The Unexpected Journey Of Caring

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The Unexpected Journey of Caring

Donna Thomson,Zachary White
The Unexpected Journey of Caring Book PDF

Author : Donna Thomson,Zachary White
Publisher : Rowman & Littlefield
Page : 257 pages
File Size : 40,8 Mb
Release : 2019-06-05
Category : Family & Relationships
ISBN : 9781538122242

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The Unexpected Journey of Caring by Donna Thomson,Zachary White Pdf

With a foreword by Judy Woodruff, The Unexpected Journey of Caring is a practical guide to finding personal meaning in the 21st century care experience. Personal transformation is usually an experience we actively seek out—not one that hunts us down. Becoming a caregiver is one transformation that comes at us, requiring us to rethink everything we once knew. Everything changes—responsibilities, beliefs, hopes, expectations, and relationships. Caregiving is not just a role reserved for “saints”—eventually, everyone is drafted into the caregiver role. It’s not a role people medically train for; it’s a new type of relationship initiated by a loved one’s need for care. And it’s a role that cannot be quarantined to home because it infuses all aspects of our lives. Caregivers today find themselves in need of a crash course in new and unfamiliar skills. They must not only care for a loved one, but also access hidden community resources, collaborate with medical professionals, craft new narratives consistent with the changing nature of their care role, coordinate care with family, seek information and peer support using a variety of digital platforms, and negotiate social support—all while attempting to manage conflicts between work, life, and relationship roles. The moments that mark us in the transition from loved one to caregiver matter because if we don’t make sense of how we are being transformed, we risk undervaluing our care experiences, denying our evolving beliefs, becoming trapped by other’s misunderstandings, and feeling underappreciated, burned out, and overwhelmed. Informed by original caregiver research and proven advocacy strategies, this book speaks to caregiving as it unfolds, in all of its confusion, chaos, and messiness. Readers won’t find well-intentioned clichés or care stereotypes in this book. There are no promises to help caregivers return to a life they knew before caregiving. No, this book greets caregivers where they are in their journey—new or chronic—not where others expect (or want) them to be.

The Four Walls of My Freedom

Donna Thomson
The Four Walls of My Freedom Book PDF

Author : Donna Thomson
Publisher : House of Anansi
Page : 206 pages
File Size : 43,9 Mb
Release : 2014-01-13
Category : Family & Relationships
ISBN : 9781770894808

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The Four Walls of My Freedom by Donna Thomson Pdf

A riveting and redemptive family memoir, The Four Walls of My Freedom is Donna Thomson’s account of raising a son with cerebral palsy and a passionate appeal to change the way we think about “the good life.” Donna Thomson’s life was forever changed when her son Nicholas was born with cerebral palsy. A former actor, director, and teacher, Donna became his primary caregiver and embarked on a second career as a disability activist, author, and consultant. Thomson vividly describes her experience in treading delicately through daily care, emergencies, and medical bureaucracy as she and her family cope with her son’s condition while maintaining value and dignity (for Nicholas, too). She brilliantly demonstrates the vital contribution that people with disabilities make to our society and addresses the ethics and economics of giving and receiving care. Featuring an introduction by John Ralston Saul, and two new chapters, The Four Walls of My Freedom is a passionate appeal to change to the way we think about the “good life” that will touch anyone caring for the life of another.

Grace for the Unexpected Journey

Deborah Barr
Grace for the Unexpected Journey Book PDF

Author : Deborah Barr
Publisher : Moody Publishers
Page : 304 pages
File Size : 45,7 Mb
Release : 2018-01-02
Category : Religion
ISBN : 9780802496331

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Grace for the Unexpected Journey by Deborah Barr Pdf

For the weary dementia or Alzheimer's caregiver If you are a caregiver to someone with Alzheimer’s or another type of dementia, you carry a heavy load. On top of having to watch someone you love suffer, you are probably losing sleep, growing frustrated, and struggling with loneliness or even depression. With little to no help and no time for a break, this unrelenting stress is hard to carry. Whether that’s you or someone you know, the caregiver needs care, too. Grace for the Unexpected Journey: A 60-Day Devotional for Alzheimer’s and Other Dementia Caregivers provides that support. Each daily devotion: Is short, ideal for demanding schedules Reflects on a relevant Scripture passage Features a relatable caregiving story Offers a key Scripture for meditation Debbie Barr is a speaker, health educator, and the author of multiple books, including Keeping Love Alive As Memory Fades (coauthored with New York Times bestselling author Gary Chapman). As a health educator with a deep concern and compassion for dementia caregivers, she saw their need for faith-based encouragement. With compassion and understanding she uses Scriptures to address their practical hardships and spiritual concerns. When the struggles seem insurmountable, this devotional offers strength. When stress floods in, it points to peace. And when darkness falls, it illuminates hope. Caregivers walk a long, difficult road. This devotional gives grace for their journey.

The Unexpected Caregiver

Kari Berit
The Unexpected Caregiver Book PDF

Author : Kari Berit
Publisher : Unknown
Page : 0 pages
File Size : 54,7 Mb
Release : 2007
Category : Adult children of aging parents
ISBN : 1578616069

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The Unexpected Caregiver by Kari Berit Pdf

This book is aimed at GroupWise System Administrators and those who are in the process of become an Administrator. The book covers the GroupWise basics such as the architecture, design and management of a GroupWise system and also offers information on preventive maintenance and troubleshooting. For experienced administrators this book offers a complete overview of what's new in GroupWise version 8. The author has over 15 years of experience in working with GroupWise systems and therefor is able to offer valuable tips that will be useful for day to day operations and in troubleshooting problems. In addition, the book provides an overview of Teaming + Conferencing, and its integration into GroupWise.

A Journey for Two

Jeanne R. Lord
A Journey for Two Book PDF

Author : Jeanne R. Lord
Publisher : Rowman & Littlefield Publishers
Page : 176 pages
File Size : 43,5 Mb
Release : 2021
Category : Family & Relationships
ISBN : 1538152894

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A Journey for Two by Jeanne R. Lord Pdf

Explores the beautiful and complicated mother-daughter relationship in the context of caregiving for an ill or aging mother and offers tips and suggestions for overcoming the more difficult aspects while celebrating and cherishing the more comforting features.

The Gift of Caring

M. Cottrell S. Houle,M. D. M. P. H. Eckstrom
The Gift of Caring Book PDF

Author : M. Cottrell S. Houle,M. D. M. P. H. Eckstrom
Publisher : Rowman & Littlefield
Page : 320 pages
File Size : 40,7 Mb
Release : 2015-07-01
Category : Family & Relationships
ISBN : 9781630760984

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The Gift of Caring by M. Cottrell S. Houle,M. D. M. P. H. Eckstrom Pdf

The desire to help our elders navigate health issues is clear and universal—how to assure proper care and a good ending is not. Combining adroit storytelling skills with expert advice, The Gift of Caring: Saving Our Parents from the Perils of Modern Healthcare brings the reader into all-too-familiar scenarios facing our aging parents and offers answers to questions we may not know to ask until it’s too late. Author and biologist Marcy Houle shares her personal journey of caring for her father, a surgeon, who developed Alzheimer’s, and later her mother, who succumbed to other medical conditions. Like many children of aging parents, Marcy often felt powerless traveling this sad trajectory—watching them fall through the cracks of a fragmented and confusing healthcare system, where professionals often wrote off their symptoms as “just old age.” Not having the understanding of the changes that come with aging, she was led to believe there was nothing she could do to help. The tragic secret? According to coauthor and geriatrics physician Elizabeth Eckstrom, these symptoms frequently are not “just old age.” Rather, the problem is that the current healthcare delivery model for older people is ill-equipped to provide the comprehensive, person-centered care seniors need. Today, thousands of aging people face unnecessary suffering, hospitalizations, nursing home stays, and even death due to complications that could have been prevented or treated. Even more troubling, many healthcare professionals have had little or no training in the care of older adults. The Gift of Caring reveals these pitfalls and provides families with tools they can use to avoid them. Interspersed with every few chapters of Marcy’s riveting story, Dr. Eckstrom shares professional medical insights, compiled from the latest research, into what Marcy could have done to safeguard her parents. She shows us how to navigate the system, how we can become our loved one’s best advocate, and what we need to know to achieve healthy aging and meaningful, compassionate final years. Honest, at times humorous, and ultimately uplifting, The Gift of Caring sheds new light on aging from twin perspectives: a story of a daughter desperately seeking help for the parents she loves, and a geriatrician who gives us the knowledge we need to insist upon a better way.

Dementia's Unexpected Gifts

Barbara Luebke
Dementia s Unexpected Gifts Book PDF

Author : Barbara Luebke
Publisher : Unknown
Page : 286 pages
File Size : 49,9 Mb
Release : 2020-09-30
Category : Electronic
ISBN : 9798689147680

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Dementia's Unexpected Gifts by Barbara Luebke Pdf

"Unexpected Gifts" is a mash-up memoir / cautionary tale / love story. It is the narrative of the author's unexpected journey that transformed her from "caregiving is not in my wheelhouse" to exhausted caregiver making difficult decisions and eventually finding a path to personal growth. Drawing on years of emails, photographs and thousands of words in detailed notes she wrote for herself along the way, the author offers a brutally honest portrayal of her life as caregiver for her longtime partner as she developed dementia. The author believes that the more individual stories are shared, the richer and more nuanced our understanding of caregiving becomes. The earlier one realizes there is no one "right" way to walk the path of caregiving, the easier life is. In the end, then, this is a book about reliance.

My Parent's Keeper

Jody Gastfriend
My Parent s Keeper Book PDF

Author : Jody Gastfriend
Publisher : Yale University Press
Page : 348 pages
File Size : 52,7 Mb
Release : 2018-01-01
Category : Medical
ISBN : 9780300221350

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My Parent's Keeper by Jody Gastfriend Pdf

A guide to caring for aging and ailing family members, which offers expert advice, illuminating vignettes, and a compassionate approach to building constructive, mutually gratifying relationships

Rumple Buttercup: A Story of Bananas, Belonging, and Being Yourself

Matthew Gray Gubler
Rumple Buttercup A Story of Bananas Belonging and Being Yourself Book PDF

Author : Matthew Gray Gubler
Publisher : Random House Books for Young Readers
Page : 69 pages
File Size : 42,5 Mb
Release : 2019-04-02
Category : Juvenile Fiction
ISBN : 9780525707622

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Rumple Buttercup: A Story of Bananas, Belonging, and Being Yourself by Matthew Gray Gubler Pdf

The #1 New York Times bestseller written and illustrated by Matthew Gray Gubler. This charming and inspiring story is the perfect gift for kids (and grown-up kids) alike! Rumple Buttercup has five crooked teeth, three strands of hair, green skin, and his left foot is slightly bigger than his right. He is weird. Join him and Candy Corn Carl (his imaginary friend made of trash) as they learn the joy of individuality as well as the magic of belonging.

My Dad Got Sick

Jay Perry
My Dad Got Sick Book PDF

Author : Jay Perry
Publisher : Unknown
Page : 121 pages
File Size : 55,9 Mb
Release : 2018-05-10
Category : Electronic
ISBN : 1980819726

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My Dad Got Sick by Jay Perry Pdf

Most of us, at one time or another, have encountered tragedy.If you find yourself reading the description of this book, I assume this is the case for you and I'd like to say I'm truly sorry. To be honest, I really wish everything in this book were tales of fiction and that my experiences were all a dream. But the stories I courageously share, are my own truthful encounters with life as a caregiver.This book is an outline of my experiences while taking care of my dad, both physically and mentally, during his battle with cancer. It is a tool designed to help those in similar positions navigate coping, self-awareness, empathy, compassion, self-care, support, education, commitment, grief, love and embracing the day-to-day reality of caregiving. Although very cancer-specific, these words can provide encouragement to all those questioning whether or not to take on the role of caregiver. I did my best to write the book I was looking for when my journey began in early 2013. I don't have any 'top 10' pieces of advice to offer, and any advice I do give is solely based off what was found to work successfully for my dad. I'm not a doctor, and I don't have any professional medical training whatsoever. At the time this story began I was just a son doing everything possible for my best friend - I educated myself on the run. My dad was given a terminal diagnosis of nine months to a year to live. He ended up passing away two and a half years later, and although he fought hard for us, I want my dad's fight to be worth more. I want his struggles to give inspiration, and I want to see a shy, humble man's battle provide support and hope long after he's gone. I share these stories about a man with an incurable disease to demonstrate how myself and my loved ones were able to extend his life beyond what doctors ever expected. During my dad's final year, I used social media as a positive platform to share the daily struggles and absolute joys I was constantly faced with. The outpouring of love and support I received is what made me realize this book needed to be written.For obvious reasons, I hate the fact that this book has grounds to exist, but I will use it as a vehicle to share a journey that will hopefully help you with yours.*Description taken from Chapter One: To The Reader

Reflections of a Grieving Spouse

H. Norman Wright
Reflections of a Grieving Spouse Book PDF

Author : H. Norman Wright
Publisher : Harvest House Publishers
Page : 209 pages
File Size : 53,8 Mb
Release : 2009-07-01
Category : Religion
ISBN : 9780736933995

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Reflections of a Grieving Spouse by H. Norman Wright Pdf

When author and counselor H. Norman Wright’s beloved wife, Joyce, passed away, he grieved the loss of his partner and the life they shared. Even in his state of sorrow, he knew he had to find a way to live without Joyce, to forge a hopeful path, and to move forward in God’s grace and strength. With vulnerability and emotional insight, Norm shares from his deeply personal journey and illuminates the way back to living when someone you love is gone. Readers who have lost their spouse will discover support and guidance as they work through anger, including anger at God, to ease toward God’s peace move away from denial and “what ifs” to move forward allow memories to provide comfort without getting stuck in the past create a healthy new, daily routine to care for themselves turn their new identity and life over to God’s leading and mercy This tender and inspirational book will help any reader who is grieving or who is walking alongside a grieving friend.

Enough About Me

Richard Lui
Enough About Me Book PDF

Author : Richard Lui
Publisher : Zondervan
Page : 253 pages
File Size : 52,8 Mb
Release : 2021-03-23
Category : Self-Help
ISBN : 9780310362463

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Enough About Me by Richard Lui Pdf

What if your path to a more successful, healthy, and satisfying life is actually not about you? Enough About Me equips you with practical tools to find meaning and compassion in even the smallest of everyday choices. When his father was diagnosed with Alzheimer's disease, Richard Lui made a tough decision. The award-winning news anchor decided to set aside his growing career to care for his family. At first, this new caregiving lifestyle did not come easily for Lui, and what followed was a seven-year exercise in what it really means to be selfless. Enough About Me also takes a behind-the-scenes look at some of the world's most difficult moments from a journalist's point of view. From survivors of terrorist attacks to victims of racial strife, Lui shares the lessons he learned from those who rose above the fray to be helpful, self-sacrificing, and generous in the face of monumental tragedy and loss. Lui shares practical tips, tools, and mnemonics learned along the way to help shift the way we think and live, including: Selfless decision methods and practices for work, home, relationships, and community Studies and research that show the personal benefits of being selfless The lasting impact of sharing your story Practical, bite-sized ways to be more engaging and inclusive in your day-to-day life How to train our decision-making muscles to choose others over ourselves Choice by choice, step by step, the path to a more satisfying and fulfilling journey is right here in the people around us. Praise for Enough About Me: "Richard Lui underscores the importance of sharing stories to bring people together through selfless acts for the greater good." Beth Kallmyer, Vice President of Care and Support, Alzheimer's Association "Richard is living a life of service. This is a jewel of a book, a celebration of the best of the human spirit and of the good that emerges from sacrifice. Richard Lui is a beacon of light in these dark times." José Díaz-Balart, Anchor, NBC Nightly News Saturday; Anchor, Noticias Telemundo

Caregiving

Debbie Barr
Caregiving Book PDF

Author : Debbie Barr
Publisher : Rose Publishing
Page : 76 pages
File Size : 52,9 Mb
Release : 2024-03-19
Category : Religion
ISBN : 9781496483539

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Caregiving by Debbie Barr Pdf

Packed with practical advice, diagrams, statistics, photos, quizzes, and scannable outlines, this compact guide to caregiving is easy to read and gives you key information at a glance. Get expert knowledge distilled into easy-to-follow steps and apply them immediately to refresh and recharge your caregiving journey. Enjoy having: Trustworthy advice for both seasoned and new caregivers (and everyone in between) A Scale of Burden quiz to assess your current level of self-care 12 Signs of Stress & specific steps to manage them (PLUS: 3 happiness boosters for caregivers) How to Build Your Team: step-by-step instructions to get help (and exactly what to say) And much more Caregiving is draining—emotionally and physically. From changing bandages and diapers, to managing medical appointments and picking up prescriptions, caregiving can feel like an endless journey. But here’s the great news: the caregiving experience doesn’t have to be like that. When caregiving tasks are shared and caregivers understand how to take good care of themselves too, the whole experience can be much brighter for everyone. Trusted Help for Caregiving from Those Who’ve Been There In Caregiving: Taking Care of Yourself While Taking Care of Someone Else, award-winning author and speaker, Debbie Barr, writes with compassion and understanding, taking an honest look at the ups and downs of caregiving. She shares the real-life experiences of caregivers and the things they’ve learned along their journeys. This book will help caregivers like you know how to gather a team to help shoulder the caregiving load. You will be able to: Identify when you’re nearing burnout Discover the help available to you (and what to say) Take specific action steps to cope wisely and learn to thrive Know when the caregiving needs to change (and why it DOESN’T mean failure) Key Features of Caregiving: Taking Care of Yourself While Taking Care of Someone Else Caregiving will provide everything you need—from the basics to step-by-step details—to not only get you started on your journey, but to make the most out of your time and talents. Key features include: Reliable—Award-winning author and speaker Debbie Barr unpacks real-life experiences and seasoned advice into trustworthy nuggets of caregiving gold you can carry with you throughout your day. Get refreshed and revitalized with compassion and truths from those who have experienced the emotions and journeys you are going through. Quick and Easy-to-Use—Caregivers rarely feel like they have time for themselves, so this guide has been designed with a busy schedule in mind: packed with concise summaries, scannable outlines and visuals, and distilled step-by-step instructions, you can absorb everything you need with as little or as much time as you have. Practical—Whether you need to apply a self-care routine, build a care team to support your loved one in need, or make a big change in your care plan, get concise step-by-step instructions (including exactly what to say) and start immediately! Flexible—A little or lots of time. Brand new or seasoned caregiver. Short- or long-term care. Regardless of your situation, this handy minibook has practical applications for everyone. Caregiving is never just about the person needing the care; it’s about the caregiver too. You will come away from this book encouraged and equipped to face the caregiving journey with hopefulness and peace of mind.

Families Caring for an Aging America

National Academies of Sciences, Engineering, and Medicine,Health and Medicine Division,Board on Health Care Services,Committee on Family Caregiving for Older Adults
Families Caring for an Aging America Book PDF

Author : National Academies of Sciences, Engineering, and Medicine,Health and Medicine Division,Board on Health Care Services,Committee on Family Caregiving for Older Adults
Publisher : National Academies Press
Page : 367 pages
File Size : 45,7 Mb
Release : 2016-11-08
Category : Medical
ISBN : 9780309448093

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Families Caring for an Aging America by National Academies of Sciences, Engineering, and Medicine,Health and Medicine Division,Board on Health Care Services,Committee on Family Caregiving for Older Adults Pdf

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

The Caregiving Trap

Pamela D. Wilson
The Caregiving Trap Book PDF

Author : Pamela D. Wilson
Publisher : Unknown
Page : 0 pages
File Size : 50,7 Mb
Release : 2015-10-06
Category : Family & Relationships
ISBN : 1630475351

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The Caregiving Trap by Pamela D. Wilson Pdf

"The Caregiving Trap" combines the authentic life and professional experience of Pamela D. Wilson, who provides recommendations for overwhelmed and frustrated caregivers who themselves may one day need care. "The Caregiving Trap" includes stories about Pamela's actual personal and professional experience along with end of chapter exercises to support caregivers. Common caregiving issues include: A sense of duty and obligation to provide care that damages family relationships Emotional and financial challenges resulting in denial of care needs Ignorance of predictive events that result in situations of crises or harm Delayed decision making and lack of planning resulting in limited choices Minimum standards of care supporting the need for advocacy