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Author : David Gramling,Robert Gramling Publisher : Walter de Gruyter GmbH & Co KG Page : 265 pages File Size : 55,6 Mb Release : 2019-01-14 Category : Language Arts & Disciplines ISBN : 9781501504570
Palliative Care Conversations by David Gramling,Robert Gramling Pdf
This book will be the first of its kind to offer intensive conversation analysis on patient-clinician interactions in the context of palliative medicine. The book focuses on a series of individual case studies of conversations that revolve, in each case, around one key critical term that is often evoked or understood differently by clinicians and patients.
The story of the end-of-life experience of a palliative care physician who helped thousands of patients to die well. We all die. Most of us spend the majority of our lives ignoring this uncomfortable truth, but Dr. Larry Librach dedicated his life and his career to helping his patients navigate their final journey. Then, in April 2013, Larry was diagnosed with terminal pancreatic cancer. Unlike the majority of us, Larry knew the death he wanted. He wanted to die at home, surrounded by his family: his wife of forty years, his children, and his grandchildren. He did. He was peaceful and calm at the end. Larry proved that the “good death” isn’t a myth. It can be done, and he showed us how. Ever the teacher, Larry made his last journey a teachable moment on how to die the best death possible, even with a pernicious disease. As hard as it is to guide patients toward dying well, it is far harder to live those precepts day by day as the clock ticks down to one’s own death, but Larry, together with author Phil Dwyer, chronicled his final journey with courage and humour.
The Conversations of Palliative Care by Jennifer Zelen DNP RNC CHPN Pdf
I spend my days explaining to people how they can expect to die. The Conversations of Palliative Care is a book related to decisions people have to make at end of life as well as those asked of them in the months or years leading up to then. It is a book designed to get people to begin to realize how their illnesses affect them and what the natural course of their illness is expected to be. A variety of topics related to this unique time in a person’s life is described as well as considerations for those who provide palliative care. Symptom management, staff angst, ethical issues, documentation, religious and social needs are addressed as well as specifics related to disease states, among other issues. The information is then personified through case studies: within a hospital, at a private residence, and a pediatric vignette. The purpose of this book is to raise awareness to end-of-life decisions patients are asked to make while increasing the comfort level of the medical staff who care for them. Ultimately, palliative care increases patient empowerment and knowledge about their bodies and unique set of medical diagnoses. Decisions they ultimately make regarding medical interventions are aligned to their person beliefs. These decisions are truly made in an educated manner. Utilized correctly, palliative care follows a person throughout the health care continuum. .
Two men face two very different deaths: One, a renowned palliative care doctor, grapples with the reality he helped so many to confront. The other, an ordinary man, faces an ordinary death. Conversations on Dying is a compelling portrayal of two final journeys that challenges you to ask, ''What death would I choose?''
Mastering Communication with Seriously Ill Patients by Anthony Back,Robert Arnold Pdf
Physicians who care for patients with life-threatening illnesses face daunting communication challenges. Patients and family members can react to difficult news with sadness, distress, anger, or denial. This book defines the specific communication tasks involved in talking with patients with life-threatening illnesses and their families. Topics include delivering bad news, transition to palliative care, discussing goals of advance-care planning and do-not-resuscitate orders, existential and spiritual issues, family conferences, medical futility, and other conflicts at the end of life. Drs Anthony Back, Robert Arnold, and James Tulsky bring together empirical research as well as their own experience to provide a roadmap through difficult conversations about life-threatening issues. The book offers both a theoretical framework and practical conversational tools that the practising physician and clinician can use to improve communication skills, increase satisfaction, and protect themselves from burnout.
In this "enlightening" (Jane Brody, New York Times) book, Harvard Medical School physician Angelo E. Volandes offers a solution to traumatic end-of-life care: talking, medicine's oldest tool. There is an unspoken dark side of American medicine--keeping patients alive at any price. Two thirds of Americans die in healthcare institutions, tethered to machines and tubes at bankrupting costs, even though research shows that most prefer to die at home in comfort, surrounded by loved ones. Dr. Angelo E. Volandes believes that a life well lived deserves a good ending. Through the stories of seven patients and seven very different end-of-life experiences, he demonstrates that what people with a serious illness, who are approaching the end of their lives, need most is not new technologies but one simple thing: The Conversation. He argues for a radical re-envisioning of the patient-doctor relationship and offers ways for patients and their families to talk about this difficult issue to ensure that patients will be at the center and in charge of their medical care. It might be the most important conversation you ever have.
Courageous Conversations on Dying - the Gift of Palliative Care by Shahid Aziz Pdf
Dying - which we all inevitably must do - can be appreciably better for each of us if we approach end of life conversations early, while we still have the capacity to make our own decisions. This book can help us all with this. In addition, Courageous Conversations on Dying guides physicians in their role of supporting patients and families through decision-making for end of life, concentrating on patients' goals. Whether we are physicians, patients, family members, or caring individuals who want the best possible end of life experience for ourselves and each other, we must acquire the skills for loving, fruitful conversations. In this book, you'll learn how to prepare for these conversations, including what kind of setting, what words to use, how to be a good listener, how to empathize, how to help in decision-making, how to properly document end of life wishes, and more, along with many case studies to illustrate the points.
Dying in America by Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues Pdf
For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
From Ira Byock, prominent palliative care physician and expert in end of life decisions, a lesson in Dying Well. Nobody should have to die in pain. Nobody should have to die alone. This is Ira Byock's dream, and he is dedicating his life to making it come true. Dying Well brings us to the homes and bedsides of families with whom Dr. Byock has worked, telling stories of love and reconciliation in the face of tragedy, pain, medical drama, and conflict. Through the true stories of patients, he shows us that a lot of important emotional work can be accomplished in the final months, weeks, and even days of life. It is a companion for families, showing them how to deal with doctors, how to talk to loved ones—and how to make the end of life as meaningful and enriching as the beginning. Ira Byock is also the author of The Best Care Possible: A Physician's Quest to Transform Care Through the End of Life.
Talking About Death Won’t Kill You by Dr. Kathy Kortes-Miller Pdf
This practical handbook will equip readers with the tools to have meaningful conversations about death and dying Death is a part of life. We used to understand this, and in the past, loved ones generally died at home with family around them. But in just a few generations, death has become a medical event, and we have lost the ability to make this last part of life more personal and meaningful. Today people want to regain control over health-care decisions for themselves and their loved ones. Talking About Death Won’t Kill You is the essential handbook to help Canadians navigate personal and medical decisions for the best quality of life for the end of our lives. Noted palliative-care educator and researcher Kathy Kortes-Miller shows readers how to identify and reframe limiting beliefs about dying with humor and compassion. With robust resource lists, Kortes-Miller addresses advance care plans for ourselves and our loved ones how to have conversations about end-of-life wishes with loved ones how to talk to children about death how to build a compassionate workplace practical strategies to support our colleagues how to talk to health-care practitioners how to manage challenging family dynamics as someone is dying what is involved in medical assistance in dying (MAID) Far from morbid, these conversations are full of meaning and life — and the relief that comes from knowing what your loved ones want, and what you want for yourself.
Communication in Palliative Nursing by Elaine Wittenberg,Terri Ann Parnell Pdf
"The first edition of Communication in Palliative Nursing was published in 2012 and became the market leader for nurses wanting to learn more about how to improve and teach palliative care communication. For the last 8 years, it has remained the only text solely focused on the vital role of nurses in palliative care. During this time, the COMFORT model was taught to nurses nationwide who brought the curriculum back to their own institutions and taught components of the model to more than 10,000 healthcare providers across the United States (Wittenberg, Ferrell, Goldsmith, Ragan, & Buller, 2017). Numerous journal articles and research studies have been produced to highlight the principle components of the COMFORT model and test its effectiveness among healthcare audiences across a variety of clinical and educational settings. Through this all, as the model was disseminated to clinical audiences of bedside nurses, nurse leaders, nursing students, and interprofessional learners, feedback was captured about COMFORT. Comments revealed major components of the model that were working and weren't working for the nurses and other healthcare providers who utilized the strategies with patients and families, and began using curriculum tools for teaching and integrating palliative care communication instruction. So, much like the model's grounding in a transactional communication approach, which relies on the co-created interaction between parties, it was clear that the COMFORT model was also ebbing and flowing and had to change. More importantly, palliative care has been growing, changing, expanding, and becoming more sophisticated, more wide-spread! Now more than ever before, palliative care is provided in the home, clinic, or inpatient setting and serves patients who are seriously or chronically ill and their families. It became evident that in order to continue improvements to the model and to keep up with the changing landscape of palliative care and palliative patient populations, a new edition was necessary. Before we highlight the changes, it is never too early to overstate our steadfast commitment to the following principles: We believe that communication research and theory can shape palliative care practices, providing tools for a variety of contexts. We believe that palliative care, offering compassionate, holistic treatment for patients and their families, will not be possible without caring for the entire person (body and mind). We believe that communicating about palliative care must begin at diagnosis of serious illness, not just at end-stages. We believe in a patient-centered approach to communication that emphasizes the role of the family caregiver in the illness trajectory. We believe that intentional communication emphasizing team processes among physicians, nurses, social workers, chaplains, and other healthcare professionals improves palliative care practice. We believe that palliative care should be introduced early in the communication education of all health professionals. We believe that education about palliative care and communication must extend to patients and families who can then advocate for and partner more productively in such services. We believe that communication with the family caregiver is essential for the treatment of pain and symptom management. We believe that frequent conversations are needed across the disease/care trajectory, as patients and families encounter ongoing points of decision-making"--
Textbook of Palliative Care Communication by Elaine Wittenberg,Betty R. Ferrell,Joy Goldsmith,Thomas Smith,Sandra L. Ragan,George Handzo Pdf
'The Textbook of Palliative Care Communication' is the authoritative text on communication in palliative care. Uniquely developed by an interdisciplinary editorial team to address an array of providers including physicians, nurses, social workers, and chaplains, it unites clinicians and academic researchers interested in the study of communication.
The Art of Conversation Through Serious Illness by Richard McQuellon,Michael Cowan Pdf
Every day, thousands of people receive a diagnosis of serious, life-threatening illness, and their families and friends suddenly become caregivers. Despite the best of intentions it is not always easy to communicate well under these circumstances, or find deep empathy for something one has never before experienced. When is it best to speak, and when to be silent? How can someone provide real comfort, and how can relationships with loved ones facing serious illness be enhanced in this most difficult time? This book is about how to be an encouraging caregiver and friend under the most difficult circumstances, when the possibility of death is all too real The authors believe that open dialogue must not be avoided until the last minute when opportunities will be limited, but that caregivers and loved ones can embrace this time, mortal time, honestly as a way to sensitively and compassionately engage with those for whom a central fact of life is realized--that all of our lives are time-limited. In The Art of Conversation Through Serious Illness, the authors consider how to best listen to and speak with one facing life-threatening illness, with lessons on being a primary conversation partner, becoming properly empathic and receiving empathy, maintaining everyday conversation, using platitudes appropriately, understanding healthy denial, and talking about dying. Offering bedside guidance usually only available to professionals and peppered with insightful anecdotes from the authors' own experiences, this gentle, succinct book is appropriate for anyone going through this uniquely difficult yet universal life experience.
