal degeneration (FTD), the most common form of dementia for people under 60 years of age. The contributors are either specialists in their fields or have exceptional hands-on experience with FTD sufferers. Beginning with a focus on the medical facts, the first part defines and explores FTD as an illness distinct from Alzheimer's disease. Also considered are clinical and medical care issues and practices, as well as such topics as finding a medical team, palliative approaches to managing care and rehabilitation interventions. The next section on managing care examines the daily care routine including exercise, socialization, adapting the home environment, and behavioral issues along with end-of-life concerns. In the following section on caregiver resources, the contributors identify professional and government assistance programs along with private and community resources and legal options. The final section focuses on the caregiver, in particular the need for respite, holistic health practices and the challenge of managing emotions. This new, completely revised edition continues to follow worldwide collaboration in research and provides the most current medical information available including understanding of the different classifications of FTD, and more clarity regarding the role of genetics. Additionally, essays written by people living with the disease provide moving, first-hand experiences. The wealth of information offered in these pages will help both healthcare professionals and caregivers of someone suffering from frontotemporal degeneration.
Alzheimer's: Early Detection Workbook by John Nunez Pdf
"Alzheimer's: Early Detection Workbook" This book is the result of my reflections after witnessing beloved family members and friends gradually succumb to this terrible disease, which remains incurable despite significant scientific advances. However, as you will see in this book, it takes a special kind of resilience to confront this torment that not only ends the lives of those who suffer from it but also profoundly impacts those around them. Let this serve as a tribute to Walter and Emilia. The Author. The e-book "Final Alzheimer's: Early Detection Workbook" serves as a comprehensive guide focused on the early detection and management of Alzheimer's disease. It covers a wide range of topics including the basics of Alzheimer's pathology, the importance of early detection, stages of the disease, risk factors, symptoms, and preventive measures. Here's a breakdown of the main elements: 1. Understanding Alzheimer's Disease: - The book begins with a detailed overview of Alzheimer’s disease, describing its characteristics such as the buildup of amyloid plaques and tau tangles, and its progression from mild cognitive impairments to severe dementia. 2. Importance of Early Detection: - A significant emphasis is placed on the advantages of early detection which includes enhanced treatment effectiveness, better management of symptoms, and planning for future care. Early detection is also highlighted as beneficial for advancing research and reducing healthcare costs. 3. Symptoms and Signs: - The text details the symptoms of Alzheimer’s, which are categorized into early signs (like memory loss affecting daily activities and challenges in problem-solving) and progressive signs (such as severe memory loss and physical decline). 4. Preventive Measures and Management: - Lifestyle factors that might impact the risk of developing Alzheimer's are discussed, including diet, physical activity, cognitive stimulation, and environmental factors. The book also explores strategies to manage the disease through cognitive tests, medical imaging, and emerging therapies. 5. Cognitive Tests and Early Detection Tools: - The workbook outlines various cognitive tests used for early detection, stressing their importance in identifying the onset of cognitive issues which can lead to tailored treatment plans and better management of the disease. 6. Living with Alzheimer’s: - Practical advice is provided for caregivers and families on managing daily life with a person who has Alzheimer’s, focusing on creating a safe environment, handling behavioral changes, and providing emotional support. The workbook is structured to educate and empower readers—patients, families, and caregivers—with the knowledge to recognize early signs of Alzheimer's, understand its progression, and implement effective management strategies. It combines scientific information with practical guidance, making it a valuable resource for anyone involved in the care of individuals with Alzheimer’s disease.
What You Need to Know about Alzheimer's Disease by Matthew Domico,Valerie Hill Pdf
This book provides readers with the information they need to better understand Alzheimer's disease. Written in easy-to-understand language, it is aimed at those who may have a parent, grandparent, or other loved one struggling with this condition. Alzheimer's disease is a neurodegenerative disorder that causes problems with thinking, memory, and behavior. Such symptoms as memory loss usually develop slowly but get worse over time, eventually becoming severe enough to interfere with daily activities and bodily functions. What You Need to Know about Alzheimer's Disease is part of Greenwood's Inside Diseases and Disorders series. This series profiles a variety of physical and psychological conditions, distilling and consolidating vast collections of scientific knowledge into concise, readable volumes. A list of "Top 10" essential questions begins each book, providing quick-access answers to readers' most pressing concerns. The text follows a standardized, easily navigable structure, with each chapter exploring a particular facet of the topic. In addition to covering such basics as causes, signs and symptoms, diagnosis, and treatment options, books in this series delve into issues that are less commonly addressed but still critically important, such as effects on loved ones and caregivers. Case illustrations highlight key themes discussed in the book and are accompanied by insightful analyses and recommendations.
The Stages of Grace by Connie Ruben,Kate ONeill Pdf
Connie Ruben fell in love with her future mother-in-law, Grace, the day they met. The two women established a relationship and formed a strong bond. Connie recounts her journey with Grace through Alzheimer's disease, sharing the challenges of being a caregiver while also having a job and family, the emotional cost of helping a loved one through the many different stages of the disease, and how joy manifests at unexpected moments.
Do you wonder where God is in Alzheimer's? Are you searching for hope in caregiving? I searched too--I lost both of my parents to Alzheimer's. They were its innocent victims. Caregiving for someone with Alzheimer's can be painfully brutal. We know how it ends. There is no cure. It doesn't get better. But I learned that we don't have to be defeated by it. And there is much grace and collateral beauty to be found in the journey. From broken memories to broken bones, Alzheimers catalyzed terror and defeat in my family. My parents were terrorized by the scrambling of their minds. We who loved them had to suffocate our feelings of defeat as they returned to innocence. As a caregiver, God allowed me to share in my parents passages back to undefeated innocence. I gained loving moments that I would have missed if I hadnt been involved and if I hadnt taken up the proper vantage point to see them. Undefeated Innocence offers hope to caregivers by weaving poignant personal experiences, humor, and biblical stories with a study of the Beatitudes. It answers Where is God? in Alzheimers. It confirms that caregiving experiences are abnormally normal, and its okay to store toothpaste in an underwear drawer. Undefeated Innocence reveals Gods grace through the storms and affirms that caregivers are not alone in wondering if life can return to a place of peace.
"I Understand... You Forgot to Say Goodbye" by Robert Pace Pdf
Alzheimer's is devastating to the afflicted person, with no true cure in sight. However, your loved one will need all of the loving care and understanding you can deliver. Using the most of each day as a good point and shaping the now strange world to become just a little bit more manageable for your loved one is key. The challenges presented by the disease itself, the challenges from your hurt feelings, and the challenges of supporting family members as they deal with their feelings could be viewed as way too much to handle. But using some of the reflective items in I Understand . . . You Forgot to Say Goodbye will truly assist you on the journey with your loved one's situation or surely provide key points for a potential future situation you will be involved in with a loved one.
Chicken Soup for the Soul: Navigating Eldercare & Dementia by Amy Newmark Pdf
"These revealing stories from family caregivers-spouses, grown children and grandchildren-share the emotional support and practical tips that you need as you navigate the world of eldercare, especially when Alzheimer's or other dementias are part of it. You'll feel less alone and more empowered in your new role as you help your loved ones"--
The Alzheimer's Journey It's Time to Get Organized by Mr Roy P Poillon Pdf
Getting organized in Alzheimer's journey is a significant challenge for the Alzheimer's family. Often the member of the family are not sure how to support the primary caregiver. We show them how; to get organized, to assign roles to family members to be proactive in getting educated about the disease. Areas to Organize include: Financial, Legal and Medical Records into binders. Also developing a support network for the primary caregiver which includes social network and professional services network. And because this is a spiritual journey we include how to bring your church into your world. This is supported with a webinar for the family to review the chapters of the book, get questions answered and have an on-line family meeting about getting organized. We do not give advice on any and all topics covering Financial, Legal or Medical. It is suggested that a family seek the services of a State licensed professional before making any and all final decisions.