Dementia As Social Experience

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Dementia as Social Experience

Gaynor Macdonald,Jane Mears
Dementia as Social Experience Book PDF

Author : Gaynor Macdonald,Jane Mears
Publisher : Routledge
Page : 234 pages
File Size : 49,8 Mb
Release : 2018-07-26
Category : Social Science
ISBN : 9781351241793

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Dementia as Social Experience by Gaynor Macdonald,Jane Mears Pdf

A diagnosis of dementia changes the ways people engage with each other – for those living with dementia, as well their families, caregivers, friends, health professionals, neighbours, shopkeepers and the community. Medical understandings, necessary as they are, provide no insights into how we may all live good lives with dementia. This innovative volume brings together an interdisciplinary group of researchers and practitioners to focus on dementia as lived experience. It foregrounds dementia’s social, moral, political and economic dimensions, investigating the challenges of reframing the dementia experience for all involved. Part I critiques the stigmas, the negativity, language and fears often associated with a dementia diagnosis, challenging debilitating representations and examining ways to tackle these. Part II examines proactive practices that can support better long-term outcomes for those living with dementia. Part III looks at the relational aspects of dementia care, acknowledging and going beyond the notion of person-centred care. Collectively, these contributions highlight the social and relational change required to enhance life for those with dementia and those who care for them. Engaging in a critical conversation around personhood and social value, this book examines the wider social contexts within which dementia care takes place. It calls for social change, and looks for inspiration to the growing movement for relational care and the caring society. Dementia as Social Experience is important reading for all those people who, in various ways, are living with dementia, as well as for those working in this area as clinicians, researcher and carers.

Losing Me, While Losing You

Jeanette A. Auger,Diane Tedford-Litle,Brenda Wallace-Allen
Losing Me While Losing You Book PDF

Author : Jeanette A. Auger,Diane Tedford-Litle,Brenda Wallace-Allen
Publisher : Fernwood Publishing
Page : 218 pages
File Size : 41,5 Mb
Release : 2021-09-21T00:00:00Z
Category : Health & Fitness
ISBN : 9781773635019

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Losing Me, While Losing You by Jeanette A. Auger,Diane Tedford-Litle,Brenda Wallace-Allen Pdf

Losing Me, While Losing You is a long-needed resource to those providing care for people living with dementia — and for those providing care to the caregivers. In this book, caregivers speak from their own experiences of caring for loved ones with dementia; they cover when they first noticed behavioural changes, what they did and how their roles changed when they received the diagnosis, how the experiences changed their perceptions of themselves, especially in cases where important ones no longer recognized them or their, often long-standing, relationships. The caregivers also talked about what resources, if any, were available to support them through the caregiving journey and what recommendations they would make to government policymakers and to others in similar situations. This book is unique in that it documents the personal lived experience of loss which family, friends and caregivers go through as their roles, expectations and images of self are changed throughout the caregiving process.

Reducing the Impact of Dementia in America

National Academies of Sciences Engineering and Medicine,Division of Behavioral and Social Sciences and Education,Board on Behavioral Cognitive and Sensory Sciences,Committee on the Decadal Survey of Behavioral and Social Science Research on Alzheimer's Disease and Alzheimer's Disease-Related Dementias
Reducing the Impact of Dementia in America Book PDF

Author : National Academies of Sciences Engineering and Medicine,Division of Behavioral and Social Sciences and Education,Board on Behavioral Cognitive and Sensory Sciences,Committee on the Decadal Survey of Behavioral and Social Science Research on Alzheimer's Disease and Alzheimer's Disease-Related Dementias
Publisher : Unknown
Page : 128 pages
File Size : 43,5 Mb
Release : 2022-04-26
Category : Electronic
ISBN : 0309495032

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Reducing the Impact of Dementia in America by National Academies of Sciences Engineering and Medicine,Division of Behavioral and Social Sciences and Education,Board on Behavioral Cognitive and Sensory Sciences,Committee on the Decadal Survey of Behavioral and Social Science Research on Alzheimer's Disease and Alzheimer's Disease-Related Dementias Pdf

As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.

Broadening the dementia debate

Bartlett, Ruth,O'Connor, Deborah
Broadening the dementia debate Book PDF

Author : Bartlett, Ruth,O'Connor, Deborah
Publisher : Policy Press
Page : 169 pages
File Size : 46,6 Mb
Release : 2010-06-01
Category : Social Science
ISBN : 9781847428585

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Broadening the dementia debate by Bartlett, Ruth,O'Connor, Deborah Pdf

Dementia has been widely debated from the perspectives of biomedicine and social psychology. This book broadens the debate to consider the experiences of men and women with dementia from a sociopolitical perspective. It brings to the fore the concept of social citizenship, exploring what it means within the context of dementia and using it to re-examine the issue of rights, status(es), and participation. Most importantly, the book offers fresh and practical insights into how a citizenship framework can be applied in practice. It will be of interest to health and social care professionals, policy makers, academics and researchers and people with dementia and family carers may find it revitalising.

Design for People Living with Dementia

Paul A. Rodgers
Design for People Living with Dementia Book PDF

Author : Paul A. Rodgers
Publisher : Routledge
Page : 371 pages
File Size : 48,6 Mb
Release : 2022-05-05
Category : Design
ISBN : 9781000568653

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Design for People Living with Dementia by Paul A. Rodgers Pdf

This book presents the latest research that shows how design thinking, making, and acting contribute to the co-designing and development of products, spaces, and services with people living with dementia. We know that there is currently no cure for the 130+ kinds of dementia that millions of people live with all over the world, but the designed interventions such as the products, spaces, and services described in this book can address stigma, isolation, loss of confidence, and raise awareness and greater understanding of dementia. This book showcases a range of innovative and creative design interventions that have been developed to break the cycle of well-established opinions, strategies, mindsets, and ways of doing that tend to remain unchallenged in the health and social care of people living with dementia. The book will be of interest to scholars working in product design, service design, experience design, architecture, design research, information design, user-centred design, and design for health.

Dementia and Place

Ward, Richard,Clark, Andrew
Dementia and Place Book PDF

Author : Ward, Richard,Clark, Andrew
Publisher : Policy Press
Page : 238 pages
File Size : 51,9 Mb
Release : 2021-09-24
Category : Health & Fitness
ISBN : 9781447349037

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Dementia and Place by Ward, Richard,Clark, Andrew Pdf

Giving voice to the lived experiences of people with dementia across the globe, including Australia, Canada, Sweden and the UK, this critical and evidence-based collection engages with the realities of life for people living with dementia at home and within their neighbourhoods. This insightful text addresses the fundamental social aspects of environment, including place attachment, belonging and connectivity. The chapters reveal the potential and expose the challenges for practitioners and researchers as dementia care shifts to a neighbourhood setting. The unique ‘neighbourhood-centred’ perspective provides an innovative guide for policy and practice and calls for a new place-based culture of care and support in the neighbourhood.

Ageing, Dementia and the Social Mind

Paul Higgs,Chris Gilleard
Ageing Dementia and the Social Mind Book PDF

Author : Paul Higgs,Chris Gilleard
Publisher : John Wiley & Sons
Page : 168 pages
File Size : 53,6 Mb
Release : 2017-07-03
Category : Social Science
ISBN : 9781119398011

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Ageing, Dementia and the Social Mind by Paul Higgs,Chris Gilleard Pdf

A groundbreaking exploration of the sociology of dementia — with contributions from distinguished international scholars and practitioners. Organised around the four themes of personhood, care, social representations and social differentiation Provides a critical look at dementia and demonstrates how sociology and other disciplines can help us understand its social context as well as the challenges it poses Contributing authors explore the social terrain, responding in part, to Paul Higgs’ and Chris Gilleard’s highly influential work on ageing Breaks new ground in giving specific attention to the social and cultural dimensions of responses to dementia

Forgetting Items

Baptiste Brossard
Forgetting Items Book PDF

Author : Baptiste Brossard
Publisher : Indiana University Press
Page : 172 pages
File Size : 55,8 Mb
Release : 2019-07-31
Category : Health & Fitness
ISBN : 9780253044990

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Forgetting Items by Baptiste Brossard Pdf

Alzheimer's disease has not only profound medical consequences for the individual experiencing it but a life-changing impact on those around them. From the moment a person is suspected to be suffering from Alzheimer’s or another form of dementia, the interactions they encounter progressively change. Forgetting Items focuses on that social experience of Alzheimer’s, delineating the ways disease symptoms manifest and are understood through the interactions between patients and the people around them. Mapping out those interactions takes readers through the offices of geriatricians, into patients' narratives and interviews with caregivers, down the corridors of nursing homes, and into the discourses shaping public policies and media coverage. Revealing the everyday experience of Alzheimer’s helps us better understand the depth of its impact and points us toward more knowledgeable, holistic ways to help treat the disease.

Telling Tales about Dementia

Lucy Whitman
Telling Tales about Dementia Book PDF

Author : Lucy Whitman
Publisher : Jessica Kingsley Publishers
Page : 226 pages
File Size : 55,5 Mb
Release : 2010
Category : Health & Fitness
ISBN : 9781843109419

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Telling Tales about Dementia by Lucy Whitman Pdf

In this book, thirty carers from different backgrounds and circumstances share their experiences of caring for a parent, partner or friend with dementia. This unique collection of personal accounts will be an engaging read for anyone affected by dementia in a personal or professional context, including social workers, practitioners and care staff.

Social Research Methods in Dementia Studies

John Keady,Lars-Christer Hydén,Ann Johnson,Caroline Swarbrick
Social Research Methods in Dementia Studies Book PDF

Author : John Keady,Lars-Christer Hydén,Ann Johnson,Caroline Swarbrick
Publisher : Routledge
Page : 230 pages
File Size : 40,6 Mb
Release : 2017-10-06
Category : Social Science
ISBN : 9781315517476

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Social Research Methods in Dementia Studies by John Keady,Lars-Christer Hydén,Ann Johnson,Caroline Swarbrick Pdf

Traditionally, the most preferred social research methods in dementia studies have been interviews, focus groups and non-participant observations. Most of these methods have been used for a long time by researchers in other social research fields, but their application to the field of dementia studies is a relatively new phenomenon. A ground-breaking book, Social Research Methods in Dementia Studies shows researchers how to adapt their methods of data collection to address the individual needs of someone who is living with dementia. With an editorial team that includes Ann Johnson, a trained nurse and person living with dementia, this enlightening volume mainly draws its contents from two interdisciplinary social research teams in dementia, namely the Center for Dementia Research [CEDER] at Linköping University in Norrköping, Sweden and the Dementia and Ageing Research Team [DART] at The University of Manchester in Manchester, UK. Case examples are shared in each of the main chapters to help ground the social research method(s) in a real-life context and provide direction as to how learning can be applied to other settings. Chapters also contain key references and recommended reading. This volume will appeal to undergraduate and postgraduate students, as well as postdoctoral researchers, interested in fields such as: Research Methods, Qualitative Methods and Dementia Studies.

When I'm 64

National Research Council,Division of Behavioral and Social Sciences and Education,Board on Behavioral, Cognitive, and Sensory Sciences,Committee on Aging Frontiers in Social Psychology, Personality, and Adult Developmental Psychology
When I m 64 Book PDF

Author : National Research Council,Division of Behavioral and Social Sciences and Education,Board on Behavioral, Cognitive, and Sensory Sciences,Committee on Aging Frontiers in Social Psychology, Personality, and Adult Developmental Psychology
Publisher : National Academies Press
Page : 280 pages
File Size : 55,5 Mb
Release : 2006-02-13
Category : Social Science
ISBN : 9780309164917

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When I'm 64 by National Research Council,Division of Behavioral and Social Sciences and Education,Board on Behavioral, Cognitive, and Sensory Sciences,Committee on Aging Frontiers in Social Psychology, Personality, and Adult Developmental Psychology Pdf

By 2030 there will be about 70 million people in the United States who are older than 64. Approximately 26 percent of these will be racial and ethnic minorities. Overall, the older population will be more diverse and better educated than their earlier cohorts. The range of late-life outcomes is very dramatic with old age being a significantly different experience for financially secure and well-educated people than for poor and uneducated people. The early mission of behavioral science research focused on identifying problems of older adults, such as isolation, caregiving, and dementia. Today, the field of gerontology is more interdisciplinary. When I'm 64 examines how individual and social behavior play a role in understanding diverse outcomes in old age. It also explores the implications of an aging workforce on the economy. The book recommends that the National Institute on Aging focus its research support in social, personality, and life-span psychology in four areas: motivation and behavioral change; socioemotional influences on decision-making; the influence of social engagement on cognition; and the effects of stereotypes on self and others. When I'm 64 is a useful resource for policymakers, researchers and medical professionals.

Dementia Studies

Anthea Innes
Dementia Studies Book PDF

Author : Anthea Innes
Publisher : SAGE
Page : 210 pages
File Size : 41,7 Mb
Release : 2009-03-05
Category : Social Science
ISBN : 9781473903760

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Dementia Studies by Anthea Innes Pdf

What is dementia? How should we organize dementia care? This comprehensive book critically examines the main approaches to understanding dementia (bio-medical, social-psychological and socio-gerontological) and the main principles and ideologies of care. The book: • provides clarity on the gap between the utopian aspirations of care and the reality of care • opens up a series of questions about knowledge and treatment of dementia • argues for a transition from positions that place emphasis upon the individual or particular care services to the social, cultural and economic context Lively, informative and challenging, the book will be of interest to students of nursing, sociology of health & illness, social work and social gerontology. Anthea Innes teaches at the Dementia Services Development Centre, University of Stirling

Dementia

Anthea Innes
Dementia Book PDF

Author : Anthea Innes
Publisher : Routledge
Page : 170 pages
File Size : 48,7 Mb
Release : 2020
Category : Family & Relationships
ISBN : 1315709007

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Dementia by Anthea Innes Pdf

Dementia: The Basics provides the reader with a clear and compassionate introduction to dementia and an accessible guide to dealing with different parts of the dementia journey, from pre-diagnosis and diagnosis to post-diagnostic support, increasing care needs and end of life care. Co-authored by an academic, a person living with dementia and a family carer, the book endeavours to raise awareness of dementia, challenge stereotypical and negative ideas about what it means to have dementia and champion a society where people living with dementia can be active as they wish for as long as possible. The authors present an overview of current research at each step of the dementia journey as well as including knowledge from lived experience, enhancing understanding and challenging thinking about what it might be like to live with a diagnosis or to care for a loved one. As a whole, the book emphasises the importance of prioritising the person living with dementia, as well as considering the impact of what any initiative or action might mean for them, their families and their care supporters. Offering both an accessible introduction to dementia and practical tools, this book will be ideal for health and social care professionals, students of social care, health care and nursing, people with dementia, carers and anyone wanting to understand more about the condition.

The Simplicity of Dementia

Huub Buijssen
The Simplicity of Dementia Book PDF

Author : Huub Buijssen
Publisher : Jessica Kingsley Publishers
Page : 176 pages
File Size : 54,7 Mb
Release : 2005-02-15
Category : Health & Fitness
ISBN : 1846420962

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The Simplicity of Dementia by Huub Buijssen Pdf

This book offers an accessible and sympathetic introduction for relatives, carers and professionals looking after or training to work with people with dementia. Drawing on the two `laws of dementia', the author explains the causes of communication problems, mood disturbances and `deviant' behaviours, with particular emphasis on how these are experienced by dementia sufferers themselves. Case examples demonstrate the typical symptoms and progression of dementia, and clear guidance is provided on how to support dementia sufferers at every stage and help them deal with the challenges posed by their condition. Relatives and carers will find this book a source of essential information and encouragement to deal confidently with the difficulties posed by the condition both for people with dementia and those around them.

Unforgotten

Bianca Brijnath
Unforgotten Book PDF

Author : Bianca Brijnath
Publisher : Berghahn Books
Page : 239 pages
File Size : 52,7 Mb
Release : 2014-07-01
Category : Social Science
ISBN : 9781782383550

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Unforgotten by Bianca Brijnath Pdf

As life expectancy increases in India, the number of people living with dementia will also rise. Yet little is known about how people in India cope with dementia, how relationships and identities change through illness and loss. In addressing this question, this book offers a rich ethnographic account of how middle-class families in urban India care for their relatives with dementia. From the husband who wakes up at 3 am to feed his wife ice-cream to the daughters who gave up employment for seven years to care for their mother with dementia, this book illuminates the local idioms on dementia and aging, the personal experience of care-giving, the functioning of stigma in daily life, and the social and cultural barriers in accessing support.