Assessing Health Related Quality Of Life Of Children

Author : Pei Wang,Shunping Li,Jing Wu,Nan Luo
Publisher : Frontiers Media SA
Page : 252 pages
File Size : 40,9 Mb
Release : 2024-02-20
Category : Medical
ISBN : 9782832544877

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Assessing Health-related Quality of Life of Children by Pei Wang,Shunping Li,Jing Wu,Nan Luo Pdf

Assessing health-related quality of life (HRQOL) of Children has been a popular topic in recent years worldwide. However, there are several issues/gaps in this research area which need to be addressed. For instance, previous studies on HRQOL of Children populations have normally used HRQOL instruments designed for adults. These measurements may not be suitable for children as they are in a series of cognitive developmental stages and have different perspectives towards the relative importance of HRQOL dimensions. In order to tackle this issue and to accurately measure children’s HRQOL, a set of dedicated HRQOL instruments should be first developed and validated. The validated instruments could then be applied to the population measuring their HRQOL. In addition, the HRQOL information collected could be translated into health utility score if it is measured by utility instruments (e.g., EQ-5D-Y) for the population. Moreover, the relevant studies on these issues is still lacking especially in non-western countries.

Author : Dennis Drotar
Publisher : Psychology Press
Page : 394 pages
File Size : 44,9 Mb
Release : 2014-06-03
Category : Psychology
ISBN : 9781317824565

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Measuring Health-Related Quality of Life in Children and Adolescents by Dennis Drotar Pdf

This volume's purpose is to describe concepts and methods concerning assessment of health-related quality of life (HRQOL) in children and adolescents with a special focus on chronic health conditions. The impetus for this book came from a recognition of the increasing importance of HRQOL assessments in the evaluation of treatment outcomes and the need to increase the utilization of HRQOL assessments in research and clinical applications with a range of pediatric populations. The need to develop a volume that describes new research and clinical applications concerning this topic stemmed from several recent developments. There is a continuing need for evaluations of the efficacy of medical treatments for children and adolescents, including those with chronic health conditions. To address these critical unmet needs in the field of HRQOL assessment, and to advance scientific methods and clinical applications in this field, a conference was held at Case Western Reserve University. The conference set out to summarize current information concerning the development and implementation of measures of HRQOL assessment, to identify and consider key conceptual and methodological issues in research concerning the measurement of HRQOL, and to recommend priorities to advance the state-of-the-art in research and clinical applications of QOL assessment in children and adolescents with chronic health conditions. This volume summarizes and synthesizes the information that was presented by the conference participants in a series of lively discussions and chapters that were based on the presentations.

Author : Dennis Drotar
Publisher : Psychology Press
Page : 387 pages
File Size : 49,8 Mb
Release : 2014-06-03
Category : Psychology
ISBN : 9781317824572

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Measuring Health-Related Quality of Life in Children and Adolescents by Dennis Drotar Pdf

This volume's purpose is to describe concepts and methods concerning assessment of health-related quality of life (HRQOL) in children and adolescents with a special focus on chronic health conditions. The impetus for this book came from a recognition of the increasing importance of HRQOL assessments in the evaluation of treatment outcomes and the need to increase the utilization of HRQOL assessments in research and clinical applications with a range of pediatric populations. The need to develop a volume that describes new research and clinical applications concerning this topic stemmed from several recent developments. There is a continuing need for evaluations of the efficacy of medical treatments for children and adolescents, including those with chronic health conditions. To address these critical unmet needs in the field of HRQOL assessment, and to advance scientific methods and clinical applications in this field, a conference was held at Case Western Reserve University. The conference set out to summarize current information concerning the development and implementation of measures of HRQOL assessment, to identify and consider key conceptual and methodological issues in research concerning the measurement of HRQOL, and to recommend priorities to advance the state-of-the-art in research and clinical applications of QOL assessment in children and adolescents with chronic health conditions. This volume summarizes and synthesizes the information that was presented by the conference participants in a series of lively discussions and chapters that were based on the presentations.

Author : Marita Rohr Inglehart,Robert Bagramian
Publisher : Quintessence Publishing (IL)
Page : 232 pages
File Size : 55,8 Mb
Release : 2002
Category : Medical
ISBN : UOM:39015056172250

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Oral Health-related Quality of Life by Marita Rohr Inglehart,Robert Bagramian Pdf

ABSTRACT: Helping patients achieve an optimal quality of life through patient-centered treatment planning should be the ultimate goal of all oral health care providers. However, this issue extends beyond the realm of the individual clinician's office. This text presents quality-of-life research from various fields, including psychology, public health, and general health care; discusses how a patient-centered approach can be applied to basic oral and craniofacial research, clinical dental practice, community dental health issues, and dental education; and addresses how oral health-related quality of life relates to treating and understanding different patient populations, such as children with special needs, medically compromised patients, patients with oral cancer, and patients with chronic facial pain. Also discussed is how factors such as race/ethnicity, gender, and age can affect oral health-related quality-of-life concerns and treatment strategies. Finally, the book offers an outlook on the role that oral health-related quality of life will play in future research and dental education.

Author : Hans Koot,Jan Wallander
Publisher : Routledge
Page : 480 pages
File Size : 40,5 Mb
Release : 2014-01-14
Category : Health & Fitness
ISBN : 9781317763017

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Quality of Life in Child and Adolescent Illness by Hans Koot,Jan Wallander Pdf

How can we measure the quality of life in children and adolescents with chronic disease? Major progress in the diagnosis and treatment of severe and chronic disease has led to an increased number of children and their families having to adapt and cope with the impact of disease, survival, and the cost of treatment. Health professionals have responded to this by developing a diversity of instruments for measuring quality of life for use in paediatrics, psychology and public health. This book introduces the reader to the emerging field of quality of life assessment and provides a comprehensive overview of the conceptual and methodological issues concerning quality of life in child and adolescent illness. Particular emphasis is provided on current efforts to measure the impact of specific chronic conditions on different domains of child functioning. Future directions are outlined for the development of appropriate instruments for measuring quality of life in children and adolescents. Quality of Life in Child and Adolescent Illness is intended for psychologists, paediatricians, paediatric nurses, child psychiatrists, public health professionals, researchers and other interested readers from the undergraduate to the working professional.

Author : Marc D. Gellman,J. Rick Turner
Publisher : Unknown
Page : 128 pages
File Size : 40,9 Mb
Release : 2024-06-07
Category : Clinical health psychology
ISBN : 1461464390

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Encyclopedia of Behavioral Medicine by Marc D. Gellman,J. Rick Turner Pdf

Author : Shulamith Kreitler,Myriam Weyl Ben-Arush,Andrés Martin
Publisher : John Wiley & Sons
Page : 341 pages
File Size : 46,7 Mb
Release : 2012-07-02
Category : Medical
ISBN : 9781118307809

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Pediatric Psycho-oncology by Shulamith Kreitler,Myriam Weyl Ben-Arush,Andrés Martin Pdf

Like the ground-breaking first edition, Pediatric Psycho-oncology, Second edition puts the child at the centre of medical and psychological care. It broadens the focus beyond treatment and cure to consider the quality of life of the child and their family. Written by an international group of pediatric oncologists and psychologists/psycho-oncologists brought together by an expert editorial team, it focuses on the real-life practical aspects of children undergoing treatment for cancer. This edition has been restructured and opens with a major section on Active treatment, which includes chapters addressing quality of life, pain, psychosocial aspects of treatment and interventions, art therapy and different fantasy-based techniques, palliative care, communication and education, as well as a new chapter on psychopharmacology. Shorter sections then discuss survivorship and care of the dying child, including a new chapter on bereavement. The final section comprises new chapters on ethical considerations and on addressing the emotional needs of children whose parents have cancer, as well as a case study on international collaboration. An appendix provides a comprehensive overview of tools for evaluation and assessment in pediatric psychooncology. This book is a highly practical resource that will be invaluable for all health care professionals looking after children and adolescents with cancer.

Author : Institute of Medicine,Board on Health Sciences Policy,Committee on Palliative and End-of-Life Care for Children and Their Families
Publisher : National Academies Press
Page : 713 pages
File Size : 54,9 Mb
Release : 2003-02-09
Category : Medical
ISBN : 9780309084376

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When Children Die by Institute of Medicine,Board on Health Sciences Policy,Committee on Palliative and End-of-Life Care for Children and Their Families Pdf

The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.

Author : Prem Puri
Publisher : CRC Press
Page : 1048 pages
File Size : 42,6 Mb
Release : 2011-11-25
Category : Medical
ISBN : 9781444149494

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Newborn Surgery 3E by Prem Puri Pdf

Newborn Surgery, Third Edition provides a comprehensive compendium of the pathophysiology, investigation and management of neonatal disorders. Areas covered include in this new edition include: Preoperative assessment Anesthesia Postoperative management Nutrition Ethical considerations in newborn surgery Head, neck, and chest surgery Esophagus and gastrointestinal tract surgery Liver and biliary tract surgery Anterior abdominal wall defects Tumors Spina bifida and hydrocephalus Genitourinary issues Long-term outcomes in newborn surgery With its uniquely comprehensive coverage of neonatal surgical specialties, this book is the first stop for anyone looking to supplement their knowledge in this broad and increasingly disparate field, including pediatric surgeons, general surgeons with pediatric practice, neonatologists, pediatricians, and pediatric radiologists.

Author : Anonim
Publisher : Unknown
Page : 1796 pages
File Size : 48,9 Mb
Release : 2000
Category : Medicine
ISBN : OSU:32436010864583

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Cumulated Index Medicus by Anonim Pdf

Author : Ronald T. Brown
Publisher : Oxford University Press
Page : 608 pages
File Size : 46,8 Mb
Release : 2006-04-06
Category : Psychology
ISBN : 9780190290924

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Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease by Ronald T. Brown Pdf

Over recent decades, tremendous advances in the prevention, medical treatment, and quality of life issues in children and adolescents surviving cancer have spawned a host of research on pediatric psychosocial oncology. This important volume fulfills the clear need for an up-to-date, comprehensive handbook for practitioners that delineates the most recent research in the field--the first of its kind in over a decade. Over 60 renowned authors have been assembled to provide a thorough presentation of the state-of-the art research and literature, with topics including: -Neuropsychological effects of chemotherapy and radiation therapy -Bone marrow transplantation -Important issues about quality of life during and following treatment -Collaborative research among child-focused psychologists -Standards of psychological care for children and adolescents -Stress and coping in the pediatric cancer experience -The role of family and peer relationships The Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease represents both multidisciplinary and international efforts, an alliance between physicians and parents, and a combination of research and service. With a wealth of information of great interest to patients and their families, this volume will also be a welcome resource to the psychologists, psychiatrists, pediatricians, oncologists, nurses, and social workers who confront these issues as they help children and their families through the treatment, recovery, and grieving processes.

Author : Valerie Michaelson,Nathan King,William Pickett
Publisher : Springer
Page : 104 pages
File Size : 45,6 Mb
Release : 2017-08-21
Category : Social Science
ISBN : 9783319648316

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Holistic Health in Children: Conceptualization, Assessment and Potential by Valerie Michaelson,Nathan King,William Pickett Pdf

This book presents the results of the Canadian Holistic Health in Children project. Rooted in an ancient concept, this study addresses some novel thinking surrounding the assessment of health and its determinants in adolescent populations. Holism refers to the assessment of complex systems as composite wholes, instead of or in addition to their constituent parts. This idea is rarely applied to the study of health in children, and its application to adolescent populations represents a potentially important gap in knowledge. It fills this gap by conducting a series of analyses in a mixed methods paradigm. Quantitatively, it develops new measures and analytic strategies to be used in the assessment of health and its determinants in adolescents, and then applied these a series of national and cross-national studies. Qualitatively, it explores the origins and models of health inferred from existing theory as well as quantitative findings with groups of young people, and captures the richness of their stories in recurrent themes and metaphor. This book outlines the basic elements of theory that underlie holistic understandings of adolescent health, quantitative and qualitative findings, and then presents and interprets the results and translates them into a series of practical recommendations.

Author : Anonim
Publisher : Unknown
Page : 1336 pages
File Size : 55,8 Mb
Release : 1990
Category : AIDS (Disease)
ISBN : NYPL:33433078242488

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Journal of the National Cancer Institute by Anonim Pdf

Author : Diego F. Wyszynski,Adolfo Correa-Villaseñor,Thomas P. Graham
Publisher : Oxford University Press, USA
Page : 561 pages
File Size : 40,5 Mb
Release : 2010
Category : Language Arts & Disciplines
ISBN : 9780195373882

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Congenital Heart Defects by Diego F. Wyszynski,Adolfo Correa-Villaseñor,Thomas P. Graham Pdf

Congenital Heart Defects (CHDs) are the most frequently occurring birth defect, affecting over 25,000 infants a year in the US. This text serves as the definitive reference on the subject, coving all aspects of these malformations. The text includes chapters on the development, epidemiology, genetics, diagnosis, management and prevention of CHDs, and includes additional discussions of the public health and ethical issues of CHDs.

Author : Shulamith Kreitler,Myriam Weyl Ben Arush
Publisher : John Wiley & Sons
Page : 472 pages
File Size : 51,8 Mb
Release : 2004-08-13
Category : Medical
ISBN : 9780470020760

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Psychosocial Aspects of Pediatric Oncology by Shulamith Kreitler,Myriam Weyl Ben Arush Pdf

This book is a comprehensive text on the all-important psychosocial aspects of cancer in children. Edited by an experienced psycho-oncologist and an equally experienced pediatric oncologist, the book brings together an international group of contributors composed of pediatric oncologists and psychologists/psycho-oncologists. This unique balance of contributors gives the book a focus on the real-life practical aspects of children undergoing treatment for cancer. The book helps health care professionals, who look after children and adolescents with cancer, in dealing with the difficult and complex problems that face the child, his siblings and his parents. It deals with critical issues such as the neuropsychological impact of treatment, (including bone marrow transplantation), pain, quality of life in survivors, palliative care, talking to children and their families about death, and providing support to the dying. An important part of the book provides tools for evaluation and methods of psychological intervention. It is thus a very practical work for psycho-oncologists, pediatric oncologists, pediatricians, psychologists, nurses, social workers and art therapists dealing with the problems that children with cancer have to confront. A comprehensive book on the clinical approach to psychosocial problems of children with cancer Includes evaluation tools and psychological intervention techniques Contributions from both pediatric oncologists and psycho-oncologists highlight the team approach to the treatment of childhood cancers