Narrating Experiences Of Alzheimer S Through The Arts
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Narrating Experiences of Alzheimer's Through the Arts by Ana Paula Barbosa-Fohrmann Pdf
While Alzheimer's might be associated with a difficulty to express oneself, Ana Paula Barbosa-Fohrmann addresses this topic by examining experiences with Alzheimer's based on narratives. In this original contribution, she studies the nexus of life stories, subjectivity, fragmentation, and fiction. The philosophical basis of this research is phenomenology from the end of the 19th century to the middle of the 20th century, specifically that of Husserl and above all that of Merleau-Ponty. This work also draws on Proust's and Camus' literature as well as Beckett's dramaturgy.
Memories in the Making by La Doris,La Doris Heinly,Alzheimer's Association of Orange County, Calif Pdf
Memories in the Making is a program that features the art work of people living with Alzheimer's disease, using their art and often their few remaining words to share what is currently in their thoughts. This book dispels the common misconception that individuals with dementia are lost forever. Instead, we learn by reading their compelling stories and viewing their accompanying art, that they are still here, only in a different way.
Latin American Interdisciplinary Perspectives on Bioethics and Disabilities by Ana Paula Barbosa-Fohrmann,Sandra Caponi Pdf
This book provides a critical analysis of the experiences of people with disabilities in Latin America. It covers a wide range of topics related to intellectual and psychosocial disabilities. Written by Latin American researchers and adopting an interdisciplinary perspective, it provides an original sociocultural contribution to bioethics and disability studies literature. It presents an in-depth overview of philosophical, ethical, legal, political and social issues. At the same time, it offers a contribution to the global scientific community inasmuch it discusses theoretical references from South America in connection with those from Europe and the United States. The basic questions dealt with range from criteria for human flourishing to questions of philosophy of mind, and neuroethics through phenomenological and aesthetic approaches to intellectual and psychosocial disabilities. The legal and political investigations explore the rights of those affected and the processes of their self-organization. The authors address the dynamics of medicalization and demedicalization, the practices of psychiatric institutionalization and the treatment of children with antipsychotics. This book appeals to psychologists, social scientists, bioethicists, healthcare personnel, philosophers, and lawyers working with cases related to people with disabilities.
The Poetics and Politics of Alzheimer’s Disease Life-Writing by Martina Zimmermann Pdf
This book is open access under a CC BY 4.0 license. This is the first book-length exploration of the thoughts and experiences expressed by dementia patients in published narratives over the last thirty years. It contrasts third-person caregiver and first-person patient accounts from different languages and a range of media, focusing on the poetical and political questions these narratives raise: what images do narrators appropriate; what narrative plot do they adapt; and how do they draw on established strategies of life-writing. It also analyses how these accounts engage with the culturally dominant Alzheimer’s narrative that centres on dependence and vulnerability, and addresses how they relate to discourses of gender and aging. Linking literary scholarship to the medico-scientific understanding of dementia as a neurodegenerative condition, this book argues that, first, patients’ articulations must be made central to dementia discourse; and second, committed alleviation of caregiver burden through social support systems and altered healthcare policies requires significantly altered views about aging, dementia, and Alzheimer’s patients.
As people are living longer on average than ever before, the number of those with dementia will increase. Because many will live a considerable time at home with their diagnosis, we need to know more about the ways people can adapt to and learn to live with dementia in their everyday lives. Lars-Christer Hydén argues in this book that to do so will involve re-imagining what dementia really is and what it can mean to the afflicted and their loved ones. One of the most important everyday opportunities for sharing experiences is the simple act of storytelling. But when someone close to you gradually loses the ability to tell stories and cherish the shared history you have together, this is seen as a threat to the relationship, to the feeling of belonging together, and to the identity of the person diagnosed. Therefore, learning about how people with dementia can participate in storytelling along with their families and friends helps to sustain those relationships and identities. In Entangled Narratives, Hydén not only emphasizes the possibilities that are inherent in collaborative storytelling, but instructs professionals and otherwise healthy relatives to learn how to effectively listen and, ultimately, re-imagine their patients and loved ones as collaborative meaning-makers in their lives.
Since the 1860s, long before scientists put a name to Alzheimer’s disease, Canadian authors have been writing about age-related dementia. Originally, most of these stories were elegies, designed to offer readers consolation. Over time they evolved into narratives of gothic horror in which the illness is presented not as a normal consequence of aging but as an apocalyptic transformation. Weaving together scientific, cultural, and aesthetic depictions of dementia and Alzheimer’s disease, Forgotten asserts that the only crisis associated with Canada’s aging population is one of misunderstanding. Revealing that turning illness into something monstrous can have dangerous consequences, Marlene Goldman seeks to identify the political and social influences that have led to the gothic disease model and its effects on society. Examining the works of authors such as Alice Munro, Michael Ignatieff, Jane Rule, and Caroline Adderson alongside news stories and medical and historical discussions of Alzheimer’s disease, Goldman provides an alternative, person-centred perspective to the experiences of aging and age-related dementia. Deconstructing the myths that have transformed cognitive decline into a corrosive fantasy, Forgotten establishes the pivotal role that fictional and non-fictional narratives play in cultural interpretations of disease.
Routledge International Handbook of Therapeutic Stories and Storytelling by Clive Holmwood,Sue Jennings,Sharon Jacksties Pdf
The Routledge International Handbook of Therapeutic Stories and Storytelling is a unique book that explores stories from an educational, community, social, health, therapeutic and therapy perspectives, acknowledging a range of diverse social and cultural views in which stories are used and written by esteemed storytellers, artists, therapists and academics from around the globe. The book is divided into five main sections that examine different approaches and contexts for therapeutic stories and storytelling. The collected authors explore storytelling as a response to the Covid-19 pandemic, in education, social and community settings, and in health and therapeutic contexts. The final section offers an International Story Anthology written by co-editor Sharon Jacksties and a final story by Katja Gorečan. This book is of enormous importance to psychotherapists and related mental health professionals, as well as academics, storytellers, teachers, people working in special educational needs, and all those with an interest in storytelling and its applied value.
Cinematic Representations of Alzheimer’s Disease by Raquel Medina Pdf
This book offers a cross-cultural approach to cinematic representations of Alzheimer’s disease in non-mainstream cinema. Even though Alzheimer’s disease, the most common form of dementia, is a global health issue, it is not perceived or represented homogenously around the world. Contrary to very well-known mainstream films, the films discussed do not focus on the negative aspects normally associated with Alzheimer’s disease, but on the importance of portraying the perspective of the persons living with Alzheimer’s and their personhood. Similarly, this book analyses how the films use Alzheimer’s as a trope to address issues relating to different areas of life and society such as, for example, family matters, intergenerational relationships, gender issues, national traditions versus global modernity, and caring for people with dementia. By examining an array of films, from crime fiction to documentary, that each present non-stigmatising representations of Alzheimer’s disease, this in-depth study ultimately demonstrates the power of culture in shaping meaning.
Collaborative Arts-based Research for Social Justice by Victoria Foster Pdf
This book provides a thought-provoking guide to conducting collaborative arts-based research. Focusing on ways that social inquiry might be conducted with marginalised groups to promote social justice, the text offers chapters on: Telling ‘alternative’ stories through a variety of methods from crafts to digital film Visual and metaphorical approaches to social research including photography, art and poetry Performative methods that include drama, dance, music and performance art Foster introduces relevant methodological debates, giving a context for understanding when arts-based research can be a fruitful approach to take and outlining a convincing rationale for using the arts as a way of understanding and representing the social world. The book also suggests a range of alternative criteria for evaluating the quality of arts-based research. Illustrative examples from around the world are used throughout the book and an extended case study is included that focuses on Foster’s own collaborative arts-based research. With their emphasis on the value of participative research and social justice, arts-based methodologies are becoming increasingly popular in health and social research. This is the ideal text for anyone looking to introduce arts-based methods into their research practice.
A MacArthur Genius Grant recipient pioneers a radical change in how we interact with older loved ones, especially those experiencing dementia, as she introduces a proven method that uses the creative arts to bring light and joy to the lives of elders. In Creative Care, Anne Basting lays the groundwork for a widespread transformation in our approach to elder care and uses compelling, touching stories to inspire and guide us all—family, friends, and health professionals—in how to connect and interact with those living with dementia. A MacArthur Genius Grant recipient, Basting tells the story of how she pioneered a radical change in how we interact with our older loved ones. Now used around the world, this proven method has brought light and joy to the lives of elders—and those who care for them. Here, for the first time, everyone can learn these methods. Early in her career, Basting noticed a problem: today’s elderly—especially those experiencing dementia and Alzheimer’s— are often isolated in nursing homes or segregated in elder-care settings, making the final years of life feel lonely and devoid of meaning. To alleviate their sense of aloneness, Basting developed a radical approach that combines methods from the world of theater and improvisation with evidence-based therapies that connect people using their own creativity and imagination. Rooted in twenty-five years of research, these new techniques draw on core creative exercises—such as “Yes, and . . .” and “Beautiful Questions.” This approach fosters storytelling and active listening, allowing elders to freely share ideas and stories without worrying about getting the details “correct.” Basting’s research has shown that these practices stimulate the brain and awaken the imagination to add wonder and awe to patients’ daily lives—and provide them a means of connection, both with the world and with those caring for them. Creative Care promises to bring light and hope to a community that needs it most.
Dialogue and Dementia by Robert W. Schrauf,Nicole Müller Pdf
This volume takes the positive view that conversation between persons with dementia and their interlocutors is a privileged site for ongoing cognitive engagement. The book aims to identify and describe specific linguistic devices or strategies at the level of turn-by-turn talk that promote and extend conversation, and to explore real-world engagements that reflect these strategies. Final reflections tie these linguistic strategies and practices to wider issues of the "self" and "agency" in persons with dementia. Thematically, the volume fosters an integrated perspective on communication and cognition in terms of which communicative resources are recognized as cognitive resources, and communicative interaction is treated as reflecting cognitive engagement. This reflects perspectives in cognitive anthropology and cognitive science that regard human cognitive activity as distributed and culturally rooted. This volume is intended for academic researchers and advanced students in applied linguistics, linguistic and medical anthropology, nursing, and social gerontology; and practice professionals in speech-language pathology and geropsychology.
Whether speaking in front of a small gathering or a large congregation, public speaking strikes fear into the heart of the bravest person. Plagued by stuttering and resultant school problems, John Walsh still found himself called to be a preacher. He has written The Art of Storytelling to encourage and teach anyone with a fear of public speaking how to speak successfully, confidently, and compellingly. This book is especially relevant for anyone preparing any form of weekly Bible teaching.
Digital Storytelling in Health and Social Policy by Nicole Matthews,Naomi Sunderland Pdf
As digital life stories continue to assume more and more significance across a range of institutions, so too does their potential to bring into focus once marginalised and neglected voices. Breaking new ground by reframing multimedia life stories as a resource for education, public health, and policy, this book challenges policymakers, professionals, and researchers to reimagine how they find out about and respond to people’s daily lives and experiences of health, disability, and well-being. The book develops theoretical, methodological, and practical resources for listening to digital stories through a series of carefully selected international case studies, from dementia care education to campaigns in the UN to ban cluster munitions. The case studies explore and illuminate different ways that digital stories have – and have not – been listened to in the past. The authors expose the great potential as well as the complexity of using powerful personal stories in practice. Together, the case studies highlight that processes of listening to, learning from, and making use of digital stories involve unavoidable processes of reinterpretation, recontextualisation, and translation which have significant ethical and political implications for storytellers, listeners, and society. In mapping and theorising the movement of stories into new contexts of policy and practice, the book offers a critical lens on the widely celebrated democratising potential of digital storytelling and its capacity to amplify marginalised voices. Digital Storytelling in Health and Social Policy develops an authoritative and original re-conceptualisation of digital life stories and their use for social justice ends, and will be important reading for researchers and practitioners from a range of backgrounds, including social policy, digital media, communication, education, disability, and public health.
"Beyond Narrative Coherence" reconsiders the way we understand and work with narratives. Even though narrators tend to strive for coherence, they also add complexity, challenge canonical scripts, and survey lives by telling highly perplexing and contradictory stories. Many narratives remain incomplete, ambiguous, and contradictory. Obvious coherence cannot be the sole moral standard, the only perspective of reading, or the criterion for selecting and discarding research material. "Beyond Narrative Coherence" addresses the limits and aspects of narrative (dis)cohering by offering a rich theoretical and historical background to the debate. Limits of narrative coherence are discussed from the perspective of three fields of life that often threaten the coherence of narrative: illness, arts, and traumatic political experience. The authors of the book cover a wide range of disciplines such as psychology, sociology, arts studies, political science and philosophy.
We're Not Here to Disappear by Olivia Rosenthal Pdf
Auto-Fiction. Translated from the French by Béatrice Mousli. Recipient of the Prix Wepler Fondation La Poste and the Prix Pierre Simon Ethique et Réflexion, WE'RE NOT HERE TO DISAPPEAR begins with the portrait of a man suffering from Alzheimer's disease, and goes on to explore the loss of memory, language, and reason. This optimistic, desperate book--Rosenthal's seventh in as many years--confirms her talent and verbal inventiveness.