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When Down Syndrome and Autism Intersect by Margaret Froehlke,Robin Zaborek Pdf
"This. resource will greatly benefit families whose child is already diagnosed, and also those who suspect something more than Down syndrome. Professionals, too, will find information on how to distinguish DS-ASD from a diagnosis of just Down syndrome, and guidance on providing services for children and adults"--Back cover
When Down Syndrome and Autism Intersect by Margaret Froehlke,Robin Sattel Pdf
A comprehensive guide to supporting individuals with the complex dual diagnosis of both Down syndrome and Autism Spectrum Disorder. Written by a large team of veteran parents and experts in the field, it covers every aspect of caring for children and adults with DS-ASD and offers sound information and resources steeped in research and clinical findings.--Publisher.
Shortly after Teresa gave birth to her second son, Nick, he was diagnosed with Down syndrome. Early infant and child intervention helped Nick reach developmental milestones in his own time. But there was more to come when Nick hit third grade. A wave of fire alarm-pulling along with other serious and dangerous behaviors signaled that this was something more than just Down syndrome. At last, a book that takes a deep dive into the complexities that families face raising a child with a dual diagnosis of Down syndrome and autism (DS-ASD) and other intellectual and developmental disabilities. A New Course is a hybrid of a memoir combined with valuable lessons following each chapter and in the appendix. It’s a must read for families, school faculty, therapists, physicians, and support groups wanting to understand a parent’s perspective and looking for answers about: - Early intervention, - Individual education plans (IEPs) and transition meetings, - Speech, physical, and occupational therapies, - Behavior support and applied behavior analysis (ABA), - Toilet training and puberty issues, - Wandering and elopement, - Meltdowns, and - Augmentative and alternative communication. Author Teresa Unnerstall provides guidance and hope steeped in more than 25 years of experience. She is a parent turned educational speaker, writer, advocate, and consultant. Her determination to find resources, support, and specialists helped her son to reach his full potential.
Cassidy and Allanson's Management of Genetic Syndromes by John C. Carey,Suzanne B. Cassidy,Agatino Battaglia,David Viskochil Pdf
MANAGEMENT OF GENETIC SYNDROMES THE MOST RECENT UPDATE TO ONE OF THE MOST ESSENTIAL REFERENCES ON MEDICAL GENETICS Cassidy and Allanson’s Management of Genetic Syndromes, Fourth Edition is the latest version of a classic text in medical genetics. With newly covered disorders and cutting-edge, up-to-date information, this resource remains the most crucial reference on the management of genetic syndromes in the field of medical genetics for students, clinicians, caregivers, and researchers. The fourth edition includes current information on the identification of genetic syndromes (including newly developed diagnostic criteria), the genetic basis (including diagnostic testing), and the routine care and management for more than 60 genetic disorders. Written by experts, each chapter includes sections on: Incidence Diagnostic criteria Etiology, pathogenesis and genetics Diagnostic testing Differential diagnosis Manifestations and Management (by system) The book focuses on genetic syndromes, primarily those involving developmental disabilities and congenital defects. The chapter sections dealing with Manifestations and Management represents the centerpiece of each entry and is unmatched by other genetic syndrome references. Management of Genetic Syndromes is perfect for medical geneticists, genetic counselors, primary care physicians and all healthcare professionals seeking to stay current on the routine care and management of individuals with genetic disorders.
In a Different Key by John Donvan,Caren Zucker Pdf
Finalist for the 2017 Pulitzer Prize in General Nonfiction An extraordinary narrative history of autism: the riveting story of parents fighting for their children ’s civil rights; of doctors struggling to define autism; of ingenuity, self-advocacy, and profound social change. Nearly seventy-five years ago, Donald Triplett of Forest, Mississippi, became the first child diagnosed with autism. Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different. It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting “refrigerator mothers” for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families’ battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne’eman, who explained their inner worlds and championed the philosophy of neurodiversity. This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death. By turns intimate and panoramic, In a Different Key takes us on a journey from an era when families were shamed and children were condemned to institutions to one in which a cadre of people with autism push not simply for inclusion, but for a new understanding of autism: as difference rather than disability.
When life looks radically different than the plan we have for ourselves, it's the lucky few that recognize God's plan is best. That's what adoptive mom Heather Avis learned, and that's the invitation of this book. As the mother of three adopted children - two with Down syndrome - Heather Avis has learned that it's truly the lucky few who get to live a life like hers, who actually recognize that God's plans are best, even when they seem so radically different from the plans we have for ourselves. When Heather started her journey into parenthood she never thought it would look like this, never planned to have three adopted children, and certainly never imagined that two of them would have Down syndrome. But like most things God does, once she stepped into the craziness and confusion that comes with the unknown and the unplanned, she realized that they were indeed among the lucky few. Discover in this book what 70,000+ followers of Heather's hit Instagram account @macymakesmyday already know: the power of faith and family can help us stay strong in the toughest times. This book will also be especially touching to those with adopted family members or children with Down syndrome in their lives.
Institute of Medicine,Board on Health Sciences Policy,Forum on Neuroscience and Nervous System Disorders
Author : Institute of Medicine,Board on Health Sciences Policy,Forum on Neuroscience and Nervous System Disorders Publisher : National Academies Press Page : 358 pages File Size : 55,8 Mb Release : 2008-03-12 Category : Medical ISBN : 9780309108812
Autism and the Environment by Institute of Medicine,Board on Health Sciences Policy,Forum on Neuroscience and Nervous System Disorders Pdf
Autism spectrum disorders (ASD) constitute a major public health problem, affecting one in every 150 children and their families. Unfortunately, there is little understanding of the causes of ASD, and, despite their broad societal impact, many people believe that the overall research program for autism is incomplete, particularly as it relates to the role of environmental factors. The Institute of Medicine's Forum on Neuroscience and Nervous System Disorders, in response to a request from the U.S. Secretary of Health and Human Services, hosted a workshop called "Autism and the Environment: Challenges and Opportunities for Research." The focus was on improving the understanding of the ways in which environmental factors such as chemicals, infectious agents, or physiological or psychological stress can affect the development of the brain. Autism and the Environment documents the concerted effort which brought together the key public and private stakeholders to discuss potential ways to improve the understanding of the ways that environmental factors may affect ASD. The presentations and discussions from the workshop that are described in this book identify a number of promising directions for research on the possible role of different environmental agents in the etiology of autism.
Re-Thinking Autism by Sami Timimi,Rebecca Mallett,Katherine Runswick-Cole Pdf
Challenging existing approaches to autism that limit, and sometimes damage, the individuals who attract and receive the label, this book questions the lazy prejudices and assumptions that can surround autism as a diagnosis in the 21st Century. Arguing that autism can only be understood through examining 'it' as a socially or culturally produced phenomenon, the authors offer a critique of the medical model that has produced a perpetually marginalising approach to autism, and explain the contradictions and difficulties inherent in existing attitudes. They examine and dispute the scientific validity of diagnosis and 'treatment', asking whether autism actually exists at the biological level, and question the value of diagnosis in the lives of those labelled with autism. The book recognises that there are no easy answers but encourages engagement with these essential questions, and looks towards service provision and practice that moves beyond a reliance on all-encompassing labels. This unique contribution to the growing field of critical autism studies brings together authors from clinical psychiatry, clinical and community psychology, social sciences, disability studies, education and cultural studies, as well as those with personal experiences of autism. It is essential and challenging reading for anyone with a personal, professional or academic interest in 'autism'.
Many people have feelings of stress and anxiety in their everyday lives. For people with Aspergers Syndrome this stress can be difficult to manage.This book is specifically written for adults with Aspergers Syndrome offers practical advice on how to better manage the stress in their lives.
Life on the Autism Spectrum by Matthew Bennett,Amanda A. Webster,Emma Goodall,Susannah Rowland Pdf
This book presents a unique exploration of common myths about autism by examining these myths through the perspectives of autistic individuals. Examining the history of attitudes and beliefs about autism and autistic people, this book highlights the ways that these beliefs are continuing to impact autistic individuals and their families, and offers insights as to how viewing these myths from an autistic perspective can facilitate the transformation of these myths into a more positive direction. From ‘savant syndrome’ to the conception that people with autism lack empathy, each chapter examines a different social myth – tracing its origins, highlighting the implications it has had for autistic individuals and their families, debunking misconceptions and reconstructing the myth with recommendations for current and future practice. By offering an alternative view of autistic individuals as competent and capable of constructing their own futures, this book offers researchers, practitioners, individuals and families a deeper, more accurate, more comprehensive understanding of prevalent views about the abilities of autistic individuals as well as practical ways to re-shape these into more proactive and supportive practices.
The Autism Discussion Page on Stress, Anxiety, Shutdowns and Meltdowns by Bill Nason Pdf
Anxiety, meltdowns and emotional regulation can be hugely challenging for autistic people. This book is full of proactive strategies for understanding, accepting and respecting the processing differences in autism. It contains tools for reducing sensory, social and mental drain, and offers strategies to protect from ongoing stress and anxiety. These help minimize shutdowns and burnout, while maximizing self-esteem, autistic identity and mental health. Learn strategies for matching environmental demands to the person's processing needs, how to support vulnerabilities, and how to prevent and manage meltdowns while protecting the identify and self-esteem of the individual with autism.
OCD and Autism by Ailsa Russell,Amita Jassi,Kate Johnston Pdf
This step-by-step manual explains how to adapt CBT (Cognitive Behaviour Therapy) approaches to OCD (Obsessive Compulsive Disorder) for autistic children and adults. It outlines why there is the need to adapt treatment for the autistic population, and includes detailed guidance on each phase of the approach. It explains assessment of OCD in autism, the links between the two conditions and difficulties in identifying aspects of OCD in autistic people. The book offers advice on dealing with difficult issues and on the next steps after treatment is complete. Accompanying worksheets and handouts are available to download.
Medicinal Cannabis and CBD in Mental Healthcare by Kylie O'Brien,Philip Blair Pdf
This book functions as a clinician’s guide to the use of cannabidiol (CBD) in the treatment of mental health conditions. It conveys the scientific evidence of efficacy of CBD as well as THC and addresses the social stigma attached to its medical use. The book describes the endocannabinoid system, how stress and the endocannabinoid system interact and key constituents, pharmacokinetics and safety aspects of medicinal cannabis, focusing on CBD and THC. Chapters on specific mental health conditions describe the underpinning pathomechanisms including how the endocannabinoid system is involved, and summarises the scientific evidence including animal and human research for the use of CBD and THC in treatment of such conditions. Topics covered include anxiety, depression, post-traumatic stress disorder, insomnia, Alzheimer's Disease and autism spectrum disorder. Chapters also discuss treatment guidelines and case studies. Unique and focused, Medicinal Cannabis and CBD in Mental Healthcare is an invaluable reference for medical practitioners seeking to adopt CBD-use in their treatment plans.
National Academies of Sciences, Engineering, and Medicine,Health and Medicine Division,Board on Population Health and Public Health Practice,Roundtable on Health Literacy
Author : National Academies of Sciences, Engineering, and Medicine,Health and Medicine Division,Board on Population Health and Public Health Practice,Roundtable on Health Literacy Publisher : National Academies Press Page : 97 pages File Size : 50,6 Mb Release : 2019-04-26 Category : Medical ISBN : 9780309485302
The Intersection of Behavioral Health, Mental Health, and Health Literacy by National Academies of Sciences, Engineering, and Medicine,Health and Medicine Division,Board on Population Health and Public Health Practice,Roundtable on Health Literacy Pdf
The field of health literacy has evolved from early efforts that focused on individuals to its current recognition that health literacy is a multidimensional team and system function. Health literacy includes system demands and complexities as well as individual skills and abilities. While communicating in a health-literate manner is truly important for everyone, it can be especially important for those with mental or behavioral health issues and for the systems and teams that interact with them and treat these individuals. The purpose of the workshop, which was held on July 11, 2018, in Washington, DC, was to explore issues associated with effective communication with individuals with mental or behavioral health issues and to identify ways in which health literacy approaches can facilitate communication. In particular, the workshop aimed to gain a better understanding of how behavioral health and mental health concerns can adversely affect communications between providers and patients and their families. This publication summarizes the presentations and discussions from the workshop.
Autistic Community and the Neurodiversity Movement by Steven K. Kapp Pdf
This open access book marks the first historical overview of the autism rights branch of the neurodiversity movement, describing the activities and rationales of key leaders in their own words since it organized into a unique community in 1992. Sandwiched by editorial chapters that include critical analysis, the book contains 19 chapters by 21 authors about the forming of the autistic community and neurodiversity movement, progress in their influence on the broader autism community and field, and their possible threshold of the advocacy establishment. The actions covered are legendary in the autistic community, including manifestos such as “Don’t Mourn for Us”, mailing lists, websites or webpages, conferences, issue campaigns, academic project and journal, a book, and advisory roles. These actions have shifted the landscape toward viewing autism in social terms of human rights and identity to accept, rather than as a medical collection of deficits and symptoms to cure.