Patient Reported Outcome Measures In Rheumatic Diseases

Author : Yasser El Miedany
Publisher : Springer
Page : 449 pages
File Size : 52,8 Mb
Release : 2016-09-14
Category : Medical
ISBN : 9783319328515

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Patient Reported Outcome Measures in Rheumatic Diseases by Yasser El Miedany Pdf

This book discusses the role of patient reported outcome measures (PROMs) in the diagnosis and management of rheumatic diseases and their implementation in patient-centered care. It aims to improve the quality and efficiency of patient care in standard practice by outlining the appropriate information-gathering and decision-making processes. The book highlights the evidence and advanced knowledge base of PROMs in rheumatic diseases such as rheumatoid arthritis, systemic lupus erythematosus, juvenile idiopathic arthritis, osteoarthritis, and systemic sclerosis. Featuring reviews of Patient Reported Outcome tools and Physician RheuMetric Measures as well as examples of patient reported outcome questionnaires, Patient Reported Outcome Measures in Rheumatic Diseases serves as an excellent introduction and resource for implementation of PROMs in clinical rheumatology practice.

Author : Jennifer L. Barton,Patti Katz
Publisher : Elsevier Health Sciences
Page : 225 pages
File Size : 46,9 Mb
Release : 2016-05-27
Category : Medical
ISBN : 9780323445245

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Patient Reported Outcomes in Rheumatic Diseases, An Issue of Rheumatic Disease Clinics of North America, E-Book by Jennifer L. Barton,Patti Katz Pdf

This issue is devoted to patient reported outcomes and their impact in the study of rheumatic diseases and the authors will also discuss PROs and vulnerable populations with rheumatic disease; technology, electronic health records and PROs: past, present and future; the promise of PROMIS – a uniform approach to PROs across rheumatic diseases, quality measures and PROs and how they relate and the importance of PROs in delivering quality care in the rheumatic diseases, and many more exciting articles.

Author : Zahi Touma
Publisher : Springer Nature
Page : 418 pages
File Size : 50,6 Mb
Release : 2021-07-22
Category : Medical
ISBN : 9783030733032

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Outcome Measures and Metrics in Systemic Lupus Erythematosus by Zahi Touma Pdf

Systemic Lupus Erythematosus (SLE) is a chronic autoimmune disease that manifests with a myriad of clinical and laboratory features. The assessment of SLE is comprehensive and includes different core set domains; disease activity, damage, health-related quality of life, adverse events and economic impact. This comprehensive book is focused on the instruments and outcome measures utilized in the assessment of SLE. It targets different audiences including physicians, scientists/researchers and different health professionals interested in learning about the art of measurement in SLE. The book highlights the importance of measurement in the assessment of SLE in a clinical settings, research and clinical trials. Each of the chapters provide a systematic approach to the instruments utilized in the assessment of a specific construct in SLE (e.g., disease activity, fatigue, etc.) and incorporate a comprehensive coverage of disease specific and disease generic measures. It also discusses different patient-reported outcomes that are crucial to reflect patient perceptions of their health condition and cover constructs such as fatigue, pain, anxiety and depression, cognition, frailty, and many others.

Author : Marika Tammaru
Publisher : Unknown
Page : 128 pages
File Size : 41,9 Mb
Release : 2006
Category : Electronic
ISBN : 9949114853

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Patient-reported outcome measurement in rheumatoid arthritis by Marika Tammaru Pdf

Author : Hasan Yazici,Yusuf Yazici,Emmanuel Lesaffre
Publisher : Springer
Page : 276 pages
File Size : 46,9 Mb
Release : 2014-10-29
Category : Medical
ISBN : 9783319083742

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Understanding Evidence-Based Rheumatology by Hasan Yazici,Yusuf Yazici,Emmanuel Lesaffre Pdf

It is imperative that health professionals caring for patients with rheumatic diseases understand how to correctly interpret evidence in their field, taking into account the merits and shortcomings of available data. Understanding Evidence-Based Rheumatology offers a practical assessment of criteria, drugs, trials, and registries and provides useful tools for successfully interpreting this data. The book introduces readers to basic analysis of trial design, statistics and application of data through no-nonsense, easy-to-follow insights. Using numerous examples, chapters outline the difficulties physicians encounter when measuring disease activity in rheumatology and offer strategies for systematically approaching these situations. Ethical issues in study design and reporting are examined and the book closes with a summary of future directions for scientific and clinical studies in rheumatology. Understanding Evidence-Based Rheumatology is an invaluable resource for trainees, clinicians and scientists, preparing them with the necessary tools to correctly gather evidence and shed light on the difficult practice of rheumatology.

Author : Christine Peoples
Publisher : Springer Nature
Page : 358 pages
File Size : 52,5 Mb
Release : 2022-07-14
Category : Medical
ISBN : 9783031009365

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Telerheumatology by Christine Peoples Pdf

This book details the practice of telerheumatology. Telemedicine is defined as the delivery of healthcare and the exchange of healthcare information across distances. Following, telerheumatology is the delivery of rheumatology care through telemedicine. There exists an increasing demand from patients, caregivers, and healthcare systems for access to academic specialists through telemedicine. This has been the case for the past several years and the demand has only increased with the ongoing COVID-19 pandemic. There is currently a lack of rheumatologists in rural areas and that is expected to spread to a general lack by 2025. Telerheumatology offers an excellent and timely solution to fill these gaps and provide care. Telerheumatology care has been shown to be feasible and quite effective. The current COVID-19 pandemic has thrust the concept of telemedicine into the spotlight. However, not all telerheumatology care is the same and there exists many nuances and differences when examining telerheumatology care across the United States and the world. After comprehensively reviewing the origins of telerheumatology, this work defines in detail the current practice of telerheumatology, along with the specific impact of the COVID-19 pandemic and all applications of telerheumatology. Expert authors also provide a detailed roadmap for providers to initiate, sustain, and grow a telerheumatology program. The book concludes by covering future directions of telerheumatology, including areas for expansion, improvement, and innovation. After reading this work, the editor and all the contributing authors hope that it will inspire, provoke thought and discussion, and lead to increased adaptation of providing telerheumatology care by rheumatologists and rheumatology providers.

Author : Zahi Touma,Alfred Kim
Publisher : Elsevier Health Sciences
Page : 257 pages
File Size : 54,5 Mb
Release : 2021-07-06
Category : Medical
ISBN : 9780323835572

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Lupus, An Issue of Rheumatic Disease Clinics of North America, E-Book by Zahi Touma,Alfred Kim Pdf

This issue of Rheumatic Disease Clinics, guest edited by Dr. Alfred Kim and Zahi Touma, will discuss a number of key topics surrounding Lupus. This issue is one of four selected each year by series Consulting Editor, Dr. Michael Weisman. Topics discussed in this issue include, but are not limited to: Interferons in SLE, NETosis and neutrophils in SLE, AMP update in lupus nephritis, Patient-reported outcomes, Complement, T cells in SLE, B cells in SLE, Outcome measures for SLE clinical trials, Mitochondrial physiology in SLE, Pregnancy, Lupus cohorts, Innovative trials and new opportunities in SLE, Classification and diagnosis of SLE, and Updates on SLE Treatment.

Author : N. J. Devlin,John Appleby,Martin Buxton
Publisher : Unknown
Page : 83 pages
File Size : 47,9 Mb
Release : 2010
Category : Health services administration
ISBN : 1857175913

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Getting the Most Out of PROMs by N. J. Devlin,John Appleby,Martin Buxton Pdf

Patient-reported outcome measures (PROMs) use a series of structured questions that ask patients about their health from their point of view, with the aim of improving decision-making at all levels of the NHS. This report looks at the ways in which PROMs data can be used.

Author : Institute of Medicine,Committee on Changing Health Care Systems and Rheumatic Disease
Publisher : National Academies Press
Page : 253 pages
File Size : 54,7 Mb
Release : 1997-02-09
Category : Medical
ISBN : 9780309056830

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Changing Health Care Systems and Rheumatic Disease by Institute of Medicine,Committee on Changing Health Care Systems and Rheumatic Disease Pdf

Market forces are driving a radical restructuring of health care delivery in the United States. At the same time, more and more people are living comparatively long lives with a variety of severe chronic health conditions. Many such people are concerned about the trend toward the creation of managed care systems because their need for frequent, often complex, medical services conflicts with managed care's desires to contain costs. The fear is that people with serious chronic disorders will be excluded from or underserved by the integrated health care delivery networks now emerging. Responding to a request from the National Institute of Arthritis and Musculoskeletal and Skin Diseases, this book reflects the results of a workshop that focused on the following questions: Does the model of managed care or an integrated delivery system influence the types of interventions provided to patients with chronic conditions and the clinical and health status outcomes resulting from those interventions? If so, are these effects quantitatively and clinically significant, as compared to the effects that other variables (e.g., income, education, ethnicity) have on patient outcomes? If the type of health care delivery system appears to be related to patient care and outcomes, can specific organizational, financial, or other variables be identified that account for the relationships? If not, what type of research should be pursued to provide the information needed about the relationship between types of health care systems and the processes and outcomes of care provided to people with serious chronic conditions?

Author : David Cella,Elizabeth A. Hahn,Sally E. Jensen,Zeeshan Butt,Cindy J. Nowinski,Nan Rothrock,Kathleen N. Lohr
Publisher : RTI Press
Page : 97 pages
File Size : 51,5 Mb
Release : 2015-09-17
Category : Medical
ISBN : 9781934831144

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Patient-Reported Outcomes in Performance Measurement by David Cella,Elizabeth A. Hahn,Sally E. Jensen,Zeeshan Butt,Cindy J. Nowinski,Nan Rothrock,Kathleen N. Lohr Pdf

Patient-reported outcomes (PROs) are measures of how patients feel or what they are able to do in the context of their health status; PROs are reports, usually on questionnaires, about a patient's health conditions, health behaviors, or experiences with health care that individuals report directly, without modification of responses by clinicians or others; thus, they directly reflect the voice of the patient. PROs cover domains such as physical health, mental and emotional health, functioning, symptoms and symptom burden, and health behaviors. They are relevant for many activities: helping patients and their clinicians make informed decisions about health care, monitoring the progress of care, setting policies for coverage and reimbursement of health services, improving the quality of health care services, and tracking or reporting on the performance of health care delivery organizations. We address the major methodological issues related to choosing, administering, and using PROs for these purposes, particularly in clinical practice settings. We include a framework for best practices in selecting PROs, focusing on choosing appropriate methods and modes for administering PRO measures to accommodate patients with diverse linguistic, cultural, educational, and functional skills, understanding measures developed through both classic and modern test theory, and addressing complex issues relating to scoring and analyzing PRO data.

Author : Japhet Killewo,Kristian Heggenhougen,Stella R. Quah
Publisher : Academic Press
Page : 512 pages
File Size : 46,8 Mb
Release : 2010-08-18
Category : Social Science
ISBN : 0123822017

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Epidemiology and Demography in Public Health by Japhet Killewo,Kristian Heggenhougen,Stella R. Quah Pdf

Epidemiology and Demography in Public Health provides practical guidance on planning and implementing surveillance and investigation of disease and disease outbreaks. Exploring contributing factors to the dynamics of disease transmission and the identification of population risks, it also includes a discussion of ehtics in epidemiology and demography including important issues of privacy vs. public safety. With a chapter on H1N1 and Bird flu, this book will be important for students and professionals in public health and epidemiology. Focuses on the techniques of surveillance and investigation of disease Includes biostatistics and analysis techniques Explores the ethics of disease studies Includes chapter discussing H1N1 and Bird Flu

Author : Frances Rapport,Robyn Clay-Williams,Jeffrey Braithwaite
Publisher : Taylor & Francis
Page : 343 pages
File Size : 45,5 Mb
Release : 2022-06-07
Category : Medical
ISBN : 9781000583458

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Implementation Science by Frances Rapport,Robyn Clay-Williams,Jeffrey Braithwaite Pdf

This accessible textbook introduces a wide spectrum of ideas, approaches, and examples that make up the emerging field of implementation science, including implementation theory, processes and methods, data collection and analysis, brokering interest on the ground, and sustainable implementation. Containing over 60 concise essays, each addressing the thorny problem of how we can make care more evidence-informed, this book looks at how implementation science should be defined, how it can be conducted, and how it is assessed. It offers vital insight into how research findings that are derived from healthcare contexts can help make sense of service delivery and patient encounters. Each entry concentrates on an important concept and examines the idea’s evidence base, root causes and effects, ideas and applications, and methodologies and methods. Revealing a very human side to caregiving, but also tackling its more complex and technological aspects, the contributors draw on real-life healthcare examples to look both at why things go right in introducing a new intervention and at what can go wrong. Implementation Science: The Key Concepts provides a toolbox of rich, contemporary thought from leading international thinkers, clearly and succinctly delivered. This comprehensive and enlightening range of ideas and examples brought together in one place is essential reading for all students, researchers, and practitioners with an interest in translating knowledge into practice in healthcare.

Author : Agency for Healthcare Research and Quality/AHRQ
Publisher : Government Printing Office
Page : 396 pages
File Size : 52,6 Mb
Release : 2014-04-01
Category : Medical
ISBN : 9781587634338

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Registries for Evaluating Patient Outcomes by Agency for Healthcare Research and Quality/AHRQ Pdf

This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

Author : Keith Rome,Peter McNair
Publisher : Elsevier Health Sciences
Page : 288 pages
File Size : 51,8 Mb
Release : 2014-09-18
Category : Medical
ISBN : 9780702060762

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Management of Chronic Musculoskeletal Conditions in the Foot and Lower Leg by Keith Rome,Peter McNair Pdf

Bridging the gap between undergraduate and postgraduate knowledge and experience, this new full colour resource uses an interdisciplinary approach to help manage chronic conditions – osteoarthritis, Achilles tendinopathy, gout, rheumatic diseases, forefoot/rearfoot entities, stress fractures/reactions, cerebral palsy – in the lower limb and foot. Each chapter includes sections on predisposing factors, diagnosis, impairments, function, quality of life and management strategies while highlighting any complex features of a condition which may present. The latest advances are discussed with suggestions for new paths of research – ‘future directions’. The text is further supported by additional commentaries from internationally renowned researchers who highlight the key elements of the work and provide a supplementary perspective of the particular clinical condition. A general view of the patient’s needs is offered throughout, connecting clinical realities to real-world patient experiences. Management of Chronic Conditions in the Foot and Lower Leg is a comprehensive, practical tool that can be used to inform daily decision making in practice as well as to support those who build policy and management strategies in the clinical areas covered. Clear content and structure supported by full colour illustrations Includes less discussed conditions such as gout and cerebral palsy Focus on pain, impairment, function, quality of life and management strategies Critical reflections by experts highlight current clinical practice and thinking in research Provides a sound interpretation of research findings Features patient-reported outcome measures and health related behaviour strategies

Author : Laura E. Schanberg︎,Yukiko Kimura
Publisher : Elsevier Health Sciences
Page : 417 pages
File Size : 55,6 Mb
Release : 2021-11-23
Category : Medical
ISBN : 9780323848817

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Pediatric Rheumatology Comes of Age: Part II, An Issue of Rheumatic Disease Clinics of North America, E-Book by Laura E. Schanberg︎,Yukiko Kimura Pdf

In this issue of Rheumatic Disease Clinics, Guest Editors Laura E. Schanberg? MD and Yukiko Kimura? MD brings his considerable expertise to the topic of pediatric rheumatology. Top experts in the field cover key topics such as CARRA, Mental health, Social media and JIA, CV disease in PRD, and more. Provides in-depth, clinical reviews on pediatric rheumatology, providing actionable insights for clinical practice. Presents the latest information on this timely, focused topic under the leadership of experienced editors in the field; Authors synthesize and distill the latest research and practice guidelines to create these timely topic-based reviews. Contains 20 relevant, practice-oriented topics, such as Pharmacosurveillance of biologics in pediatric rheumatic disease (or JIA); cSLE in developing countries: impact of access to care, ethnic differences?; Biomarkers and Outcome Measures in cSLE; Role of environment on PRD; and more.