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"An innovative approach to caring for the terminally ill patient, A palliative ethic of care provides deeper insights into why end-of-life care is so challenging and suggests how to improve the care of the dying" -- Back cover.
Ethics in Palliative Care by Robert C. Macauley Pdf
A comprehensive analysis of ethical topics in palliative care, combining clinical experience and philosophical rigor. A broad array of topics are explored from historical, legal, clinical, and ethical perspectives, offering both the seasoned clinician and interested lay reader a thorough examination of the complex ethical issues facing patients suffering from life-threatening illness
Author : Timothy E. Quill,Franklin G. Miller Publisher : Oxford University Press, USA Page : 322 pages File Size : 42,8 Mb Release : 2014 Category : Medical ISBN : 9780199316670
Palliative Care and Ethics by Timothy E. Quill,Franklin G. Miller Pdf
Hospice is the premiere end of life program in the United States, but its requirement that patients forgo disease-directed therapies and that they have a prognosis of 6 months or less means that it serves less than half of dying patients and often for very short periods of time. Palliative care offers careful attention to pain and symptom management, added support for patients and families, and assistance with difficult medical decision making alongside any and all desired medical treatments, but it does not include a comprehensive system of care as is provided by hospice. The practice of palliative care and hospice is filled with sometimes overt (requests for hastened death in an environment where such acts are legally prohibited) and other times covert (the delay in palliative care referral because the health care team believes it will undermine disease directed treatment) ethical issues. The contributors to this volume use a series of case presentations within each chapter to illustrate some of the palliative care and hospice challenges with significant ethical dimensions across the three overarching domains: 1) care delivery systems; 2) addressing the many dimensions of suffering; and 3) difficult decisions near the end of life. The contributors are among the most experienced palliative care, hospice and ethics scholars in North America and Western Europe. Each has been given relatively free reign to address what they feel are the most pressing ethical challenges within their domain, so a wide range of positions and vantage points are represented. As a result, the volume provides a very diverse ethical exploration of this relatively young field that can deepen, stretch, and at times confront any simple notion of the challenges facing patients, their families, professional caregivers, and policy makers.
Partners in Palliative Care by Mary Beth Morrissey,Bruce Jennings Pdf
The Collaborative for Palliative Care ("Collaborative") is a grassroots consortium of public and private organizations that came together in 2005 for the purposes of studying the increasing need for palliative care and the methods for such care. It has grown from a small fledgling group to a membership of over 50 community-based organizations and volunteers dedicated to improving care of the seriously ill through education, research and advocacy. The Collaborative bridges policy, research and practice in its initiatives and vision for the future. Partners in Palliative Care examines specific areas of concern that the Collaborative has addressed in its education programs and advocacy, as well as the collaborative processes that have been so successful in building community assets. Areas of concentration have been diverse and include advance care planning, relational communication paradigms, community capacity building, the role of culture and spirituality in palliative care, the meaning of pain and suffering for seriously ill individuals, and the ethics of health care costs in palliative and end-of-life systems of care. This book was originally published as a special issue of the Journal of Social Work in End-of-Life and Palliative Care.
Part one of this book provides an explanation of ethical theory, looks at difficult decisions at the end of life, questions autonomy and rights and covers the use of sedation at the end of life, while part two presents case histories and clinical scenarios.
Hospice Ethics by Timothy W. Kirk,Bruce Jennings Pdf
Hospice care is one of the fastest-growing segments of the U. S. healthcare system, a trend that is expected to accelerate as the median age of the population continues to rise over the next three decades. Despite over forty percent of the population now dying while on hospice care, very little has been published on the ethical opportunities and challenges experienced in the everyday lives of those giving and receiving hospice care. This book is the first comprehensive collection devoted to analyzing distinctive ethical issues arising in the delivery of hospice care and designed to promote best ethical practices for hospice care professionals and organizations. Thirteen newly commissioned chapters by seventeen hospice experts populate three thematic sections of the book, each devoted to an aspect of the intersection between ethics and hospice care. Contributors have unique qualifications and abilities to articulate and respond to ethically significant phenomena that -- while not always unique to hospice care -- arise in especially poignant and complex ways when caring for patients enrolled in hospice. As the shift or return to home-based care at the end of life continues, hospice professionals and programs will be faced with a broader array of terminal illnesses, cultural beliefs and traditions, and patient and family values than ever before. Hospice will no longer be tailored solely to the final stage of cancer, but will need to accommodate patients whose illnesses are variable in their progression and whose treatment plans include many medical options. The ethical orientations and frameworks that have served hospice for the past 50 years will need to be supplemented and refined if hospice is to fulfill this changing social mission. Hospice Ethics explores a new paradigm for hospice ethics from a multi-disciplinary and provides an important educational resource for professional training in end of life care.
Contemporary European Perspectives on the Ethics of End of Life Care by Nathan Emmerich,Pierre Mallia,Bert Gordijn,Francesca Pistoia Pdf
This book examines the ethics of end of life care, focusing on the kinds of decisions that are commonly made in clinical practice. Specific attention is paid to the intensification of treatment for terminal symptoms, particularly pain relief, and the withdrawal and withholding of care, particularly life-saving or life-prolonging medical care. The book is structured into three sections. The first section contains essays examining end of life care from the perspective of moral theory and theology. The second sets out various conceptual terms and distinctions relevant to decision-making at the end of life. The third section contains chapters that focus on substantive ethical issues. This format not only provides for a comprehensive analysis of the ethical issues that arise in the context of end of life care but allows readers to effectively trace the philosophical, theological and conceptual underpinnings that inform their specific interests. This work will be of interest to scholars working in the area as well as clinicians, specialists and healthcare professionals who encounter these issues in the course of their practice.
Ethical Issues in Palliative Care by Pat A. Webb Pdf
Initial definitions and some theoretical input leads on to a practice-based text which will enable people from a variety of professions to discuss and debate issues familiar to their practice.
Social Policy and the Ethic of Care by Olena Hankivsky Pdf
"In this book, Hankivsky considers the implications of this ethic for a range of Canadian social policy issues. Through a series of case studies, she demonstrates the extent to which a care orientation differs from a justice orientation, and provides an alternative normative framework for interpreting, understanding, and evaluating social policy. She reveals why Canadian social policy is lacking and how it could be made more effective and robust by the inclusion of an ethic of care."--Jacket.
EBOOK: Death's Dominion: Ethics at the End of Life by Simon Woods Pdf
"I enjoyed reading this book very much. It is very readable and well argued using real life cases and thought experiments as well … The book provides the reader with a short history of and an overview of the most important issues in modern palliative care. Various theoretical discussions are clearly set out, such as: the relationship between the hospice movement and modern palliative care, between palliative care and health care in general, between palliative sedation and euthanasia, and the question whether euthanasia can be part of palliative care. The author starts with exploring the existing debates and then develops his own arguments in a balanced and well-structured way." Medicine, Health Care and Philosophy "The text of this book is accessible, the philosophical and ethical arguments are clearly articulated, and relevant ethical principles are integrated into the critique of the issues, making this a very useful book for nurses working in palliative as well as in general care." Nursing Ethics "It is crucially important for any student or researcher who is seriously consideringethical and policy matters at the end of life to embrace and tackle intellectually the issues that Woods raises in this book. I would happily recommend it." Journal of Medical Ethics What constitutes a good death? Is it possible to arrange a good death? Is killing compatible with caring? This book looks at death and the issues and ethical dilemmas faced at the end of life. It addresses the central issues in the field such as: Withholding and withdrawing treatment Euthanasia and assisted suicide Terminal sedation The role of autonomy Palliative care Drawing on a philosophical framework, the author explores end-of-life issues in order to reflect on the nature of the good death and how this may be achieved. The book considers whether it is permissible or desirable to influence the quality of dying: offering palliative sedation as a possible alternative to terminal sedation, the argument is extended to examine why some forms of assisted dying can be shown to be compatible with the ideas of palliative care. Consideration is also given to future developments such as life extension techniques and the ethical questions that that these techniques might raise. As such, the book follows in the ongoing philosophical tradition to critique and analyse current thought on the topic of death, encouraging self-reflection in the reader and offering suggestions for practice in end-of-life care. Death’s Dominion is key reading for students and professionals involved in care of the dying, as well as those with an interest in the philosophical issues surrounding end-of-life care.
This volume offers a theoretical and practical overview of the ethics of pediatric medicine. It serves as a fundamental handbook and resource for pediatricians, nurses, residents in training, graduate students, and practitioners of ethics and healthcare policy. Written by a team of leading experts, Pediatric Bioethics addresses those difficult ethical questions concerning the clinical and academic practice of pediatrics, including an approach to recognizing boundaries when confronted with issues such as end of life care, life-sustaining treatment, extreme prematurity, pharmacotherapy, and research. Thorny topics such as what constitutes best interests, personhood, or distributive justice and public health concerns such as immunization and newborn genetic screening are also addressed.
The Patient's Wish to Die by Christoph Rehmann-Sutter,Heike Gudat,Kathrin Ohnsorge Pdf
Wish to die statements are becoming a frequent phenomenon in terminally ill patients. Those confronted by these statments need to understand the complexity of such wishes, so they can respond competently and compassionately to the requests. If misunderstood, the statements can be taken at face-value and the practitioner may not recognise that a patient is in fact experiencing ambivalent feelings at the end of life, or they may misinterpret the expressed wish to die as a sign of clinical depression. Public debate about the morality and ethics of various end-of-life care options has exploded in recent years. However, it has never been sensitive to the finer aspects of clinical reality or the experiences of patients. The Patient's Wish to Die: Research, Ethics, and Palliative Care brings together that reality and the patient's voice, combining them with different research approaches. It presents the best available knowledge and research methodologies about patients' wishes at the end-of-life, together with a series of ethical views and a discussion about the clinical implications for palliative care. The book presents material in an open and unbiased manner whilst remaining sensitive to the spiritual and existential dimensions of dying, and to the different cultural views that provide meaning to the individual. Written by the best specialists and ethics scholars from around the world, including palliative care practitioners and end-of-life scholars from countries where assisted dying practices are legalized and from those where it isn't, The The Patient's Wish to Die: Research, Ethics, and Palliative Care will prove essential reading for all those working or studying in the field of palliative care.
The Ethics of Palliative Care by Henk ten Have,David Clark Pdf
This volume provides a picture of palliative care ethics in the European context. It should interest those involved in the delivery and management of palliative care services, as well as students and researchers.