Palliative Care Nursing Caring For Suffering Patients
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Palliative Care Nursing: Caring for Suffering Patients by Kathleen Ouimet Perrin,Caryn A. Sheehan,Mertie L. Potter,Mary K. Kazanowski Pdf
"Palliative Care Nursing: Caring for Suffering Patients explores the concept of suffering as it relates to nursing practice. This text helps practicing nurses and students define and recognize various aspects of suffering across the lifespan and within various patient populations while providing guidance in alleviating suffering. In addition, it examines spiritual and ethical perspectives on suffering and discusses how witnessing suffering impacts nurses' ability to assume the professional role. Further, the authors discuss ways nurses as witnesses to suffering can optimize their own coping skills and facilitate personal growth. Rich in case studies, pictures, and reflections on nursing practice and life experiences, Palliative Care Nursing: Caring for Suffering Patients delves into key topics such as how to identify when a patient is suffering, whether they are coping, sources of coping facades, what to do to ease suffering, and how to convey the extent of suffering to members of the health care team.Palliative Care Nursing: Caring for Suffering Patients helps practicing nurses and students define and recognize various aspects of suffering across the lifespan and within various patient populations while providing guidance in alleviating suffering"--
Palliative Care Nursing by Kathleen Ouimet Perrin Pdf
Palliative Care Nursing: Caring for Suffering Patients explores the concept of suffering as it relates to nursing practice. This text helps practicing nurses and students define and recognize various aspects of suffering across the lifespan and within various patient populations while providing guidance in alleviating suffering. In addition, it examines spiritual and ethical perspectives on suffering and discusses how witnessing suffering impacts nurses' ability to assume the professional role. Further, the authors discuss ways nurses as witnesses to suffering can optimize their own coping skills and facilitate personal growth. Rich in case studies, pictures, and reflections on nursing practice and life experiences, Palliative Care Nursing: Caring for Suffering Patients delves into key topics such as how to identify when a patient is suffering, whether they are coping, sources of coping facades, what to do to ease suffering, and how to convey the extent of suffering to members of the health care team.
Nursing Care at the End of Life by Joyce V Zerwekh Pdf
Nursing Care at the End of Life: Palliative Care for Patients and Families explores the deep issues of caring for the dying and suffering. The book is based on the Hospice Family Caregiving Model previously published by the author and focuses on the practice implications of care for the dying. The book is written in a clear and user-friendly style, and is ideal for undergraduate nursing students learning about dying, suffering, and caring for individuals and their families.
Palliative Care Nursing by Marianne Matzo,Deborah Witt Sherman Pdf
Annotation Offering a blend of holistic and humanistic caring coupled with aggressive management of pain and symptoms associated with advanced disease, this resource is organized around 15 competencies in palliative care developed by the American Association of Colleges of Nursing, with each chapter outlining specific skills needed to achieve each competency.
Compassionate Person-Centered Care for the Dying by Bonnie Freeman, RN, DNP, ANP, ACHPN,Tracey DasGupta,Margaret Fitch Pdf
A milestone resource for palliative care nurses that facilitates evidence-based compassionate and humanistic care of the dying "A valuable contribution to the evolving field of palliative nursing care. It is authored by a model for this field, Bonnie Freeman, and brings to the bedside what her practice embodies--evidence-based clinically expert care...The CARES tool is a long-needed resource and we are all grateful to the author for moving her passion to paper. It will touch the lives and deaths of patients, families, and the nurses who care for them." --Betty Ferrell, PhD, RN, MA, FAAN, FCPN, CHPN Professor and Director, Division of Nursing Research and Education City of Hope National Medical Center From the Foreword This groundbreaking reference for palliative care nurses is the first to provide realistic and achievable evidence-based methods for incorporating compassionate and humanistic care of the dying into current standards of practice. It builds on the author's research-based CARES tool; a reference that synthesizes five key elements demonstrated to enable a peaceful death, as free from suffering as possible: comfort, airway management, management of restlessness and delirium, emotional and spiritual support, and selfcare for nurses. The book describes, step by step, how nurses can easily implement the basic tenets of the CARES tool into their end-of-life practice. It provides a clearly defined plan that can be individualized for each patient and tailored to specific family needs, and facilitates caring for the dying in the most respectful and humane way possible. The book identifies the most common symptom management needs in dying patients and describes, in detail, the five components of the CARES paradigm and how to implement them to enable a peaceful death and minimize suffering. It includes palliative care prompts founded on 29 evidence-based recommendations and the National Consensus Project for Palliative Care Clinical Practice Guidelines. The resource also addresses the importance of the nurse to act as a patient advocate, how to achieve compassionate communication with the patient and family, and barriers and challenges to compassionate care. Case studies emphasize the importance of compassionate nursing care of the dying and how it can be effectively achieved. Key Features: Provides nurses with a clear understanding of the most common needs of the dying and supplies practical applications to facilitate and improve care Clarifies the current and often complex literature on care of the dying Includes case studies illustrating the most common needs of dying patients and how these are addressed effectively by the CARES tool Based on extensive evidence as well as on the National Consensus Project for Palliative Care Clinical Practice Guidelines
Palliative Care by Jean Lugton,Rosemary McIntyre Pdf
This title is directed primarily towards health care professionals outside of the United States. Palliative Care: The Nursing Role is an introductory text for nurses and other health care professionals who deliver palliative care across a range of settings. It lays a clear foundation of knowledge focusing on the needs and perspectives of patients and families who face the challenge of advanced, incurable illness. The style is highly accessible yet challenges readers to analyze key issues that present within palliative care. Covering the wide range of care provision in hospices, hospitals and patients' homes, the book draws widely from practice based examples to explain and expand upon theoretical issues. Research evidence underpins each of the chapters. Guided activities encourage readers to reflect, in a focused way, on their clinical experience and current practice. This new edition has been fully updated to reflect ongoing developments and shifting trends in palliative care education and practice. It will suit the needs of both pre and post-qualifying students seeking to develop their knowledge and is well suited to practitioners working within either generalist or specialist palliative care settings, or within acute or community settings as well as those studying a range of palliative care educational curricula. The authors have a wide range of experience in palliative care and all are actively engaged in practice and/or education. A clear, broad-based approach offers a thorough introduction for the non-specialist nurse. Written and edited by an experienced team of nurses working in this field, grounding it in current practice. Learning outcomes listed at the start of each chapter aid learning and comprehension. Reflective practice activities and an outline of CPD is especially useful for students working independently. Case histories, recommended reading lists, and references provide a solid evidence base for clinically based practice and facilitate further study. Thoroughly revised and updated to reflect changes in policy direction. A new chapter on pain and symptom management. Revised content reflects the recent shift in the evidence base concerning spirituality. Includes psychosocial issues of loss for the patient, their family, and careers.
Palliative Care Nursing, Fourth Edition by Marianne Matzo, PhD, APRN-CNP, FPCN, FAAN,Deborah Witt Sherman, PhD, APRN, ANP-BC, ACHPN, FAAN Pdf
Praise for the Third Edition: "In this comprehensive textbook on palliative care nursing, editors Marianne Matzo and Deborah Witt Sherman succeed in bringing together the heart of nursing and the true meaning of palliative care with the most current evidence based practice." --GeriPal This fourth edition of a comprehensive text/reference that has been valued by students, educators, and practicing nurses for many years, Palliative Care Nursing continues to reflect the fundamental hospice and palliative care nursing competencies---both basic and advanced--that are essential for effective and empathetic care of patients and families. This new edition reflects the tremendous growth of this vital discipline into the mainstream of health care and focuses on palliative care that is responsive to the demand for health care reform in America and globally. It provides the knowledge, scientific evidence, and skills needed by nurses to address the complex physical, emotional, social, sexual, and spiritual needs of patients and families within the context of a changing health care delivery system. With a focus on inter-professional collaboration, the book emphasizes the value of complementary, holistic models in promoting health and wholeness across the illness trajectory, even as death approaches. The book is edited by Project on Death in America Faculty Scholars, who have worked to develop, implement, and evaluate nursing initiatives in palliative care in the U.S. and internationally. With a focus on both quality of life and economic imperatives, interdisciplinary authors describe the management of specific diseases and related physical and psychological symptoms, and care of patients during the dying process. They cover assessment of key symptoms and pharmacological, non-pharmacological, and complementary interventions. Taking a life-span approach, the book includes age-appropriate nursing considerations. Key points at the beginning of each chapter and callouts containing evidenced-based information highlight best practices. The text also examines relevant legal, ethical, and cultural considerations and offers case studies with conclusions in each clinical chapter. New to the Fourth Edition: Thoroughly revised and expanded Three new chapters addressing palliative care amidst health care reform, rehabilitation in chronic or serious illness, and post-traumatic stress disorder A conceptual framework table in each chapter identifying the National Quality Forum Domains of Palliative Care and Basic and Advanced Palliative Care and Hospice Nursing Competencies Updated evidence-based callouts that review the highest-quality studies
The Nature of Suffering and the Goals of Nursing by Betty R. Ferrell,Nessa Coyle Pdf
The essence of nursing care continually exposes nurses to suffering. Although they bear witness to the suffering of others, their own suffering is less frequently exposed. This slim volume attempts to give voice to the suffering that nurses witness in patients, families, colleagues, and themselves. By making this suffering visible, the authors wish to honor it and to learn from it. The audience includes nurses in all phases of training and practice - from students to educators to clinicians - in the wide array of settings and specialties in which nurses care for patients. The book offers nurses' colleagues in other professions - social workers, psychologists, chaplains, ethicists, and physicians - a rare window onto what it means to practice nursing. Drs. Ferrell and Coyle are also the editors of Textbook of Palliative Nursing, 2nd ed (Oxford, 2006). Independently, they have worked more than 50 years in oncology nursing, caring for patients and working to improve the quality of care that patients receive.
Fundamental Aspects of Palliative Care Nursing 2nd Edition by Robert Becker Pdf
This new and expanded edition is aimed directly at the learning needs of student nurses and is unique in that context. Whilst there are many high quality books available for academic study in palliative care this is currently the only one that balances a strong educational focus for developing nursing practice with an understanding of the particular needs of student nurses. The text maintains a sensitive and supportive approach to the key themes of palliative care nursing, but contains important new material of a wide range of initiatives that are impacting on end of life care across the UK. It will provide the reader with a concise, easy to read and learning oriented text that will give advice and direction to the many challenges faced in this most important area of patient care. Each chapter examines a key component of care and new features include: Learning outcomes at the start of each chapter to guide the reader Clinical anecdotes to illustrate the reality and complexity of practice Extensive use of recognisable symbols to guide the reader and improve the usability of the text Competency assessment to help gauge knowledge and progress Reflective points to aid professional development Reflective activities to enable the student to reinforce learning from practice Links to appropriate clauses of the current 2008 NMC Code of Professional Conduct Quality internet resources relevant to chapter content Self assessment multiple choice tests at the end of each chapter to consolidate learning An extensive palliative care quiz covering the main topic areas of the book to test knowledge. This can be used as evidence with professional portfolios.
Compassionate Person-Centered Care for the Dying by Bonnie Freeman Pdf
A milestone resource for palliative care nurses that facilitates evidence-based compassionate and humanistic care of the dying A valuable contribution to the evolving field of palliative nursing care. It is authored by a model for this field, Bonnie Freeman, and brings to the bedside what her practice embodies--evidence-based clinically expert care...The CARES tool is a long-needed resource and we are all grateful to the author for moving her passion to paper. It will touch the lives and deaths of patients, families, and the nurses who care for them. --Betty Ferrell, PhD, RN, MA, FAAN, FCPN, CHPN Professor and Director, Division of Nursing Research and Education City of Hope National Medical Center From the Foreword This groundbreaking reference for palliative care nurses is the first to provide realistic and achievable evidence-based methods for incorporating compassionate and humanistic care of the dying into current standards of practice. It builds on the author's research-based CARES tool; a reference that synthesizes five key elements demonstrated to enable a peaceful death, as free from suffering as possible: comfort, airway management, management of restlessness and delirium, emotional and spiritual support, and selfcare for nurses. The book describes, step by step, how nurses can easily implement the basic tenets of the CARES tool into their end-of-life practice. It provides a clearly defined plan that can be individualized for each patient and tailored to specific family needs, and facilitates caring for the dying in the most respectful and humane way possible. The book identifies the most common symptom management needs in dying patients and describes, in detail, the five components of the CARES paradigm and how to implement them to enable a peaceful death and minimize suffering. It includes palliative care prompts founded on 29 evidence-based recommendations and the National Consensus Project for Palliative Care Clinical Practice Guidelines. The resource also addresses the importance of the nurse to act as a patient advocate, how to achieve compassionate communication with the patient and family, and barriers and challenges to compassionate care. Case studies emphasize the importance of compassionate nursing care of the dying and how it can be effectively achieved. Key Features: Provides nurses with a clear understanding of the most common needs of the dying and supplies practical applications to facilitate and improve care Clarifies the current and often complex literature on care of the dying Includes case studies illustrating the most common needs of dying patients and how these are addressed effectively by the CARES tool Based on extensive evidence as well as on the National Consensus Project for Palliative Care Clinical Practice Guidelines Bonnie Freeman, DNP, ANP, RN, ACHPN, is an adult nurse practitioner in the Department of Supportive Care Medicine at the City of Hope National Medical Center in Duarte, California. She is involved with treating the symptom management needs of many chronically and terminally ill individuals diagnosed with various forms of cancer. Dr. Freeman trained at such excellent facilities as the in-patient units at San Diego Hospice and the Institute of Palliative Medicine in San Diego, California, and the home care hospice program in Owensboro, Kentucky. While in Kentucky, she completed her advanced practice clinical training for adult nurse practitioners with a specialty focus on palliative care through Vanderbilt University in Nashville, Tennessee. This program exposed Dr. Freeman to current concepts in caring for the dying, and enhanced her already significant clinical experience caring for dying individuals acquired from over 30 years working in critical care. Dr. Freeman obtained her MSN from Indiana Wesleyan University, and her DNP from Azusa Pacific University in Azusa, California. Contributors Tracey Das Gupta, MN, RN, CON, is director of Interprofessional Practice at Sunnybrook Health Sciences Centre in Toronto, Ontario, Canada. She is also the colead of the Quality Dying Initiative with Dr. Jeff Myers. Tracey has been passionate about health care, quality of life, and leadership since becoming a nurse in 1991. Her decision to become a nurse was influenced by her father who lived with muscular dystrophy. Ms. Das Gupta has fulfilled various frontline nursing roles along the continuum of care and has had the opportunity to continue to grow in leadership roles such as educator, professional practice leader, and director of nursing practice. In her current role, she also provides leadership for the development and implementation of Sunnybrook's interprofessional care (IPC) strategy. Margaret Fitch, PhD, MScN, is a nurse researcher and holds an appointment at the Bloomberg Faculty of Nursing and School of Graduate Studies at the University of Toronto. She also serves as expert lead for cancer survivorship and patient experience for the Person-Centered Perspective Portfolio of the Canadian Partnership Against Cancer. She is also editor-in-chief for the Canadian Oncology Nursing Journal. Dr. Fitch has an extensive publication record based on her many years of research regarding patient perspectives, coping and adaptation with illness, and screening for psychosocial distress. She has particular expertise in measurement and evaluation, qualitative methods, and knowledge integration. During her career, she has held clinical and administrative positions and has maintained an ongoing role in education of both undergraduate and graduate students and health professionals in practice.
Palliative Care Nursing: Principles and Evidence for Practice by Catherine Walshe,Nancy Preston,Bridget Johnston Pdf
What can nurses do to support those receiving palliative care? How do you ensure clear communication and maintain patients’ and families’ preferences? Palliative Care Nursing is essential reading for nursing students, professional nurses and other health and social care professionals providing supportive and palliative care to those with advanced illness or who are towards the end of life. This third edition of the acclaimed textbook has been extensively revised and examines important research studies, key debates around care and strategies to advance palliative care nursing. In four sections, the book covers key elements of nursing practice towards the end of life: • Defining the palliative care patient • Providing palliative nursing care • Caring around the time of death • Challenging issues in palliative care nursing Leading authors address contemporary issues and explore how to provide high quality person-centred palliative care, encouraging application to practice through exercises and case studies. Chapters completely reworked or new for this edition include those on communication, living with uncertainty, bereavement care, the costs of caring, nurses’ decision-making and capacity, and palliative care worldwide. The clarity of evidence presented and coverage of a diverse range of topics make this the foundational textbook for all studying palliative care at pre-registration level, postgraduate level or as part of CPD study. With a foreword by last edition editor, Professor Sheila Payne, Lancaster University, UK. ‘I welcome this third edition of Palliative Care Nursing and congratulations to the new team who have provided us with a dynamic and innovative development of a core text for palliative nursing practice. As the largest workforce in palliative care, and given the changing face of clinical practice for nurses, including increased educational opportunity and expanding roles and responsibilities, this book is timely in its focus on critical issues which frame and scope the reality of palliative care and the nursing contribution to that discipline. The learning exercises, in particular, offer tools for educators and clinicians to reflect on practice and understand new ways of knowing in palliative care. It will be an excellent resource for nursing, both in the UK and Ireland and to the wider international audience, having drawn on the breadth of global nursing expertise to bring this book together’. Philip Larkin, Professor of Clinical Nursing (Palliative Care), University College Dublin and Our Lady’s Hospice and Care Services, Dublin, Ireland; President, European Association for Palliative Care ‘This is a book of substance that captures the current status of palliative nursing, including the values and research evidence that underpin it. The changing nature of palliative nursing as an evidence-based specialism is balanced with practical skills and insights from experts, and also considers the needs of those working with, or concerned about, the dying person’s well-being. It covers a range of challenging issues as well as drawing on the wisdom of those who actually undertake this work on a daily basis. I hope that students and practitioners from all disciplines will find this a useful resource to understand the art and craft of good palliative nursing’. Professor Daniel Kelly, Fellow of the Royal College of Nursing and Royal College of Nursing Chair of Nursing Research, Cardiff University, UK
Palliative Care Nursing by Marianne Matzo, PhD, APRN-CNP, FPCN, FAAN,Deborah Witt Sherman, PhD, APRN, ANP-BC, ACHPN, FAAN Pdf
“This 5th edition is an important achievement; it is a symbol of commitment to the field of palliative nursing, where we have been and where we are going.” - Betty Rolling Ferrell, PhD, MA, FAAN, FPCN, CHPN From the Foreword The aging population has only grown since the first edition of this comprehensive and seminal publication nearly 20 years ago. Based on the need to humanize rather than medicalize the illness experience for patients, this text delves into palliative care beyond the specific diseases affecting the patient. Instead, content focuses on the whole person and family. Palliative patients struggle with chronic, debilitating, and painful conditions, and grapple with the fact that life as they knew it has already passed away. Families and friends reciprocally suffer, not knowing how to help and therefore become the secondary victims of the disease. This is not the challenge of a lone nurse, or a single physician, therapist, or social worker. Rather, palliative and hospice care requires the expertise and unique roles of an interprofessional team to help the patient and family strengthen their resilience, continue to find meaning and purpose in life, and cure what can be cured. Palliative Care Nursing, Fifth Edition, delivers advanced empirical, aesthetic, ethical and personal knowledge. This new edition brings an increased focus on outcomes, benchmarking progress, and goals of care. It expounds upon the importance of the cross-disciplinary collaboration introduced in the previous edition. Every chapter in Sections I, II, and III includes content written by a non-nursing member of the interprofessional team. Based on best-evidence and clinical practice guidelines, this text presents comprehensive, targeted interventions responsive to the needs of palliative and hospice patients and family. Each chapter contains compassionate, timely, appropriate, and cost-effective care for diverse populations across the illness trajectory. Key Features The expanded new edition offers current, comprehensive, one-stop source of highly-relevant clinical information on palliative care Life-span approach: age-appropriate nursing considerations (e.g. geriatric, pediatric and family) Includes disease-specific and symptom-specific nursing management chapters Promotes a holistic and interdisciplinary approach to palliative care Offers important legal, ethical and cultural considerations related to death and dying Case Studies with Case Study Conclusion in each clinical chapter New to The Fifth Edition: An expanded chapter on Palliative Care incorporates most up to date scope and standards, information on Basic and Advanced HPNA certification, self-reflection and self-care for nurses. A chapter on Interprofessional Collaboration Instructor Resources: Power points and Test bank
Palliative Care Nursing as Mindfulness by Lacie White Pdf
As nurses, we hear about mindfulness all the time, but what does that actually mean in practice? In this book readers are invited into conversation to explore how mindfulness influences palliative care nurses’ approaches to caring for themselves and others through experiences of living-dying. Under the guise of stress reduction and self-care, the assumption often made is that mindfulness can smooth out difficult experiences. Instead, the objective of this inquiry is not to bypass the practice of caring in those spaces that are really hard, but to understand how nurses are working directly within them. Calling out from the shadows—and our bodies—the intensity of palliative care nursing practice arises. In this text, a dialogue unfolds of nurses caring in deeply meaningful practice environments while searching for ground that is perpetually shifting, uncertain, and fraught with suffering and strong emotion. Integrating literature across nursing, sociology, and contemplative scholarship, evocative stories from palliative care nurses lead in this conversation—their words in italics—showing how they are guided into action through connection with-in their bodies. At other times, stories show how nurses are taking pause and drawing on various somatic practices to unravel entanglements that touch on their own humanity. These stories also offer insight into how systemic forces, across educational and organizational institutions, are either enhancing or constraining the way nurses engage mindfulness as a relationally embodied ethic of care. This insightful volume is not a how-to guide, rather it is a timely resource exploring approaches for palliative care nurses to care for themselves and others with mindfulness and compassion. Those seeking nuanced perspectives, particularly in relation to embodying mindfulness through suffering and strong emotion, will be drawn to this text. Qualitative researchers studying emotionally sensitive topics may also find inspiration in the narrative, arts-based, and embodied methods that shape this inquiry.
Palliative Care in Critical Care, An Issue of Critical Care Nursing Clinics of North America, E-Book by Tonja Hartjes Pdf
Intensive care units (ICUs) provide comprehensive, advanced care to patients with serious or life-threatening conditions and consequently, a significant amount of end-of-life care (EOLC). Indeed, approximately 20% of deaths in the U.S. are associated with an ICU stay, and nearly half of U.S. patients who die in hospitals experience an ICU stay during the last 3 days of life. Despite the commonality of the ICU experience, ICU patients typically suffer from a range of distressing symptoms such as pain, fatigue, anxiety, and dyspnea, causing families significant distress on their behalf. Thus, there is a growing imperative for better provision of palliative care (PC) in the ICU, which may prevent and relieve suffering for patients with life threatening illnesses. Effective palliative care is accomplished through aggressive symptom management, communication about the patient and family’s physical, psychosocial and spiritual concerns, and aligning treatments with each patient’s goals, values, and preferences. PC is also patient-centered and uses a multidisciplinary, team-based approach that can be provided in conjunction with other life-sustaining treatments, or as a primary treatment approach. Failure to align treatment goals with individual and family preferences can create distress for patients, families, and providers. If implemented appropriately, palliative care may significantly reduce the health care costs associated with intensive hospital care, and help patients avoid the common, non-person centered treatment that is wasteful, distressing, and potentially harmful. Due to the success of many PC programs, administrators, providers, and accrediting bodies are beginning to understand that palliative care in the ICU is vital to optimal patient outcomes.