Popularizing Dementia

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Popularizing Dementia

Author : Aagje Swinnen,Mark Schweda
Publisher : transcript Verlag
Page : 411 pages
File Size : 46,5 Mb
Release : 2015-11-30
Category : Social Science
ISBN : 9783839427101

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Popularizing Dementia by Aagje Swinnen,Mark Schweda Pdf

How are individual and social ideas of late-onset dementia shaped and negotiated in film, literature, the arts, and the media? And how can the symbolic forms provided by popular culture be adopted and transformed by those affected in order to express their own perspectives? This international and interdisciplinary volume summarizes central current research trends and opens new theoretical and empirical perspectives on dementia in popular culture. It includes contributions by internationally renowned scholars from the humanities, social and cultural gerontology, age(ing) studies, cultural studies, philosophy, and bioethics. Contributions by Lucy Burke, Marlene Goldman, Annette Leibing and others.

Fictions of Dementia

Author : Susanne Katharina Christ
Publisher : Walter de Gruyter GmbH & Co KG
Page : 540 pages
File Size : 53,6 Mb
Release : 2022-09-20
Category : Literary Criticism
ISBN : 9783110789805

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Fictions of Dementia by Susanne Katharina Christ Pdf

Taking its cues from both classical and post-classical narratologies, this study explores both forms and functions of the representation of dementia in Anglophone fictions. Initially, dementia is conceptualised as a narrative-epistemological paradox: The more those affected know what it is like to have dementia, the less they can tell about it. Narrative fiction is the only discourse that provides an imaginative glimpse at the subjective experience of dementia in language. The narratological modelling of four ‘narrative modes’ elaborates how the paradox becomes productive in fiction: Depending on the narrative perspective taken, but also on the type of narration, the technique for representing consciousness and the epistemic strategy of narrating dementia, the respective narrative modes come with different prerequisites and possibilities for narrating dementia. The analysis of four contemporary Anglophone dementia fictions based on the developed model reveals their potential functions: Fiction allows readers to learn about the challenges of dementia, grants them perspective-taking, it trains cognitive flexibility, and explores the meaning of memory, knowledge, narrative and imagination, and thus also offers trajectories of a cultural coping with dementia.

Contemporary Narratives of Dementia

Author : Sarah Falcus,Katsura Sako
Publisher : Routledge
Page : 228 pages
File Size : 42,7 Mb
Release : 2019-01-15
Category : Literary Criticism
ISBN : 9781317208235

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Contemporary Narratives of Dementia by Sarah Falcus,Katsura Sako Pdf

This book examines narratives of dementia in contemporary literary texts, studying what is now a pressing issue with deep political, economic, and social implications for many ageing societies. As part of the increasing visibility of dementia in social and cultural life, these narratives pose ethical, aesthetic, and political questions about subjectivity, agency, and care that help us to interrogate the cultural discourse of dementia. Contemporary Narratives of Dementia is a seminal book that offers a sustained examination of a wide range of literary narratives, from auto/biographies and detective fiction, to children’s books and comic books. With its wide-reaching theoretical and critical scope, its comparative dimension, and its inclusion of multiple genres, this book is important for scholars engaging with studies of dementia and ageing in diverse disciplines. Sarah Falcus is a Reader in Contemporary Literature at the University of Huddersfield, UK. She has research interests in contemporary women’s writing, feminism and literary gerontology. She is the co-director of the Dementia and Cultural Narrative (DCN) network. Katsura Sako is an Associate Professor of English, at Keio University, Japan. Her main field of research is in post-war/contemporary British literature, and she has particular interests in gender, ageing and illness. She is a member of the steering committee of the DCN network.

A Critical History of Dementia Studies

Author : James Rupert Fletcher,Andrea Capstick
Publisher : Taylor & Francis
Page : 220 pages
File Size : 52,8 Mb
Release : 2023-09-26
Category : Social Science
ISBN : 9781000937633

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A Critical History of Dementia Studies by James Rupert Fletcher,Andrea Capstick Pdf

This book offers the first ever critical history of dementia studies. Focusing on the emergence of dementia studies as a discrete area of academic interest in the late 20th and early 21st centuries, it draws on critical theory to interrogate the very notion of dementia studies as an entity, shedding light on the affinities and contradictions that characterise the field. Drawing together a collection of internationally renowned experts in a variety of fields, including people with dementia, this volume includes perspectives from education, the arts, human rights and much more. This critical history sets out the shared intellectual space of ‘dementia studies’, from which non-medical dementia research can progress. The book is intended for researchers, academics and students of dementia studies, social gerontology, disability, chronic illness, health and social care. It will also appeal to activists and practitioners engaged in social work and caregiving involved in dementia research.

Critical Dementia Studies

Author : Richard Ward,Linn J. Sandberg
Publisher : Taylor & Francis
Page : 334 pages
File Size : 55,6 Mb
Release : 2023-03-15
Category : Social Science
ISBN : 9781000864908

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Critical Dementia Studies by Richard Ward,Linn J. Sandberg Pdf

This book puts the critical into dementia studies. It makes a timely and novel contribution to the field, offering a thought-provoking critique of current thinking and debate on dementia. Collectively the contributions gathered together in this text make a powerful case for a more politically engaged and critical treatment of dementia and the systems and structures that currently govern and frame it. The book is inter-disciplinary and draws together leading dementia scholars alongside dementia activists from around the world. It frames dementia as first and foremost a political category. The book advances both theoretical and methodological thinking in the field as well as sharing learning from empirical research. Outlining the limits to existing efforts to frame and theorise the condition, it proposes a new critical movement for the field of dementia studies and practice. The book will be of direct interest to researchers and scholars in the field of dementia studies and wider fields of health, disability and care. It will provide a novel resource for students and practitioners in the fields of dementia, health care and social care. The book also has implications for dementia policymaking, commissioning and community development. The Open Access version of this book, available at http://www.taylorfrancis.com, has been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 license.

Dementia, Narrative and Performance

Author : Janet Gibson
Publisher : Springer Nature
Page : 301 pages
File Size : 49,8 Mb
Release : 2020-09-29
Category : Performing Arts
ISBN : 9783030465476

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Dementia, Narrative and Performance by Janet Gibson Pdf

Focusing mainly on case studies from Australia and the United States of America, this book considers how people with dementia represent themselves and are represented in ‘theatre of the real’ productions and care home interventions, assessing the extent to which the ‘right kind’ of dementia story is being affirmed or challenged. It argues that this type of story — one of tragedy, loss of personhood, biomedical deficit, and socio-economic ‘crisis — produces dementia and the people living with it, as much as biology does. It proposes two novel ideas. One is that the ‘gaze’ of theatre and performance offers a reframing of some of the behaviours and actions of people with dementia, through which deficit views can be changed to ones of possibility. The other is that, conversely, dementia offers productive perspectives on ’theatre of the real’. Scanning contemporary critical studies about and practices of ‘theatre of the real’ performances and applied theatre interventions, the book probes what it means when certain ‘theatre of the real’ practices (specifically verbatim and autobiographical) interact with storytellers considered, culturally, to be ‘unreliable narrators’. It also explores whether autobiographical theatre is useful in reinforcing a sense of ‘self’ for those deemed no longer to have one. With a focus on the relationship between stories and selves, the book investigates how selves might be rethought so that they are not contingent on the production of lucid self-narratives, consistent language, and truthful memories.

Dementia and Ethics Reconsidered

Author : Julian Hughes
Publisher : McGraw-Hill Education (UK)
Page : 312 pages
File Size : 42,7 Mb
Release : 2023-05-30
Category : Medical
ISBN : 9780335251018

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Dementia and Ethics Reconsidered by Julian Hughes Pdf

“In this masterful book, Julian Hughes makes a convincing case that many acts in clinical and care practice are ethical matters. Hughes takes us gently through a jungle of philosophical ideas and explores a series of ethical issues in dementia care, such as diagnosis, covert medication and end of life care. His humanity shines through as he favours a values-based approach to care, and concludes by declaring (in the spirit of Tom Kitwood) that the person must be placed first in order to do what is right and good for people living with dementia. A must-have volume for practitioners, social scientists and enlightened general readers.” Tom Dening, Professor of Dementia Research, School of Medicine, University of Nottingham, UK “This book is totally brilliant. The outstanding author Dr. Julian Hughes must now be considered the foremost ethicist of his generation when it comes to caring for individuals with dementia … This is now the book that everyone who cares about dementia and ethics must read, discuss, and implement. It is a huge contribution.” Stephen G. Post PhD, Director, Center for Medical Humanities, Compassionate Care & Bioethics Stony Brook University School of Medicine, USA “This book should be an essential read for all of us who support and navigate the ethical issues relating to people with dementia and their families.” Paul Edwards, Director of Clinical Services, Dementia UK Ethical issues are involved in every decision that is made in connection with someone living with dementia – from decisions about care and treatment to decisions about research and funding. This book encourages the reader to reconsider ethics in dementia care with the use of ‘patterns of practice’, an innovative idea developed by the author. The book highlights the importance of understanding the person’s narrative, of good communication, high quality care, and expert interpretation of the meaning of situations for people living with dementia. This book: • Reviews ethical theories and approaches in connection with dementia care • Considers issues such as such as stigma, quality of life, personhood, and citizenship in relation to dementia • Looks at issues relevant to research ethics • Presents case vignettes to highlight a complete spectrum of ethical issues that arise in dementia care • Is accessibly written for multiple audiences – from people living with dementia to practitioners Dementia and Ethics Reconsidered is a comprehensive account of thought and practice in relation to ethical issues that arise in the context of dementia care, which seeks to show how ethical thinking can be put into practice and prove relevant to day-to-day experience. The Reconsidering Dementia Series is an interdisciplinary series published by Open University Press that covers contemporary issues to challenge and engage readers in thinking deeply about the topic. The dementia fi eld has developed rapidly in its scope and practice over the past ten years and books in this series will unpack not only what this means for the student, academic and practitioner, but also for all those affected by dementia. Series Editors: Dr Keith Oliver and Professor Dawn Brooker MBE. Julian C. Hughes was a consultant in old age psychiatry. Having trained in both philosophy and medicine, he was appointed honorary professor of philosophy of ageing at Newcastle University, UK and subsequently professor of old age psychiatry at the University of Bristol, UK. He was deputy chair of the Nuffield Council on Bioethics, UK.

Preventing Dementia?

Author : Annette Leibing,Silke Schicktanz
Publisher : Berghahn Books
Page : 268 pages
File Size : 48,6 Mb
Release : 2020-10-06
Category : Medical
ISBN : 9781789209105

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Preventing Dementia? by Annette Leibing,Silke Schicktanz Pdf

The conceptualization of dementia has changed dramatically in recent years with the claim that, through early detection and by controlling several risk factors, a prevention of dementia is possible. Although encouraging and providing hope against this feared condition, this claim is open to scrutiny. This volume looks at how this new conceptualization ignores many of the factors which influence a dementia sufferers’ prognosis, including their history with education, food and exercise as well as their living in different epistemic cultures. The central aim is to question the concept of prevention and analyze its impact on aging people and aging societies.

Reconsidering Dementia Narratives

Author : Rebecca Bitenc
Publisher : Routledge
Page : 300 pages
File Size : 46,9 Mb
Release : 2019-07-05
Category : Social Science
ISBN : 9780429619502

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Reconsidering Dementia Narratives by Rebecca Bitenc Pdf

Reconsidering Dementia Narratives explores the role of narrative in developing new ways of understanding, interacting with, and caring for people with dementia. It asks how the stories we tell about dementia – in fiction, life writing and film – both reflect and shape the way we think about this important condition. Highlighting the need to attend to embodied and relational aspects of identity in dementia, the study further outlines ways in which narratives may contribute to dementia care, while disputing the idea that the modes of empathy fostered by narrative necessarily bring about more humane care practices. This cross-medial analysis represents an interdisciplinary approach to dementia narratives which range across auto/biography, graphic narrative, novel, film, documentary and collaborative storytelling practices. The book aims to clarify the limits and affordances of narrative, and narrative studies, in relation to an ethically driven medical humanities agenda through the use of case studies. Answering the key question of whether dementia narratives align with or run counter to the dominant discourse of dementia as ‘loss of self’, this innovative book will be of interest to anyone interested in dementia studies, ageing studies, narrative studies in health care, and critical medical humanities.

Dementia and Literature

Author : Tess Maginess
Publisher : Routledge
Page : 194 pages
File Size : 42,7 Mb
Release : 2017-08-09
Category : Social Science
ISBN : 9781351798648

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Dementia and Literature by Tess Maginess Pdf

Dementia is an urgent global concern, often termed a widespread ‘problem’, ‘tragedy’ or ‘burden’ and a subject best addressed by health and social policy and practice. However, creative writers can offer powerful and imaginative insights into the experience of dementia across cultures and over time. This cross-disciplinary volume explores how engaging with dementia through its myriad literary representations can help to deepen and humanise attitudes to people living with the condition. Offering and interrogating a wide array of perspectives about how dementia might be ‘imagined’, this book allows us to see how different ways of being can inflect one another. By drawing on the ‘lived’ experience of the individual unique person and their loved ones, literature can contribute to a deeper and more compassionate and more liberating attitude to a phenomenon that is both natural and unnatural. Novels, plays and stories reveal a rich panoply of responses ranging from the tragic to the comic, allowing us to understand that people with dementia often offer us models of humour, courage and resilience, and carers can also embody a range of responses from rigidity to compassion. Dementia and Literature problematises the subject of dementia, encouraging us all to question our own hegemonies critically and creatively. Drawing on literary studies, cultural studies, education, clinical psychology, psychiatry, nursing and gerontology, this book is a fascinating contribution to the emerging area of the medical and health humanities. The book will be of interest to those living with dementia and their caregivers as well as to the academic community and policy makers.

The Politics of Dementia

Author : Irmela Marei Krüger-Fürhoff,Nina Schmidt,Sue Vice
Publisher : Walter de Gruyter GmbH & Co KG
Page : 246 pages
File Size : 52,6 Mb
Release : 2021-11-22
Category : Social Science
ISBN : 9783110713701

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The Politics of Dementia by Irmela Marei Krüger-Fürhoff,Nina Schmidt,Sue Vice Pdf

Memory loss is not always viewed purely as a contingent neurobiological process present in an ageing population; rather, it is frequently related to larger societal issues and political debates. This edited volume examines how different media and genres – novels, auto/biographical writings, documentary as well as fictional films and graphic memoirs – represent dementia for the sake of critical explorations of memory, trauma and contested truths. In ten analytical chapters and one piece of graphic art, the contributors examine the ways in which what might seem to be the individual, ahistorical diseases of dementia are used in contemporary cultural texts to represent and respond to violent historical and political events – ranging from the Holocaust to postcolonial conditions – all of which can prove difficult to remember. Combining approaches from literary studies with insights from memory studies, trauma studies, anthropology, the critical medical humanities and media, film and comics studies, this volume explores the politics of dementia and incites new debates on cultures of remembrance, while remaining attentive to the lived reality of dementia.

The Loss of Small White Clouds

Author : Morgan Batch
Publisher : Taylor & Francis
Page : 175 pages
File Size : 43,6 Mb
Release : 2023-08-09
Category : Performing Arts
ISBN : 9781000922820

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The Loss of Small White Clouds by Morgan Batch Pdf

This volume seeks to instigate a discussion about dementia in theatre. The discussions in this book borrow from the literature on dementia’s representation in other artforms, while reflecting on theatre’s unique capacity to incorporate multiple artforms in a live context (hypermediacy). The author examines constructions of diegesis and the use of various performance tools, including physical theatre, puppetry, and postdramatic performance. She discusses stage representations of interior experiences of dementia; selfhood in dementia; the demarcation of those with dementia from those without; endings, erasure, and the pursuit of catharsis; placelessness and disruptions of traditional dramatic constructions of time; and ultimately, performances creatively led by people with dementia. The book traces patterns of narrativisation on the stage—including common dramaturgical forms, settings, and character relationships—as well as examples that transcend mainstream representation. This book is important reading for theatre and performance students, scholars, and practitioners, as well as cultural studies writers engaged in research about narratives of dementia.

Living With Dementia

Author : Lars-Christer Hydén,Eleonor Antelius
Publisher : Bloomsbury Publishing
Page : 192 pages
File Size : 52,9 Mb
Release : 2017-09-23
Category : Social Science
ISBN : 9781137593757

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Living With Dementia by Lars-Christer Hydén,Eleonor Antelius Pdf

Traditionally, dementia has been defined primarily in terms of loss: loss of cognitive and communicative competencies, loss of identity, loss of personal relationships. People living with dementia have been portrayed as increasingly dependent on others, with their loved ones seen more as care givers than as spouses, children and relatives. However, in the last two decades this view of the person living with dementia as an 'empty vessel' has been increasingly challenged, and the focus has shifted from one of care to one of helping people to live with dementia. With contributions from an international range of expert authors, Living with Dementia strongly advocates this new perspective through in-depth discussion of what people with dementia and their loved ones can do, and how they can actively make use of remaining resources. Topics covered include: - How to involve people with dementia in collaborative activities in the home, and the benefits this has on their cognitive and communicative abilities. - Ways in which identity can be presented and preserved through storytelling, and the impact on identity of moving from home into residential care. - The benefits of a 'citizenship' approach to dementia: of recognising that a person living with dementia is an active agent, with the right to self-determination and the ability to exert power over their own lives. This important new contribution to the dementia debate is truly enlightening reading for students across the full range of health and social care disciplines, and offers a fresh perspective to existing practitioners and those who care for people with dementia.

American Dementia

Author : Daniel R. George,Peter J. Whitehouse
Publisher : JHU Press
Page : 425 pages
File Size : 50,9 Mb
Release : 2021-09-14
Category : Health & Fitness
ISBN : 9781421440484

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American Dementia by Daniel R. George,Peter J. Whitehouse Pdf

Have the social safety nets, environmental protections, and policies to redress wealth and income inequality enacted after World War II contributed to declining rates of dementia today—and how do we improve brain health in the future? Winner of the American Book Fest Health: Aging/50+ by the American Book Fest, Living Now Book Award: Mature Living/Aging by the Living Now Book Awards For decades, researchers have chased a pharmaceutical cure for memory loss. But despite the fact that no disease-modifying biotech treatments have emerged, new research suggests that dementia rates have actually declined in the United States and Western Europe over the last decade. Why is this happening? And what does it mean for brain health in the future? In American Dementia, Daniel R. George, PhD, MSc, and Peter J. Whitehouse, MD, PhD, argue that the current decline of dementia may be strongly linked to mid–twentieth century policies that reduced inequality, provided widespread access to education and healthcare, and brought about cleaner air, soil, and water. They also • explain why Alzheimer's disease, an obscure clinical label until the 1970s, is the hallmark illness of our current hyper-capitalist era; • reveal how the soaring inequalities of the twenty-first century—which are sowing poverty, barriers to healthcare and education, loneliness, lack of sleep, stressful life events, environmental exposures, and climate change—are reversing the gains of the twentieth century and damaging our brains; • tackle the ageist tendencies in our culture, which disadvantage both vulnerable youth and elders; • make an evidence-based argument that policies like single-payer healthcare, a living wage, and universal access to free higher education and technical training programs will build collective resilience to dementia; • promote strategies that show how local communities can rise above the disconnection and loneliness that define our present moment and come together to care for our struggling neighbors. Ultimately, American Dementia asserts that actively remembering lessons from the twentieth century which help us become a healthier, wiser, and more compassionate society represents our most powerful intervention for preventing Alzheimer's and protecting human dignity. Exposing the inconvenient truths that confound market-based approaches to memory enhancement as well as broader social organization, the book imagines how we can act as citizens to protect our brains, build the cognitive resilience of younger generations, and rise to the moral challenge of caring for the cognitively frail.

Dementia and Society

Author : Mathieu Vandenbulcke,Rose-Marie Dröes,Erik Schokkaert
Publisher : Cambridge University Press
Page : 317 pages
File Size : 43,9 Mb
Release : 2022-06-09
Category : Medical
ISBN : 9781108911351

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Dementia and Society by Mathieu Vandenbulcke,Rose-Marie Dröes,Erik Schokkaert Pdf

Dementia is increasingly being recognised as a public health priority and poses one of the largest challenges we face as a society. At the same time, there is a growing awareness that the quest for a cure for Alzheimer's disease and other causes of dementia needs to be complemented by efforts to improve the lives of people with dementia. To gain a better understanding of dementia and of how to organize dementia care, there is a need to bring together insights from many different disciplines. Filling this knowledge gap, this book provides an integrated view on dementia resulting from extensive discussions between world experts from different fields, including medicine, social psychology, nursing, economics and literary studies. Working towards a development of integrative policies focused on social inclusion and quality of life, Dementia and Society reminds the reader that a better future for persons with dementia is a collective responsibility.