Ethical Foundations Of Palliative Care For Alzheimer Disease

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Ethical Foundations of Palliative Care for Alzheimer Disease

Ruth B. Purtilo,Henk A.M.J. ten Have

Author : Ruth B. Purtilo,Henk A.M.J. ten Have
Publisher : JHU Press
Page : 394 pages
File Size : 47,8 Mb
Release : 2010-09-01
Category : Medical
ISBN : 9781421403687

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Ethical Foundations of Palliative Care for Alzheimer Disease by Ruth B. Purtilo,Henk A.M.J. ten Have Pdf

Alzheimer disease afflicts more than twelve million people worldwide, and its incidence is increasing at a staggering rate. People with the disorder are living longer than have those in previous generations, and they require interventions for quality-of-life issues associated with palliative care. However, the symptoms of Alzheimer disease often fail to place such persons into settings where palliative care resources are available to them. Indeed, clinicians and other caregivers may be unsure about what constitutes effective palliation in these cases. At the same time, the ethical issues involved in providing end-of-life care to persons with Alzheimer disease remain on the margins of mainstream bioethics. In Ethical Foundations of Palliative Care for Alzheimer Disease, leading ethicists and clinicians from the United States and Europe explore ethical and scientific concerns about the diagnosis and prognosis of Alzheimer disease, challenges arising from applying palliative procedures to its symptoms, key philosophical and theological concepts central to our understanding of the disease and to end-of-life decisions, and the changing patterns of relevant medical, social, and economic policies. Cross-cultural, multidisciplinary, and state-of-the-art, this volume is a unique and important resource for bioethicists, clinicians, and policy makers everywhere. Contributors: David A. Bennahum, M.D., University of New Mexico; Pierre Boitte, Ph.D., Catholic University of Lille, France; Roger A. Brumback, M.D., Creighton University Medical Center; Wim J. M. Dekkers, M.D., Ph.D., University Medical Centre Nijmegen, The Netherlands; Elizabeth Furlong, R.N., Ph.D., J.D., Creighton University Medical Center; Eugenijus Gefenas, M.D., Ph.D., Vilnius University, Lithuania; Bert Gordijn, Ph.D., University Medical Centre Nijmegen, The Netherlands; Amy M. Haddad, R.N., Ph.D., Creighton University Medical Center; Søren Holm, M.D., Ph.D., Dr.Med.Sci., University of Manchester; Franz J. Illhardt, D.D., Ph.D., Freiburg University; Rien Janssens, Ph.D., University Medical Centre Nijmegen, The Netherlands; Givi Javashvili, M.D., Ph.D., State Medical Academy of Georgia, Tbilisi; Judith Lee Kissell, Ph.D., Creighton University Medical Center; Gunilla Nordenram, D.D.S., Ph.D., Karolinska Institute, Stockholm; Richard L. O'Brien, M.D., Creighton University Medical Center; Marcel G. M. Olde Rikkert, M.D., Ph.D., University Medical Centre Nijmegen, The Netherlands; Winifred J. Ellenchild Pinch, R.N., Ed.D., Creighton University Medical Center; Patricio F. Reyes, M.D., Creighton University Medical Center; Anne-Sophie Rigaud, M.D., Ph.D., Hôpital Broca, Paris; Linda S. Scheirton, Ph.D., Creighton University Medical Center; Jos V. M. Welie, M.Med.S., J.D., Ph.D., Creighton University Medical Center.

The Moral Challenge of Alzheimer Disease

Stephen Garrard Post

Author : Stephen Garrard Post
Publisher : Unknown
Page : 160 pages
File Size : 45,5 Mb
Release : 1995
Category : Medical
ISBN : UOM:39015034544752

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The Moral Challenge of Alzheimer Disease by Stephen Garrard Post Pdf

The Moral Challenge of Alzheimer Disease encourages humane and dignified care for people with dementia by examining the moral basis for such against the background of cultural trends that threaten it. Stephen Post argues that maintaining the emotional and relational well-being of those with dementia depends on caregivers who see dignity even in those severely affected by this condition. He addresses specific ethical issues of interest to health care professionals, families, and affected individuals - including topics such as diagnostic disclosure, restrictions on driving privileges, the extension of autonomy through advance directives, behavior control, quality of life in relation to treatment limitations, hospice care, and euthanasia. In cases of profound dementia, Post concludes, appropriate care focuses on well-being rather than on merely the intentional prolongation of life. With examples of actual case experiences described throughout, this book is a valuable resource for family members and health professionals whose lives have been shaped by loyalty to those with dementia, for individuals who are themselves at risk of developing dementia, and for students of biomedical ethics.

The Oxford Handbook of Ethics at the End of Life

Stuart J. Youngner,Robert M. Arnold

Author : Stuart J. Youngner,Robert M. Arnold
Publisher : Oxford University Press
Page : 608 pages
File Size : 55,7 Mb
Release : 2016-09-13
Category : Medical
ISBN : 9780190628642

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The Oxford Handbook of Ethics at the End of Life by Stuart J. Youngner,Robert M. Arnold Pdf

This handbook explores the topic of death and dying from the late twentieth to the early twenty-first centuries, with particular emphasis on the United States. In this period, technology has radically changed medical practices and the way we die as structures of power have been reshaped by the rights claims of African Americans, women, gays, students, and, most relevant here, patients. Respecting patients' values has been recognized as the essential moral component of clinical decision-making. Technology's promise has been seen to have a dark side: it prolongs the dying process. For the first time in history, human beings have the ability control the timing of death. With this ability comes a responsibility that is awesome and inescapable. How we understand and manage this responsibility is the theme of this volume. The book comprises six sections. Section I examines how the law has helped shape clinical practice, emphasizing the roles of rights and patient autonomy. Section II focuses on specific clinical issues, including death and dying in children, continuous sedation as a way to relieve suffering at the end of life, and the problem of prognostication in patients who are thought to be dying. Section III considers psychosocial and cultural issues. Section IV discusses death and dying among various vulnerable populations such as the elderly and persons with disabilities. Section V deals with physician-assisted suicide and active euthanasia (lethal injection). Finally, Section VI looks at hospice and palliative care as a way to address the psychosocial and ethical problems of death and dying.

Dementia and Ethics Reconsidered

Julian Hughes

Author : Julian Hughes
Publisher : McGraw-Hill Education (UK)
Page : 312 pages
File Size : 43,9 Mb
Release : 2023-05-30
Category : Medical
ISBN : 9780335251018

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Dementia and Ethics Reconsidered by Julian Hughes Pdf

“In this masterful book, Julian Hughes makes a convincing case that many acts in clinical and care practice are ethical matters. Hughes takes us gently through a jungle of philosophical ideas and explores a series of ethical issues in dementia care, such as diagnosis, covert medication and end of life care. His humanity shines through as he favours a values-based approach to care, and concludes by declaring (in the spirit of Tom Kitwood) that the person must be placed first in order to do what is right and good for people living with dementia. A must-have volume for practitioners, social scientists and enlightened general readers.” Tom Dening, Professor of Dementia Research, School of Medicine, University of Nottingham, UK “This book is totally brilliant. The outstanding author Dr. Julian Hughes must now be considered the foremost ethicist of his generation when it comes to caring for individuals with dementia … This is now the book that everyone who cares about dementia and ethics must read, discuss, and implement. It is a huge contribution.” Stephen G. Post PhD, Director, Center for Medical Humanities, Compassionate Care & Bioethics Stony Brook University School of Medicine, USA “This book should be an essential read for all of us who support and navigate the ethical issues relating to people with dementia and their families.” Paul Edwards, Director of Clinical Services, Dementia UK Ethical issues are involved in every decision that is made in connection with someone living with dementia – from decisions about care and treatment to decisions about research and funding. This book encourages the reader to reconsider ethics in dementia care with the use of ‘patterns of practice’, an innovative idea developed by the author. The book highlights the importance of understanding the person’s narrative, of good communication, high quality care, and expert interpretation of the meaning of situations for people living with dementia. This book: • Reviews ethical theories and approaches in connection with dementia care • Considers issues such as such as stigma, quality of life, personhood, and citizenship in relation to dementia • Looks at issues relevant to research ethics • Presents case vignettes to highlight a complete spectrum of ethical issues that arise in dementia care • Is accessibly written for multiple audiences – from people living with dementia to practitioners Dementia and Ethics Reconsidered is a comprehensive account of thought and practice in relation to ethical issues that arise in the context of dementia care, which seeks to show how ethical thinking can be put into practice and prove relevant to day-to-day experience. The Reconsidering Dementia Series is an interdisciplinary series published by Open University Press that covers contemporary issues to challenge and engage readers in thinking deeply about the topic. The dementia fi eld has developed rapidly in its scope and practice over the past ten years and books in this series will unpack not only what this means for the student, academic and practitioner, but also for all those affected by dementia. Series Editors: Dr Keith Oliver and Professor Dawn Brooker MBE. Julian C. Hughes was a consultant in old age psychiatry. Having trained in both philosophy and medicine, he was appointed honorary professor of philosophy of ageing at Newcastle University, UK and subsequently professor of old age psychiatry at the University of Bristol, UK. He was deputy chair of the Nuffield Council on Bioethics, UK.

Living and Dying with Dementia

Neil Small,Katherine Froggatt,Murna Downs

Author : Neil Small,Katherine Froggatt,Murna Downs
Publisher : Unknown
Page : 262 pages
File Size : 52,8 Mb
Release : 2007
Category : Medical
ISBN : 9780198566878

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Living and Dying with Dementia by Neil Small,Katherine Froggatt,Murna Downs Pdf

Improvements in health care in the 21st century mean people are living longer, but with the paradox that chronic illness is increasingly prevalent. Dementia, a term used to describe various different brain disorders that involve a loss of brain function that is usually progressive and eventually severe, is a condition associated with an ageing population and is becoming increasingly common. Worldwide there are approximately 25 million people with dementia, expected to rise to 63 million by 2030, and 114 million by 2050. Inevitably, people living with dementia will die, but their needs at the end of life are not well known. This book describes what might be achieved if the values and best practice of both dementia care and palliative care are brought together, to achieve quality end of life care for this specific group of patients. It explores what is known about the experience of dying with dementia, using a narrative approach, and develops a model that draws together a 'person-centered' approach to care. The book examines the possibiities and the challenges faced when trying to improve quality of life for people with dementia, and presents examples of good practice from across the world.

Ethics in Palliative Care

Robert C. Macauley

Author : Robert C. Macauley
Publisher : Oxford University Press
Page : 569 pages
File Size : 47,7 Mb
Release : 2018
Category : Medical
ISBN : 9780199313945

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Ethics in Palliative Care by Robert C. Macauley Pdf

A comprehensive analysis of ethical topics in palliative care, combining clinical experience and philosophical rigor. A broad array of topics are explored from historical, legal, clinical, and ethical perspectives, offering both the seasoned clinician and interested lay reader a thorough examination of the complex ethical issues facing patients suffering from life-threatening illness

A Public Health Strategy for Living, Aging and Dying in Solidarity

Mary Beth Morrissey,Melissa Lang,Barney Newman

Author : Mary Beth Morrissey,Melissa Lang,Barney Newman
Publisher : CRC Press
Page : 257 pages
File Size : 52,5 Mb
Release : 2018-06-27
Category : Business & Economics
ISBN : 9781315350615

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A Public Health Strategy for Living, Aging and Dying in Solidarity by Mary Beth Morrissey,Melissa Lang,Barney Newman Pdf

With more people living longer lives, there is increased importance in the health care industry on improving services for the elderly. This comprehensive book gives an expert overview of the topics and challenges, along with imperative ethical and legal frameworks. The book also details existing programs and benefits in relation to a realistic portrayal of population needs. Other important issues are covered such as long-term palliative care and hospice, other vulnerable populations, elder abuse, public-private collaboration, evidence-based policy-making, and much more.

Controversies in Ethics in Long-term Care

Ellen Marie Olson,Eileen R. Chichin,Leslie S. Libow

Author : Ellen Marie Olson,Eileen R. Chichin,Leslie S. Libow
Publisher : Unknown
Page : 192 pages
File Size : 46,9 Mb
Release : 1995
Category : Frail elderly
ISBN : UOM:49015002394733

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Controversies in Ethics in Long-term Care by Ellen Marie Olson,Eileen R. Chichin,Leslie S. Libow Pdf

In decision-making, health care providers of long-term care regularly face a struggle between moral imperatives, medical technology, and financial considerations. This volume addresses crucial ethical issues, including advance directives (living wills), autonomy of the frail elders, home vs. institutional care, termination of treatment, and comfort care. It also discusses multicultural issues and the treatment of dementia patients. The volume is a vital resource for all long-term care professionals, as well as for academics and students concerned with ethics in health care.

Dementia: The Basics

Anthea Innes,Lesley Calvert,Gail Bowker

Author : Anthea Innes,Lesley Calvert,Gail Bowker
Publisher : Routledge
Page : 102 pages
File Size : 47,8 Mb
Release : 2020-06-15
Category : Family & Relationships
ISBN : 9781317484622

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Dementia: The Basics by Anthea Innes,Lesley Calvert,Gail Bowker Pdf

Dementia: The Basics provides the reader with a clear and compassionate introduction to dementia and an accessible guide to dealing with different parts of the dementia journey, from pre-diagnosis and diagnosis to post-diagnostic support, increasing care needs and end of life care. Co-authored by an academic, a person living with dementia and a family carer, the book endeavours to raise awareness of dementia, challenge stereotypical and negative ideas about what it means to have dementia and champion a society where people living with dementia can be active as they wish for as long as possible. The authors present an overview of current research at each step of the dementia journey as well as including knowledge from lived experience, enhancing understanding and challenging thinking about what it might be like to live with a diagnosis or to care for a loved one. As a whole, the book emphasises the importance of prioritising the person living with dementia, as well as considering the impact of what any initiative or action might mean for them, their families and their care supporters. Offering both an accessible introduction to dementia and practical tools, this book will be ideal for health and social care professionals, students of social care, health care and nursing, people with dementia, carers and anyone wanting to understand more about the condition.

Guide to Ministering to Alzheimer's Patients and Their Families

Pat Otwell

Author : Pat Otwell
Publisher : Taylor & Francis
Page : 284 pages
File Size : 54,5 Mb
Release : 2008-05-19
Category : Family & Relationships
ISBN : 9781135696597

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Guide to Ministering to Alzheimer's Patients and Their Families by Pat Otwell Pdf

Learn how to develop an effective Alzheimer’s ministry. The Guide to Ministering to Alzheimer's Patients and Their Families examines the importance of spirituality in dealing with the everyday challenges of this mysterious disease. Not a “how-to” manual with step-by-step instructions or tried and true formulas, this unique book instead examines the essential elements of ministering to dementia patients based on the first-hand accounts of family members living through pain and uncertainty. The book explores the stages of Alzheimer's, grief and guilt, available resources, and implications of spiritual care for patients and families. It is equally useful as a textbook for graduate and undergraduate work, a reference for study groups and seminars, and a primer for those with limited knowledge of the illness. Ministers sometimes neglect Alzheimer’s patients and their families because they feel they don’t know what to say or do even though they want to be obedient and faithful servants in this specialized ministry. The Guide to Ministering to Alzheimer’s Patients and Their Families communicates the thoughts, feelings, and needs of those affected by the disease to help ministers feel more comfortable, confident, and competent as they develop a theological understanding of God, Alzheimer’s patients, and their role in ministry. The book also provides models for ministry; role-play scenarios; a sample text for a care facility worship service, a care facility memorial service, and a funeral service for a Christian and a non-Christian as well as a sample clergy seminar program on Alzheimer’s ministry. The Guide to Ministering to Alzheimer’s Patients and Their Families examines: common characteristics of early, mild, moderate, and severe Alzheimer’s general information about Alzheimer’s ethical decision-making support group ministry respite care religious rites faith issues heredity hospitalization of Alzheimer’s patients long-distance caregiving working with other clergy The Guide to Ministering to Alzheimer’s Patients and Their Families also includes a special appendix of selections from the Scriptures. This book is a unique resource for all Christians who desire to minister to those affected by Alzheimer’s—especially pastors, priests, chaplains, pastoral counselors, church leaders, healthcare professionals, and seminary students.

Hospice Care for Patients with Advanced Progressive Dementia

Ladislav Volicer, MD, PhD,Ann Hurley, RN, DSNc

Author : Ladislav Volicer, MD, PhD,Ann Hurley, RN, DSNc
Publisher : Springer Publishing Company
Page : 320 pages
File Size : 47,6 Mb
Release : 2004-01-01
Category : Medical
ISBN : 9780826117410

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Hospice Care for Patients with Advanced Progressive Dementia by Ladislav Volicer, MD, PhD,Ann Hurley, RN, DSNc Pdf

This volume demonstrates how hospice care leads to improved quality of life for patients with terminal dementia and their families. Much of the information is based on the successful 10-year experience of the E.N. Rogers Memorial Hospital, where the first palliative care program for the management of patients with advanced dementia was developed. The book discusses Alzheimer's and other progressive dementias and reviews the clinical problems encountered, including infections, eating difficulties, and behavioral problems. It further addresses how to implement hospice care programs for these patients and the ethical aspects involved. This volume will be of compelling importance to nurses, physicians, and social workers involved in hospice or home care of patients at the last stages of dementia.

The SAGE Handbook of Health Care Ethics

Ruth Chadwick,Henk ten Have,Eric M. Meslin

Author : Ruth Chadwick,Henk ten Have,Eric M. Meslin
Publisher : SAGE Publications
Page : 481 pages
File Size : 45,6 Mb
Release : 2011-02-07
Category : Medical
ISBN : 9781412945349

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The SAGE Handbook of Health Care Ethics by Ruth Chadwick,Henk ten Have,Eric M. Meslin Pdf

The SAGE Handbook of Healthcare Ethics is an influential collection of work by leading scholars on the fundamental and emerging themes which define healthcare ethics. This authoritative Handbook brings together experts with backgrounds in philosophy, sociology, law, public policy and the health professions and reflects the increasing impact of globalization and the dynamic advances in the fields of bioscience and genetics, which keep ethics at the centre of debates about the future direction of healthcare. Combining international and interdisciplinary perspectives, the Handbook provides a cutting-edge account of debates in five key areas: Health Care Ethics in an Era of Globalization Beginning and End of Life Vulnerable Populations Research Ethics and Technologies Public Health and Human Rights

Palliative Care within Mental Health

David B. Cooper,Jo Cooper

Author : David B. Cooper,Jo Cooper
Publisher : Routledge
Page : 404 pages
File Size : 55,7 Mb
Release : 2018-10-10
Category : Medical
ISBN : 9780429879302

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Palliative Care within Mental Health by David B. Cooper,Jo Cooper Pdf

Palliative Care Within Mental Health: Ethical Practice explores the comprehensive concerns and dilemmas that occur surrounding people experiencing mental health problems and disorders. Working beyond narrow, stereotypical definitions of palliative care as restricted to terminal cancer patients, this balanced and thought-provoking volume examines the many interrelated issues that face the individual, families, and caregivers, setting the groundwork for improved, ethical relationships and interventions. Chapters by experts and experienced practitioners detail the challenges, concerns, and best practices for ethical care and responses in a variety of individual and treatment contexts. This is an essential and thoughtful new resource for all those involved in the fast-developing field of palliative mental health.

The Patient's Wish to Die

Christoph Rehmann-Sutter,Heike Gudat,Kathrin Ohnsorge

Author : Christoph Rehmann-Sutter,Heike Gudat,Kathrin Ohnsorge
Publisher : OUP Oxford
Page : 272 pages
File Size : 50,8 Mb
Release : 2015-06-04
Category : Medical
ISBN : 9780191023330

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The Patient's Wish to Die by Christoph Rehmann-Sutter,Heike Gudat,Kathrin Ohnsorge Pdf

Wish to die statements are becoming a frequent phenomenon in terminally ill patients. Those confronted by these statments need to understand the complexity of such wishes, so they can respond competently and compassionately to the requests. If misunderstood, the statements can be taken at face-value and the practitioner may not recognise that a patient is in fact experiencing ambivalent feelings at the end of life, or they may misinterpret the expressed wish to die as a sign of clinical depression. Public debate about the morality and ethics of various end-of-life care options has exploded in recent years. However, it has never been sensitive to the finer aspects of clinical reality or the experiences of patients. The Patient's Wish to Die: Research, Ethics, and Palliative Care brings together that reality and the patient's voice, combining them with different research approaches. It presents the best available knowledge and research methodologies about patients' wishes at the end-of-life, together with a series of ethical views and a discussion about the clinical implications for palliative care. The book presents material in an open and unbiased manner whilst remaining sensitive to the spiritual and existential dimensions of dying, and to the different cultural views that provide meaning to the individual. Written by the best specialists and ethics scholars from around the world, including palliative care practitioners and end-of-life scholars from countries where assisted dying practices are legalized and from those where it isn't, The The Patient's Wish to Die: Research, Ethics, and Palliative Care will prove essential reading for all those working or studying in the field of palliative care.

Ethics, Law, and Aging Review, Volume 11

Marshall B. Kapp, JD, MPH, FCLM

Author : Marshall B. Kapp, JD, MPH, FCLM
Publisher : Springer Publishing Company
Page : 136 pages
File Size : 54,9 Mb
Release : 2005-09-01
Category : Law
ISBN : 0826116531

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Ethics, Law, and Aging Review, Volume 11 by Marshall B. Kapp, JD, MPH, FCLM Pdf

We are now engaged in a movement that de-emphasizes the reliance on institutional forms of long-term care for disabled persons needing ongoing daily living assistance and converges on the use of non-institutional service providers abnd residential settings. In this latest edition of Ethics, Law and Aging Review , Kapp and ten expert contributors help us examine the forces and potential for changeing the long-term care industry (both positively and negatively) and address this paradigm shift from the inpersonal, public psychiatric institutions of the 1960s and 1970s to the present-day assisted living environments that have been fueled by economic, social, polictical, and legal forces. Most important ly, this volume identifies obstaclesto change and enlighten service providers, advocates, and key policy makers to the pitfalls that can largely interfere with positive outcomes as a result of long-term care deinstitutionalization. Topics explored include: Community-based alternatives for older adults with serious mental illness Failing consumer-directed alternatives to nursing homes Ethics of Medicare privatization

Ethical Foundations Of Palliative Care For Alzheimer Disease

Ethical Foundations of Palliative Care for Alzheimer Disease by Ruth B. Purtilo,Henk A.M.J. ten Have Pdf

The Moral Challenge of Alzheimer Disease by Stephen Garrard Post Pdf

The Oxford Handbook of Ethics at the End of Life by Stuart J. Youngner,Robert M. Arnold Pdf

Dementia and Ethics Reconsidered by Julian Hughes Pdf

Living and Dying with Dementia by Neil Small,Katherine Froggatt,Murna Downs Pdf

Ethics in Palliative Care by Robert C. Macauley Pdf

A Public Health Strategy for Living, Aging and Dying in Solidarity by Mary Beth Morrissey,Melissa Lang,Barney Newman Pdf

Controversies in Ethics in Long-term Care by Ellen Marie Olson,Eileen R. Chichin,Leslie S. Libow Pdf

Dementia: The Basics by Anthea Innes,Lesley Calvert,Gail Bowker Pdf

Guide to Ministering to Alzheimer's Patients and Their Families by Pat Otwell Pdf

Hospice Care for Patients with Advanced Progressive Dementia by Ladislav Volicer, MD, PhD,Ann Hurley, RN, DSNc Pdf

The SAGE Handbook of Health Care Ethics by Ruth Chadwick,Henk ten Have,Eric M. Meslin Pdf

Palliative Care within Mental Health by David B. Cooper,Jo Cooper Pdf

The Patient's Wish to Die by Christoph Rehmann-Sutter,Heike Gudat,Kathrin Ohnsorge Pdf

Ethics, Law, and Aging Review, Volume 11 by Marshall B. Kapp, JD, MPH, FCLM Pdf

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