The Final Report Appendix 4b National Commission On Confidentiality Of Health Records Report

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Protecting Data Privacy in Health Services Research

Author : Institute of Medicine,Division of Health Care Services,Committee on the Role of Institutional Review Boards in Health Services Research Data Privacy Protection
Publisher : National Academies Press
Page : 208 pages
File Size : 46,8 Mb
Release : 2001-01-13
Category : Computers
ISBN : 9780309071871

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Protecting Data Privacy in Health Services Research by Institute of Medicine,Division of Health Care Services,Committee on the Role of Institutional Review Boards in Health Services Research Data Privacy Protection Pdf

The need for quality improvement and for cost saving are driving both individual choices and health system dynamics. The health services research that we need to support informed choices depends on access to data, but at the same time, individual privacy and patient-health care provider confidentiality must be protected.

Registries for Evaluating Patient Outcomes

Author : Agency for Healthcare Research and Quality/AHRQ
Publisher : Government Printing Office
Page : 396 pages
File Size : 54,5 Mb
Release : 2014-04-01
Category : Medical
ISBN : 9781587634338

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Registries for Evaluating Patient Outcomes by Agency for Healthcare Research and Quality/AHRQ Pdf

This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

The Belmont Report

Author : United States. National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research
Publisher : Unknown
Page : 614 pages
File Size : 50,8 Mb
Release : 1978
Category : Human experimentation in medicine
ISBN : UCSD:31822000897728

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The Belmont Report by United States. National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research Pdf

Final Report of the Truth and Reconciliation Commission of Canada, Volume One: Summary

Author : Truth and Reconciliation Commission of Canada
Publisher : James Lorimer & Company
Page : 673 pages
File Size : 52,9 Mb
Release : 2015-07-22
Category : History
ISBN : 9781459410695

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Final Report of the Truth and Reconciliation Commission of Canada, Volume One: Summary by Truth and Reconciliation Commission of Canada Pdf

This is the Final Report of Canada's Truth and Reconciliation Commission and its six-year investigation of the residential school system for Aboriginal youth and the legacy of these schools. This report, the summary volume, includes the history of residential schools, the legacy of that school system, and the full text of the Commission's 94 recommendations for action to address that legacy. This report lays bare a part of Canada's history that until recently was little-known to most non-Aboriginal Canadians. The Commission discusses the logic of the colonization of Canada's territories, and why and how policy and practice developed to end the existence of distinct societies of Aboriginal peoples. Using brief excerpts from the powerful testimony heard from Survivors, this report documents the residential school system which forced children into institutions where they were forbidden to speak their language, required to discard their clothing in favour of institutional wear, given inadequate food, housed in inferior and fire-prone buildings, required to work when they should have been studying, and subjected to emotional, psychological and often physical abuse. In this setting, cruel punishments were all too common, as was sexual abuse. More than 30,000 Survivors have been compensated financially by the Government of Canada for their experiences in residential schools, but the legacy of this experience is ongoing today. This report explains the links to high rates of Aboriginal children being taken from their families, abuse of drugs and alcohol, and high rates of suicide. The report documents the drastic decline in the presence of Aboriginal languages, even as Survivors and others work to maintain their distinctive cultures, traditions, and governance. The report offers 94 calls to action on the part of governments, churches, public institutions and non-Aboriginal Canadians as a path to meaningful reconciliation of Canada today with Aboriginal citizens. Even though the historical experience of residential schools constituted an act of cultural genocide by Canadian government authorities, the United Nation's declaration of the rights of aboriginal peoples and the specific recommendations of the Commission offer a path to move from apology for these events to true reconciliation that can be embraced by all Canadians.

The Report of the Privacy Protection Study Commission [appendices].

Author : United States. Privacy Protection Study Commission
Publisher : Unknown
Page : 584 pages
File Size : 42,8 Mb
Release : 1977
Category : Electronic
ISBN : MINN:31951D008187752

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The Report of the Privacy Protection Study Commission [appendices]. by United States. Privacy Protection Study Commission Pdf

HIV/AIDS in Prisons

Author : DIANE Publishing Company
Publisher : DIANE Publishing
Page : 163 pages
File Size : 42,8 Mb
Release : 1995-09
Category : Electronic
ISBN : 9780788122460

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HIV/AIDS in Prisons by DIANE Publishing Company Pdf

As part of its work, The Expert Committee on Aids in Prisons (ECAP) prepared this Final Report in which it addresses issues that HIV/AIDS & drug use raise in federal correctional institutions & contains recommendations. Analyses issues, such as testing, housing & activities, educational programs preventive measures for inmates, protective measures for staff, health care, women inmates, etc.

Report to the Congress of the United States of the National Commission on Digestive Diseases: Reports of theworkgroups; pt. 1 Education; pt. 2A Research; pt. 2B Research; pt. 3 Health care delivery; pt. 4 Epidemiology and impact

Author : United States. National Commission on Digestive Diseases
Publisher : Unknown
Page : 628 pages
File Size : 47,5 Mb
Release : 1979
Category : Digestive organs
ISBN : UOM:39015002419250

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Report to the Congress of the United States of the National Commission on Digestive Diseases: Reports of theworkgroups; pt. 1 Education; pt. 2A Research; pt. 2B Research; pt. 3 Health care delivery; pt. 4 Epidemiology and impact by United States. National Commission on Digestive Diseases Pdf

Current Catalog

Author : National Library of Medicine (U.S.)
Publisher : Unknown
Page : 1564 pages
File Size : 41,8 Mb
Release : 1979
Category : Medicine
ISBN : UIUC:30112111023013

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Current Catalog by National Library of Medicine (U.S.) Pdf

Includes subject section, name section, and 1968-1970, technical reports.

Report of Joint Commission on Prescription Drug Use

Author : Joint Commission on Prescription Drug Use
Publisher : Unknown
Page : 146 pages
File Size : 43,6 Mb
Release : 1980
Category : Drug utilization
ISBN : UOM:39015004417526

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Report of Joint Commission on Prescription Drug Use by Joint Commission on Prescription Drug Use Pdf

Health Planning Reports: Subject index. 4 v

Author : United States. Health Resources Administration
Publisher : Unknown
Page : 1194 pages
File Size : 49,7 Mb
Release : 1978
Category : Health planning
ISBN : COLUMBIA:CU08121435

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Health Planning Reports: Subject index. 4 v by United States. Health Resources Administration Pdf

Vital and Health Statistics

Author : Anonim
Publisher : Unknown
Page : 60 pages
File Size : 55,8 Mb
Release : 1980
Category : United States
ISBN : UCAL:B3669704

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Vital and Health Statistics by Anonim Pdf

The Medical Information Protection and Research Enhancement Act of 1999

Author : United States. Congress. House. Committee on Commerce. Subcommittee on Health and the Environment
Publisher : Unknown
Page : 172 pages
File Size : 45,7 Mb
Release : 1999
Category : Law
ISBN : PSU:000043064786

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The Medical Information Protection and Research Enhancement Act of 1999 by United States. Congress. House. Committee on Commerce. Subcommittee on Health and the Environment Pdf

For the Record

Author : Committee on Maintaining Privacy and Security in Health Care Applications of the National Information Infrastructure,Commission on Physical Sciences, Mathematics, and Applications,Computer Science and Telecommunications Board,Division on Engineering and Physical Sciences,National Research Council
Publisher : National Academies Press
Page : 287 pages
File Size : 50,5 Mb
Release : 1997-06-23
Category : Medical
ISBN : 9780309524254

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For the Record by Committee on Maintaining Privacy and Security in Health Care Applications of the National Information Infrastructure,Commission on Physical Sciences, Mathematics, and Applications,Computer Science and Telecommunications Board,Division on Engineering and Physical Sciences,National Research Council Pdf

When you visit the doctor, information about you may be recorded in an office computer. Your tests may be sent to a laboratory or consulting physician. Relevant information may be transmitted to your health insurer or pharmacy. Your data may be collected by the state government or by an organization that accredits health care or studies medical costs. By making information more readily available to those who need it, greater use of computerized health information can help improve the quality of health care and reduce its costs. Yet health care organizations must find ways to ensure that electronic health information is not improperly divulged. Patient privacy has been an issue since the oath of Hippocrates first called on physicians to "keep silence" on patient matters, and with highly sensitive data--genetic information, HIV test results, psychiatric records--entering patient records, concerns over privacy and security are growing. For the Record responds to the health care industry's need for greater guidance in protecting health information that increasingly flows through the national information infrastructure--from patient to provider, payer, analyst, employer, government agency, medical product manufacturer, and beyond. This book makes practical detailed recommendations for technical and organizational solutions and national-level initiatives. For the Record describes two major types of privacy and security concerns that stem from the availability of health information in electronic form: the increased potential for inappropriate release of information held by individual organizations (whether by those with access to computerized records or those who break into them) and systemic concerns derived from open and widespread sharing of data among various parties. The committee reports on the technological and organizational aspects of security management, including basic principles of security; the effectiveness of technologies for user authentication, access control, and encryption; obstacles and incentives in the adoption of new technologies; and mechanisms for training, monitoring, and enforcement. For the Record reviews the growing interest in electronic medical records; the increasing value of health information to providers, payers, researchers, and administrators; and the current legal and regulatory environment for protecting health data. This information is of immediate interest to policymakers, health policy researchers, patient advocates, professionals in health data management, and other stakeholders.