The Art Of Caregiving In Fiction Film And Memoir

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The Art of Caregiving in Fiction, Film, and Memoir

Jeffrey Berman
The Art of Caregiving in Fiction Film and Memoir Book PDF

Author : Jeffrey Berman
Publisher : Bloomsbury Publishing
Page : 296 pages
File Size : 42,9 Mb
Release : 2020-10-29
Category : Literary Criticism
ISBN : 9781350166585

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The Art of Caregiving in Fiction, Film, and Memoir by Jeffrey Berman Pdf

Bringing together the human story of care with its representation in film, fiction and memoir, this book combines an analysis of care narratives to inform and inspire ideas about this major role in life. Alongside analysis of narratives drawn from literature and film, the author sensitively interweaves the story of his wife's illness and care to illuminate perspectives on dealing with human decline. Examining texts from a diverse range of authors such as Leo Tolstoy, Edith Wharton and Alice Munro, and filmmakers such as Ingmar Bergman and Michael Haneke, it addresses questions such as why caregiving is a dangerous activity, the ethical problems of writing about caregiving, the challenges of reading about caregiving, and why caregiving is so important. It serves as a fire starter on the subject of how we can gain insight into the challenges and opportunities of caregiving through the creative arts.

The Revised Fundamentals of Caregiving

Jonathan Evison
The Revised Fundamentals of Caregiving Book PDF

Author : Jonathan Evison
Publisher : HarperAvenue
Page : 304 pages
File Size : 47,9 Mb
Release : 2015-08-25
Category : Fiction
ISBN : 1443447471

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The Revised Fundamentals of Caregiving by Jonathan Evison Pdf

For Ben Benjamin, all has been lost-his wife, his family, his home, his livelihood. Hoping to find a new direction, he has enrolled in a night class called the Fundamentals of Caregiving. There he learns the basics of the art of inserting catheters while avoiding liability, and he is instructed about professionalism and how to keep an emotional distance between client and provider. But when Ben is assigned his first client-a tyrannical nineteen-year-old boy named Trevor who is in the advanced stages of Duchenne muscular dystrophy-he soon discovers that the endless service checklists have done nothing to prepare him for the reality of caring for a fiercely stubborn, sexually frustrated teenager who has an ax to grind with the whole world. Over time, the relationship between Ben and Trev, which had begun with mutual misgivings, evolves into a close friendship, and the traditional boundaries between patient and caregiver begin to blur. The bond between them strengthens while they're on a road trip to visit Trev's ailing father-a journey diverted by a series of bizarre must-see roadside attractions that propels them into an impulsive adventure disrupted by one birth, two arrests, a freakish dust storm, and a six-hundred-mile cat-and-mouse pursuit by a mysterious brown Buick Skylark. By the end of that journey, Trev has had his first taste of love, and Ben has found a new reason to love life. Bursting with energy and filled with moments of absolute beauty, this big-hearted and inspired novel ponders life's terrible surprises as well as the heart's uncanny capacity to mend.

My Lovely Wife

Mark Lukach
My Lovely Wife Book PDF

Author : Mark Lukach
Publisher : Bluebird
Page : 320 pages
File Size : 52,7 Mb
Release : 2018-06-26
Category : Husband and wife
ISBN : 1509805966

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My Lovely Wife by Mark Lukach Pdf

Mark and Giulia's life together began as a storybook romance. They fell in love at eighteen, married at twenty-four, and were living their dream life in San Francisco. When Giulia was twenty-seven, she suffered a terrifying and unexpected psychotic break that landed her in the psych ward for nearly a month. One day she was vibrant and well-adjusted; the next she was delusional and suicidal, convinced that she was the devil and that her loved ones were not safe. All she wanted was to die. Eventually, Giulia fully recovered, and the couple had a son. But, soon after Jonas was born, Giulia had another breakdown, and then a third a few years after that. pushed to the edge of the abyss, everything the couple had once taken for granted was upended. A story of the fragility of the mind, and the tenacity of the human spirit, My Lovely Wife is, above all, a love story that raises profound questions: How do we care for the people we love? What and who do we live for? Breathtaking in its candor, radiant with compassion, and written with dazzling lyricism, Lukach's is an intensely personal odyssey through the harrowing years of his wife's mental illness, anchored by an abiding devotion to family that will affirm readers' faith in the power of love.

Can't We Talk about Something More Pleasant?

Roz Chast
Can t We Talk about Something More Pleasant Book PDF

Author : Roz Chast
Publisher : Bloomsbury Publishing USA
Page : 240 pages
File Size : 47,9 Mb
Release : 2014-05-06
Category : Biography & Autobiography
ISBN : 9781620406380

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Can't We Talk about Something More Pleasant? by Roz Chast Pdf

#1 New York Times Bestseller 2014 NATIONAL BOOK AWARD FINALIST In her first memoir, New Yorker cartoonist Roz Chast brings her signature wit to the topic of aging parents. Spanning the last several years of their lives and told through four-color cartoons, family photos, and documents, and a narrative as rife with laughs as it is with tears, Chast's memoir is both comfort and comic relief for anyone experiencing the life-altering loss of elderly parents. When it came to her elderly mother and father, Roz held to the practices of denial, avoidance, and distraction. But when Elizabeth Chast climbed a ladder to locate an old souvenir from the “crazy closet”-with predictable results-the tools that had served Roz well through her parents' seventies, eighties, and into their early nineties could no longer be deployed. While the particulars are Chast-ian in their idiosyncrasies-an anxious father who had relied heavily on his wife for stability as he slipped into dementia and a former assistant principal mother whose overbearing personality had sidelined Roz for decades-the themes are universal: adult children accepting a parental role; aging and unstable parents leaving a family home for an institution; dealing with uncomfortable physical intimacies; managing logistics; and hiring strangers to provide the most personal care. An amazing portrait of two lives at their end and an only child coping as best she can, Can't We Talk about Something More Pleasant will show the full range of Roz Chast's talent as cartoonist and storyteller.

The Soul of Care

Arthur Kleinman
The Soul of Care Book PDF

Author : Arthur Kleinman
Publisher : Penguin
Page : 272 pages
File Size : 50,5 Mb
Release : 2019-09-17
Category : Biography & Autobiography
ISBN : 9780525559337

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The Soul of Care by Arthur Kleinman Pdf

A moving memoir and an extraordinary love story that shows how an expert physician became a family caregiver and learned why care is so central to all our lives and yet is at risk in today's world. When Dr. Arthur Kleinman, an eminent Harvard psychiatrist and social anthropologist, began caring for his wife, Joan, after she was diagnosed with early-onset Alzheimer's disease, he found just how far the act of caregiving extended beyond the boundaries of medicine. In The Soul of Care: The Moral Education of a Husband and a Doctor, Kleinman delivers a deeply humane and inspiring story of his life in medicine and his marriage to Joan, and he describes the practical, emotional and moral aspects of caretaking. He also writes about the problems our society faces as medical technology advances and the cost of health care soars but caring for patients no longer seems important. Caregiving is long, hard, unglamorous work--at moments joyous, more often tedious, sometimes agonizing, but it is always rich in meaning. In the face of our current political indifference and the challenge to the health care system, he emphasizes how we must ask uncomfortable questions of ourselves, and of our doctors. To give care, to be "present" for someone who needs us, and to feel and show kindness are deep emotional and moral experiences, enactments of our core values. The practice of caregiving teaches us what is most important in life, and reveals the very heart of what it is to be human.

The Accidental Caregiver

Gregor Collins
The Accidental Caregiver Book PDF

Author : Gregor Collins
Publisher : Balboa Press
Page : 380 pages
File Size : 47,7 Mb
Release : 2020-04
Category : Electronic
ISBN : 1982241683

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The Accidental Caregiver by Gregor Collins Pdf

"From the most unlikely of unlikely romances comes a deeply felt, touching, humorous exploration of what love and age mean in today's world. I can't recommend this book highly enough." -- Stan Evans, Emmy-award winning writer, and author of Box of Mustaches When thirty-two-year-old actor Gregor Collins reluctantly interviewed for a job as a caregiver more out of a favor to a friend - he had no idea his life was about to change forever.Seconds into the chance meeting in 2008 with, it would turn out, a world-renowned Holocaust refugee named Maria Altmann, there was an unexplainable magic in the air - it felt as if they had already met. And Collins was suddenly thrown into a situation with which he had never before been confronted: caring for someone other than himself.Gregor offers us a personal and unprecedented look at Maria over the three intimate years he cared for her - her thrilling escape from the Nazis, her fight and subsequent win in the landmark Supreme Court Case to return original Gustav Klimt artwork that belonged to her family in Austria, and the extraordinary people she met along the way. But the real heart of the story transcends mere historical facts.Through a refreshingly raw portrayal of their unlikely and unbreakable bond, imbued with humorous, candid anecdotes about his mercurial relationship with Hollywood, Gregor takes us on a deeply emotional journey of how he opened up his heart to a 92-year-old woman in need - and in turn experienced the love he had been searching for his entire life.

Self-Portrait

Celia Paul
Self Portrait Book PDF

Author : Celia Paul
Publisher : New York Review of Books
Page : 225 pages
File Size : 46,7 Mb
Release : 2020-11-10
Category : Biography & Autobiography
ISBN : 9781681374833

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Self-Portrait by Celia Paul Pdf

A rich, penetrating memoir about the author's relationship with a flawed but influential figure—the painter Lucian Freud—and the satisfactions and struggles of a life lived through art. One of Britain's most important contemporary painters, Celia Paul has written a reflective, intimate memoir of her life as an artist. Self-Portrait tells the artist's story in her own words, drawn from early journal entries as well as memory, of her childhood in India and her days as a art student at London's Slade School of Fine Art; of her intense decades-long relationship with the older esteemed painter Lucian Freud and the birth of their son; of the challenges of motherhood, the unresolvable conflict between caring for a child and remaining commited to art; of the "invisible skeins between people," the profound familial connections Paul communicates through her paintings of her mother and sisters; and finally, of the mystical presence in her own solitary vision of the world around her. Self-Portrait is a powerful, liberating evocation of a life and of a life-long dedication to art.

The Revised Fundamentals of Caregiving

Jonathan Evison
The Revised Fundamentals of Caregiving Book PDF

Author : Jonathan Evison
Publisher : HarperCollins
Page : 304 pages
File Size : 55,5 Mb
Release : 2015-08-25
Category : Fiction
ISBN : 9781443447485

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The Revised Fundamentals of Caregiving by Jonathan Evison Pdf

For Ben Benjamin, all has been lost—his wife, his family, his home, his livelihood. Hoping to find a new direction, he has enrolled in a night class called the Fundamentals of Caregiving. There he learns the basics of the art of inserting catheters while avoiding liability, and he is instructed about professionalism and how to keep an emotional distance between client and provider. But when Ben is assigned his first client—a tyrannical nineteen-year-old boy named Trevor who is in the advanced stages of Duchenne muscular dystrophy—he soon discovers that the endless service checklists have done nothing to prepare him for the reality of caring for a fiercely stubborn, sexually frustrated teenager who has an ax to grind with the whole world. Over time, the relationship between Ben and Trev, which had begun with mutual misgivings, evolves into a close friendship, and the traditional boundaries between patient and caregiver begin to blur. The bond between them strengthens while they're on a road trip to visit Trev's ailing father—a journey diverted by a series of bizarre must-see roadside attractions that propels them into an impulsive adventure disrupted by one birth, two arrests, a freakish dust storm, and a six-hundred-mile cat-and-mouse pursuit by a mysterious brown Buick Skylark. By the end of that journey, Trev has had his first taste of love, and Ben has found a new reason to love life. Bursting with energy and filled with moments of absolute beauty, this big-hearted and inspired novel ponders life's terrible surprises as well as the heart's uncanny capacity to mend.

Blow Your House Down

Gina Frangello
Blow Your House Down Book PDF

Author : Gina Frangello
Publisher : Catapult
Page : 337 pages
File Size : 50,5 Mb
Release : 2022-04-12
Category : Biography & Autobiography
ISBN : 9781640095250

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Blow Your House Down by Gina Frangello Pdf

A Good Morning America Recommended Book • A BuzzFeed Most Anticipated Book of the Year • A Lit Hub Most Anticipated Book of the Year • A Rumpus Most Anticipated Book of the Year • A Bustle Most Anticipated Book of the Month "A pathbreaking feminist manifesto, impossible to put down or dismiss. Gina Frangello tells the morally complex story of her adulterous relationship with a lover and her shortcomings as a mother, and in doing so, highlights the forces that shaped, silenced, and shamed her: everyday misogyny, puritanical expectations regarding female sexuality and maternal sacrifice, and male oppression." —Adrienne Brodeur, author of Wild Game Gina Frangello spent her early adulthood trying to outrun a youth marked by poverty and violence. Now a long-married wife and devoted mother, the better life she carefully built is emotionally upended by the death of her closest friend. Soon, awakened to fault lines in her troubled marriage, Frangello is caught up in a recklessly passionate affair, leading a double life while continuing to project the image of the perfect family. When her secrets are finally uncovered, both her home and her identity will implode, testing the limits of desire, responsibility, love, and forgiveness. Blow Your House Down is a powerful testimony about the ways our culture seeks to cage women in traditional narratives of self-sacrifice and erasure. Frangello uses her personal story to examine the place of women in contemporary society: the violence they experience, the rage they suppress, the ways their bodies often reveal what they cannot say aloud, and finally, what it means to transgress "being good" in order to reclaim your own life.

Already Toast

Kate Washington
Already Toast Book PDF

Author : Kate Washington
Publisher : Beacon Press
Page : 226 pages
File Size : 40,6 Mb
Release : 2021-03-16
Category : Medical
ISBN : 9780807011508

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Already Toast by Kate Washington Pdf

The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.

Last Things

Marissa Moss
Last Things Book PDF

Author : Marissa Moss
Publisher : Red Wheel/Weiser
Page : 184 pages
File Size : 46,8 Mb
Release : 2017-05-01
Category : Biography & Autobiography
ISBN : 9781573246989

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Last Things by Marissa Moss Pdf

Last Things is the true and intensely personal story of how one woman coped with the devastating effects of a catastrophic illness in her family. Using her trademark mix of words and pictures to sharp effect, Marissa Moss presents the story of how she, her husband, and her three young sons struggled to maintain their sense of selves and wholeness as a family and how they continued on with everyday life when the earth shifted beneath their feet. After returning home from a year abroad, Marissa's husband, Harvey, was diagnosed with ALS. The disease progressed quickly, and Marissa was soon consumed with caring for Harvey while trying to keep life as normal as possible for her young children. ALS stole the man who was her husband, the father of her children, and her best friend in less than 7 months. This is not a story about the redemptive power of a terminal illness. It is a story of resilience - of how a family managed to survive a terrible loss and grow in spite of it. Although it's a sad story, it's powerfully told and ultimately uplifting as a guide to strength and perseverance, to staying connected to those who matter most in the midst of a bleak upheaval. If you've ever wondered how you would cope with a dire diagnosis, this book can provide a powerful example of what it feels like and how to come through the darkness into the light. Last Things is one of the most amazingly poignant and honest memoirs - graphic or otherwise -- I've ever encountered. This book - which I read in one insatiable sitting -- tore my heart in two. Moss handles the material with such a delicate sensibility, both with her drawings and her text, I couldn't help but let her carry me along on her journey of love and loss. ---Katie Hafner, contributing writer to The New York Times and author of Mother, Daughter, Me: A Memoir

Say Say Say

Lila Savage
Say Say Say Book PDF

Author : Lila Savage
Publisher : Knopf
Page : 178 pages
File Size : 45,5 Mb
Release : 2019
Category : Fiction
ISBN : 9780525655923

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Say Say Say by Lila Savage Pdf

"This is a Borzoi book"--Copyright page.

On Vanishing

Lynn Casteel Harper
On Vanishing Book PDF

Author : Lynn Casteel Harper
Publisher : Catapult
Page : 126 pages
File Size : 43,5 Mb
Release : 2020-04-14
Category : Social Science
ISBN : 9781948226295

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On Vanishing by Lynn Casteel Harper Pdf

A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.

In the Quick

Kate Hope Day
In the Quick Book PDF

Author : Kate Hope Day
Publisher : Random House Trade Paperbacks
Page : 273 pages
File Size : 54,5 Mb
Release : 2022-06-21
Category : Fiction
ISBN : 9780525511274

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In the Quick by Kate Hope Day Pdf

GOOD MORNING AMERICA BUZZ PICK • A young, ambitious female astronaut’s life is upended by a love affair that threatens the rescue of a lost crew in this brilliantly imagined novel “with echoes of Station Eleven, The Martian, and, yes, Jane Eyre” (Observer). NAMED ONE OF THE BEST BOOKS OF THE YEAR BY VULTURE AND SHE READS • “The female astronaut novel we never knew we needed.”—Entertainment Weekly June is a brilliant but difficult girl with a gift for mechanical invention who leaves home to begin grueling astronaut training at the National Space Program. Younger by two years than her classmates at Peter Reed, the school on campus named for her uncle, she flourishes in her classes but struggles to make friends and find true intellectual peers. Six years later, she has gained a coveted post as an engineer on a space station—and a hard-won sense of belonging—but is haunted by the mystery of Inquiry, a revolutionary spacecraft powered by her beloved late uncle’s fuel cells. The spacecraft went missing when June was twelve years old, and while the rest of the world seems to have forgotten the crew, June alone has evidence that makes her believe they are still alive. She seeks out James, her uncle’s former protégé, also brilliant, also difficult, who has been trying to discover why Inquiry’s fuel cells failed. James and June forge an intense intellectual bond that becomes an electric attraction. But the relationship that develops between them as they work to solve the fuel cell’s fatal flaw threatens to destroy everything they’ve worked so hard to create—and any chance of bringing the Inquiry crew home alive. A propulsive narrative of one woman’s persistence and journey to self-discovery, In the Quick is an exploration of the strengths and limits of human ability in the face of hardship, and the costs of human ingenuity. This edition includes a bonus chapter.

MOTHERCARE

Lynne Tillman
MOTHERCARE Book PDF

Author : Lynne Tillman
Publisher : Catapult
Page : 177 pages
File Size : 54,9 Mb
Release : 2023-11-07
Category : Family & Relationships
ISBN : 9781593767624

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MOTHERCARE by Lynne Tillman Pdf

"Mothercare represents an investigation of the question of duty, or conscience, what we owe or want to provide to the people in our lives. . . For a reader, there’s something bracing about Tillman’s honesty, which transforms “Mothercare” from a record or a logbook into a work of art." —David Ulin, Los Angeles Times From the brilliantly original novelist and cultural critic Lynne Tillman comes MOTHERCARE, an honest and beautifully written account of a sudden, drastically changed relationship to one’s mother, and of the time and labor spent navigating the American healthcare system. When a mother’s unusual health condition, normal pressure hydrocephalus, renders her entirely dependent on you, your sisters, caregivers, and companions, the unthinkable becomes daily life. In MOTHERCARE, Tillman describes doing what seems impossible: handling her mother as if she were a child and coping with a longtime ambivalence toward her. In Tillman’s celebrated style and as a “rich noticer of strange things” (Colm Tóibín), she describes, without flinching, the unexpected, heartbreaking, and anxious eleven years of caring for a sick parent. MOTHERCARE is both a cautionary tale and sympathetic guidance for anyone who suddenly becomes a caregiver. This story may be helpful, informative, consoling, or upsetting, but it never fails to underscore how impossible it is to get the job done completely right.