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So, I've Got Parkinson's Disease by Terry Rummins Pdf
Terry was a psychologist. She retired from the job she loved as a result of her worsening disease. The unexpected reactions of some colleagues, friends and others are recounted with humour. Terry discovers how the 'difficult' can be easy and the 'easy', difficult. This is a candid story, containing a positive message for those recently diagnosed.
Challenging Assumptions Around Dementia by Rosalie Ashworth,Sue Fyvel,Alyson Hill,Chris Maddocks,Masood Qureshi,David Ross,Stuart Hay,Martin Robertson,Willy Gilder,Winnie Henry,Myra Lamont,Agnes Houston,Fred S. Wilson Pdf
This open access book explores the expectations surrounding dementia, what it ‘looks like’ and how people have been treated by others. It aims to raise awareness of the different types of dementia, and how they impact the brain, body, and lived experience, including experience of Alzheimer’s disease, Vascular Dementia, Posterior Cortical Atrophy, Frontotemporal Dementia, Semantic Dementia, and Lewy Body Dementia. The co-authors reflect on their experience with informal and formal care, before finishing with a focus on the spectrum of dementia research from clinical trials to user-led research. Throughout the book, co-authors have shared personal stories of how dementia has affected them and people with lived experience of dementia share what they wish people knew about living with the disease. Co-produced by people with lived experience of dementia, academics and health care professionals, this book is an accessible resource about dementia from the perspective of people actively involved in the field and essential reading for healthcare professionals wishing to learn more about the experience of this neuroprogressive condition, as well as policymakers, and members of the public.
Hospitalization and Parkinson’s Disease: Safety, Quality and Outcomes by Katherine Amodeo,Benjamin L. Walter,Michael S. Okun,Irene Hegeman Richard,Hooman Azmi Pdf
Parkinson’s Disease (PD) is a progressive neurodegenerative disorder that can result in motor and non-motor symptoms, following motor and non-motor basal ganglia circuitry degeneration. Motor features include rigidity and bradykinesia, as well as gait and balance difficulties, patients may also develop tremors. Pharmacological treatment is focused around replacing dopamine, and carbidopa/levodopa is the most used medication. In more advanced PD stages, motor symptoms become more challenging to manage.
Leadership at the Intersection of Gender and Race in Healthcare and Science by Danielle Laraque-Arena,Lauren Germain,Virginia Young,Rivers Laraque-Ho Pdf
This book takes a case study approach to explore leadership narratives of women in healthcare and science, paying attention to the intersection of gender, identity, and race in each story. Putting forward a new vision and pathway inclusive of the lived experiences and contributions of women worldwide, this text proposes a strength-based approach to meeting leadership challenges. Key themes discussed include leadership redefined by those not identifying as leaders, the influence of the intersectionality of race and gender on leadership, and the implications for how we teach about leadership in healthcare and science. Grounded in theory that is translated into practice and evidenced by the leadership case studies described, the book draws out useful tools and organizational learnings to support transformation of the landscape of clinical care, education, research and policies healthcare and science. This book is an invaluable reference for leaders at all levels across healthcare and science. It is also of interest to students and academics from gender studies, leadership studies, organization and governance, anthropology, sociology, higher education, public health, social work, nursing and medicine.
The New Parkinson's Disease Treatment Book by J. Eric Ahlskog, PhD, MD Pdf
The fundamental guide to the most effective treatments for Parkinson's Disease, from a Mayo Clinic doctor with thirty years of clinical and research experience. In this second edition follow-up to the extremely successful first edition, Dr. Ahlskog draws on thirty years of clinical experience to present the definitive guide to dealing with all aspects of Parkinson's Disease, from treatment options and side effects to the impact of the disease on caregivers and family. Dr. Ahlskog's goal is to educate patients so that they can better team up with their doctors to do battle with the disease, streamlining the decision-making process and enhancing their treatment. To do this, Dr. Ahlskog offers a gold mine of information, distilled from his years of experience treating people with Parkinson's at the Mayo Clinic. In addition to providing a comprehensive account of Parkinson's medications, this book also examines additional aspects of treatment, such as the role of nutrition, exercise, and physical therapy. Although many commendable texts have been written on the subject of Parkinson's Disease, their discussions of treatment have not been in depth. Dr. Ahlskog sifts through aspects of the disease in order to give the reader a comprehensive sense of Parkinson's and the best available treatment options. With a broader understanding of the disease and the available options, patients are able to make more informed choices, and doctors are able to provide more tailored care. This book delivers hopeful, helpful, and extensive information to all parties concerned: patients, caregivers, and doctors. The ultimate guide to symptoms and treatment, this thoroughly updated second edition is the first place patients should turn for reliable, easy-to-grasp information on Parkinson's Disease.
So, We Progress, Parkinson's and I by Terry Rummins Pdf
Author of Parkinson’s Disease (Matador, 2013) and So, I’ve Got Parkinson’s Disease (Matador, 2013), Terry Rummins shares her personal account of having Parkinson’s Disease from the point of view of someone who has had the condition for fourteen years. So, We Progress, Parkinson’s and I addresses a very complex neurological disorder that attacks movement and the initiation of movement. Written in a hopeful and positive manner, this book is for anyone experiencing the ‘enforced stillness’ of a developing Parkinson’s. Ideal for carers, friends, employers, the medical profession and all those people who have a long-term chronic situation. So, We Progress, Parkinson’s and Iexpresses the setbacks of failure and the joy of progress encountered in the four years since publication of Terry’s previous book. This book is an engaging account that includes practical approaches to everyday challenges including pain, dealing with ‘ons’ and ‘offs’ (the interaction of disease and medication), nutrition and drugs and the confusion that arises when additional difficulties occur. Woven with humour, this book encourages communication and highlights the importance of relationships. ‘This follow-up book, full of practical detail and common sense is at the same time inspirational. It is written in the same easy, flowing style as its predecessor and is surely essential reading for PD patients, their partners, families and friends, as well as their doctors.’ – Doctor Nigel Fieldman
I'll Hold Your Hand So You Won't Fall by Rasheda Ali Pdf
Sometimes Parkinson's disease is difficult for adults to deal with, so you can imagine how much more perplexing it must be for children. In this beautiful book, adults will have an opportunity to read and discuss with children the most common symptoms of Parkinson's in a safe and creativeenvironment that utilizes words, illustrations and medical factsabout the disease.
INSTANT NEW YORK TIMES BESTSELLER A moving account of resilience, hope, fear and mortality, and how these things resonate in our lives, by actor and advocate Michael J. Fox. The entire world knows Michael J. Fox as Marty McFly, the teenage sidekick of Doc Brown in Back to the Future; as Alex P. Keaton in Family Ties; as Mike Flaherty in Spin City; and through numerous other movie roles and guest appearances on shows such as The Good Wife and Curb Your Enthusiasm. Diagnosed at age 29, Michael is equally engaged in Parkinson’s advocacy work, raising global awareness of the disease and helping find a cure through The Michael J. Fox Foundation for Parkinson’s Research, the world’s leading non-profit funder of PD science. His two previous bestselling memoirs, Lucky Man and Always Looking Up, dealt with how he came to terms with the illness, all the while exhibiting his iconic optimism. His new memoir reassesses this outlook, as events in the past decade presented additional challenges. In No Time Like the Future: An Optimist Considers Mortality, Michael shares personal stories and observations about illness and health, aging, the strength of family and friends, and how our perceptions about time affect the way we approach mortality. Thoughtful and moving, but with Fox’s trademark sense of humor, his book provides a vehicle for reflection about our lives, our loves, and our losses. Running through the narrative is the drama of the medical madness Fox recently experienced, that included his daily negotiations with the Parkinson’s disease he’s had since 1991, and a spinal cord issue that necessitated immediate surgery. His challenge to learn how to walk again, only to suffer a devastating fall, nearly caused him to ditch his trademark optimism and “get out of the lemonade business altogether.” Does he make it all of the way back? Read the book.
A Top 10 Science Book of Fall 2015 - Publishers Weekly A star science journalist with Parkinson's reveals the inner workings of this perplexing disease Seven million people worldwide suffer from Parkinson's, and doctors, researchers, and patients continue to hunt for a cure. In Brain Storms, the award-winning journalist Jon Palfreman tells their story, a story that became his own when he was diagnosed with the debilitating illness. Palfreman chronicles how scientists have worked to crack the mystery of what was once called the shaking palsy, from the earliest clinical descriptions of tremors, gait freezing, and micrographia to the cutting edge of neuroscience, and charts the victories and setbacks of a massive international effort to best the disease. He takes us back to the late 1950s and the discovery of L-dopa. He delves into a number of other therapeutic approaches to this perplexing condition, from partial lobotomies and deep brain stimulation to neural grafting. And he shares inspiring stories of brave individuals living with Parkinson's, from a former professional ballet dancer who tricks her body to move freely again to a patient who cannot walk but astounds doctors when he is able to ride a bicycle with no trouble at all. With the baby boom generation beginning to retire and the population steadily aging, the race is on to discover a means to stop or reverse neurodegenerative conditions like Parkinson's and Alzheimer's. Brain Storms is the long-overdue, riveting, and deeply personal story of that race, and a passionate, insightful, and urgent look into the lives of those affected.
How does one deal with a diagnosis of Parkinson’s disease at the age of forty-three? My Degeneration, by former Anchorage Daily News staff cartoonist Peter Dunlap-Shohl, answers the question with humor and passion, recounting the author’s attempt to come to grips with the “malicious whimsy” of this chronic, progressive, and disabling disease. This graphic novel tracks Dunlap-Shohl’s journey through depression, the worsening symptoms of the disease, the juggling of medications and their side effects, the impact on relations with family and community, and the raft of mental and physical changes wrought by the malady. My Degeneration examines the current state of Parkinson’s care, including doctor/patient relations and the repercussions of a disease that, among other things, impairs movement, can rob patients of their ability to speak or write, degrades sufferers’ ability to deal with complexity, and interferes with the sense of balance. Readers learn what it’s like to undergo a dramatic, demanding, and audacious bit of high-tech brain surgery that can mysteriously restore much of a patient’s control over symptoms. But My Degeneration is more than a Parkinson’s memoir. Dunlap-Shohl gives the person newly diagnosed with Parkinson’s disease the information necessary to cope with it on a day-to-day basis. He chronicles the changes that life with the disease can bring to the way one sees the world and the way one is seen by the wider community. Dunlap-Shohl imparts a realistic basis for hope—hope not only to carry on, but to enjoy a decent quality of life.
"I'm flat on my back on a couch that's too short in a windowless room in the bureau. I can't even sit at a computer, much less make a keyboard work. My arms and legs are shaking uncontrollably. Although I am only 53 years old, I have already been struggling with Parkinson's disease for seven years. And right now the disease is winning." So begins Joel Havemann's account of the insidious disease that is Parkinson's. Into his own story, Havemann weaves accessible explanations of how Parkinson's disrupts the brain's circuitry, how symptoms are managed through drugs and surgery, and how people cope with the disease's psychological challenges. The updated paperback edition brings the discussion of treatment options and research thoroughly up to date.
Ending Parkinson's Disease by Ray Dorsey,Todd Sherer,Michael S. Okun,Bastiaan R. Bloem Pdf
In this "must-read" guide (Lonnie Ali), four leading doctors and advocates offer a bold action plan to prevent, care for, and treat Parkinson's disease-one of the great health challenges of our time. Brain diseases are now the world's leading source of disability. The fastest growing of these is Parkinson's: the number of impacted patients has doubled to more than six million over the last twenty-five years and is projected to double again by 2040. Harmful pesticides that increase the risk of Parkinson's continue to proliferate, many people remain undiagnosed and untreated, research funding stagnates, and the most effective treatment is now a half century old. In Ending Parkinson's Disease, four top experts provide a plan to help prevent Parkinson's, improve care and treatment, and end the silence associated with this devastating disease.