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Community Palliative Care and COVID-19 by Tania Blackmore,Georgina Parker Pdf
This handbook is an essential guide to caring for the community palliative care patient in relation to COVID-19, when the patient’s preferred place of care is at home or the hospice. It will guide you through appropriate care procedures and protocols in managing end-of-life patients who show symptoms of COVID-19. Key features include: Difficult conversations and communication skills Symptom management Advance care planning Caring for stable patients with palliative needs and those who are at end-of-life Supporting the family and friends of the patient Your own well-being as a healthcare professional Supported by applicable case studies from a range of community care settings, this guide will be relevant to anyone affected by the challenges of COVID-19 when managing end-of-life patients or caring for older people, including paramedics, nurses and palliative care providers.
Compassionate Communities by Klaus Wegleitner,Katharina Heimerl,Allan Kellehear Pdf
Compassionate communities are communities that provide assistance for those in need of end of life care, separate from any official heath service provision that may already be available within the community. This idea was developed in 2005 in Allan Kellehear’s seminal volume- Compassionate Cities: Public Health and End of Life Care. In the ensuing ten years the theoretical aspects of the idea have been continually explored, primarily rehearsing academic concerns rather than practical ones. Compassionate Communities: Case Studies from Britain and Europe provides the first major volume describing and examining compassionate community experiments in end of life care from a highly practical perspective. Focusing on community development initiatives and practice challenges, the book offers practitioners and policy makers from the health and social care sectors practical discussions on the strengths and limitations of such initiatives. Furthermore, not limited to providing practice choices the book also offers an important and timely impetus for other practitioners and policy makers to begin thinking about developing their own possible compassionate communities. An essential read for academic, practitioner, and policy audiences in the fields of public health, community development, health social sciences, aged care, bereavement care, and hospice & palliative care, Compassionate Communities is one of only a handful of available books on end of life care that takes a strong health promotion and community development approach.
Community Palliative Care examines the complex support andinformation needs of seriously ill patients and their families andwill encompass not only the patient’s journey, but that ofthe family during the illness trajectory and into the bereavementperiod. The text is divided into three sections- professionals, patientsand carers. The first section discusses the roles and contributionsmade by other members of the primary health care team and examinesthe role of the nurse. Section two explores the psychosocialsupport needed by patients receiving palliative care, and looks atthe community palliative care clinical nurse specialists’role in relation to psychological, as well as practical problemssurrounding a life threatening illness. The final section will lookat the needs of the family and carers and the support that thecommunity palliative care clinical nurse specialist can offer tothe individuals. Included in this segment will be the complexissues faced by carers in relation to the changing roles within thefamily, children, death and bereavement.
Palliative Care for Chronic Cancer Patients in the Community by Michael Silbermann Pdf
The new global cancer data suggests that the global burden has risen to 18.1 million new cases per year and 9.6 million cancer deaths per year. A number of factors appear to be driving this increase, in particular, a growing and aging global population and an increase of exposure to cancer risk factors linked to social and economic development. For rapidly-growing economies, the data suggests a shift from poverty- or infection-related cancers to those associated with lifestyles more typical in industrialized countries. There is still large geographical diversity in cancer occurrence and variations in the magnitude and profile of the disease between and within world regions. There are specific types of cancer that dominate globally: lung, female breast and colorectal cancer, and the regional variations in common cancer types signal the extent to which societal, economic and lifestyle changes interplay to deferentially impact on the profile of this most complex group of diseases. Unfortunately, despite advances in cancer care, a significant proportion of patients at home, experience sub-optimal outcomes. Barriers to successful treatment outcomes include, but are not limited to: access to oncologists in the primary health centers, non-adherence, lack of experienced oncology and palliative care nurses in the community, inadequate monitoring and the lack of training of family and pediatric physicians. Telemedicine approaches, including telephone triage/education, telemonitoring, teleconsultation and status tracking through mobile applications, have shown promise in further improving outcomes, in particular for chronic cancer patients following their hospitalization. Lessons can be learned from existing hospices in North America, the United Kingdom, Australia, Centers of Excellence in African (Uganda) and modern community services in India (Kerala). An important goal of this book is to describe and encourage professionals to develop new community programs in palliative care, which include training and empowering physicians and nurses in the community on the principles of palliative care. The Middle East Cancer Consortium (MECC) together with the American Society of Clinical Oncology (ASCO) and the American Oncology Nursing Society (ONS) have conducted multiple courses ranging from basic palliative care to more specialized training in palliative care for multiple nationalities in Europe, Asia and Africa. Our experience clearly indicates that, to promote such activities, one needs strong leadership and confirmed political will to support the endeavor. The new book will emphasize the importance of having a core of multiple stakeholders including community leaders, government, NGOs and media to be actively involved in advocating for the cause and generating public awareness. This text will provide the reader with a comprehensive understanding of the outside-of-the-hospital treatment of cancer patients by medical, paramedical and volunteer personnel. In doing so, this text will encourage the creation of new palliative care services improving upon the existing ones and stimulate further research in this field. Part 1 of the text will begin with an overview of the current state of affairs of services provided to cancer patients while being cared for by primary health centers. It will also review the current literature regarding medical and psychological-based therapy options in the community for cancer patients at different stages of their disease. Part 2 will address the unique role of the community nurse, within the framework of the multidisciplinary team treating the patient, in the attempt to provide optimal evaluation and care in very challenging situations (such as with terminal patients). Part 3 will provide insightful models of this new discipline and serve as a valuable resource for physicians, nurses, social workers and others involved in the care of cancer patients. The book will take a multidisciplinary approach, integrating clinical and environmental data for practical management to enhance the efficacy of treatment while relieving suffering. Part 4 will also discuss the application of modern technological approaches to track symptoms, quality of life, diet, mobility, duration of sleep and medication use (including pain killers) in chronic cancer patients in the community. Part 5 of the book will also be devoted to modes of developing a collaborative program between governmental and non-governmental organization sectors. This includes volunteer workers in close collaboration with medical professionals for providing emotional and spiritual support, nursing care, nutritional support and empowering family caregivers. Such a model makes palliative care in the community a “people’s movement”, thus transferring part of the responsibility and ownership to the community.
The Caring Community : a Fieldbook for Hospice Palliative Care Volunteer Services by Rothstein, Jerry,Rothstein, Miriam,British Columbia Hospice Palliative Care Association Pdf
Community Palliative Care examines the complex support and information needs of seriously ill patients and their families and will encompass not only the patient’s journey, but that of the family during the illness trajectory and into the bereavement period. The text is divided into three sections- professionals, patients and carers. The first section discusses the roles and contributions made by other members of the primary health care team and examines the role of the nurse. Section two explores the psychosocial support needed by patients receiving palliative care, and looks at the community palliative care clinical nurse specialists’ role in relation to psychological, as well as practical problems surrounding a life threatening illness. The final section will look at the needs of the family and carers and the support that the community palliative care clinical nurse specialist can offer to the individuals. Included in this segment will be the complex issues faced by carers in relation to the changing roles within the family, children, death and bereavement.
Hospice Palliative Home Care and Bereavement Support by Lorraine Holtslander,Shelley Peacock,Jill Bally Pdf
This book provides an unique resource for registered nurses working in hospice palliative care at home and for the community, outside of acute care settings and also incorporates literature related to palliative care in acute health care settings, as part of the overall services and supports required. Very few resources exist which specifically address hospice palliative care in the home setting, despite the fact that most palliative care occurs outside acute care settings and is primarily supported by unpaid family caregivers. An overview of the concerns for individuals and families, as well as specific nursing interventions, from all ages would be an excellent support for nursing students and practicing registered nurses alike. The book structure begins with a description of the goals and objectives of hospice palliative care and the nursing role in providing excellent supportive care. Chapters include research findings and specifically research completed by the authors in the areas of pediatric palliative care, palliative care for those with dementia, and the needs of family caregivers in bereavement. Interventions developed by the editors are provided in this book, such as the “Finding Balance Intervention” for bereaved caregivers; the “Reclaiming Yourself” tool for bereaved spouses of partners with dementia; and The Keeping Hope Possible Toolkit for families of children with life threatening and life limiting illnesses. The development and application of these theory-based interventions are also highlighted. Videos and vignettes written by family caregivers about what was helpful for them, provide a patient-and family-centered approach./div The book will benefit nursing students, educators and practicing registered nurses by providing information, theory, and evidence from research.
The Bedside Palliative Medicine Handbook by Allyn Hum,Han Yee Neo,Choo Hwee Poi,Mervyn Koh Pdf
Section 1: Palliative Care What is Palliative Care? (H Y Wu); Section 2: Symptoms Bone Pain (A Hum); Brain Metastasis (M Dalisay-Gallardo); Cancer Pain (R Lee); Constipation (R Chen); Delirium (S L Ang); Diarrhoea (S L Ang); Dyspnea (S L Ang); Hiccups (M Dalisay-Gallardo); Malignant Ascites (X Heng); Nausea and Vomiting (X Heng); Oral Thrush (S C Chia); Pruritus (X Heng); Section 3: End Organ Disease End-Stage Heart Failure (C H Aw); End-Stage Renal Failure (J Guan); End-Stage Lung Disease (Z-Y Chiam); End Stage Liver Disease (J Lau); Dementia and Frailty (W Y Goh); Paediatric Palliative Care (P H Chong); Section 4: Terminal Symptoms Nutrition and Hydration (M Y Chau); Palliative Sedation (C H Poi); Terminal Secretions/Rattling (M Y Chau); Section 5: Palliative Care Emergencies Acute Pain Crisis (R Lee); Airway Obstruction (Stridor) (C M Lee); Bleeding (J Ong); Hypercalcemia (C S Lee); Seizures (J Ong); Malignant Spinal Cord Compression (C M Yee); Superior Vena Cava Obstruction (C S Lee); Venous Thromboembolism (A Hum); Section 6: Psychosocial Issues in Palliative Care Anxiety (Y X Kwan); Depression (W P Lim); Grief and Bereavement (Y X Kwan); Spiritual Care (T Yung); Section 7: Communication Breaking Bad News (M Koh); Goals of Care Discussions (M Koh); Advance Care Planning (R Ng); An Approach to Ethical Case Analysis in Palliative Care (H Y Neo); Section 8: Community Services Community Palliative Care Services (G S Chia); Section 9: Opioids and Adjuvant Analgesics Codeine (S C Chia); Fentanyl (R Lee); Ketamine (M T Provido); Methadone (M T Provido); Morphine (H K Lee); Oxycodone (H K Lee); Tramadol (S C Chia); Lignocaine (S C Chia); Section 10: Practical Issues in Palliative Care Opioid Conversion Chart (C Tan); Continuous Subcutaneous Infusion Drug Chart; Hypodermoclysis (C Tan); Drug Compatibility (H K Lee et al.); Terminal Discharge (W Ong); Opioid Toxicity (A Hum); Palliative Care Drug Formulary (H K Lee et al.)
Oxford Handbook of Palliative Care by Max Watson,Caroline Lucas,Andrew Hoy,Jo Wells Pdf
This practical guide briefly covers the historical and epidemiological background of palliative care and the growth of palliative medicine as a specialty, before dealing with major physical, psychological, spiritual, and symptom management issues from diagnosis to bereavement care.
Collaborative Practice in Palliative Care by Dave Roberts,Laura Green Pdf
Collaborative Practice in Palliative Care explores how different professions work collaboratively across professional, institutional, social, and cultural boundaries to enhance palliative care. Analysing palliative care as an interaction between different professionals, clients, and carers, and the social context or community within which the interaction takes place, it is grounded in up-to-date evidence, includes global aspects of palliative care and cultural diversity as themes running throughout the book, and is replete with examples of good and innovative practice. Drawing on experiences from within traditional specialist palliative care settings like hospices and community palliative care services, as well as more generalist contexts of the general hospital and primary care, this practical text highlights the social or public health model of palliative care. Designed to support active learning, it includes features such as case studies, summaries, and pointers to other learning resources. This text is an important reference for all professionals engaged in palliative care, particularly those studying for post-qualification programmes in the area.
Compassionate Communities by Klaus Wegleitner,Katharina Heimerl,Allan Kellehear Pdf
Compassionate communities are communities that provide assistance for those in need of end of life care, separate from any official heath service provision that may already be available within the community. This idea was developed in 2005 in Allan Kellehear’s seminal volume- Compassionate Cities: Public Health and End of Life Care. In the ensuing ten years the theoretical aspects of the idea have been continually explored, primarily rehearsing academic concerns rather than practical ones. Compassionate Communities: Case Studies from Britain and Europe provides the first major volume describing and examining compassionate community experiments in end of life care from a highly practical perspective. Focusing on community development initiatives and practice challenges, the book offers practitioners and policy makers from the health and social care sectors practical discussions on the strengths and limitations of such initiatives. Furthermore, not limited to providing practice choices the book also offers an important and timely impetus for other practitioners and policy makers to begin thinking about developing their own possible compassionate communities. An essential read for academic, practitioner, and policy audiences in the fields of public health, community development, health social sciences, aged care, bereavement care, and hospice & palliative care, Compassionate Communities is one of only a handful of available books on end of life care that takes a strong health promotion and community development approach.
International Perspectives on Public Health and Palliative Care by Libby Sallnow,Suresh Kumar,Allan Kellehear Pdf
Public health approaches to palliative care have been growing in policy importance and practice acceptance. This innovative volume explores the major concepts, practice examples, and practice guidelines for this new approach. The goal of ‘comprehensive care’ – seamless support for patients as they transition between home based care and inpatient services – relies on the principles of health promotion and community development both to ensure services are available and importantly appropriate for patients’ needs. In developing contexts, where hospitals and hospices may be inaccessible, a public health approach provides not only continuity of care but greater access to good end of life care. This book provides both a historical and conceptual overview whilst offering practical case examples from affluent and developing contexts, in a range of clinical settings. Finally, it draws together research-based guidelines for future practice. Essential reading for public health researchers and practitioners with an interest in end of life care and global health as well as those involved in developing palliative care provision, International Perspectives on Public Health and Palliative Care is the first volume to present an overview of theory and practice in this emerging field.
Once it was difficult to see end of life care beyond conventional medical intervention, but hospice and palliative care introduced a more holistic approach, providing quality of life for the dying and their families. This ground-breaking work takes end-of-life care beyond these palliative boundaries, describing a public health vision that involves whole communities adopting a compassionate approach to dying, death and loss. Written by a leading academic in the field of death and bereavement, this text outlines the historical, political and conceptual basis of compassionate cities, providing a community development model for end-of-life care. Moving away from infection control and health promotion Allan Kellehear invites us to think of a third wave movement of public health, joining empathy, equality and action together as practical policies. Presenting a radical new perspective to death, ageing and public health, Compassionate Cities is essential reading for academics and professionals alike.
Aging Well by JEAN. HASELTINE GALIANA (WILLIAM.),William A. Haseltine Pdf
"This open access book outlines the challenges of supporting the health and wellbeing of older adults around the world and offers examples of solutions designed by stakeholders, healthcare providers, and public, private and nonprofit organizations in the United States. The solutions presented address challenges including: providing person-centered long-term care, making palliative care accessible in all healthcare settings and the home, enabling aging-in-place, financing long-term care, improving care coordination and access to care, delivering hospital-level and emergency care in the home and retirement community settings, merging health and social care, supporting people living with dementia and their caregivers, creating communities and employment opportunities that are accessible and welcoming to those of all ages and abilities, and combating the stigma of aging. The innovative programs of support and care in Aging Well serve as models of excellence that, when put into action, move health spending toward a sustainable path and greatly contribute to the well-being of older adults."--Provided by publisher.
