Quality Of Life For People With Intellectual And Other Developmental Disabilities
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Robert L. Schalock,James F. Gardner,Valerie J. Bradley
Author : Robert L. Schalock,James F. Gardner,Valerie J. Bradley Publisher : American Association Page : 0 pages File Size : 48,9 Mb Release : 2007 Category : Developmentally disabled ISBN : 0940898969
Quality of Life for People with Intellectual and Other Developmental Disabilities by Robert L. Schalock,James F. Gardner,Valerie J. Bradley Pdf
The concepts of quality of life and personal outcomes -- Quality domains and indicators -- Measuring personal outcomes: an information collection process -- Managerial strategies: opening the doors inward -- Personal outcome measures: values and metrics for an integrated management system -- Rationale for systems-level performance indicators that reflect personal outcomes -- Considerations in developing performance indicators at the macro level -- How do I use performance indicator data? -- Reframing quality and rethinking quality improvement -- Emerging challenges and opportunities.
Enhancing the Quality of Life of People with Intellectual Disabilities by Ralph Kober Pdf
This book contains a series of articles, written by international experts in the fields of intellectual disability and quality of life, that explore a broad range of issues that impact on the quality of life of people with intellectual disabilities and their families. The book commences with a general discussion on defining quality of life and family quality of life and the appropriateness of using these constructs in the field of intellectual disability, and is followed by an analysis on the effects of living arrangements and employment on quality of life. The book concludes with discussions on the unique issues facing children with intellectual disabilities and people living in developing countries and the effect these issues have upon their quality of life.
Author : Robert L. Schalock,Kenneth D. Keith Publisher : Unknown Page : 264 pages File Size : 53,8 Mb Release : 2016 Category : People with mental disabilities ISBN : 0996506845
Profound Intellectual and Multiple Disabilities by Jillian Pawlyn,Steven Carnaby Pdf
Children and adults with profound and multiple learningdisabilities (PMLD) are among the most marginalised people insociety. They have some of the highest support needs and are mostreliant on services. This accessible text presents and promotescurrent best practice regarding interventions to meet the complexhealth needs of a person with profound & multiple learningdisabilities. Practical in focus, this text provides evidence-basedguidance on meeting the complex needs of a person with PMLD. The text presents a range of complex health needs that apractitioner may face, such as communication, nutrition, epilepsy,vision and mobility. Each practice-focused chapter provides cleardefinitions of the condition, with current evidence-basedbest-practice supporting the intervention. Written by a team of professionals who have wide experience andinterest in this subject area, this text will be invaluable for allthose working with, and caring for those with profound and multiplelearning disabilities.
Health Care for People with Intellectual and Developmental Disabilities across the Lifespan by I. Leslie Rubin,Joav Merrick,Donald E. Greydanus,Dilip R. Patel Pdf
This book provides a broad overview of quality health care for people with intellectual and developmental disabilities (IDD). It focuses on providing the reader a practical approach to dealing with the health and well-being of people with IDD in general terms as well as in dealing with specific conditions. In addition, it offers the reader a perspective from many different points of view in the health care delivery system as well as in different parts of the world. This is the 3rd , and much expanded edition, of a text that was first published in 1989 (Lea and Fibiger). The second edition was published in 2006 (Paul Brookes) and has been used as a formal required text in training programs for physicians, nurses and nurse practitioners as well as by administrators who are responsible for programs serving people with IDD. This book is considered the “Bible” in the field of health care for people with IDD since 1989 when the first edition came out.
The authors apply ideas about quality of life to the field of disability to assist front-line professionals, managers and policy-makers in effective service provision. They examine the historical context of the concept of quality of life and discuss the application of quality of life in the daily lives of people who have disabilities.
Quality of Life for People with Disabilities by Roy I. Brown Pdf
Interest in quality of life has increased considerably over recent years and is now making considerable impact amongst all practitioners concerned with people with disabilities. This book looks critically at the concepts, assessment and practice as they relate to quality of life issues in many fields of disability. The issues for professional training and practice are evaluated and the benefits of involvement in creative activities are examined. Vocational, social and leisure implications for quality of life considerations are also explored in a number of chapters. Case studies and examples are used throughout the book to make this edition accessible and of real practical use to all those working with people with disabilities.
Life Planning for Adults with Developmental Disabilities by Judith Greenbaum Pdf
A Comprehensive Guide for Parents and Caregivers As any parent or caregiver of an individual with developmental disabilities can tell you, planning for the future of an adult with intellectual disabilities, Cerebral Palsy, severe autism, or another such condition requires hard work and good advice. While complete independence and self-reliance is out of reach for many adults with developmental disabilities, a productive, stable, and enjoyable life is certainly possible. But government and private support for parents and disabled individualsis scattered and difficult to negotiate. This book is a comprehensive guide to resources you can use to help an adult child or other individual with developmental disabilities for whom you care. The book begins by assessing the quality of life of the adult with a disability. It offers a wealth of suggestions for making that person's life even better. The book then focuses on long-term planning for the individual with a disability and helps answer the question, Who will take care of my child after I'm gone? Learn effective ways to: Assess a disabled individual's strengths and need for support services Develop a plan to for building a busy and productive life Locate good housing and employment opportunities Gather a supportive team of caregivers Advocate for a disabled individual with community agencies
The Environmental, Public Health, and Human Rights Impacts on Enhancing the Quality of Life of People with Intellectual Disability by Laura Elisabet Gomez Sanchez Pdf
Societal views on the human rights of persons with disabilities have significantly changed over the last four decades. However, while achieving equality, autonomy, nondiscrimination, participation, and inclusion should be a priority, abuses and violations of rights often occur in the most immediate environments of people with intellectual disability. This book is intended to provide greater visibility to people with intellectual disability, as full subjects of rights and improve their quality of life from a perspective of human rights, citizenship, and contextual analysis. We discuss the role of context, the provision of inclusive environments, and the improved health status at promoting quality of life-related personal outcomes and enhancing quality of life and equality for people with intellectual disability.
Author : David M. Romney,Roy I. Brown,Prem S. Fry Publisher : Springer Science & Business Media Page : 286 pages File Size : 52,9 Mb Release : 1994-11-30 Category : Education ISBN : 0792332342
Improving the Quality of Life by David M. Romney,Roy I. Brown,Prem S. Fry Pdf
Quality of Life as a Concept and Measurable Entity; T.R. Parmenter. Enhancing Quality of Life in the Population at Large; D.R. Evans. Forging Ahead: Linking Health and Behavior to Improve Quality of Life in Older People; M.G. Ory, D.M. Cox. Using Quality of Life Information to Set Priorities in Health Policy; R.M. Kaplan. Improving the Quality of Life of People with Severe Mental Disorders; C. Mercier. Quality of Life for Students with Disabilities in Transition from School to Adulthood; A.S. Halpern. Improving the Quality of Life: Prescriptions for Change; D.M. Romney, R.I. Brown, P.S. Fry.
Health Promotion for People with Intellectual and Developmental Disabilities by Laurence Taggart,Wendy Cousins Pdf
People with learning disabilities are affected by significantly more health problems than the general population and are much more likely to have significant health risks. Yet evidence suggests they are not receiving the same level of health education and health promotion opportunities as other members of society. This important, interdisciplinary book is aimed at increasing professional awareness of the importance of health promotion activities for people with intellectual and developmental disabilities. Written by an international board of experts, it is a thorough and comprehensive guide for students, professionals and carers. The book considers a variety of challenges faced by those with intellectual disabilities, from physical illnesses such as diabetes, epilepsy and sexual health issues, through to issues such as addiction, mental health and ageing. Contributors: Jim Blair, Penny Blake, Malin Broberg, Michael Brown, Eddie Chaplin, Bob Davies, Gillian Eastgate, Paul Fleming, Dora Fisher, Linda Goddard, Tamar Heller, John Heng, Thanos Karatzias, Mike Kerr, Nick Lennox, Tadhg MacIntyre, Beth Marks, Jane McCarthy,Judith Moyle,Karen Nankervis,Ruth Northway, Joseph O'Grady, Renee Proulx, Janet Robertson, Cathy Ross, Jasmina Sisirak, Eamonn Slevin, David S Stewart, William F. Sullivan, Beverley Temple, Hana Válková , Henny van Schrojenstein Lantman-de Valk. "I highly recommend this book to anyone working directly with people with an intellectual disability as well as professionals, academics and students who strive to promote issues and improve the lives of people with intellectual disabilities and their families." Agnes Lunny OBE, Chief Executive of Positive Futures, Northern Ireland "The editors and authors have done practitioners a great favour in bringing together in one volume a comprehensive account of how children and adults with intellectual disabilities can be supported to lead healthier lives." Roy McConkey, Professor of Developmental Disabilities, University of Ulster, Northern Ireland "This timely and important book synthesises current knowledge about health promotion interventions for people with intellectual disabilities. Written by leading researchers and practitioners, it should be on the bookshelves of everyone concerned with addressing the stark inequalities in health experienced by people with intellectual disabilities around the world." Eric Emerson, Professor of Disability Population Health, University of Sydney, Australia and Emeritus Professor of Disability and Health Research, Lancaster University, UK "This book is current and different from other textbooks I have used before. The book is pitched at a very easy to understand level and any healthcare professional or student working with people with intellectual and developmental disabilities can use it. The content is very up to date and relevant. The use of comprehensive authors with differing backgrounds demonstrates the textbook has a wide range of expertise and knowledge packed into it that makes the book very relevant learning disabilities practice. I will definitely be recommending this textbook to undergraduate nursing students in Learning Disabilities." Dorothy Kupara – Lecturer in Learning Disabilities Nursing, University of West London.
Author : Robert L. Schalock Publisher : American Association Page : 260 pages File Size : 51,6 Mb Release : 1990 Category : Political Science ISBN : UOM:39015019821753
The book deals with the concept of quality of life for persons with mental retardation and developmental disabilities. Part I, "Quality of Life: Personal Perspectives," contains "A Dream for Myself" (Connie Martinez); "Reflections on My Quality of Life: Then and Now" (Nancy Ward); "Quality of Life versus Quality of Life Judgments: A Parent's Perspective" (Diane Crutcher); "My Sister Angie: A Sibling's Perspective" (Jeff Jacoby); "Quality of Life and the Individual's Perspective" (Steven Taylor and Robert Bogdan); and "Thinking about and Discussing Quality of Life" (David Goode). Part II deals with service delivery issues and contains: "Home Is the Place: Quality of Life for Young Children with Developmental Disabilities" (David Coulter); "Quality of Life from Childhood to Adulthood" (Jack Stark and Tammi Goldsbury); "Persons in Transition" (Orv Karan and others); "Quality of Life: Issues in Community Integration" (Kenneth Keith); "Quality of Work Life" (William Kiernan and Kari Knutson); "Growing Old with Dignity: On Quality of Life for Older Persons with a Lifelong Disability" (Matthew Janicki); and "Quality of Life and Lifestyle Outcomes: A Challenge for Residential Programs" (G. Thomas Bellamy and others). Part III contains four papers that discuss assessment and measurement issues, including: "Attempts to Conceptualize and Measure Quality of Life" (Robert Schalock); "Quality of Life from a Longitudinal Research Perspective" (Robert Edgerton); "Methodological Issues in Measuring the Quality of Life of Individuals with Mental Retardation" (Laird Heal and Carol Sigelman); and "Quality of Life of Persons with Severe or Profound Mental Retardation." Part IV, which discusses the future of quality of life as a concept and a principle, comprises five papers, including: "Quality of Life and Public Philosophy" (H. Turnbull III and Gary Brunk); "A Lawyer's Perspective on Quality of Life" (Ruth Luckasson); "Quality Assurance: Challenges in a Decentralized System" (Valerie Bradley); "Measuring Quality of Life: Where Have We Been, Where Are We Going?" (James Conroy and Celia Feinstein), and "Where Do We Go from Here?" (Robert Schalock). (JDD)