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Author : Cynthia S. Henry
Publisher : Jayjo Books
Page : 0 pages
File Size : 45,9 Mb
Release : 2000
Category : Cystic fibrosis in children
ISBN : 1891383094
Illustrations and simple text help children learn what cystic fibrosis is and how it is dealt with.
Author : Anonim
Publisher : Unknown
Page : 27 pages
File Size : 54,7 Mb
Release : 2000
Category : Children
ISBN : 0730876454
Author : Marcia Podolsky-Roy
Publisher : Unknown
Page : 184 pages
File Size : 44,6 Mb
Release : 1988
Category : Electronic
ISBN : OCLC:20606684
Author : David M. Orenstein,Jonathan E. Spahr,Daniel J. Weiner
Publisher : Lippincott Williams & Wilkins
Page : 788 pages
File Size : 51,7 Mb
Release : 2012-03-28
Category : Medical
ISBN : 9781451154382
This one-of-a-kind guide offers easy-to-understand explanations, advice, and management options for patients or parents of patients with cystic fibrosis. The book explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. As one reviewer said, this book “is the only complete answer book for everyone living with the disease. It is an indispensable resource for families of children with CF, adolescent and adult patients, and physicians, nurses, respiratory therapists, and social workers involved in the care of CF patients.”
Author : Sharon Giddings
Publisher : Infobase Publishing
Page : 153 pages
File Size : 55,9 Mb
Release : 2009
Category : Cystic fibrosis
ISBN : 9780791096949
Diseases.
Author : Diane Shader Smith
Publisher : Unknown
Page : 24 pages
File Size : 48,8 Mb
Release : 1997-01-01
Category : Cystic fibrosis
ISBN : 0970035306
Mallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."
Author : Andrew Bush
Publisher : Karger Medical and Scientific Publishers
Page : 341 pages
File Size : 48,8 Mb
Release : 2006
Category : Medical
ISBN : 9783805579605
Cystic fibrosis used to be thought of as a respiratory and digestive disease, with a uniformly and rapidly fatal outcome. The spectrum of the disease has broadened into the mild atypical case, presenting in middle age, with the potential for complications in virtually every system of the body. In the past few years there has been an explosion of knowledge of the basic science of the defect. The editors have therefore invited the leading scientists and clinicians in the field of cystic fibrosis to describe the recent advances in this disease. Although there are many 'Recent Advances' texts, previous books have been selective in their choice of topics. This book is the first to cover the entire field of this complex disease, and encompasses the rapidly moving topics of the basic molecular and cellular biology as well as the recent multi-system, multi-disciplinary advances in the clinical care of patients. The authors have been charged with writing only about new developments and not to rehash old literature. The bulk of the references is therefore less than five years old. This book addresses all professionals who treat cystic fibrosis and want to have an up-date of new findings in the field, particularly of those outside their immediate specialisation. It will also be useful for basic researchers interested in related scientific areas and the clinical context of their work.
Author : Mallory Smith
Publisher : Random House
Page : 336 pages
File Size : 55,6 Mb
Release : 2019-03-12
Category : Biography & Autobiography
ISBN : 9781984855435
The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.
Author : Stephanie Duggins Davis,Margaret Rosenfeld,James Chmiel
Publisher : Springer Nature
Page : 525 pages
File Size : 54,8 Mb
Release : 2020-05-21
Category : Medical
ISBN : 9783030423827
This book provides a comprehensive overview of the multisystem disease, cystic fibrosis, for both pediatric and adult patients. Written by experts in the field, the text outlines the progressive nature of CF as well as the impact of this autosomal recessive disease on the respiratory, gastrointestinal, endocrine, rheumatologic, and renal systems, as well as the patient’s mental health. The book begins with a chapter describing the history of cystic fibrosis and how the face of this life-shortening disease has changed over the past several decades. The following chapters elucidate the pathophysiology of how cystic fibrosis impacts each organ system. Current management and therapeutics are detailed with step-by-step guidelines for clinicians. This book is unique in that it highlights the entire person, not just the respiratory system, with detailed inclusion of the patient perspectives throughout, informing practice standards and considerations. This is an ideal guide for pediatric and adult physicians who care for patients with cystic fibrosis, as well as respiratory therapists, physical therapists, nurses, nutritionists, and pharmacists who care for these patients.
Author : Louise Byrne,Dómhnal Ó Bric,Cystic Fibrosis Association of Ireland,Cystic Fibrosis Association of Ireland Staff
Publisher : Unknown
Page : 128 pages
File Size : 50,6 Mb
Release : 2012
Category : Cystic fibrosis
ISBN : 1907107967
Features a superhero with cystic fibrosis who explores all the fun that school days offer. This book presents an action packed story for kids, along with positive and effective tips for parents and teachers.
Author : Susan Heinrichs Gray,Susan H. Gray
Publisher : Unknown
Page : 40 pages
File Size : 40,9 Mb
Release : 2003
Category : Juvenile Nonfiction
ISBN : 156766105X
The chronic condition of cystic fibrosis is explained to help children better understand and cope with the condition and to educate regarding the prospects of a cure.
Author : Melanie Ann Apel
Publisher : Scarecrow Press
Page : 288 pages
File Size : 54,9 Mb
Release : 2006
Category : Health & Fitness
ISBN : 081084821X
Describes the challenges of living with cystic fibrosis, as well as a description of the illness, and an explanation of procedures for diagnosis and therapy.
Author : Keith Ballard
Publisher : Psychology Press
Page : 204 pages
File Size : 43,7 Mb
Release : 1999
Category : Education
ISBN : 0750709340
"Inclusive education had its origins in the move of disabled children from segregated special settings to mainstream classrooms, on the premise that every child has the right to access the curriculum and other experiences of publicly funded schools. This book reports on studies by leading researchers in the USA, Britain, Australia, New Zealand, Norway and the Netherlands that set out to examine the meanings of inclusion in their various cultures and school systems. The emphasis in each of the studies is on attending to the voices of those most directly involved - the students, parents and teachers. They tell us about the complexity of the issues in this area, suggesting guidelines for teachers and other professionals working with disabled children."--BOOK JACKET.Title Summary field provided by Blackwell North America, Inc. All Rights Reserved
Author : Meghan Behse,Liam Wilson
Publisher : Unknown
Page : 24 pages
File Size : 40,6 Mb
Release : 2020-05-05
Category : Juvenile Fiction
ISBN : 1771804009
Liam couldn't be happier. He's off to kindergarten, where he's going to make a million new friends and learn a billion new things! Mom is worried about Liam going to school, but Liam knows he'll be fine. He has his oxygen mask and his medication for lunch and snack time. Plus, he knows he's strong as a tree. You see, Liam has a great big tree in his backyard. Mom says trees need lots of oxygen from the air, just like his lungs. And they need food from the ground, just like his tummy. Sometimes, their tree gets sick, sicker than the other trees. That's when Mom and Liam give it special food and extra love, and it grows big and strong again. School is everything Liam hoped it would be. And when Liam needs his oxygen mask or medication, his friends know that Liam just needs a little extra help to be strong like the others. Until one winter's day, when Liam catches a cold. Inspired by a real boy and his first year of school while battling cystic fibrosis, read how Liam's young friends, with compassion and support, remind Liam of his own strength during the isolating time of illness.
Author : Anne H. Thomson,Ann Harris
Publisher : Facts
Page : 163 pages
File Size : 41,5 Mb
Release : 2008
Category : Medical
ISBN : 9780199295807
This title explains clearly what is happening to the body in cystic fibrosis, what causes it and what treatment options are available for the different aspects of the disease. It also looks to the future in terms of potential new therapies and provides useful information on organisations that can provide help.