People With Dementia Speak Out

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People with Dementia Speak Out

Author : Lucy Whitman
Publisher : Jessica Kingsley Publishers
Page : 304 pages
File Size : 53,8 Mb
Release : 2015-09-21
Category : Health & Fitness
ISBN : 9780857005526

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People with Dementia Speak Out by Lucy Whitman Pdf

In People with Dementia Speak Out, twenty-three people from diverse backgrounds share their experiences of living with dementia. The contributors are honest about the frustrations and fears they face, but overall there is remarkably little self-pity and a great deal of optimism. The personal accounts demonstrate that with the right support at the right time, and above all with opportunities to continue to contribute to society in a meaningful way, it is possible to live well with dementia. These fascinating stories bring to life the characters behind the collective term 'people with dementia', and show that each person with dementia is a unique individual with their own personality, history, beliefs, cultural affinities and sense of humour, and their own way of adapting to the disabilities and opportunities which this condition confers. This unique collection of personal testimonies will be reassuring and encouraging for those coming to terms with a diagnosis of dementia, for their families and carers, and is essential reading for health and social care professionals at all levels.

Who will I be when I die?

Author : Christine Bryden
Publisher : Jessica Kingsley Publishers
Page : 176 pages
File Size : 52,9 Mb
Release : 2012-02-15
Category : Health & Fitness
ISBN : 0857006452

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Who will I be when I die? by Christine Bryden Pdf

Christine Bryden was 46 years old when she was diagnosed with dementia, and in this book she describes her remarkable emotional, physical and spiritual journey in the three years immediately following. Offering rare first-hand insights into how it feels to gradually lose the ability to undertake tasks most people take for granted, it is made all the more remarkable by Christine's positivity and strength, and deep sense, drawn in part from her Christian faith, that life continues to have purpose and meaning. Originally published in Australia in 1998, the book is brought up-to-date with a new Foreword, Preface and Appendix, in which Christine explains how the disease has progressed over the years, and how she is today. It also contains many previously unseen photographs of Christine and her family, from around the time of her diagnosis up to the present day. Inspirational and informative in equal measure, Who will I be when I die? will be of interest to other people with dementia and their families, as well as to dementia care professionals.

Hearing the Person with Dementia

Author : Bernie McCarthy
Publisher : Jessica Kingsley Publishers
Page : 112 pages
File Size : 45,7 Mb
Release : 2011-07-15
Category : Health & Fitness
ISBN : 0857004999

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Hearing the Person with Dementia by Bernie McCarthy Pdf

Losing the ability to communicate can be a frustrating and difficult experience for people with dementia, their families and carers. As the disease progresses, the person with dementia may find it increasingly difficult to express themselves clearly, and to understand what others say. Written with both family and professional carers in mind, this book clearly explains what happens to communication as dementia progresses, how this may affect an individual's memory, language and senses, and how carers might need to adapt their approach as a result. Advocating a person-centred approach to dementia care, the author describes methods of verbal and non-verbal communication, techniques for communicating with people who can not speak or move easily, and strategies for communicating more effectively in specific day-to-day situations, including at mealtimes, whilst helping the person with dementia to bathe or dress, and whilst out and about. Exercises at the end of each chapter encourage the carer to reflect on their learning and apply it to their own circumstances, and guidelines for creating a life story with the person with dementia as a means of promoting good communication are also included. This concise, practical book is essential reading for family caregivers, professional care staff, and all those who work with, or who are training to work with, people with dementia.

People with Dementia Speak Out

Author : Lucy Whitman
Publisher : Unknown
Page : 304 pages
File Size : 41,5 Mb
Release : 2015
Category : Dementia
ISBN : 1849052700

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People with Dementia Speak Out by Lucy Whitman Pdf

People from a wide range of backgrounds reflect on their experiences of living with dementia, and what impact the condition has had on their lives. This timely collection offers a much-needed opportunity to hear the voices of people with dementia, as they demystify the condition and break down stigma and stereotypes.

Learning to Speak Alzheimer's

Author : Joanne Koenig Coste
Publisher : Houghton Mifflin Harcourt
Page : 177 pages
File Size : 44,7 Mb
Release : 2004-09-08
Category : Health & Fitness
ISBN : 9780547526829

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Learning to Speak Alzheimer's by Joanne Koenig Coste Pdf

A guide to more successful communication for the millions of Americans caring for someone with dementia: “Offers a fresh approach and hope.”—NPR Revolutionizing the way we perceive and live with Alzheimer’s, Joanne Koenig Coste offers a practical approach to the emotional well-being of both patients and caregivers that emphasizes relating to patients in their own reality. Her accessible and comprehensive method, which she calls habilitation, works to enhance communication between care partners and patients and has proven successful with thousands of people living with dementia. Learning to Speak Alzheimer’s also offers hundreds of practical tips, including how to: · cope with the diagnosis and adjust to the disease’s progression · help the patient talk about the illness · face the issue of driving · make meals and bath times as pleasant as possible · adjust room design for the patient’s comfort · deal with wandering, paranoia, and aggression “A fine addition to Alzheimer's and caregiving collections.”—Library Journal (starred review) “Promises to transform not only the lives of patients but those of care providers…This book is a gift.”—Sue Levkoff, coauthor of Aging Well

Dancing with Dementia

Author : Christine Bryden
Publisher : Jessica Kingsley Publishers
Page : 204 pages
File Size : 46,9 Mb
Release : 2005
Category : Health & Fitness
ISBN : 184310332X

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Dancing with Dementia by Christine Bryden Pdf

Christine Bryden was a top civil servant and single mother of three children when she was diagnosed with dementia at the age of 46. Dancing with Dementia is a vivid account of her experiences of living with dementia, exploring the effects of memory problems, loss of independence, difficulties in communication and the exhaustion of coping with simple tasks. She describes how, with the support of her husband Paul, she continues to lead an active life nevertheless, and explains how professionals and carers can help. This book is a thoughtful exploration of how dementia challenges our ideas of personal identity and of the process of self-discovery it can bring about.

Listen to the Talk of Us

Author : Patricia Kotai-Ewers
Publisher : Alzheimer's Australia (Wa)
Page : 200 pages
File Size : 42,9 Mb
Release : 2007-01-01
Category : Communication in medicine
ISBN : 0646474405

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Listen to the Talk of Us by Patricia Kotai-Ewers Pdf

This book is the story of how some people with dementia revealed their inner narratives in conversation. It is also an account of all that they taught the author about the value of listening with the heart, of giving others the gift of really being heard.

Telling Tales about Dementia

Author : Lucy Whitman
Publisher : Jessica Kingsley Publishers
Page : 226 pages
File Size : 44,5 Mb
Release : 2010
Category : Health & Fitness
ISBN : 9781843109419

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Telling Tales about Dementia by Lucy Whitman Pdf

In this book, thirty carers from different backgrounds and circumstances share their experiences of caring for a parent, partner or friend with dementia. This unique collection of personal accounts will be an engaging read for anyone affected by dementia in a personal or professional context, including social workers, practitioners and care staff.

Losing Me, While Losing You

Author : Jeanette A. Auger,Diane Tedford-Litle,Brenda Wallace-Allen
Publisher : Fernwood Publishing
Page : 218 pages
File Size : 40,5 Mb
Release : 2021-09-21T00:00:00Z
Category : Health & Fitness
ISBN : 9781773635019

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Losing Me, While Losing You by Jeanette A. Auger,Diane Tedford-Litle,Brenda Wallace-Allen Pdf

Losing Me, While Losing You is a long-needed resource to those providing care for people living with dementia — and for those providing care to the caregivers. In this book, caregivers speak from their own experiences of caring for loved ones with dementia; they cover when they first noticed behavioural changes, what they did and how their roles changed when they received the diagnosis, how the experiences changed their perceptions of themselves, especially in cases where important ones no longer recognized them or their, often long-standing, relationships. The caregivers also talked about what resources, if any, were available to support them through the caregiving journey and what recommendations they would make to government policymakers and to others in similar situations. This book is unique in that it documents the personal lived experience of loss which family, friends and caregivers go through as their roles, expectations and images of self are changed throughout the caregiving process.

Dementia with Dignity

Author : Judy Cornish
Publisher : Createspace Independent Publishing Platform
Page : 272 pages
File Size : 54,9 Mb
Release : 2019-01-22
Category : Alzheimer's disease
ISBN : 1974027627

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Dementia with Dignity by Judy Cornish Pdf

The revolutionary how-to guidebook that details ways to make it easier to provide dementia home care for people experiencing Alzheimer's or dementia. Alzheimer's home care is possible! Dementia with Dignity explains the groundbreaking new approach: the DAWN Method(R), designed so families and caregivers can provide home care. It outlines practical tools and techniques to help your loved one feel happier and more comfortable so that you can postpone the expense of long-term care. In this book you'll learn: -The basic facts about Alzheimer's and dementia, plus the skills lost and those not lost; -How to recognize and respond to the emotions caused by Alzheimer's or dementia, and avoid dementia-related behaviors; -Tools for working with an impaired person's moods and changing sense of reality; -Home care techniques for dealing with hygiene, safety, nutrition and exercise issues; -A greater understanding and appreciation of what someone with Alzheimer's or dementia is experiencing, and how your home care can increase home their emotional wellbeing. Wouldn't dementia home care be easier if you could get on the same page as your loved one? When we understand what someone experiencing Alzheimer's or dementia is going through, we can truly help them enjoy more peace and security at home. This book will help you recognize the unmet emotional needs that are causing problems, giving you a better understanding and ability to address them. The good news about dementia is that home care is possible. There are infinitely more happy times and experiences to be shared together. Be a part of caring for, honoring, and upholding the life of someone you love by helping them experience Alzheimer's or dementia with dignity. Judy Cornish is the author of The Dementia Handbook-How to Provide Dementia Care at Home, founder of the Dementia & Alzheimer's Wellbeing Network(R) (DAWN), and creator of the DAWN Method. She is also a geriatric care manager and elder law attorney, member of the National Association of Elder Law Attorneys (NAELA) and the American Society on Aging (ASA).

Engaging and Communicating with People who Have Dementia

Author : Eileen Eisner
Publisher : Unknown
Page : 0 pages
File Size : 44,7 Mb
Release : 2013
Category : Health & Fitness
ISBN : 1938870034

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Engaging and Communicating with People who Have Dementia by Eileen Eisner Pdf

Based on: Can do activities for adults with Alzheimer's disease: strength-based communication and programming / Eileen Eisner. Pro-Ed. c2001.

Broadening the dementia debate

Author : Bartlett, Ruth,O'Connor, Deborah
Publisher : Policy Press
Page : 169 pages
File Size : 46,9 Mb
Release : 2010-06-01
Category : Social Science
ISBN : 9781847428585

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Broadening the dementia debate by Bartlett, Ruth,O'Connor, Deborah Pdf

Dementia has been widely debated from the perspectives of biomedicine and social psychology. This book broadens the debate to consider the experiences of men and women with dementia from a sociopolitical perspective. It brings to the fore the concept of social citizenship, exploring what it means within the context of dementia and using it to re-examine the issue of rights, status(es), and participation. Most importantly, the book offers fresh and practical insights into how a citizenship framework can be applied in practice. It will be of interest to health and social care professionals, policy makers, academics and researchers and people with dementia and family carers may find it revitalising.

Life at Home for People with a Dementia

Author : Ruth Bartlett,Tula Brannelly
Publisher : Routledge
Page : 142 pages
File Size : 47,7 Mb
Release : 2018-06-14
Category : Social Science
ISBN : 9781351619691

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Life at Home for People with a Dementia by Ruth Bartlett,Tula Brannelly Pdf

Life at Home for People with a Dementia provides an evidence-based and readable account of improving life at home for people with a dementia and their families. There are estimated to be 47 million people with a dementia worldwide, the majority of whom will live, or want to live, in their own home. Yet there is a major shortcoming in available knowledge on what life is like for people with a dementia living at home. Most research focuses on care in hospitals or care homes, and takes a medical perspective. This book bridges this gap in knowledge by providing a comprehensive and critical overview of the best available evidence on enabling people with a dementia to live well at home from the viewpoint of those living with the condition, and in the context of global policy drivers on ageing and health, as well as technological advances. The book includes chapters on citizenships – that is, the diversity of people living with a dementia – enabling life at home, rethinking self-management, the ethics and care of people with a dementia at home, technological care and citizenship, and sharing responsibilities. It concludes with a care manifesto in which we set out a vision for improving life at home for people with a dementia that covers the areas of professional practice, education and care research. By covering a wide range of interrelated topics to advance understanding and practice as to how people with a dementia from diverse backgrounds can be supported to live well at home, this book provides a synthesised, critical and readable understanding of the complexities and risks involved.

Person-Centred Dementia Care, Second Edition

Author : Dawn Brooker,Isabelle Latham
Publisher : Jessica Kingsley Publishers
Page : 224 pages
File Size : 51,8 Mb
Release : 2015-11-21
Category : Health & Fitness
ISBN : 9781784501709

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Person-Centred Dementia Care, Second Edition by Dawn Brooker,Isabelle Latham Pdf

What is person-centred dementia care, and how can it be used to improve care for people from diagnosis to end of life? How can we improve services in people's own homes, in care homes, in supported housing and in hospitals? This substantially updated second edition considers recent developments in person-centred care, presenting refreshed guidelines for practice. Dawn Brooker and Isabelle Latham explain the evolution of the key principles of person-centred care that comprise the VIPS model. They describe how it has been applied in diverse service settings, and show how to put the model into practice. A new chapter dedicated to culture of care will help service managers to get to grips with this slippery concept, and includes important information on how to guard against neglectful practice. Case studies from the CHOICE programme, a research project on culture of care, demonstrate the key factors that are important for people living with advanced dementia and complex needs to live well.

Dementia and Literature

Author : Tess Maginess
Publisher : Routledge
Page : 194 pages
File Size : 52,7 Mb
Release : 2017-08-09
Category : Social Science
ISBN : 9781351798648

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Dementia and Literature by Tess Maginess Pdf

Dementia is an urgent global concern, often termed a widespread ‘problem’, ‘tragedy’ or ‘burden’ and a subject best addressed by health and social policy and practice. However, creative writers can offer powerful and imaginative insights into the experience of dementia across cultures and over time. This cross-disciplinary volume explores how engaging with dementia through its myriad literary representations can help to deepen and humanise attitudes to people living with the condition. Offering and interrogating a wide array of perspectives about how dementia might be ‘imagined’, this book allows us to see how different ways of being can inflect one another. By drawing on the ‘lived’ experience of the individual unique person and their loved ones, literature can contribute to a deeper and more compassionate and more liberating attitude to a phenomenon that is both natural and unnatural. Novels, plays and stories reveal a rich panoply of responses ranging from the tragic to the comic, allowing us to understand that people with dementia often offer us models of humour, courage and resilience, and carers can also embody a range of responses from rigidity to compassion. Dementia and Literature problematises the subject of dementia, encouraging us all to question our own hegemonies critically and creatively. Drawing on literary studies, cultural studies, education, clinical psychology, psychiatry, nursing and gerontology, this book is a fascinating contribution to the emerging area of the medical and health humanities. The book will be of interest to those living with dementia and their caregivers as well as to the academic community and policy makers.