Author : Simon Wiffen
Publisher : Unknown
Page : 104 pages
File Size : 41,6 Mb
Release : 2020-06-24
Category : Electronic
ISBN : 9798656667968
47 / a Life with Cystic Fibrosis by Simon Wiffen Pdf
47 / A Life With Cystic Fibrosis is a book of beautiful, intimate portraits exploring the reality of living with cystic fibrosis. Each subject offers an insight into their attitudes to life and their condition up to and beyond the median predicted survival rate of 47. Cystic fibrosis (CF) is a genetic condition that affects around 10,400 people in the UK. It affects the lungs, digestive system and other organs in the body. While CF requires a complex and lifelong combination of medication, treatments and physiotherapy there is currently no cure. It can be an incredibly isolating illness as due to cross infection, people with CF aren't allowed to meet in person. It's a life-limiting condition and the average life expectancy is currently 47 years old. With 47 / A Life With Cystic Fibrosis, Simon Wiffen set out to study how this number affects the attitudes and opinions of people diagnosed with CF at various stages of their journey. Over the course of a year he visited each person in this book, shot their portrait and chatted to them about their life, their attitude to the condition and their hopes and dreams for the future. He was fascinated to know whether these changed as people approached (and passed) 47. Each portrait is shot in the same style, with the same lighting and presented in black and white. This approach was chosen to remove the distraction and focus on the individual in the picture and their unique experience. CF is a complex, cruel and often misunderstood condition that requires lifelong care while not always having visible symptoms. As such it can be difficult for people to fully understand the severity of the condition. Life with CF requires a daily routine of medicine, treatments and physiotherapy along with a progressive loss of lung function that can often result in a need for organ transplants. It brings a combination of lifelong challenges that can produce incredibly strong and resilient personalities who have to face the realities of mortality every day. Anne Shinkwin, Director of Fundraising at The Cystic Fibrosis Trust said: "Simon's intimate portraits give a unique insight into the lives of some of the 10,400 people in the UK living with cystic fibrosis (CF). This book beautifully captures multiple voices and reveals the reality of living with a condition that shortens life. Although there is no cure for CF, advances in research are helping people to live longer. However, as these stories attest, CF remains a daily challenge." 47 / A Life With Cystic Fibrosis was originally published in paperback to 5 star reviews following a hugely successful Kickstarter campaign that smashed its target in just 8 hours. The book has been featured on BBC1 and in the Daily Express. In 2020 Simon was awarded the Unsung Hero Award at the AP Awards in recognition of his work on the project. 25% of profits from this book will go to support the incredible work that the Cystic Fibrosis Trust do every day to support those affected by CF and to help work towards a cure. Thank you. You can read more about this project at https://www.simonwiffenphotography.co.uk/projects/47-a-life-with-cystic-fibrosis/