Life Quality Outcomes In Children And Young People With Neurological And Developmental Conditions

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Life Quality Outcomes in Children and Young People with Neurological and Developmental Conditions

Gabriel M. Ronen,Peter L. Rosenbaum

Author : Gabriel M. Ronen,Peter L. Rosenbaum
Publisher : Mac Keith Press
Page : 0 pages
File Size : 41,7 Mb
Release : 2013-05-20
Category : Medical
ISBN : 1908316586

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Life Quality Outcomes in Children and Young People with Neurological and Developmental Conditions by Gabriel M. Ronen,Peter L. Rosenbaum Pdf

Clinics in Developmental Medicine Health care professionals need to understand their patients’ views of their condition and its effects on their health and well-being. This book builds on the World Health Organization's concepts of 'health', 'functioning' and 'quality of life' for young people with neurodisabilities: it emphasises the importance of engaging with patients in the identification of both treatment goals and their evaluation. Uniquely, it enables health care professionals to find critically reviewed outcomes-related information. The authors are leaders in their respective research fields and discuss theory, concepts, and evidence, and how these are applied in clinical settings and research applications. Readership: Health care professionals working with children and youth with neurological and developmental conditions, wanting to expand their clinical or research horizons. Frontline service providers, health services and social science researchers, clinical program managers and policy makers concerned with ensuring that their clinical or programmatic services are addressing contemporary issues as effectively as possible. Students in the health professions and others in related fields (such as social work).

Seizures and Syndromes of onset in the Two First Years of Life

Solomon L. Moshé,J. Helen Cross,Julitta de Bellescize,Linda de Vries,Douglas Nordli,Federico Vigevano

Author : Solomon L. Moshé,J. Helen Cross,Julitta de Bellescize,Linda de Vries,Douglas Nordli,Federico Vigevano
Publisher : John Libbey Eurotext
Page : 280 pages
File Size : 47,6 Mb
Release : 2015-06-01
Category : Medical
ISBN : 9782742014286

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Seizures and Syndromes of onset in the Two First Years of Life by Solomon L. Moshé,J. Helen Cross,Julitta de Bellescize,Linda de Vries,Douglas Nordli,Federico Vigevano Pdf

A reference book on diagnosis, consequences and management of neonatal and infantile seizures There is a very high incidence of seizures during the first two years of life. This may reflect multiple etiologies depending on the circumstances under which seizures occur. They may have a benign cause but for others they may lead to more devastating consequences. This book provides new insights on how it is best to approach seizures and epilepsy in the first two years of life, to systematically create a blueprint upon which diagnostic and treatment decisions can be based. Ongoing efforts are to understand: - How seizures may occur in the developing brain? - What are their consequences? - Which biomarkers are being developed? - What are the effective treatments to promptly stop ongoing seizures and alter the course of epileptic encephalopathies? The data are highly reflecting the state of the art and also individualize for the particular milieu of the patient in taking into account both nature (i.e. genetics), and nurture (i.e. events that may interfere with normal development) and result in seizures and epilepsy.

Quality of Life in Child and Adolescent Illness

Hans Koot,Jan Wallander

Author : Hans Koot,Jan Wallander
Publisher : Routledge
Page : 484 pages
File Size : 40,8 Mb
Release : 2014-01-14
Category : Health & Fitness
ISBN : 9781317763000

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Quality of Life in Child and Adolescent Illness by Hans Koot,Jan Wallander Pdf

How can we measure the quality of life in children and adolescents with chronic disease? Major progress in the diagnosis and treatment of severe and chronic disease has led to an increased number of children and their families having to adapt and cope with the impact of disease, survival, and the cost of treatment. Health professionals have responded to this by developing a diversity of instruments for measuring quality of life for use in paediatrics, psychology and public health. This book introduces the reader to the emerging field of quality of life assessment and provides a comprehensive overview of the conceptual and methodological issues concerning quality of life in child and adolescent illness. Particular emphasis is provided on current efforts to measure the impact of specific chronic conditions on different domains of child functioning. Future directions are outlined for the development of appropriate instruments for measuring quality of life in children and adolescents. Quality of Life in Child and Adolescent Illness is intended for psychologists, paediatricians, paediatric nurses, child psychiatrists, public health professionals, researchers and other interested readers from the undergraduate to the working professional.

Pediatric Neurology Part I

Gabriel M. Ronen,Bernard Dan

Author : Gabriel M. Ronen,Bernard Dan
Publisher : Elsevier Inc. Chapters
Page : 892 pages
File Size : 55,8 Mb
Release : 2013-04-24
Category : Medical
ISBN : 9780128077160

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Pediatric Neurology Part I by Gabriel M. Ronen,Bernard Dan Pdf

The practice of pediatric neurology demands a high level of responsibility at multiple levels. These include listening carefully to people's stories in order to assess each situation, planning and implementing investigations and therapies, individual and family counseling, longitudinal follow-up from fetal life throughout childhood and adolescence, organization of transition to adult care, and societal advocacy. In the 21st century these activities must be carried out in the context of major societal and technological changes which have brought about many new challenges for pediatric neurologists. In this chapter, we address ethical and moral issues that may help guide pediatric neurologists with regard to a number of specific challenges. These include physician–patient relationships that are based on benign paternalism with respect for autonomy and promoting quality of life, practicing evidence-based medicine, and the technological imperative. In addition we discuss the tension between clinical practice and research, relationships between physicians and industry, and the public role of pediatric neurologists to advocate for children with neurological and developmental conditions. We also illustrate some challenges in selected situations such as prenatal counseling (fetal neurology), neonatal encephalopathy, and persistent vegetative state.

Treatment of Cerebral Palsy and Motor Delay

Sophie Levitt,Anne Addison

Author : Sophie Levitt,Anne Addison
Publisher : John Wiley & Sons
Page : 468 pages
File Size : 42,7 Mb
Release : 2018-11-28
Category : Medical
ISBN : 9781119373865

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Treatment of Cerebral Palsy and Motor Delay by Sophie Levitt,Anne Addison Pdf

Treatment of Cerebral Palsy and Motor Delay is a highly practical, easy-to-read resource for all paediatric practitioners and students working with the developmental abilities and difficulties of children, providing a thorough overview of cerebral palsy and its treatment. The sixth edition has been thoroughly revised and updated to integrate the latest evidence-base on motor control and motor learning, whilst still retaining Sophie Levitt's eclectic, holistic and functional approach. It includes greater detail on paediatric occupational therapy, classification systems, the latest systematic reviews of research, as well as an expanded chapter on adolescents and adults with cerebral palsy. The chapter on equipment has also been increased so as to be of further relevance to occupational therapists. Supported by clear diagrams and photographs, as well as summaries to consolidate learning, it outlines therapeutic approaches and suggests treatment and management options, providing a wealth of practical information. The book promotes positive relationships between therapists, people with cerebral palsy and their families.

Health Measurement Scales

David L. Streiner,Geoffrey R. Norman,John Cairney

Author : David L. Streiner,Geoffrey R. Norman,John Cairney
Publisher : OUP Oxford
Page : 448 pages
File Size : 45,6 Mb
Release : 2014-11-06
Category : Medical
ISBN : 9780191508332

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Health Measurement Scales by David L. Streiner,Geoffrey R. Norman,John Cairney Pdf

Clinicians and those in health sciences are frequently called upon to measure subjective states such as attitudes, feelings, quality of life, educational achievement and aptitude, and learning style in their patients. This fifth edition of Health Measurement Scales enables these groups to both develop scales to measure non-tangible health outcomes, and better evaluate and differentiate between existing tools. Health Measurement Scales is the ultimate guide to developing and validating measurement scales that are to be used in the health sciences. The book covers how the individual items are developed; various biases that can affect responses (e.g. social desirability, yea-saying, framing); various response options; how to select the best items in the set; how to combine them into a scale; and finally how to determine the reliability and validity of the scale. It concludes with a discussion of ethical issues that may be encountered, and guidelines for reporting the results of the scale development process. Appendices include a comprehensive guide to finding existing scales, and a brief introduction to exploratory and confirmatory factor analysis, making this book a must-read for any practitioner dealing with this kind of data.

Parenting Plan Evaluations

Leslie Drozd,Michael Saini,Nancy Olesen

Author : Leslie Drozd,Michael Saini,Nancy Olesen
Publisher : Oxford University Press
Page : 641 pages
File Size : 40,8 Mb
Release : 2016
Category : Medical
ISBN : 9780199396580

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Parenting Plan Evaluations by Leslie Drozd,Michael Saini,Nancy Olesen Pdf

More so than in any other form of forensic evaluation, mental health professionals who conduct parenting plan evaluations must have an understanding of the most current evidence in the areas of child development, optimal parenting plans across various populations, behavioral psychology, family violence, and legal issues to inform their opinions. In addition, family law judges and legal professionals require the best available evidence to support their decisions and positions. Parenting Plan Evaluations has become the go-to source for the most current empirical evidence in the field of child custody disputes. Fully updated in this Second Edition, the volume continues its focus on translating and implementing research associated with the most important topics within the family court. It presents an organized and in-depth analysis of the latest research and offers specific recommendations for applying these findings to the issues in child custody disputes. Written by international experts in the field, chapters cover the most important and complex issues that arise in family court, such as attachment and overnight timesharing with very young children, co-parenting children with chronic medical conditions and developmental disorders, domestic violence during separation and divorce, alienation, gay and lesbian co-parents, and relocation, among others. This volume assists forensic mental health professionals to proffer empirically based opinions, conclusions, and recommendations and assists family law judges and attorneys in evaluating the reliability of the information provided to the courts by mental health professionals in their reports and testimony. Not just for forensic evaluators, Parenting Plan Evaluations is a must-read for legal practitioners, family law judges and attorneys, and other professionals seeking to understand more about the science behind parenting plan evaluations.

Pediatric Health Conditions in Schools

Allison G. Dempsey

Author : Allison G. Dempsey
Publisher : Oxford University Press
Page : 248 pages
File Size : 49,9 Mb
Release : 2019-10-28
Category : Psychology
ISBN : 9780190687304

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Pediatric Health Conditions in Schools by Allison G. Dempsey Pdf

As the rates of chronic health conditions in childhood increase, school-based professionals regularly encounter children with chronic health conditions in the school setting. Students with chronic health conditions often require accommodations, assessment, intervention, and close collaboration with medical providers and families. However, most school-based clinicians (school psychologists, counselors, social workers) responsible for addressing the special needs of these children have no prior experience and have never taken coursework related to common pediatric conditions. Pediatric Health Conditions in Schools is a practical guide for school-based clinicians working with children with chronic health issues. Section I provides a broad overview of school-related issues for working with children with long-term health problems. This includes a review of common medical conditions and terminology and cross-cutting issues related to social, emotional, and academic functioning, as well as the role of the school-based professional in collaborating across systems of care. This section also reviews legal and policy issues, as well as alternative educational settings for students with chronic health needs. Section II focuses on prevention, assessment, intervention, and consultations strategies for both individual students and entire school systems. Finally, Section III includes chapters for common groups of medical conditions. Each chapter provides an overview of the condition(s), common school-related concerns, risk and protective factors and cultural considerations, and includes practical strategies, resources, and handouts for the school-based professional. Case examples are used throughout the book to illustrate key concepts and implications for the school setting.

Neurological, Psychiatric, and Developmental Disorders

Institute of Medicine,Board on Global Health,Committee on Nervous System Disorders in Developing Countries

Author : Institute of Medicine,Board on Global Health,Committee on Nervous System Disorders in Developing Countries
Publisher : National Academies Press
Page : 458 pages
File Size : 52,8 Mb
Release : 2001-01-01
Category : Medical
ISBN : 9780309170932

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Neurological, Psychiatric, and Developmental Disorders by Institute of Medicine,Board on Global Health,Committee on Nervous System Disorders in Developing Countries Pdf

Brain disordersâ€"neurological, psychiatric, and developmentalâ€"now affect at least 250 million people in the developing world, and this number is expected to rise as life expectancy increases. Yet public and private health systems in developing countries have paid relatively little attention to brain disorders. The negative attitudes, prejudice, and stigma that often surround many of these disorders have contributed to this neglect. Lacking proper diagnosis and treatment, millions of individual lives are lost to disability and death. Such conditions exact both personal and economic costs on families, communities, and nations. The report describes the causes and risk factors associated with brain disorders. It focuses on six representative brain disorders that are prevalent in developing countries: developmental disabilities, epilepsy, schizophrenia, bipolar disorder, depression, and stroke. The report makes detailed recommendations of ways to reduce the toll exacted by these six disorders. In broader strokes, the report also proposes six major strategies toward reducing the overall burden of brain disorders in the developing world.

Disease Control Priorities, Third Edition (Volume 4)

Vikram Patel,Dan Chisholm,Tarun Dua,Ramanan Laxminarayan,Mari'a Lena Medina-Mora,Theo Vos

Author : Vikram Patel,Dan Chisholm,Tarun Dua,Ramanan Laxminarayan,Mari'a Lena Medina-Mora,Theo Vos
Publisher : World Bank Publications
Page : 304 pages
File Size : 52,9 Mb
Release : 2016-03-10
Category : Medical
ISBN : 9781464804281

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Disease Control Priorities, Third Edition (Volume 4) by Vikram Patel,Dan Chisholm,Tarun Dua,Ramanan Laxminarayan,Mari'a Lena Medina-Mora,Theo Vos Pdf

Mental, neurological, and substance use disorders are common, highly disabling, and associated with significant premature mortality. The impact of these disorders on the social and economic well-being of individuals, families, and societies is large, growing, and underestimated. Despite this burden, these disorders have been systematically neglected, particularly in low- and middle-income countries, with pitifully small contributions to scaling up cost-effective prevention and treatment strategies. Systematically compiling the substantial existing knowledge to address this inequity is the central goal of this volume. This evidence-base can help policy makers in resource-constrained settings as they prioritize programs and interventions to address these disorders.

Yearbook of Neurology 2022

Kalyan B Bhattacharyya,Gagandeep Singh

Author : Kalyan B Bhattacharyya,Gagandeep Singh
Publisher : Jaypee Brothers Medical Publishers
Page : 346 pages
File Size : 48,5 Mb
Release : 2022-11
Category : Medical
ISBN : 9789354659430

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Yearbook of Neurology 2022 by Kalyan B Bhattacharyya,Gagandeep Singh Pdf

Section 1: Headaches Section 2: Neuroinfections Section 3: Stroke Endovascular Treatment Secondary Prevention Neuroprotection Stroke Recovery Mobile Stroke Units Section 4: Epilepsy Section 5: Movement Disorders Section 6: Ataxia Section 7: Dementia and Cognition Section 8: Peripheral Neuropathy Section 9: Muscle Disorders Section 10: Sleep Medicine Section 11: Neuro-ophthalmology Section 12: Autoimmune Disorders Section 13: Rehabilitation Section 14: Neurogenetics Novel Therapies Symptomatic Therapy Pharmacogenomics Genetic Markers Natural History and Clinical Tools Genetic Screening Prevalence Studies Section 15: Demyelination Section 16: Social Aspects of Neurology

Avery's Diseases of the Newborn - E-Book

Taylor Sawyer,Christine A. Gleason

Author : Taylor Sawyer,Christine A. Gleason
Publisher : Elsevier Health Sciences
Page : 1902 pages
File Size : 50,5 Mb
Release : 2023-03-20
Category : Medical
ISBN : 9780323828246

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Avery's Diseases of the Newborn - E-Book by Taylor Sawyer,Christine A. Gleason Pdf

Completely revised and updated, Avery's Diseases of the Newborn, 11th Edition, remains your #1 choice for clinically focused, cutting-edge guidance on the evaluation, diagnosis, and treatment of diseases of the newborn. Drs. Christine A. Gleason, Taylor Sawyer, and a team of expert contributing authors provide comprehensive, up-to-date coverage of every key disease and condition affecting newborns, keeping you current in this fast-changing field. You’ll find the specific strategies you need to confidently provide care for this unique patient population, in a full-color, easy-to-use single volume that focuses on key areas of practice. Reflects the latest developments on all aspects of newborn evaluation and management, featuring new content, new chapters, new contributors, and fresh perspectives from a new co-editor. Brings you the latest on current topics such as perinatal/neonatal COVID-19, genomics and precision medicine, acute and chronic neonatal respiratory disorders, brain injury and neuroprotection, necrotizing enterocolitis, probiotics, palliative care, prenatal drug exposure, retinopathy of prematurity, and more. Provides clinically relevant, practical guidance in concise, focused chapters that include summary boxes, suggested readings, and more than 500 full-color illustrations, micrographs, and photographs. Contains the 2020 American Academy of Pediatrics and American Heart Association neonatal resuscitation guidelines and the 2022 American Academy of Pediatrics guidelines on the management of hyperbilirubinemia. Serves as a reliable quick reference for clinical questions and an excellent resource for board review. An eBook version is included with purchase. The eBook allows you to access all of the text, figures and references, with the ability to search, customize your content, make notes and highlights, and have content read aloud.

Children with Developmental Coordination Disorder

David Sugden,Mary Chambers

Author : David Sugden,Mary Chambers
Publisher : John Wiley & Sons
Page : 338 pages
File Size : 52,9 Mb
Release : 2005-01-28
Category : Education
ISBN : UVA:X004899840

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Children with Developmental Coordination Disorder by David Sugden,Mary Chambers Pdf

The term Developmental Coordination Disorder (DCD) is used to describe a group of children who have difficulty. with tasks involving movement such that it interferes with their daily living or academic progress. As with other developmental disorders such as autistic spectrum disorder, attention deficit disorder and dyslexia, DCD is now a prominent concern of both researchers and practitioners. This text is aimed at both researchers and professionals who work in a practical manner with the condition and includes professionals in health, occupational therapists, physiotherapists, health visitors, paediatricians, and - in the educational field - teachers and others who are in daily contact with the children - their parents. The essence of the text is that work with children should be guided by research evidence driving the clinical practice which in turn raisies more questions for research. The authors in this text have both experience in research and are engaged in the day-to-day clinical work with children and bring both of these to bear in the chapters they have written.

Pediatric Neurology, Part I

Olivier Dulac,Maryse Lassonde,Harvey B. Sarnat

Author : Olivier Dulac,Maryse Lassonde,Harvey B. Sarnat
Publisher : Newnes
Page : 893 pages
File Size : 40,8 Mb
Release : 2013-04-24
Category : Medical
ISBN : 9780444626981

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Pediatric Neurology, Part I by Olivier Dulac,Maryse Lassonde,Harvey B. Sarnat Pdf

The child is neither an adult miniature nor an immature human being: at each age, it expresses specific abilities that optimize adaptation to its environment and development of new acquisitions. Diseases in children cover all specialties encountered in adulthood, and neurology involves a particularly large area, ranging from the brain to the striated muscle, the generation and functioning of which require half the genes of the whole genome and a majority of mitochondrial ones. Human being nervous system is sensitive to prenatal aggression, is particularly immature at birth and development may be affected by a whole range of age-dependent disorders distinct from those that occur in adults. Even diseases more often encountered in adulthood than childhood may have specific expression in the developing nervous system. The course of chronic neurological diseases beginning before adolescence remains distinct from that of adult pathology – not only from the cognitive but also motor perspective, right into adulthood, and a whole area is developing for adult neurologists to care for these children with persisting neurological diseases when they become adults. Just as pediatric neurology evolved as an identified specialty as the volume and complexity of data became too much for the general pediatician or the adult neurologist to master, the discipline has now continued to evolve into so many subspecialties, such as epilepsy, neuromuscular disease, stroke, malformations, neonatal neurology, metabolic diseases, etc., that the general pediatric neurologist no longer can reasonably possess in-depth expertise in all areas, particularly in dealing with complex cases. Subspecialty expertise thus is provided to some trainees through fellowship programmes following a general pediatric neurology residency and many of these fellowships include training in research. Since the infectious context, the genetic background and medical practice vary throughout the world, this diversity needs to be represented in a pediatric neurology textbook. Taken together, and although brain malformations (H. Sarnat & P. Curatolo, 2007) and oncology (W. Grisold & R. Soffietti) are covered in detail in other volumes of the same series and therefore only briefly addressed here, these considerations justify the number of volumes, and the number of authors who contributed from all over the world. Experts in the different subspecialties also contributed to design the general framework and contents of the book. Special emphasis is given to the developmental aspect, and normal development is reminded whenever needed – brain, muscle and the immune system. The course of chronic diseases into adulthood and ethical issues specific to the developing nervous system are also addressed. A volume in the Handbook of Clinical Neurology series, which has an unparalleled reputation as the world's most comprehensive source of information in neurology International list of contributors including the leading workers in the field Describes the advances which have occurred in clinical neurology and the neurosciences, their impact on the understanding of neurological disorders and on patient care

The Neuroscience of Normal and Pathological Development

Colin R. Martin,Victor R. Preedy,Rajkumar Rajendram

Author : Colin R. Martin,Victor R. Preedy,Rajkumar Rajendram
Publisher : Academic Press
Page : 2143 pages
File Size : 54,8 Mb
Release : 2021-10-12
Category : Medical
ISBN : 9780128183724

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The Neuroscience of Normal and Pathological Development by Colin R. Martin,Victor R. Preedy,Rajkumar Rajendram Pdf

Diagnosis, Management and Modeling of Neurodevelopmental Disorders: The Neuroscience of Development is a comprehensive reference on the diagnosis and management of neurodevelopment and associated disorders. This book discusses the mechanisms underlying neurological development and provides readers with a detailed introduction to the neural connections and complexities in biological circuitries, as well as the interactions between genetics, epigenetics and other micro-environmental processes. It also examines pharmacological and non-pharmacological interventions of development-related conditions. Factors Affecting Neurodevelopment: Genetics, Neurology, Behavior, and Diet is a comprehensive reference on the genetic and behavioral features associated with proper and abnormal development. This book discusses the mechanisms underlying neurological development and provides readers with a detailed introduction to the neural connections and complexities in biological circuitries, as well as the physiological, behavioral, molecular, and cellular features of neurodevelopment. It also examines in vitro and in vivo modelling of development with stem cells and model systems. Diagnosis, Management and Modeling of Neurodevelopmental Disorders: The Neuroscience Of Development: Provides the most comprehensive coverage of the broad range of topics related to the neuroscience of development Features sections on diagnosis and biomarkers Contains in each chapter an abstract, key facts, mini dictionary of terms, and summary points to aid in understanding Focuses on neurodevelopmental disorders and environmental factors that influence neural development Includes more than 500 illustrations and tables Factors Affecting Neurodevelopment: Genetics, Neurology, Behavior, and Diet: Provides the most comprehensive coverage of the broad range of topics related to the neuroscience of development Features sections on the genetics of developmental conditions and accompanying behavior Contains in each chapter an abstract, key facts, mini dictionary of terms, and summary points to aid in understanding Focuses on neurodevelopmental disorders and environmental factors that influence neural development Includes more than 500 illustrations and tables

Life Quality Outcomes In Children And Young People With Neurological And Developmental Conditions

Life Quality Outcomes in Children and Young People with Neurological and Developmental Conditions by Gabriel M. Ronen,Peter L. Rosenbaum Pdf

Seizures and Syndromes of onset in the Two First Years of Life by Solomon L. Moshé,J. Helen Cross,Julitta de Bellescize,Linda de Vries,Douglas Nordli,Federico Vigevano Pdf

Quality of Life in Child and Adolescent Illness by Hans Koot,Jan Wallander Pdf

Pediatric Neurology Part I by Gabriel M. Ronen,Bernard Dan Pdf

Treatment of Cerebral Palsy and Motor Delay by Sophie Levitt,Anne Addison Pdf

Health Measurement Scales by David L. Streiner,Geoffrey R. Norman,John Cairney Pdf

Parenting Plan Evaluations by Leslie Drozd,Michael Saini,Nancy Olesen Pdf

Pediatric Health Conditions in Schools by Allison G. Dempsey Pdf

Neurological, Psychiatric, and Developmental Disorders by Institute of Medicine,Board on Global Health,Committee on Nervous System Disorders in Developing Countries Pdf

Disease Control Priorities, Third Edition (Volume 4) by Vikram Patel,Dan Chisholm,Tarun Dua,Ramanan Laxminarayan,Mari'a Lena Medina-Mora,Theo Vos Pdf

Yearbook of Neurology 2022 by Kalyan B Bhattacharyya,Gagandeep Singh Pdf

Avery's Diseases of the Newborn - E-Book by Taylor Sawyer,Christine A. Gleason Pdf

Children with Developmental Coordination Disorder by David Sugden,Mary Chambers Pdf

Pediatric Neurology, Part I by Olivier Dulac,Maryse Lassonde,Harvey B. Sarnat Pdf

The Neuroscience of Normal and Pathological Development by Colin R. Martin,Victor R. Preedy,Rajkumar Rajendram Pdf

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