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Parents with Intellectual Disabilities by Gwynnyth Llewellyn,Rannveig Traustadottir,David McConnell,Hanna Bjorg Sigurjonsdott Pdf
The first international, cross-disciplinary book to explore and understand the lives of parents with intellectual disabilities, their children, and the systems and services they encounter Presents a unique, pan-disciplinary overview of this growing field of study Offers a human rights approach to disability and family life Informed by the newly adopted UN Convention on the Rights of Persons with Disabilities (2006) Provides comprehensive research-based knowledge from leading figures in the field of intellectual disability
Intellectual Disability by James C. Harris, M.D. Pdf
Approximately 2.5 million people in the United States--one percent of the population--have an intellectual disability (previously referred to as mental retardation). These conditions range from genetic disorders such as Down syndrome to disabilities caused by infectious diseases and brain injury. Intellectual Disability: A Guide for Families and Professionals, by one of the country's foremost authorities on intellectual disability, is a comprehensive resource that will be of importance to anyone with a personal connection to a child or adult with a neurodevelopmental disorder. Emphasizing the humanity of persons with intellectual and related developmental disabilities, psychiatrist and pediatrician James Harris provides essential information on assessment and diagnosis of intellectual disability, treatments for specific disorders, and ways to take advantage of the wide array of services available today. The focus throughout is on the development of the person, the positive supports necessary for self-determination, and, to the extent possible, independent decision making. Harris also surveys historical attitudes toward intellectual disability, the medical community's current understanding of its causes and frequency, and the associated physical, behavioral, and psychiatric conditions (such as seizure disorder, depression, and autism) that often accompany particular types of intellectual disability. The book addresses legal, medical, mental health, and research-related issues as well as matters of spirituality, highlighting the ways in which individuals with intellectual disability can meaningfully participate in the spiritual lives of their families and their communities. Each chapter ends with a series of key points to remember, and the book concludes with a list of additional resources of further interest. Intellectual Disability is a must-read for parents and families of those with neurodevelopmental disorders, providing guidance and essential information to help their family members effectively, and to make a significant, positive difference in their lives now and in the future.
Child Protection and Parents with a Learning Disability by Penny Morgan Pdf
Child Protection and Parents with a Learning Disability provides the practical knowledge that professionals need in order to understand common intellectual disabilities and how they might affect parenting capability. It presents clear guidance on how to carry out effective assessments and explains how interventions might differ when working with parents who have a learning disability. It covers a broad spectrum of disabilities, including borderline conditions and Autism Spectrum Disorder. The book also explores a number of emotional and mental health issues that can occur alongside learning disabilities, such as ADHD, anxiety, depression, and attachment disorders, to show how they should be understood in the context of cognitive abilities and the parenting role. Empowering practitioners to make informed decisions about children's welfare, this is a must-have guide for all professionals working with families where a parent is affected by a learning disability.
National Academies of Sciences, Engineering, and Medicine,Division of Behavioral and Social Sciences and Education,Board on Children, Youth, and Families,Committee on Supporting the Parents of Young Children
Author : National Academies of Sciences, Engineering, and Medicine,Division of Behavioral and Social Sciences and Education,Board on Children, Youth, and Families,Committee on Supporting the Parents of Young Children Publisher : National Academies Press Page : 525 pages File Size : 52,6 Mb Release : 2016-11-21 Category : Social Science ISBN : 9780309388573
Parenting Matters by National Academies of Sciences, Engineering, and Medicine,Division of Behavioral and Social Sciences and Education,Board on Children, Youth, and Families,Committee on Supporting the Parents of Young Children Pdf
Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Forever Parenting by Rosemarie Scotti Hughes Ph.D. Pdf
When a child with special needs becomes an adult and is no longer in the school system, it can be a rude awakening for parents. Suddenly, you may find yourself with little or no help in finding the services you need to help your son or daughter live a happy, fulfilling life. Each state, and even locality, varies on what is available. Some parents stay home with their child and navigate their new circumstances, but others must work, and they need to find an environment for their child that is safe and rewarding. Rosemarie Scotti Hughes, Ph.D., whose son, Chris, has an intellectual disability, shares the struggles she’s gone through in fighting for his best interests. She also shares the stories of numerous other parents of adult children with special needs, sharing their joys, heartaches, frustrations, blessings, sorrows, regrets, and dreams. Join these parents on a personal journey that offers wisdom, hope, and help for those that are Forever Parenting.
Planning and Support for People with Intellectual Disabilities by Chris Fyffe,Christine M Bigby,Elizabeth Ozanne Pdf
'Thought-provoking, well-written, and offering a range of fresh and sometimes challenging perspectives, Planning and Support should be essential reading for people working in the field of learning disabilities. Highly recommended.' - Involve Magazine The authors outline the skills needed and common issues in case management practice across a range of people with different disabilities at different stages of their life. Emphasising the importance of taking a rights-based approach to supporting people with learning disabilities, the authors argue that effective case management needs to be individualised and carried out in partnership with the individual and their family in order to draw up a lifestyle plan that meets their many needs, including employment, education, vocational training, therapy and behaviour support. The book includes chapters on inter-agency and cross-sector negotiation and collaboration, balancing rights and protection, listening to individuals and families, communication, optimising health outcomes, approaches to behaviour support, ethical decision-making and reflective supervision, and the text is complemented by case studies throughout. An essential reference for practitioners, the book is also an invaluable guide for policy makers, researchers and students, nurses, carers, and people with intellectual disabilities and their families.
Parents who have cared for their adult children with intellectual disabilities will one day face an important issue--who will care for them when they are no longer able? With this book, based on case studies of adults with disabilities and their families, you'll learn how to help families plan for this delicate transition. You'll explore possible services and providers who can take on the parents' role, and you'll discover how to create a network of agency and family supports. This book gives you the facts you need to help families prepare for the future and ensure that individuals with disabilities receive the best transitional supports.
The National Book Award-winning author of The Noonday Demon explores the consequences of extreme personal differences between parents and children, describing his own experiences as a gay child of straight parents while evaluating the circumstances of people affected by physical, developmental or cultural factors that divide families. 150,000 first printing.
Life Planning for Adults with Developmental Disabilities by Judith Greenbaum Pdf
A Comprehensive Guide for Parents and Caregivers As any parent or caregiver of an individual with developmental disabilities can tell you, planning for the future of an adult with intellectual disabilities, Cerebral Palsy, severe autism, or another such condition requires hard work and good advice. While complete independence and self-reliance is out of reach for many adults with developmental disabilities, a productive, stable, and enjoyable life is certainly possible. But government and private support for parents and disabled individuals is scattered and difficult to negotiate. This book is a comprehensive guide to resources you can use to help an adult child or other individual with developmental disabilities for whom you care. The book begins by assessing the quality of life of the adult with a disability. It offers a wealth of suggestions for making that person's life even better. The book then focuses on long-term planning for the individual with a disability and helps answer the question, Who will take care of my child after I'm gone? •Learn effective ways to: Assess a disabled individual's strengths and need for support services •Develop a plan to for building a busy and productive life •Locate good housing and employment opportunities •Gather a supportive team of caregivers Advocate for a disabled individual with community agencies
Allies and Obstacles by Allison C. Carey,Pamela Block,Richard Scotch Pdf
Parents of children with disabilities often situate their activism as a means of improving the world for their child. However, some disabled activists perceive parental activism as working against the independence and dignity of people with disabilities. This thorny relationship is at the heart of the groundbreaking Allies and Obstacles. The authors chronicle parents’ path-breaking advocacy in arenas such as the right to education and to liberty via deinstitutionalization as well as how they engaged in legal and political advocacy. Allies and Obstacles provides a macro analysis of parent activism using a social movement perspective to reveal and analyze the complex—and often tense—relationship of parents to disability rights organizations and activism. The authors look at organizational and individual narratives using four case studies that focus on intellectual disability, psychiatric diagnoses, autism, and a broad range of physical disabilities including cerebral palsy and muscular dystrophy. These cases explore the specific ways in which activism developed among parents and people with disabilities, as well as the points of alliance and the key points of contestation. Ultimately, Allies and Obstacles develops new insights into disability activism, policy, and the family.
"A Celebration of Family: Stories of Parents with Disabilities" contains the stories of thirty families. In every family, one or both parents have disabilities: physical, mental, sensory, and/or intellectual. The stories illustrate the infinite variety of the American family. It is that variety that gives the family both its strength and its beauty. Like individuals, no two families are the same.In the course of discussing their family experiences, the parents cover a number of topics. Most stories concern having children through birth, but there are also stories about fostering and adopting. Four stories concern single parenthood. Many parents talk about adaptations and accommodations they made to be effective parents, but even more talk about how wonderfully adaptive their children were to their disabilities. Many parents talk about individual discrimination and societal bias they have faced. A number of stories highlight the decision-making process to have children when the possibility exists of passing on an inheritable condition. Parents are included that had children before they acquired a disability and they relate how that acquired disability affected their family. Several stories discuss legal and policy issues around parenting with a disability. The stories contain humor, compassion, and gratitude. They are proof that one thing you can get any parent to talk about is their children. As one parent in the book puts it, "if you suck as a person, you are going to suck as a parent, whether you have a disability or not. If you are compassionate and caring and nurturing as a person, you will be like that as a parent, too.
Handbook of Research on Diagnosing, Treating, and Managing Intellectual Disabilities by Gopalan, Rejani Thudalikunnil Pdf
Intellectual disabilities can be difficult to detect in children prior to their school-age years. Throughout their lives, individuals with intellectual disabilities may require specialized care and support in order to lead healthy and fulfilled lives. The Handbook of Research on Diagnosing, Treating, and Managing Intellectual Disabilities is a pivotal reference source for the latest research on the effects of disabilities in intellectual functioning, examining the causes, treatment, and rehabilitation of such limitations in adaptive behavior. Highlighting empirical findings on the management of these disabilities throughout various stages of life, this publication is ideally designed for clinicians, researchers, special educators, social workers, and students actively involved in the mental health profession.
Growing up with Parents who have Learning Difficulties by Tim Booth,Wendy Booth Pdf
Growing up with Parents who have Learning Difficulties uses a life-story approach to present new evidence about how children from such families manage the transition to adulthood, and about the longer-term outcomes of such an upbringing. It offers a view of parental competence as a social attribute rather than an individual skill, assessing the implications for institutional policies and practices. The authors address the notion of children having to parent their disabled parents and argue for a shift in emphasis from protecting children to supporting families. This innovative book provides a fresh approach to a subject rife with prejudice and challenges us to think again about many taken-for-granted ideas about the process of parenting and the needs of children. It also demonstrates the power of narrative research and its capacity for bringing alive people's experience in a way that enables us to better understand their lives.
Enhancing the Quality of Life of People with Intellectual Disabilities by Ralph Kober Pdf
This book contains a series of articles, written by international experts in the fields of intellectual disability and quality of life, that explore a broad range of issues that impact on the quality of life of people with intellectual disabilities and their families. The book commences with a general discussion on defining quality of life and family quality of life and the appropriateness of using these constructs in the field of intellectual disability, and is followed by an analysis on the effects of living arrangements and employment on quality of life. The book concludes with discussions on the unique issues facing children with intellectual disabilities and people living in developing countries and the effect these issues have upon their quality of life.
