Partners In Palliative Care

Author : Mary Beth Morrissey,Bruce Jennings
Publisher : Routledge
Page : 143 pages
File Size : 45,9 Mb
Release : 2013-10-31
Category : Medical
ISBN : 9781317966920

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Partners in Palliative Care by Mary Beth Morrissey,Bruce Jennings Pdf

The Collaborative for Palliative Care ("Collaborative") is a grassroots consortium of public and private organizations that came together in 2005 for the purposes of studying the increasing need for palliative care and the methods for such care. It has grown from a small fledgling group to a membership of over 50 community-based organizations and volunteers dedicated to improving care of the seriously ill through education, research and advocacy. The Collaborative bridges policy, research and practice in its initiatives and vision for the future. Partners in Palliative Care examines specific areas of concern that the Collaborative has addressed in its education programs and advocacy, as well as the collaborative processes that have been so successful in building community assets. Areas of concentration have been diverse and include advance care planning, relational communication paradigms, community capacity building, the role of culture and spirituality in palliative care, the meaning of pain and suffering for seriously ill individuals, and the ethics of health care costs in palliative and end-of-life systems of care. This book was originally published as a special issue of the Journal of Social Work in End-of-Life and Palliative Care.

Author : Karen Hertz,Julie Santy-Tomlinson
Publisher : Springer
Page : 169 pages
File Size : 55,8 Mb
Release : 2018-06-15
Category : Medical
ISBN : 9783319766812

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Fragility Fracture Nursing by Karen Hertz,Julie Santy-Tomlinson Pdf

This open access book aims to provide a comprehensive but practical overview of the knowledge required for the assessment and management of the older adult with or at risk of fragility fracture. It considers this from the perspectives of all of the settings in which this group of patients receive nursing care. Globally, a fragility fracture is estimated to occur every 3 seconds. This amounts to 25 000 fractures per day or 9 million per year. The financial costs are reported to be: 32 billion EUR per year in Europe and 20 billon USD in the United States. As the population of China ages, the cost of hip fracture care there is likely to reach 1.25 billion USD by 2020 and 265 billion by 2050 (International Osteoporosis Foundation 2016). Consequently, the need for nursing for patients with fragility fracture across the world is immense. Fragility fracture is one of the foremost challenges for health care providers, and the impact of each one of those expected 9 million hip fractures is significant pain, disability, reduced quality of life, loss of independence and decreased life expectancy. There is a need for coordinated, multi-disciplinary models of care for secondary fracture prevention based on the increasing evidence that such models make a difference. There is also a need to promote and facilitate high quality, evidence-based effective care to those who suffer a fragility fracture with a focus on the best outcomes for recovery, rehabilitation and secondary prevention of further fracture. The care community has to understand better the experience of fragility fracture from the perspective of the patient so that direct improvements in care can be based on the perspectives of the users. This book supports these needs by providing a comprehensive approach to nursing practice in fragility fracture care.

Author : Klaus Wegleitner,Katharina Heimerl,Allan Kellehear
Publisher : Routledge
Page : 257 pages
File Size : 40,6 Mb
Release : 2015-06-26
Category : Social Science
ISBN : 9781317565062

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Compassionate Communities by Klaus Wegleitner,Katharina Heimerl,Allan Kellehear Pdf

Compassionate communities are communities that provide assistance for those in need of end of life care, separate from any official heath service provision that may already be available within the community. This idea was developed in 2005 in Allan Kellehear’s seminal volume- Compassionate Cities: Public Health and End of Life Care. In the ensuing ten years the theoretical aspects of the idea have been continually explored, primarily rehearsing academic concerns rather than practical ones. Compassionate Communities: Case Studies from Britain and Europe provides the first major volume describing and examining compassionate community experiments in end of life care from a highly practical perspective. Focusing on community development initiatives and practice challenges, the book offers practitioners and policy makers from the health and social care sectors practical discussions on the strengths and limitations of such initiatives. Furthermore, not limited to providing practice choices the book also offers an important and timely impetus for other practitioners and policy makers to begin thinking about developing their own possible compassionate communities. An essential read for academic, practitioner, and policy audiences in the fields of public health, community development, health social sciences, aged care, bereavement care, and hospice & palliative care, Compassionate Communities is one of only a handful of available books on end of life care that takes a strong health promotion and community development approach.

Author : Lorraine Holtslander,Shelley Peacock,Jill Bally
Publisher : Springer
Page : 272 pages
File Size : 52,8 Mb
Release : 2019-07-17
Category : Medical
ISBN : 9783030195359

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Hospice Palliative Home Care and Bereavement Support by Lorraine Holtslander,Shelley Peacock,Jill Bally Pdf

This book provides an unique resource for registered nurses working in hospice palliative care at home and for the community, outside of acute care settings and also incorporates literature related to palliative care in acute health care settings, as part of the overall services and supports required. Very few resources exist which specifically address hospice palliative care in the home setting, despite the fact that most palliative care occurs outside acute care settings and is primarily supported by unpaid family caregivers. An overview of the concerns for individuals and families, as well as specific nursing interventions, from all ages would be an excellent support for nursing students and practicing registered nurses alike. The book structure begins with a description of the goals and objectives of hospice palliative care and the nursing role in providing excellent supportive care. Chapters include research findings and specifically research completed by the authors in the areas of pediatric palliative care, palliative care for those with dementia, and the needs of family caregivers in bereavement. Interventions developed by the editors are provided in this book, such as the “Finding Balance Intervention” for bereaved caregivers; the “Reclaiming Yourself” tool for bereaved spouses of partners with dementia; and The Keeping Hope Possible Toolkit for families of children with life threatening and life limiting illnesses. The development and application of these theory-based interventions are also highlighted. Videos and vignettes written by family caregivers about what was helpful for them, provide a patient-and family-centered approach./div The book will benefit nursing students, educators and practicing registered nurses by providing information, theory, and evidence from research.

Author : Cicely Saunders
Publisher : Unknown
Page : 24 pages
File Size : 48,6 Mb
Release : 1976
Category : Terminal care
ISBN : 0333225767

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Care of the Dying by Cicely Saunders Pdf

Author : Julia M. Addington-Hall,National Council for Hospice and Specialist Palliative Care Services (Great Britain),Scottish Partnership Agency for Palliative and Cancer Care
Publisher : Unknown
Page : 34 pages
File Size : 52,8 Mb
Release : 2000
Category : Mentally ill
ISBN : 1898915210

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Positive Partnerships by Julia M. Addington-Hall,National Council for Hospice and Specialist Palliative Care Services (Great Britain),Scottish Partnership Agency for Palliative and Cancer Care Pdf

Author : Libby Sallnow,Suresh Kumar,Allan Kellehear
Publisher : Routledge
Page : 258 pages
File Size : 53,5 Mb
Release : 2013-07-03
Category : Medical
ISBN : 9781136631993

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International Perspectives on Public Health and Palliative Care by Libby Sallnow,Suresh Kumar,Allan Kellehear Pdf

Public health approaches to palliative care have been growing in policy importance and practice acceptance. This innovative volume explores the major concepts, practice examples, and practice guidelines for this new approach. The goal of ‘comprehensive care’ – seamless support for patients as they transition between home based care and inpatient services – relies on the principles of health promotion and community development both to ensure services are available and importantly appropriate for patients’ needs. In developing contexts, where hospitals and hospices may be inaccessible, a public health approach provides not only continuity of care but greater access to good end of life care. This book provides both a historical and conceptual overview whilst offering practical case examples from affluent and developing contexts, in a range of clinical settings. Finally, it draws together research-based guidelines for future practice. Essential reading for public health researchers and practitioners with an interest in end of life care and global health as well as those involved in developing palliative care provision, International Perspectives on Public Health and Palliative Care is the first volume to present an overview of theory and practice in this emerging field.

Author : Dave Roberts,Laura Green
Publisher : Routledge
Page : 96 pages
File Size : 42,6 Mb
Release : 2021-09-20
Category : Medical
ISBN : 9781351113458

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Collaborative Practice in Palliative Care by Dave Roberts,Laura Green Pdf

Collaborative Practice in Palliative Care explores how different professions work collaboratively across professional, institutional, social, and cultural boundaries to enhance palliative care. Analysing palliative care as an interaction between different professionals, clients, and carers, and the social context or community within which the interaction takes place, it is grounded in up-to-date evidence, includes global aspects of palliative care and cultural diversity as themes running throughout the book, and is replete with examples of good and innovative practice. Drawing on experiences from within traditional specialist palliative care settings like hospices and community palliative care services, as well as more generalist contexts of the general hospital and primary care, this practical text highlights the social or public health model of palliative care. Designed to support active learning, it includes features such as case studies, summaries, and pointers to other learning resources. This text is an important reference for all professionals engaged in palliative care, particularly those studying for post-qualification programmes in the area.

Author : Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues
Publisher : National Academies Press
Page : 638 pages
File Size : 40,7 Mb
Release : 2015-03-19
Category : Medical
ISBN : 9780309303132

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Dying in America by Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues Pdf

For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Author : National Council for Hospice and Specialist Palliative Care Services (Great Britain),National Association of Health Authorities and Trusts,NHS Confederation (Great Britain)
Publisher : Unknown
Page : 55 pages
File Size : 46,6 Mb
Release : 1998
Category : Great Britain
ISBN : 1898915172

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Promoting Partnership by National Council for Hospice and Specialist Palliative Care Services (Great Britain),National Association of Health Authorities and Trusts,NHS Confederation (Great Britain) Pdf

Author : Terry Altilio,Shirley Otis-Green,John G. Cagle
Publisher : Oxford University Press
Page : 1009 pages
File Size : 54,7 Mb
Release : 2022
Category : Medical
ISBN : 9780197537855

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The Oxford Textbook of Palliative Social Work by Terry Altilio,Shirley Otis-Green,John G. Cagle Pdf

"It is so important to advocate for things that may not always seem possible. Getting to work with patients/families at the end of their life is the ultimate honor." - Lauren G Markham, MSW, LCSW, APHSW-C "In this work, one witnesses both depths of human suffering and heights of human transcendence that can inspire both awe and fear. At those times, I have found that surrendering my need to be "an expert" and instead, allow myself to simply be a "human" is the wisest action." - Kerry Irish, LCSW, OSW-C, FAOSW"--

Author : Barbara Monroe,David Oliviere
Publisher : OUP Oxford
Page : 318 pages
File Size : 51,9 Mb
Release : 2007-09-06
Category : Medical
ISBN : 9780191575051

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Resilience in Palliative Care by Barbara Monroe,David Oliviere Pdf

The first book of its kind, Resilience and Palliative Care - Achievement in adversity takes the increasing international literature on resilience and applies it to palliative and end-of-life care. The book offers an overview of all key aspects of palliative care, presented through a resilience perspective. Why do some patients and families break down while others surmounts the challenges facing them? What interventions strengthen individual, family and community coping? This book aims to facilitate change with people facing the crisis of death, dying and bereavement. Much of the existing literature has focused on risk, problems and vulnerability; the emerging concept of resilience focuses on strengths and possibilities. The 'total pain'/'total care' approach pioneered by Dame Cicely Saunders and St Christopher's Hospice now needs reinterpreting in the light of changing contexts and challenges. The realities of demographic change and resource-constrained health and social care environments have generated an increasingly risk focused approach to service delivery. A narrowly medicalised approach has inevitable limitations; professional care alone will be unable to meet need and demand in the face of ageing populations, changing patterns of illness and the need for equity. The resilience approach offers a counterbalance that harnesses the strengths of individuals and the communities in which they live and in which most of their dying will take place. Resilience thinking emphasises the importance of public health and creates a partnership between patients, professionals and community structures, seeking to build community capacity and to deliver a preventive health care that will leave future generations less afraid of the dying and bereavement that will confront all of us. This book offers insights into how, at all levels of planning and delivering palliative care, there is the opportunity to maximise coping, build an infrastructure for self-help, and increase the capacity of strengthened teams and organisations.

Author : National Academies of Sciences, Engineering, and Medicine,Health and Medicine Division,Board on Population Health and Public Health Practice,Roundtable on Health Literacy
Publisher : National Academies Press
Page : 137 pages
File Size : 54,7 Mb
Release : 2016-06-18
Category : Medical
ISBN : 9780309380362

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Health Literacy and Palliative Care by National Academies of Sciences, Engineering, and Medicine,Health and Medicine Division,Board on Population Health and Public Health Practice,Roundtable on Health Literacy Pdf

The Institute of Medicine Roundtable on Health Literacy convened a 1-day public workshop to explore the relationship between palliative care and health literacy, and the importance of health literate communication in providing high-quality delivery of palliative care. Health Literacy and Palliative Care summarizes the discussions that occurred throughout the workshop and highlights the key lessons presented, practical strategies, and the needs and opportunities for improving health literacy in the United States.

Author : Betty R. Ferrell,Nessa Coyle
Publisher : Oxford University Press
Page : 137 pages
File Size : 47,9 Mb
Release : 2015-12-02
Category : Medical
ISBN : 9780190244132

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Social Aspects of Care by Betty R. Ferrell,Nessa Coyle Pdf

'Social Aspects of Care' provides an overview of financial and mental stress illness places, not just on the patient, but on the family as well. This volume contains information on how to support families in palliative care, cultural considerations important in end-of-life care, sexuality and the impactof illness, planning for the actual death, and bereavement.

Author : Lura L Pethtel,John D Engel
Publisher : CRC Press
Page : 158 pages
File Size : 40,8 Mb
Release : 2017-11-22
Category : Medical
ISBN : 9781315346526

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The Palliative Care and Hospice Caregiver's Workbook by Lura L Pethtel,John D Engel Pdf

This educational workbook helps people who build compassionate relationships with dying people. Accompanied by its trainer's guide, it presents a comprehensive, sequential learning program for caregivers in non-medical capacities covering everything from self-understanding to spiritual issues, listening skills and expressive activities, developing the skills, awareness and resilience needed for this privileged and sensitive role. The program includes a variety of learning experiences, including large and small group activities, discussion, close reading, creative writing, self exploration, and skill development and practice. This is an invaluable resource for small groups of individuals who wish to volunteer in hospice or palliative care settings. A copy of the guide for trainers is included in each pack of workbooks, and is also freely available online. 'The best resource I have seen to guide teachers and learners in this complex training process. I predict that those of you who try it with your staffs and trainees will find that it bears fruit both for your patients and their families, but also for the sustenance and personal development of the staff members themselves.' Timothy Quill, M.D., in his Foreword