Alzheimer S Disease And The Family

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The Inheritance

Author : Niki Kapsambelis
Publisher : Simon and Schuster
Page : 368 pages
File Size : 44,5 Mb
Release : 2017-03-07
Category : Biography & Autobiography
ISBN : 9781451697339

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The Inheritance by Niki Kapsambelis Pdf

This gripping story of the doctors at the forefront of Alzheimer’s research and the courageous North Dakota family whose rare genetic code is helping to understand our most feared diseases is “excellent, accessible...A science text that reads like a mystery and treats its subjects with humanity and sympathy” (Library Journal, starred review). Every sixty-nine seconds, someone is diagnosed with Alzheimer’s disease. Of the top ten killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can. The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer’s, an inherited genetic mutation that causes the disease in one hundred percent of cases, and has a fifty percent chance of being passed onto the next generation. Of the six DeMoe children whose father had it, five have inherited the gene; the sixth, daughter Karla, has inherited responsibility for all of them. But rather than give up in the face of such news, the DeMoes have agreed to spend their precious, abbreviated years as part of a worldwide study that could utterly change the landscape of Alzheimer’s research and offers the brightest hope for future treatments—and possibly a cure. Drawing from several years of in-depth research with this charming and upbeat family, journalist Niki Kapsambelis tells the story of Alzheimer’s through the humanizing lens of these ordinary people made extraordinary by both their terrible circumstances and their bravery. “A compelling narrative…and an educational and emotional chronicle” (Kirkus Reviews, starred review), their tale is intertwined with the dramatic narrative history of the disease, the cutting-edge research that brings us ever closer to a possible cure, and the accounts of the extraordinary doctors spearheading these groundbreaking studies. From the oil fields of North Dakota to the jungles of Colombia, this inspiring race against time redefines courage in the face of this most pervasive and mysterious disease.

Alzheimer's Disease Treatment and Family Stress

Author : Enid Light,Barry Lebowitz
Publisher : Taylor & Francis
Page : 504 pages
File Size : 55,5 Mb
Release : 1990
Category : Medical
ISBN : 1560321377

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Alzheimer's Disease Treatment and Family Stress by Enid Light,Barry Lebowitz Pdf

The Emotional Journey of the Alzheimer's Family

Author : Robert B. Santulli, MD,Kesstan Blandin, PhD
Publisher : Dartmouth College Press
Page : 231 pages
File Size : 41,9 Mb
Release : 2015-03-22
Category : Health & Fitness
ISBN : 9781611687453

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The Emotional Journey of the Alzheimer's Family by Robert B. Santulli, MD,Kesstan Blandin, PhD Pdf

Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.

The Person with Alzheimer's Disease

Author : Phyllis Braudy Harris
Publisher : JHU Press
Page : 336 pages
File Size : 50,8 Mb
Release : 2002-06-06
Category : Health & Fitness
ISBN : 0801868777

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The Person with Alzheimer's Disease by Phyllis Braudy Harris Pdf

The first book to provide a comprehensive look at what it's like to have dementia and the subjective experience of living with progressive memory loss. Few families are untouched by Alzheimer's disease or a related dementia. Moving accounts of what it is like to care for someone with this disease have already been published, as well as how-to books that offer caregivers advice and information on coping. But this book is the first to provide a comprehensive report of what it is like to have dementia oneself—the subjective experience of living with progressive memory loss. Each chapter discusses a different aspect of having dementia, from the initial assessment and diagnosis through placement in a nursing home. The discussions are grounded in qualitative research and case studies, which convey the variable and personal nature of the experience. They seek to help clinicians, researchers, students, and caregivers (both professionals and family members) understand the experience of dementia, and thereby to promote better caregiving through a person-centered approach. Contributors: Kathleen Kahn-Denis, Judson Retirement Community; Casey Durkin, a psychotherapist in Cleveland, Ohio; Jane Gilliard, Dementia Voice, UK; Phyllis Braudy Harris, John Carroll University; John Keady, University of Wales, UK; John Killick, University of Stirling, UK; Rebecca G. Logsdon, University of Washington; Charlie Murphy, University of Stirling, UK; Alison Phinney, University of British Columbia, Canada; Steven R. Sabat, Georgetown University; Dorothy Seman, Alzheimer's Family Care Center, Chicago; Lisa Snyder, University of California, San Diego; Jane Stansell, Alzheimer's Family Care Center, Chicago; Gloria Sterin, Shaker Heights, Ohio; Jon C. Stuckey, Messiah College; Robyn Yale, Consultant to the Alzheimer's Association, San Francisco; Rosalie Young, Wayne State University School of Medicine.

Alzheimer's Disease and the Family

Author : Joy S. Martyniuk
Publisher : Unknown
Page : 40 pages
File Size : 53,5 Mb
Release : 1990
Category : Alzheimer's disease
ISBN : MINN:31951003086767N

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Alzheimer's Disease and the Family by Joy S. Martyniuk Pdf

The 36-Hour Day

Author : Nancy L. Mace,Peter V. Rabins
Publisher : JHU Press
Page : 380 pages
File Size : 54,8 Mb
Release : 2011-10-07
Category : Health & Fitness
ISBN : 9781421402796

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The 36-Hour Day by Nancy L. Mace,Peter V. Rabins Pdf

Originally published in 1981, The 36-Hour Day was the first book of its kind. Thirty years later, with dozens of other books on the market, it remains the definitive guide for people caring for someone with dementia. Now in a new and updated edition, this best-selling book features thoroughly revised chapters on the causes of dementia, managing the early stages of dementia, the prevention of dementia, and finding appropriate living arrangements for the person who has dementia when home care is no longer an option.

The Hidden Victims of Alzheimer's Disease

Author : Steven H. Zarit,Nancy K. Orr,Judy M. Zarit
Publisher : NYU Press
Page : 231 pages
File Size : 48,6 Mb
Release : 1985-08
Category : Medical
ISBN : 9780814796634

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The Hidden Victims of Alzheimer's Disease by Steven H. Zarit,Nancy K. Orr,Judy M. Zarit Pdf

An invaluable resource guide for anyone working with persons suffering from Alzheimer's disease, this is the first book to present a step-by-step program to help families cope with the day-to-day problems arising from this disease. Using detailed case examples, the authors offer unique and effective strategies to help the family—and the patient—have enjoyable and more productive lives. "Well written and eminently practical guide for families struggling with the burdens of Alzheimer's disease." —Peter V. Rabins, M.D., John Hopkins University School of Medicine, author of Thirty-Six Hour Day "An outstanding book dealing knowledgeably and sensitively with a painful disease affecting millions of American familes." —Robert N. Butler, M.D., Brookdale Professor of Geriatrics and Adult Development, Mount Sinai School of Medicine, New York

Alzheimer's Disease

Author : Lenore S. Powell,Katie Courtice
Publisher : Da Capo Press, Incorporated
Page : 308 pages
File Size : 41,5 Mb
Release : 1983-01-21
Category : Alzheimer's disease
ISBN : IND:39000013417378

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Alzheimer's Disease by Lenore S. Powell,Katie Courtice Pdf

Alzheimer's Disease

Author : Wayne A. Caron,James J. Pattee,Orlo Otteson
Publisher : Unknown
Page : 244 pages
File Size : 50,5 Mb
Release : 2001-05
Category : Health & Fitness
ISBN : 0962961426

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Alzheimer's Disease by Wayne A. Caron,James J. Pattee,Orlo Otteson Pdf

Caregiving for Alzheimer’s Disease and Related Disorders

Author : Steven H. Zarit,Ronda C. Talley
Publisher : Springer
Page : 0 pages
File Size : 50,8 Mb
Release : 2014-12-13
Category : Psychology
ISBN : 1489991514

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Caregiving for Alzheimer’s Disease and Related Disorders by Steven H. Zarit,Ronda C. Talley Pdf

Assisting someone with Alzheimer’s disease or another illness that causes dementia is incredibly demanding and stressful for the family. Like many disabling conditions, Alzheimer’s disease leads to difficulty or inability to carry out common activities of daily life, and so family members take over a variety of tasks ranging from managing the person’s finances to helping with intimate activities such as bathing and dressing. Key coverage in Caregiving for Alzheimer’s Disease and Related Disorders includes: Early diagnosis and family dynamics Emotional needs of caregivers Developmentally appropriate long-term care for people with Alzheimer’s Family caregivers as members of the Alzheimer’s treatment Team Legal and ethical issues for caregivers Faith and spirituality The economics of caring for individuals with Alzheimer’s disease Cultural, racial, ethnic, and socioeconomic issues of minority caregivers Advances in Alzheimer’s disease research Caregiving for Alzheimer’s Disease and Related Disorders offers a wealth of insights and ideas for researchers, practitioners, and graduate students across the caregiving fields, including psychology, social work, public health, geriatrics and gerontology, and medicine as well as public and education policy makers.

The Loss of Self

Author : Donna Cohen,Carl Eisdorfer
Publisher : Bantam Doubleday Dell Publishing Group
Page : 560 pages
File Size : 46,6 Mb
Release : 1987
Category : Medical
ISBN : PSU:000016304765

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The Loss of Self by Donna Cohen,Carl Eisdorfer Pdf

A Cup of Comfort for Families Touched by Alzheimer's

Author : Colleen Sell
Publisher : Simon and Schuster
Page : 336 pages
File Size : 44,9 Mb
Release : 2008-10-17
Category : Health & Fitness
ISBN : 9781598696516

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A Cup of Comfort for Families Touched by Alzheimer's by Colleen Sell Pdf

Family & health.

Talking to Alzheimer's

Author : Claudia Strauss
Publisher : New Harbinger Publications
Page : 192 pages
File Size : 40,8 Mb
Release : 2002-01-01
Category : Family & Relationships
ISBN : 9781608822522

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Talking to Alzheimer's by Claudia Strauss Pdf

Alzheimer's can have a devastating impact on a patient's close relationships and all too often, family members and friends feel so uncomfortable that they end up dreading visits, or simply give up trying to stay in contact with the patient. This book offers a wealth of practical things you can do to stay connected with the Alzheimer's patient in your life. It offers straightforward suggestions and invaluable do's and don'ts, with advice on everything from dealing effectively with the inevitable repetition that occurs in conversations with an Alzheimer's patient to helpful strategies for saying no to unrealistic demands. It also includes thoughtful tips to remind you to take care of your own feelings and suggestions for helping children become comfortable with visiting an Alzheimer's sufferer.

Diabetes and Aging-related Complications

Author : Sho-ichi Yamagishi
Publisher : Springer
Page : 0 pages
File Size : 40,6 Mb
Release : 2019-02-11
Category : Medical
ISBN : 981135121X

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Diabetes and Aging-related Complications by Sho-ichi Yamagishi Pdf

This book addresses why and how the aging process is accelerated under diabetes, providing valuable and comprehensive information for the management of various types of diabetes- and aging-related disorders. Since several papers have shown that average life span and healthy life expectancy are reduced in diabetic patients, especially in those with a long history of disease, the early detection and treatment of diabetes-related complications are urgently needed in order to slow the aging process and help people successfully live with diabetes. Each chapter of this book addresses a specific diabetes and aging-related complication. The topics covered include not only diabetic vascular complications, the leading causes of morbidities and high mortality rates in both type 1 and type 2 diabetic patients, but also other aging-related complications such as Alzheimer’s disease, osteoporosis, periodontitis and cancer growth and metastasis. Experts on each topic discuss the background of the aging process and methods for coping with diabetes-related complications. The book as a whole, as well as the individual chapters, offer a valuable resource for researchers and practitioners in the fields of diabetic studies, gerontology, and aging science.

Six Steps to Managing Alzheimer's Disease and Dementia

Author : Andrew E. Budson MD,Maureen K. O'Connor PsyD
Publisher : Oxford University Press
Page : 353 pages
File Size : 52,9 Mb
Release : 2021-08-23
Category : Medical
ISBN : 9780190098148

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Six Steps to Managing Alzheimer's Disease and Dementia by Andrew E. Budson MD,Maureen K. O'Connor PsyD Pdf

Your needs as a caregiver are just as important as those your family member with Alzheimer's Disease or dementia. This book will provide just the insight and guidance you need. Caregiving for a loved one with Alzheimer's disease or dementia is hard. It's hard whether you're caring for your spouse, parent, grandparent, sibling, other family member, or friend. Even if you had an extra ten hours each day to do it, it's hard to manage all the problems that come with dementia. And caring for a loved one with dementia can sometimes feel like a long, lonely journey. Six Steps to Managing Alzheimer's Disease and Dementia can help, addressing concerns such as: · Is the problem Alzheimer's, dementia, or something else? · How do you approach problems in dementia? · How do you manage problems with memory, language, and vision? · How do you cope with emotional and behavioral problems? · What are the best ways to manage troubles with sleep and incontinence? · Which medications can help? · Which medications can actually make things worse? · How do you build your care team? · Why is it important to care for yourself? · How do you sustain your relationship with your loved one? · How do you plan for the progression of dementia? · How do you plan for the end and beyond? Six Steps to Managing Alzheimer's Disease and Dementia is comprehensive yet written in an easy-to-read style, featuring clinical vignettes and character-based stories that provide real-life examples of how to successfully manage Alzheimer's disease and dementia.