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Author : Anonim
Publisher : Unknown
Page : 212 pages
File Size : 50,9 Mb
Release : 1999
Category : Tuberous sclerosis
ISBN : 0967310008
A compilation of 26 biographies and 6 autobiographies of children and adults living normal lives despite having tuberous sclerosis.
Author : Anonim
Publisher : Unknown
Page : 176 pages
File Size : 54,9 Mb
Release : 1999
Category : Tuberous sclerosis
ISBN : OCLC:1245544416
A compilation of 26 biographies and 6 autobiographies of children and adults living normal lives despite having tuberous sclerosis.
Author : Evan Moss
Publisher : Unknown
Page : 38 pages
File Size : 49,5 Mb
Release : 2014-04-06
Category : Electronic
ISBN : 1497587573
My Life with TSC, written and illustrated by 10-year-old Evan Moss, tells the story of what it's like to live with tuberous sclerosis complex (TSC). Evan takes a whimsical approach to explaining the daily challenges he faces. He takes a serious topic, infuses his own sense of humor and wit and leaves the reader with a smile on their face and a sense of hope.A portion of the proceeds from this book will be donated to the Tuberous Sclerosis Alliance to fund TSC Research.
Author : David J. Kwiatkowski,Vicky Holets Whittemore,Elizabeth A. Thiele
Publisher : John Wiley & Sons
Page : 415 pages
File Size : 45,7 Mb
Release : 2011-08-24
Category : Science
ISBN : 9783527644674
The only comprehensive overview of the molecular basis and clinical features of the genetic disorder tuberous sclerosis, which affects approximately 50,000 people in the US alone. Special focus is placed on novel insights into the signal transduction pathways affected by the disease as well as genotype phenotype correlations, while existing and potential therapies are also discussed in depth. The editors are leading experts in research and treatment of the disease as well as the Vice President of the Tuberous Sclerosis Alliance, the only voluntary health organization for TSC in the US.
Author : Patricia Treadwell,Michael Lee Smith,Julie Prendiville
Publisher : Springer Nature
Page : 112 pages
File Size : 55,7 Mb
Release : 2020-12-03
Category : Medical
ISBN : 9783030586348
Valuable to dermatologists, adolescent medicine specialists, family medicine practitioners, and primary care physicians, the Atlas of Adolescent Dermatology presents a concise and practical guide to the diagnosis and management of adolescent skin diseases. Each chapter follows a similar format, to assist in ease of reference, and contains information on diagnosis and management. The various chapters include conditions such as Acne, Seborrheic Dermatitis, Eczema, Scabies, Contact Dermatitis, and selected Genodermatoses.
Author : Institute of Medicine,Board on Health Sciences Policy,Committee on the Public Health Dimensions of the Epilepsies
Publisher : National Academies Press
Page : 568 pages
File Size : 46,7 Mb
Release : 2012-07-29
Category : Medical
ISBN : 9780309259538
Although epilepsy is one of the nation's most common neurological disorders, public understanding of it is limited. Many people do not know the causes of epilepsy or what they should do if they see someone having a seizure. Epilepsy is a complex spectrum of disorders that affects an estimated 2.2 million Americans in a variety of ways, and is characterized by unpredictable seizures that differ in type, cause, and severity. Yet living with epilepsy is about much more than just seizures; the disorder is often defined in practical terms, such as challenges in school, uncertainties about social situations and employment, limitations on driving, and questions about independent living. The Institute of Medicine was asked to examine the public health dimensions of the epilepsies, focusing on public health surveillance and data collection; population and public health research; health policy, health care, and human services; and education for people with the disorder and their families, health care providers, and the public. In Epilepsy Across the Spectrum, the IOM makes recommendations ranging from the expansion of collaborative epilepsy surveillance efforts, to the coordination of public awareness efforts, to the engagement of people with epilepsy and their families in education, dissemination, and advocacy for improved care and services. Taking action across multiple dimensions will improve the lives of people with epilepsy and their families. The realistic, feasible, and action-oriented recommendations in this report can help enable short- and long-term improvements for people with epilepsy. For all epilepsy organizations and advocates, local, state, and federal agencies, researchers, health care professionals, people with epilepsy, as well as the public, Epilepsy Across the Spectrum is an essential resource.
Author : Zoë Bull
Publisher : Grosvenor House Publishing
Page : 173 pages
File Size : 54,7 Mb
Release : 2021-05-20
Category : Self-Help
ISBN : 9781839756245
Zoë has been a Support Worker for the learning disability charity Mencap for five years and has just qualified as a counsellor. What many people don't know is that Zoë has two rare health conditions, Tuberous Sclerosis Complex (TSC) and LAM caused by two connected faulty genes that can affect the brain, skin, kidneys and lungs. Zoë had a relatively symptom-free childhood but as she entered adulthood, she suffered a life-threatening kidney bleed and multiple lung collapses that took a toll on her mental health. Throughout Rare, Zoë shares her journey of recovery and how she has come to accept aspects of herself that seemed impossible to surmount.
Author : United States. Congress. House. Committee on Appropriations. Subcommittee on the Departments of Labor, Health and Human Services, Education, and Related Agencies
Publisher : Unknown
Page : 1324 pages
File Size : 55,9 Mb
Release : 2002
Category : United States
ISBN : STANFORD:36105050267868
Author : United States. Congress. House. Committee on Energy and Commerce. Subcommittee on Health
Publisher : Unknown
Page : 80 pages
File Size : 40,8 Mb
Release : 2001
Category : Law
ISBN : PSU:000045427794
Author : Sergiusz Jozwiak,Paolo Curatolo
Publisher : Frontiers Media SA
Page : 178 pages
File Size : 52,7 Mb
Release : 2021-11-30
Category : Medical
ISBN : 9782889717330
Author : Institute of Medicine,Committee to Review the Adverse Consequences of Pertussis and RubellaVaccines
Publisher : National Academies Press
Page : 382 pages
File Size : 50,5 Mb
Release : 1991-01-01
Category : Medical
ISBN : 9780309044998
Parents have come to depend on vaccines to protect their children from a variety of diseases. Some evidence suggests, however, that vaccination against pertussis (whooping cough) and rubella (German measles) is, in a small number of cases, associated with increased risk of serious illness. This book examines the controversy over the evidence and offers a comprehensively documented assessment of the risk of illness following immunization with vaccines against pertussis and rubella. Based on extensive review of the evidence from epidemiologic studies, case histories, studies in animals, and other sources of information, the book examines: The relation of pertussis vaccines to a number of serious adverse events, including encephalopathy and other central nervous system disorders, sudden infant death syndrome, autism, Guillain-Barre syndrome, learning disabilities, and Reye syndrome. The relation of rubella vaccines to arthritis, various neuropathies, and thrombocytopenic purpura. The volume, which includes a description of the committee's methods for evaluating evidence and directions for future research, will be important reading for public health officials, pediatricians, researchers, and concerned parents.
Author : Cynthia Rust
Publisher : Unknown
Page : 160 pages
File Size : 55,9 Mb
Release : 2017
Category : Biography
ISBN : 1592987680
Meet Randy. He was diagnosed with the rare genetic disorder tuberous sclerosis complex (TSC) in 1979 at just nine months old. Written from the perspective of Randy's mother, Cynthia, it's nice to meet me too provides snapshots of what life is like raising a severely handicapped child. Randy's brought his fair share of heartbreaks but more importantly, endless laughter and joy. By putting down on paper a lifetime's worth of "Randy stories" that have been shared over with friends and family, she shows the comedic side of life with a child with special needs. - p. 4 of cover
Author : Prince Chordia & S. Deepika
Publisher : True Dreamster
Page : 207 pages
File Size : 52,6 Mb
Release : 2020-09-09
Category : Poetry
ISBN : 8210379456XXX
There is an emotion behind every story. 'The diary of emotions' has a combination of poems, stories and many more. 'When words cannot express writings can do'. The writings which recall your life. Everyone's life has a different kind of emotions. This book makes you happy, sad, excited and many more emotions through authors writings. The emotions which you are carrying is kept on our words. The collection of emotions bagged in a book. Have a binge read and experience YOU in our writings. Experience the wonderful and beautiful emotions?
Author : Manuel Rodriguez Gomez,Julian R. Sampson,Vicky Holets Whittemore
Publisher : Oxford University Press
Page : 365 pages
File Size : 55,8 Mb
Release : 1999-07-15
Category : Medical
ISBN : 9780198028475
Tuberous Sclerosis is a genetic disease characterized by lesions of the skin and central nervous system, seizures, and sometimes sever mental retardation. Infants with this disease may appear overactive, autistic, or socially impaired. Because tuberous sclerosis involves abnormal cellular differentiation, aberrant neuronal migration, and excessive cell proliferation, this thoroughly revised edition will be of interest to a wide range of professionals involved in the study of biological mechanisms underlying many genetically determined neurological disorders.
Author : Anonim
Publisher : EURORDIS - Rare Diseases Eu
Page : 325 pages
File Size : 41,7 Mb
Release : 2009
Category : Electronic
ISBN : 9782953031812
