Love Dignity And Parkinson S Book in PDF, ePub and Kindle version is available to download in english. Read online anytime anywhere directly from your device. Click on the download button below to get a free pdf file of Love Dignity And Parkinson S book. This book definitely worth reading, it is an incredibly well-written.
A practical guide to self-care for people caring for loved ones living with Parkinson's Disease. Written by an experienced PD Caregiver, this book shows caregivers how they can sustain their connection to the Person with Parkinson's while continuing to maintain a sense of self. In this book, Terri Pease shows that self-care is real, practical, and possible.
You Are a Better Parkinson's Disease Caregiver Than You Think by Kevin Klos Pdf
Due to the lack of formal training, self-doubt, and conflicting ideas from outside resources, most Parkinson's disease care partners and caregivers struggle and experience frustration in caring for their loved one. The challenges for care partners in the early and intermediate stages as well as the challenges for caregivers in the more advanced stages vary widely. The purpose of this book is to equip Parkinson's disease care partners and caregivers with the confidence and skills necessary to enjoy the caregiving years with less struggles and heartache. In You are a Better Parkinson's Disease Caregiver Than You Think, author Kevin Klos, MD offers practical solutions and applications that he has learned from extensive research from patients and caregivers in his clinical practice as well as his own experiences as a caregiver for his mother with Parkinson's disease. He provides actionable plans that will give you the confidence to be a better caregiver and reduce the guilt that so many individuals experience. Based on Dr. Klos's clinical experience, backed by advice from care partners and caregivers caring for loved ones in all stages of the disease and illustrated by case stories from real caregivers, You are a Better Parkinson's Disease Caregiver Than You think provides and principles and skills that you must learn and master. Your caregiving journey will never be the same.
Life in the Balance by Thomas B. Graboys,Peter Zheutlin Pdf
Chronicles the author's descent from a top cardiologist to a patient slowly succumbing to Parkinson's disease and dementia, including how he struggles with the feelings he experiences daily and the impact of the diseases in his life.
Advice From a Parkinson's Wife by Barbara Sheklin Davis Pdf
LARGE PRINT EDITION More than ten million people worldwide live with Parkinson's disease, and their spouses are most likely to be their primary caregivers. The transition from spouse to caregiver is not an easy one, often causing frustration, resentment, sadness, fear, and concern about the future. A lot has been written about caring for the Parkinson's patient, but their caregivers need a book to help them cope with the enormous life changes that Parkinson's brings to a relationship. This book does that. Barbara Davis's husband had Parkinson's for over twenty years. She wrote this book after more than two decades of personal experience because she wanted to chronicle the serious matters that most Parkinson's partners don't like to talk about publicly, and the feelings and frustrations they are embarrassed to share. By discussing these challenges openly and honestly, this unique book seeks to help others in ways that are not otherwise easily accessible, and to let them know that they are not alone in dealing with the negative life impacts of Parkinson's Disease. Advice from a Parkinson's Wife is realistic and enlightening, providing stories and advice from someone who's been there, along with practical suggestions for how to cope with the changes caregivers experience. Among the topics covered in the book are: How your marriage changes and what caregiving does to you How to handle doctor visits What to do about falls, clinging, masks, and variability Handling guilt and other emotions Suggestions for practical things you can do to make things easier Being a caregiver is tough, but with the wisdom, compassion, and advice in this book, the hope is that you can find moments when you can experience something approaching happiness, pleasure, and maybe even joy.
The Complete Guide for People with Parkinson's Disease and Their Loved Ones by Lianna Marie Pdf
A diagnosis of Parkinson's disease is as disorienting as it is devastating. The Complete Guide for People With Parkinson's Disease and Their Loved Ones helps make sense of what comes next and what can be done, not just for those suffering from the disease but for their family and friends as well. A trained nurse and primary caregiver for her mother, who was diagnosed with Parkinson's disease in 1991, Lianna Marie draws upon over twenty years of education, research, and direct experience. Written in straightforward and easily accessible language, this essential guide aims to help patients better understand their role in their treatment so that they may continue to lead happy and hopeful lives. Topics covered include nutrition and exercise, alternative and complementary therapies, medication and treatment, and what caregivers can do to help. Written by an international expert on Parkinson's who has confronted the disease firsthand, The Complete Guide serves as the go-to book for comprehensive, easy-to-understand information for all Parkinson's patients and their loved ones.
Everything You Need to Know About Caregiving for Parkinson’s Disease by Lianna Marie Pdf
Caregiving for those who suffer from Parkinson’s disease comes with many challenges, from how to deal with guilt and loneliness to avoiding burnout and figuring out what to expect from an unpredictable disease. When giving care, too often caregivers neglect their own well-being. Everything You Need to Know About Caregiving for Parkinson’s Disease is not just about caring for your loved one, but also about taking care of yourself. Lianna Marie served as her mother's caregiver for more than twenty years after she was diagnosed with Parkinson’s disease. Drawing on firsthand experience, her training as a nurse, and the many stories of others she has helped and counseled over the years, Marie shares her wisdom and advice—practical and emotional. Written accessibly and without jargon, Everything You Need to Know provides an essential resource full of useful information for all caregivers of those with Parkinson’s disease.
When Claire Verney agreed to ‘for better or for worse, in sickness and in health’ she never imagined the journey that lay ahead of her. Her husband Michael was diagnosed with Parkinson’s Disease at the age of forty-six. Notes of a Love Song chronicles their lives as Claire becomes her husband’s full-time caregiver and medical advocate as he struggles with the ravages of end-stage Parkinson's. It spans the final four years of Michael's life at home where he lived and died with dignity through the constant care and love of his wife. The author weaves her way through the history of her husband's disease while reflecting on her own history, her family and how all are deeply affected by this mercilessly degenerative disease. Told with warmth and humour, Notes of a Love Song offers a rare and timely glimpse into the realities of long-term care of parents and spouses, either in institutions or at home. It is written as a love story, a tribute, but is equally a how-to manual, imparting valuable medical information about Parkinson's Disease, dementia, palliative care and the importance of patient advocacy.
'Inspiring' GUARDIAN 'Heartbreaking' INDEPENDENT 'I loved it' ADAM KAY 'Beautiful' MATT HAIG 'Luminous' NICCI GERRARD 'Essential reading' MADELEINE BUNTING 'A celebration' CHRISTIE WATSON ----- A Best Book for Summer in The Times, Guardian and The i Independent Book of the Month ----- Caring is an issue that affects us all - as bestselling novelist Kate Mosse knows all too well. Kate has cared in turn for her father and mother, and for Granny Rosie, her 90-year-old mother-in-law. Along the way she has experienced the joys, challenges and frustrations shared by an invisible army of carers. At the heart of this care lie everyday acts of love, and the realisation that, sooner or later, most of us will come to rely on an extra pair of hands. ----- 'Lifts the spirits without pulling punches' IAN RANKIN 'Irresistible' RACHEL JOYCE 'Questions how and why we fetishise independence when the reality of human experience is always interdependence' GUARDIAN, BOOK OF THE DAY 'Heartfelt, funny and at times heartbreaking. 10/10' INDEPENDENT 'Utterly beautiful' FRANCESCA SEGAL
NEW YORK TIMES BESTSELLER • A powerful memoir of a love that leads two people to find a courageous way to part—and a woman’s struggle to go forward in the face of loss—that “enriches the reader’s life with urgency and gratitude” (The Washington Post) “A pleasure to read . . . Rarely has a memoir about death been so full of life. . . . Bloom has a talent for mixing the prosaic and profound, the slapstick and the serious.”—USA Today ONE OF THE BEST BOOKS OF THE YEAR: NPR Amy Bloom began to notice changes in her husband, Brian: He retired early from a new job he loved; he withdrew from close friendships; he talked mostly about the past. Suddenly, it seemed there was a glass wall between them, and their long walks and talks stopped. Their world was altered forever when an MRI confirmed what they could no longer ignore: Brian had Alzheimer’s disease. Forced to confront the truth of the diagnosis and its impact on the future he had envisioned, Brian was determined to die on his feet, not live on his knees. Supporting each other in their last journey together, Brian and Amy made the unimaginably difficult and painful decision to go to Dignitas, an organization based in Switzerland that empowers a person to end their own life with dignity and peace. In this heartbreaking and surprising memoir, Bloom sheds light on a part of life we so often shy away from discussing—its ending. Written in Bloom’s captivating, insightful voice and with her trademark wit and candor, In Love is an unforgettable portrait of a beautiful marriage, and a boundary-defying love.
Zoe Carter’s busy life on the West Coast with her husband and daughters takes an unexpected detour when her glamorous, independent-minded mother, Margaret, tired of living with Parkinson’s disease, decides she wants to “end things.” As Zoe and her sisters negotiate over whether or not they should support Margaret’s choice and who should be there at the end, their discussions stir up old alliances and animosities, along with memories of a childhood dominated by their elegant mother and philandering father. Capturing the stresses and the joys of the “sandwich generation” while bringing a provocative new perspective to the assisted suicide debate, Imperfect Endings is the uplifting story of a woman determined to die on her own terms and the family who has to learn to let her go.
If I Can Climb Mt. Kilimanjaro, Why Can't I Brush My Teeth? by Nan Little Pdf
Chronicles an older woman's unorthodox approach to managing PD. She tells stories, encouraging patients to draw from her experiences points that are relevant to their own lives. She doesn't hide. Hallucinations, constipation, compulsive behaviors, and loss are all part of the picture. So is the emotion of standing on the roof of Africa, dipping her bike wheel in the Mississippi after cycling across Iowa for seven days and paying careful attention as her two year old granddaughter explains how to stop her "dancing hand". Each story is laced with courage, tenacity and love. "Nan shows how even the most challenging obstacles life puts in front of us can be stepping stones to something greater than we ever dreamed!" Linna Dossett Patient efficacy, having some control over her personal Parkinson's path, distinguishes this book from other medical memoirs. Nan encourages patients to take action based on scientific research with measurable outcomes. "You have Parkinson's disease." Those few words throw a person on an ice sheet with no ice axe to arrest the slide. Nan's story can be an ice axe. An estimated 1-1.5 million Americans live with Parkinson's with an additional 50,000-60,000 diagnosed each year, numbers growing as the population ages. Globally, this chronic neurodegenerative disease currently affects about 5 million. Although this book is about her experiences with Parkinson's, it is appropriate for any person who endures a neurodegenerative disease, and those who work with them or care about them.
t takes courage to face serious illness, whether it is you who are sick or someone you love. This is the story of two courageous people, Julie and Ken Sobol. Julie and Ken were writing partners as well as life partners, so it was natural that when Ken became caught up in the frightening and fatal fog of Lewy Body Disease, they decided to write about their experience with the disease together. This is the story not just of a devastating illness, but of an amazing relationship. As KenÕs disease progresses and his symptoms worsen, his voice on the page dwindles. Julie continues the narration, sharing her sadness, frustration, and attempts to find the best care for her husband. Their chronicling of the ravages wrought by LBD is intelligent, insightful, enlightening, and often funny. It isÑat heartÑa love story.
A beloved NPR radio host speaks about the death of her husband of fifty-four years—and of her struggle to reconstruct her life without him—in an eloquent, deeply moving book that “invite[s] comparisons to Joan Didion’s own memoir of loss, The Year of Magical Thinking” (The Guardian). John Rehm was 74 when he was diagnosed with Parkinson's. Nine years later, he passed away, having made the difficult choice to end his extended illness by refusing to eat, drink, or accept medication. This process transformed Diane into an advocate for increased conversation end-of-life care and the right to die on one’s own terms, as well as a brave and sympathetic voice for anyone who must learn how to live again after bereavement.
