Our Bodies Our Data

Author : Adam Tanner
Publisher : Beacon Press
Page : 226 pages
File Size : 48,5 Mb
Release : 2017-01-10
Category : Medical
ISBN : 9780807033340

Get Book

Our Bodies, Our Data by Adam Tanner Pdf

How the hidden trade in our sensitive medical information became a multibillion-dollar business, but has done little to improve our health-care outcomes Hidden to consumers, patient medical data has become a multibillion-dollar worldwide trade industry between our health-care providers, drug companies, and a complex web of middlemen. This great medical-data bazaar sells copies of the prescription you recently filled, your hospital records, insurance claims, blood-test results, and more, stripped of your name but possibly with identifiers such as year of birth, gender, and doctor. As computing grows ever more sophisticated, patient dossiers become increasingly vulnerable to reidentification and the possibility of being targeted by identity thieves or hackers. Paradoxically, comprehensive electronic files for patient treatment—the reason medical data exists in the first place—remain an elusive goal. Even today, patients or their doctors rarely have easy access to comprehensive records that could improve care. In the evolution of medical data, the instinct for profit has outstripped patient needs. This book tells the human, behind-the-scenes story of how such a system evolved internationally. It begins with New York advertising man Ludwig Wolfgang Frohlich, who founded IMS Health, the world’s dominant health-data miner, in the 1950s. IMS Health now gathers patient medical data from more than 45 billion transactions annually from 780,000 data feeds in more than 100 countries. Our Bodies, Our Data uncovers some of Frohlich’s hidden past and follows the story of what happened in the following decades. This is both a story about medicine and medical practice, and about big business and maximizing profits, and the places these meet, places most patients would like to believe are off-limits. Our Bodies, Our Data seeks to spark debate on how we can best balance the promise big data offers to advance medicine and improve lives while preserving the rights and interests of every patient. We, the public, deserve a say in this discussion. After all, it’s our data.

Author : Silvia Casini
Publisher : MIT Press
Page : 321 pages
File Size : 51,6 Mb
Release : 2021-08-03
Category : Technology & Engineering
ISBN : 9780262045292

Get Book

Giving Bodies Back to Data by Silvia Casini Pdf

An examination of the bodily, situated aspects of data-visualization work, looking at visualization practices around the development of MRI technology. Our bodies are scanned, probed, imaged, sampled, and transformed into data by clinicians and technologists. In this book, Silvia Casini reveals the affective relations and materiality that turn data into image--and in so doing, gives bodies back to data. Opening the black box of MRI technology, Casini examines the bodily, situated aspects of visualization practices around the development of this technology. Reframing existing narratives of biomedical innovation, she emphasizes the important but often overlooked roles played by aesthetics, affectivity, and craft practice in medical visualization. Combining history, theory, laboratory ethnography, archival research, and collaborative art-science, Casini retrieves the multiple presences and agencies of bodies in data visualization, mapping the traces of scientists' body work and embodied imagination. She presents an in-depth ethnographic study of MRI development at the University of Aberdeen's biomedical physics laboratory, from the construction of the first whole-body scanner for clinical purposes through the evolution of the FFC-MRI. Going beyond her original focus on MRI, she analyzes a selection of neuroscience- or biomedicine-inspired interventions by artists in media ranging from sculpture to virtual reality. Finally, she presents a methodology for designing and carrying out small-scale art-science projects, describing a collaboration that she herself arranged, highlighting the relational and aesthetic-laden character of data that are the product of craftsmanship and affective labor at the laboratory bench.

Author : Catherine D'Ignazio,Lauren F. Klein
Publisher : MIT Press
Page : 328 pages
File Size : 52,7 Mb
Release : 2023-10-03
Category : Social Science
ISBN : 9780262547185

Get Book

Data Feminism by Catherine D'Ignazio,Lauren F. Klein Pdf

A new way of thinking about data science and data ethics that is informed by the ideas of intersectional feminism. Today, data science is a form of power. It has been used to expose injustice, improve health outcomes, and topple governments. But it has also been used to discriminate, police, and surveil. This potential for good, on the one hand, and harm, on the other, makes it essential to ask: Data science by whom? Data science for whom? Data science with whose interests in mind? The narratives around big data and data science are overwhelmingly white, male, and techno-heroic. In Data Feminism, Catherine D'Ignazio and Lauren Klein present a new way of thinking about data science and data ethics—one that is informed by intersectional feminist thought. Illustrating data feminism in action, D'Ignazio and Klein show how challenges to the male/female binary can help challenge other hierarchical (and empirically wrong) classification systems. They explain how, for example, an understanding of emotion can expand our ideas about effective data visualization, and how the concept of invisible labor can expose the significant human efforts required by our automated systems. And they show why the data never, ever “speak for themselves.” Data Feminism offers strategies for data scientists seeking to learn how feminism can help them work toward justice, and for feminists who want to focus their efforts on the growing field of data science. But Data Feminism is about much more than gender. It is about power, about who has it and who doesn't, and about how those differentials of power can be challenged and changed.

Author : Adam Tanner
Publisher : PublicAffairs
Page : 337 pages
File Size : 48,7 Mb
Release : 2014-09-02
Category : Business & Economics
ISBN : 9781610394192

Get Book

What Stays in Vegas by Adam Tanner Pdf

The greatest threat to privacy today is not the NSA, but good-old American companies. Internet giants, leading retailers, and other firms are voraciously gathering data with little oversight from anyone. In Las Vegas, no company knows the value of data better than Caesars Entertainment. Many thousands of enthusiastic clients pour through the ever-open doors of their casinos. The secret to the company's success lies in their one unrivaled asset: they know their clients intimately by tracking the activities of the overwhelming majority of gamblers. They know exactly what games they like to play, what foods they enjoy for breakfast, when they prefer to visit, who their favorite hostess might be, and exactly how to keep them coming back for more. Caesars' dogged data-gathering methods have been so successful that they have grown to become the world's largest casino operator, and have inspired companies of all kinds to ramp up their own data mining in the hopes of boosting their targeted marketing efforts. Some do this themselves. Some rely on data brokers. Others clearly enter a moral gray zone that should make American consumers deeply uncomfortable. We live in an age when our personal information is harvested and aggregated whether we like it or not. And it is growing ever more difficult for those businesses that choose not to engage in more intrusive data gathering to compete with those that do. Tanner's timely warning resounds: Yes, there are many benefits to the free flow of all this data, but there is a dark, unregulated, and destructive netherworld as well.

Author : Jacqueline M. Quinless
Publisher : University of Toronto Press
Page : 172 pages
File Size : 45,8 Mb
Release : 2022-02-15
Category : Decolonization
ISBN : 9781487523336

Get Book

Decolonizing Data by Jacqueline M. Quinless Pdf

Decolonizing Data yields valuable insights into the decolonization of research methods by addressing and examining health inequalities from an anti-racist and anti-oppressive standpoint.

Author : Mary F.E. Ebeling
Publisher : Springer
Page : 170 pages
File Size : 52,6 Mb
Release : 2016-09-27
Category : Social Science
ISBN : 9781137502216

Get Book

Healthcare and Big Data by Mary F.E. Ebeling Pdf

This highly original book is an ethnographic noir of how Big Data profits from patient private health information. The book follows personal health data as it is collected from inside healthcare and beyond to create patient consumer profiles that are sold to marketers. Primarily told through a first-person noir narrative, Ebeling as a sociologist-hard-boiled-detective, investigates Big Data and the trade in private health information by examining the information networks that patient data traverses. The noir narrative reveals the processes that the data broker industry uses to create data commodities—data phantoms or the marketing profiles of patients that are bought by advertisers to directly market to consumers. Healthcare and Big Data considers the implications these “data phantoms” have for patient privacy as well as the very real harm that they can cause.

Author : Boston Women's Health Book Collective
Publisher : Turtleback Books
Page : 0 pages
File Size : 50,6 Mb
Release : 1998
Category : Women
ISBN : 0785780726

Get Book

Our Bodies, Ourselves for the New Century by Boston Women's Health Book Collective Pdf

The definitive consumer health reference for women of all ages and ethnic groups, this book encompasses such controversial issues as managed care and the insurance industry; breast cancer treatment options; recent developments in contraception; and much more. 150 photos. Charts & graphs throughout.

Author : Sara Hendren
Publisher : Penguin
Page : 242 pages
File Size : 49,6 Mb
Release : 2020-08-18
Category : Design
ISBN : 9780735220027

Get Book

What Can a Body Do? by Sara Hendren Pdf

Named a Best Book of the Year by NPR and LitHub Winner of the 2021 Science in Society Journalism Book Prize A fascinating and provocative new way of looking at the things we use and the spaces we inhabit, and a call to imagine a better-designed world for us all. Furniture and tools, kitchens and campuses and city streets—nearly everything human beings make and use is assistive technology, meant to bridge the gap between body and world. Yet unless, or until, a misfit between our own body and the world is acute enough to be understood as disability, we may never stop to consider—or reconsider—the hidden assumptions on which our everyday environment is built. In a series of vivid stories drawn from the lived experience of disability and the ideas and innovations that have emerged from it—from cyborg arms to customizable cardboard chairs to deaf architecture—Sara Hendren invites us to rethink the things and settings we live with. What might assistance based on the body’s stunning capacity for adaptation—rather than a rigid insistence on “normalcy”—look like? Can we foster interdependent, not just independent, living? How do we creatively engineer public spaces that allow us all to navigate our common terrain? By rendering familiar objects and environments newly strange and wondrous, What Can a Body Do? helps us imagine a future that will better meet the extraordinary range of our collective needs and desires.

Author : Connie Clare,Maria Cruz,Elli Papadopoulou,James Savage,Marta Teperek,Yan Wang,Iza Witkowska,Joanne Yeomans
Publisher : Open Book Publishers
Page : 139 pages
File Size : 50,5 Mb
Release : 2019-10-09
Category : Computers
ISBN : 9781783748006

Get Book

Engaging Researchers with Data Management: The Cookbook by Connie Clare,Maria Cruz,Elli Papadopoulou,James Savage,Marta Teperek,Yan Wang,Iza Witkowska,Joanne Yeomans Pdf

Effective Research Data Management (RDM) is a key component of research integrity and reproducible research, and its importance is increasingly emphasised by funding bodies, governments, and research institutions around the world. However, many researchers are unfamiliar with RDM best practices, and research support staff are faced with the difficult task of delivering support to researchers across different disciplines and career stages. What strategies can institutions use to solve these problems? Engaging Researchers with Data Management is an invaluable collection of 24 case studies, drawn from institutions across the globe, that demonstrate clearly and practically how to engage the research community with RDM. These case studies together illustrate the variety of innovative strategies research institutions have developed to engage with their researchers about managing research data. Each study is presented concisely and clearly, highlighting the essential ingredients that led to its success and challenges encountered along the way. By interviewing key staff about their experiences and the organisational context, the authors of this book have created an essential resource for organisations looking to increase engagement with their research communities. This handbook is a collaboration by research institutions, for research institutions. It aims not only to inspire and engage, but also to help drive cultural change towards better data management. It has been written for anyone interested in RDM, or simply, good research practice.

Author : Mary F.E. Ebeling
Publisher : Univ of California Press
Page : 218 pages
File Size : 48,5 Mb
Release : 2022-06-14
Category : Social Science
ISBN : 9780520973824

Get Book

Afterlives of Data by Mary F.E. Ebeling Pdf

What our health data tell American capitalism about our value—and how that controls our lives. Afterlives of Data follows the curious and multiple lives that our data live once they escape our control. Mary F. E. Ebeling's ethnographic investigation shows how information about our health and the debt that we carry becomes biopolitical assets owned by healthcare providers, insurers, commercial data brokers, credit reporting companies, and platforms. By delving into the oceans of data built from everyday medical and debt traumas, Ebeling reveals how data about our lives come to affect our bodies and our life chances and to wholly define us. Investigations into secretive data collection and breaches of privacy by the likes of Cambridge Analytica have piqued concerns among many Americans about exactly what is being done with their data. From credit bureaus and consumer data brokers like Equifax and Experian to the secretive military contractor Palantir, this massive industry has little regulatory oversight for health data and works to actively obscure how it profits from our data. In this book, Ebeling traces the health data—medical information extracted from patients' bodies—that are digitized and repackaged into new data commodities that have afterlives in database lakes and oceans, algorithms, and statistical models used to score patients on their creditworthiness and riskiness. Critical and disturbing, Afterlives of Data examines how Americans' data about their health and their debt are used in the service of marketing and capitalist surveillance.

Author : Nick Couldry,Ulises A. Mejias
Publisher : Bloomsbury Publishing
Page : 367 pages
File Size : 51,9 Mb
Release : 2022-11-25
Category : Social Science
ISBN : 9789354358937

Get Book

The Costs Of Connection by Nick Couldry,Ulises A. Mejias Pdf

Just about any social need is now met with an opportunity to 'connect' through digital means. But this convenience is not free-it is purchased with vast amounts of personal data transferred through shadowy backchannels to corporations using it to generate profit. The Costs of Connection uncovers this process, this 'data colonialism', and its designs for controlling our lives-our ways of knowing, our means of production, our political participation. Data colonialism is, in essence, an emerging order for the appropriation of human life so that data can be continuously extracted from it for profit. Colonialism might seem like a thing of the past, but this book shows that the historic appropriation of land, bodies and natural resources is mirrored today in pervasive datafication. Apps, platforms and smart objects capture and translate our lives into data, and then extract information that is fed into capitalist enterprises and sold back to us. The authors argue that this development foreshadows the creation of a new social order emerging globally - and it must be challenged. Confronting the alarming degree of surveillance already tolerated, they offer a stirring call to decolonize the internet and emancipate our desire for connection.

Author : Tziporah Heller
Publisher : Feldheim Publishers
Page : 174 pages
File Size : 41,8 Mb
Release : 2003
Category : Religion
ISBN : 1568712162

Get Book

Our Bodies, Our Souls by Tziporah Heller Pdf

Beyond the stereotypes, the boundaries, and the restricting self-definitions, we are women who seek to actualize our potential in all spheres: career, relationships and in our hearts. In this book, a world-renowned educator and author shows us how we can achieve such wholeness. With warmth, wit, and a rare depth of scholarship, the author shows how the traditional Jewish paths can help lead women to spiritual awareness.

Author : Agency for Healthcare Research and Quality/AHRQ
Publisher : Government Printing Office
Page : 396 pages
File Size : 47,7 Mb
Release : 2014-04-01
Category : Medical
ISBN : 9781587634338

Get Book

Registries for Evaluating Patient Outcomes by Agency for Healthcare Research and Quality/AHRQ Pdf

This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

Author : Boston Women's Health Book Collective
Publisher : Unknown
Page : 388 pages
File Size : 42,9 Mb
Release : 1976
Category : Women
ISBN : 0671221450

Get Book

Our Bodies, Ourselves by Boston Women's Health Book Collective Pdf

Author : Thomas Case
Publisher : Unknown
Page : 442 pages
File Size : 55,6 Mb
Release : 1888
Category : Cognition
ISBN : NYPL:33433070229046

Get Book

Physical Realism by Thomas Case Pdf