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Living with HIV in Post-Crisis Times by David A.B. Murray Pdf
Over the past decade, effective prevention and treatment policies have resulted in global health organizations claiming that the end of the HIV/AIDS crisis is near and that HIV/AIDS is now a chronic but manageable disease. These proclamations have been accompanied by stagnant or decreasing public interest in and financial support for people living with HIV and the organizations that support them, minimizing significant global disparities in the management and control of the HIV pandemic. The contributors to this edited collection explore how diverse communities of people living with HIV (PLHIV) and organizations that support them are navigating physical, social, political, and economic challenges during these so-called “post-crisis” times.
Winner of the 2022 Lambda Literary LGBTQ Nonfiction Award and the 2022 NLGJA Excellence in Book Writing Award. Finalist for the PEN/John Kenneth Galbriath Award for Nonfiction, the Gotham Book Prize, and the ALA Stonewall Israel Fishman Nonfiction Award. A 2021 New York Times Book Review Notable Book and a New York Times Book Review Editors' Choice. Longlisted for the 2021 Brooklyn Public Library Literary Prize. One of NPR, New York, and The Guardian's Best Books of 2021, one of Buzzfeed's Best LGBTQ+ Books of 2021, one of Electric Literature's Favorite Nonfiction Books of 2021, one of NBC's 10 Most Notable LGBTQ Books of 2021, and one of Gay Times' Best LGBTQ Books of 2021. "This is not reverent, definitive history. This is a tactician’s bible." --Parul Sehgal, The New York Times Twenty years in the making, Sarah Schulman's Let the Record Show is the most comprehensive political history ever assembled of ACT UP and American AIDS activism In just six years, ACT UP, New York, a broad and unlikely coalition of activists from all races, genders, sexualities, and backgrounds, changed the world. Armed with rancor, desperation, intelligence, and creativity, it took on the AIDS crisis with an indefatigable, ingenious, and multifaceted attack on the corporations, institutions, governments, and individuals who stood in the way of AIDS treatment for all. They stormed the FDA and NIH in Washington, DC, and started needle exchange programs in New York; they took over Grand Central Terminal and fought to change the legal definition of AIDS to include women; they transformed the American insurance industry, weaponized art and advertising to push their agenda, and battled—and beat—The New York Times, the Catholic Church, and the pharmaceutical industry. Their activism, in its complex and intersectional power, transformed the lives of people with AIDS and the bigoted society that had abandoned them. Based on more than two hundred interviews with ACT UP members and rich with lessons for today’s activists, Let the Record Show is a revelatory exploration—and long-overdue reassessment—of the coalition’s inner workings, conflicts, achievements, and ultimate fracture. Schulman, one of the most revered queer writers and thinkers of her generation, explores the how and the why, examining, with her characteristic rigor and bite, how a group of desperate outcasts changed America forever, and in the process created a livable future for generations of people across the world.
The Epidemic: Living with HIV in the 21st Century by Isaac Joseph Pdf
From the beginning of the AIDS crisis to current times, The Epidemic: Living with HIV in the 21st Century depicts the stories and lives of people living with HIV/AIDS and how they dealt with the stigma and discrimination that comes along with being a person living with HIV/AIDS as well how they battled or succumbed to the issues that affect people living with HIV/AIDS such as ostracism, loneliness, depression, suicide, and substance abuse. These stories also explore different issues related to being HIV positive such as pregnancy, lack of HIV/AIDS education, teenage HIV, women and HIV, LGBT homeless youth, HIV/AIDS treatment, being born with HIV, injection drug use, heterosexuals and HIV, and being black and HIV positive.
Genetic Science and New Digital Technologies by Tina Sikka Pdf
From health tracking to diet apps to biohacking, technology is changing how we relate to our material, embodied selves. Drawing from a range of disciplines and case studies, this volume looks at what makes these health and genetic technologies unique and explores the representation, communication and internalization of health knowledge. Showcasing how power and inequality are reflected and reproduced by these technologies, discourses and practices, this book will be a go-to resource for scholars in science and technology studies as well as those who study the intersection of race, gender, socio-economic status, sexuality and health.
In both local and international imaginations, Vancouver, Canada, is often celebrated as one of the world’s most beautiful, cosmopolitan, and livable cities. Simultaneously, the city continues to be ground zero for successive waves of public health emergency and intervention, including a recent and unprecedented drug overdose crisis driven by the proliferation of illicitly manufactured fentanyl and related analogs in the local drug supply. In The Best Place: Addiction, Intervention, and Living and Dying Young in Vancouver, Danya Fast explores these politics of place from the perspectives of young people who use drugs. Those who are the subject of this book were in many ways relegated to the social, spatial, and economic margins of the city. Yet, they were also often at the very center of city life and state projects, including the project of protecting life in the context of the current overdose crisis.
‘Ending AIDS’ in the Age of Biopharmaceuticals by Tony Sandset Pdf
This book considers the change in rhetoric surrounding the treatment of AIDS from one of crisis to that of ‘ending AIDS’. Exploring what it means to ‘end AIDS’ and how responsibility is framed in this new discourse, the author considers the tensions generated between the individual and the state in terms of notions such as risk, responsibility and prevention. Based on analyses public health promotions in the UK and the US, HIV prevention science and engaging with the work of Foucault, this volume argues that the discourse of ‘ending AIDS’ implies a tension-filled space in which global principles and values may clash with localised needs, values and concerns; in which evidence-based policies strive for hegemony over local, tacit and communal regimes of knowledge; and in which desires compete with national and international ideas about what is best for the individual in the name of ‘ending AIDS’ writ large. As such, it will appeal to scholars of sociology and media studies with interests in the sociology of medicine and health, medical communication and health policy.
Clinical Anthropology 2.0 by Jason W. Wilson,Roberta D. Baer Pdf
Clinical Anthropology 2.0 presents a new approach to applied medical anthropology that engages with clinical spaces, healthcare systems, care delivery and patient experience, public health, as well as the education and training of physicians. In this book, Jason W. Wilson and Roberta D. Baer highlight the key role that medical anthropologists can play on interdisciplinary care teams by improving patient experience and medical education. Included throughout are real life examples of this approach, such as the training of medical and anthropology students, creation of clinical pathways, improvement of patient experiences and communication, and design patient-informed interventions. This book includes contributions by Heather Henderson, Emily Holbrook, Kilian Kelly, Carlos Osorno-Cruz, and Seiichi Villalona.
Drug Use, Recovery, and Maternal Instinct Bias by Caitlyn D. Placek Pdf
Drug Use, Recovery, and Maternal Instinct Bias: A Biocultural and Social-Ecological Approach draws upon theoretical perspectives in anthropology and public health to provide insight into the barriers women experience when seeking treatment for substance use disorders. In both theoretical perspectives in biological anthropology and social discourse within the United States, there is an emphasis on explaining why women avoid (or should avoid) using psychoactive substances during their reproductive years, especially during pregnancy. Theories of women's drug avoidance during the childbearing years rely on statistics to show that women are less likely to use all types of illicit drugs than their male counterparts. This gender gap, however, is closing in high-income countries (HICs), calling for more research on the biocultural and social-ecological factors contributing to women's drug use and the barriers to their recovery. The book uses qualitative data from participants in Indiana to illustrate women's struggles along the pathway to recovery. The overarching conclusion is that internalized models of “maternal instinct,” a topic inherent in theoretical and public discourse, can often impede efforts for women seeking treatment, and recovery is only possible when proper social and structural supports are in place.
Entanglements of Rare Diseases in the Baltic Sea Region by Malgorzata Rajtar Pdf
Drawing on ethnographic studies of the lived experiences of people with rare diseases, this volume critically examines rare, chronic diseases in the context of care, kinship, and technologies, providing in-depth analyses of local worlds that usually remain at the peripheries of medical anthropological inquiry.
The Moral Evaluation of Emergency Department Patients by Marius Wamsiedel Pdf
In The Moral Evaluation of Emergency Department Patients: An Ethnography of Triage Work in Romania, Marius Wamsiedel examines the social categorization of patients and its consequences at two emergency departments in Romania. Based on long-term ethnographic fieldwork, this work argues that moral evaluation is an attempt on the part of triage nurses and clerks to keep the emergency service afloat in the context of high-care demand, insufficient resources, and uneven access to primary care. At the same time, Wamsiedel argues that moral evaluation is an effort to align the provision of emergency services with socially dominant values, norms, and representations. As such, the moral evaluation of patients becomes a Procrustean bed that reduces some inequities in access to health care while generating or amplifying others. By adopting an interactionist lens, Wamsiedel unravels the underlying social logic of moral evaluation, the criteria and assumptions that inform it, and attempts by triage workers and patient to negotiate access to emergency care. The Moral Evaluation of Emergency Department Patients offers new ways of understanding the work of street-level bureaucracies and informal barriers to care.
Agency and Bodily Autonomy in Systems of Care by Heidi M. Altman Pdf
Agency and Bodily Autonomy in Systems of Care examines the ways in which humans and their bodies become enmeshed in various systems of care. Seven case studies demonstrate the ways in which people lose, negotiate, establish, or impose bodily autonomy in diverse contexts. Diverse methods and perspectives from cultural and medical anthropology, bioarchaeology and public health establish the need for advocacy and policy change to improve health outcomes by re-envisioning systems of care as spaces that include room for individual agency and bodily autonomy. This volume explores diverse subjects to promote advocacy for patient-centered care and bodily autonomy, and for liberation from over-medicalization.
In Boundaries of Care, Ryan I. Logan details the lived experience of community health workers (CHWs) – a present yet often invisible facet of the healthcare workforce. These workers participate in nonclinical services to enhance the health and well-being of their communities outside the walls of the clinic and social service agencies. Logan examines the boundaries of and barriers to care present in the experiences of CHWs, their relationships with clients, issues of professionalization, impacts of burnout and self-care, and the critical impacts of CHW advocacy. Told through first-hand accounts and interwoven with theory, Logan presents the key challenges facing this workforce and their potential to foster even greater well-being within their communities. The findings and recommendations from participants found within Boundaries of Care can inform and shape CHW programs both in the United States and abroad.
'A book of resistance and love, as urgently necessary now as it was thirty years ago' Olivia Laing First published in 1990, discover this blistering novel about a love triangle in New York during the AIDS crisis. The perfect novel to read after bingeing It's A Sin. It was the beginning of the end of the world but not everyone noticed right away. It is the late 1980s. Kate, an ambitious artist, lives in Manhattan with her husband Peter. She's having an affair with Molly, a younger lesbian who works part-time in a movie theater. At one of many funerals during an unbearably hot summer, Molly becomes involved with a guerrilla activist group fighting for people with AIDS. But Kate is more cautious, and Peter is bewildered by the changes he's seeing in his city and, most crucially, in his wife. Soon the trio learn how tragedy warps even the closest relationships, and that anger - and its absence - can make the difference between life and death. 'Strong, nervy and challenging' New York Times
“A sprawling account of New York lives under the long shadow of AIDS, it deals beautifully with the drugs that save us and the drugs that don’t.”—The Guardian (Best Books of the Year) In this vivid and compelling novel, Tim Murphy follows a diverse set of characters whose fates intertwine in an iconic building in Manhattan’s East Village, the Christodora. The Christodora is home to Milly and Jared, a privileged young couple with artistic ambitions. Their neighbor, Hector, a Puerto Rican gay man who was once a celebrated AIDS activist but is now a lonely addict, becomes connected to Milly and Jared’s lives in ways none of them can anticipate. Meanwhile, Milly and Jared’s adopted son Mateo grows to see the opportunity for both self-realization and oblivion that New York offers. As the junkies and protestors of the 1980s give way to the hipsters of the 2000s and they, in turn, to the wealthy residents of the crowded, glass-towered city of the 2020s, enormous changes rock the personal lives of Milly and Jared and the constellation of people around them. Moving kaleidoscopically from the Tompkins Square Riots and attempts by activists to galvanize a true response to the AIDS epidemic, to the New York City of the future, Christodora recounts the heartbreak wrought by AIDS, illustrates the allure and destructive power of hard drugs, and brings to life the ever-changing city itself. “A rich and complicated New York saga . . . Christodora has the scope of other New York epics, such as Bonfire of the Vanities, The Goldfinch and City on Fire.”—Newsday
