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Families, Illness, And Disability by John Rolland Pdf
Practitioners will learn how to help families live well despite physical limitations and the uncertainties of threatened loss, how to encourage empowering rather than shame-based illness narratives, how to rewrite rigid caregiving scripts, how to encourage intimacy and maximize autonomy for all family members.
Helping Couples and Families Navigate Illness and Disability by John S. Rolland Pdf
Couples and families face daunting challenges as they cope with serious illness and disability. This book gives clinicians a roadmap for helping affected individuals and their loved ones live well with a wide range of child, adult, and later-life conditions. John S. Rolland describes ways to intervene with emerging challenges over the course of long-term or life-threatening disorders. Using vivid case examples, he illustrates how clinicians can help families harness their strengths for positive adaptation and relational growth. Rolland's integrated systemic approach is useful for preventive screening, consultations, brief counseling, more intensive therapy, and multifamily groups, across health care settings and disciplines. This book significantly advances the clinical utility of Rolland?s earlier landmark volume, Families, Illness, and Disability.
Families Living with Chronic Illness and Disability by Paul W. Power,Arthur E. Dell Orto Pdf
To help families manage an intense medical-related event, Power and Dell Orto propose that a family-oriented life and living perspective should be combined with a family intervention philosophy. Stressing acknowledgment of the adverse effects of the illness and an affirmation approach to family struggle and opportunities, the authors explore issues relevant to treatment, family adaptation, quality of life, and family survival. A unique feature of the text includes the organization of the chapters around thought-provoking personal statements followed by questions/experiential tasks designed to stimulate thought and discussion. This book is must reading for health and allied health professionals including physicians, nurses, rehabilitation counselors, social workers, psychologists, and family advocates and will serve as a useful textbook for professionals-in-training.
Handbook of Health Social Work by Sarah Gehlert,Teri Browne Pdf
The Handbook of Health Social Work provides a comprehensive and evidence-based overview of contemporary social work practice in health care. Written from a wellness perspective, the chapters cover the spectrum of health social work settings with contributions from a wide range of experts. The resulting resource offers both a foundation for social work practice in health care and a guide for strategy, policy, and program development in proactive and actionable terms. Three sections present the material: The Foundations of Social Work in Health Care provides information that is basic and central to the operations of social workers in health care, including conceptual underpinnings; the development of the profession; the wide array of roles performed by social workers in health care settings; ethical issues and decision - making in a variety of arenas; public health and social work; health policy and social work; and the understanding of community factors in health social work. Health Social Work Practice: A Spectrum of Critical Considerations delves into critical practice issues such as theories of health behavior; assessment; effective communication with both clients and other members of health care teams; intersections between health and mental health; the effects of religion and spirituality on health care; family and health; sexuality in health care; and substance abuse. Health Social Work: Selected Areas of Practice presents a range of examples of social work practice, including settings that involve older adults; nephrology; oncology; chronic diseases such as diabetes, heart disease, and HIV/AIDS; genetics; end of life care; pain management and palliative care; and alternative treatments and traditional healers. The first book of its kind to unite the entire body of health social work knowledge, the Handbook of Health Social Work is a must-read for social work educators, administrators, students, and practitioners.
Understanding Psychosocial Adjustment to Chronic Illness and Disability by Dr. Elizabeth Da Silva Cardoso, PhD,Dr. Julie A. Chronister, PhD Pdf
Rehabilitation practitioners face the difficult task of helping clients adjust to chronic illness or disability. This can be a long and trying process for both practitioner and client. With this handbook, however, practitioners and students can gain a wealth of insight into the critical issues clients face daily. This book presents the dominant theories, models, and evidence-based techniques necessary to help the psychosocial adjustment of chronically ill or disabled persons. Each chapter is written from an evidence-based practice (EBP) perspective, and explores how important issues (i.e., social stigma, social support, sexuality, family, depression, and substance abuse) affect persons adjusting to chronic illness and disability. Key features include: A review of psychopharmacological treatment options for depression, anxiety, and other disorders coinciding with rehabilitation The effect of rehabilitation on the family, including key family intervention strategies Strategies for using positive psychology and motivational interviewing in rehabilitation Multiculturalism and the effect of culture on the adjustment process Ancillary materials including an instructor's manual with a syllabus, examination items, PowerPoint presentation, and answers to class exercises By incorporating research-based knowledge into clinical rehabilitation practice, health care professionals can ensure that people with chronic illness and disability receive only the best treatment.
This text explores the impact of parental disability on children, especially where lack of support to families results in significant restrictions to children's day to day lives. It reviews the literature on parental disability and its impact on children; considers why concern for the children of disabled parents has emerged at this particular juncture of history; explores whether the presence of parental disability affects the self-reported health and well-being of children; discusses how children's strengths as well as their vulnerabilities can be identified and promoted; and suggests how more effective social care services can be delivered to children in families affected by disability or chronic illness.
Intellectual Disability by James C. Harris, M.D. Pdf
Approximately 2.5 million people in the United States--one percent of the population--have an intellectual disability (previously referred to as mental retardation). These conditions range from genetic disorders such as Down syndrome to disabilities caused by infectious diseases and brain injury. Intellectual Disability: A Guide for Families and Professionals, by one of the country's foremost authorities on intellectual disability, is a comprehensive resource that will be of importance to anyone with a personal connection to a child or adult with a neurodevelopmental disorder. Emphasizing the humanity of persons with intellectual and related developmental disabilities, psychiatrist and pediatrician James Harris provides essential information on assessment and diagnosis of intellectual disability, treatments for specific disorders, and ways to take advantage of the wide array of services available today. The focus throughout is on the development of the person, the positive supports necessary for self-determination, and, to the extent possible, independent decision making. Harris also surveys historical attitudes toward intellectual disability, the medical community's current understanding of its causes and frequency, and the associated physical, behavioral, and psychiatric conditions (such as seizure disorder, depression, and autism) that often accompany particular types of intellectual disability. The book addresses legal, medical, mental health, and research-related issues as well as matters of spirituality, highlighting the ways in which individuals with intellectual disability can meaningfully participate in the spiritual lives of their families and their communities. Each chapter ends with a series of key points to remember, and the book concludes with a list of additional resources of further interest. Intellectual Disability is a must-read for parents and families of those with neurodevelopmental disorders, providing guidance and essential information to help their family members effectively, and to make a significant, positive difference in their lives now and in the future.
National Academies of Sciences, Engineering, and Medicine,Division of Behavioral and Social Sciences and Education,Board on Children, Youth, and Families,Committee on Supporting the Parents of Young Children
Author : National Academies of Sciences, Engineering, and Medicine,Division of Behavioral and Social Sciences and Education,Board on Children, Youth, and Families,Committee on Supporting the Parents of Young Children Publisher : National Academies Press Page : 525 pages File Size : 55,8 Mb Release : 2016-11-21 Category : Social Science ISBN : 9780309388573
Parenting Matters by National Academies of Sciences, Engineering, and Medicine,Division of Behavioral and Social Sciences and Education,Board on Children, Youth, and Families,Committee on Supporting the Parents of Young Children Pdf
Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
National Academies of Sciences, Engineering, and Medicine,Health and Medicine Division,Board on Health Care Services,Committee on Family Caregiving for Older Adults
Author : National Academies of Sciences, Engineering, and Medicine,Health and Medicine Division,Board on Health Care Services,Committee on Family Caregiving for Older Adults Publisher : National Academies Press Page : 367 pages File Size : 52,6 Mb Release : 2016-11-08 Category : Medical ISBN : 9780309448093
Families Caring for an Aging America by National Academies of Sciences, Engineering, and Medicine,Health and Medicine Division,Board on Health Care Services,Committee on Family Caregiving for Older Adults Pdf
Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Disability and Social Change by Jeanette Robertson Pdf
This edited collection uses a critical theory perspective and draws on expertise from a range of contemporary policy and practice areas. Contributors include people with disabilities, family members, researchers, academics and practitioners. This book is an ideal text for students of social work, human services, child and youth care and disability studies. Chapters include first-person accounts from persons with disabilities, perspectives of families and historical perspectives, as well as a critical exploration of demographics, human rights issues, disability legislation and policy in Canada, theoretical approaches to disability, intersectionality and disability, Aboriginal people and disability, mental health disability, principles of anti-ableist practice, advocacy and strategies for change. This book offers as a fresh Canadian perspective on disability from a critical lens, challenging and inspiring students and practitioners alike to think outside the box and to examine their own attitudes and values toward disability, ensuring that they do not inadvertently impose ableist and oppressive practices on one of Canada’s most marginalized populations.
National Academies of Sciences, Engineering, and Medicine,Institute of Medicine,Board on Children, Youth, and Families,Board on the Health of Select Populations,Committee to Evaluate the Supplemental Security Income Disability Program for Children with Mental Disorders
Author : National Academies of Sciences, Engineering, and Medicine,Institute of Medicine,Board on Children, Youth, and Families,Board on the Health of Select Populations,Committee to Evaluate the Supplemental Security Income Disability Program for Children with Mental Disorders Publisher : National Academies Press Page : 472 pages File Size : 47,5 Mb Release : 2015-10-28 Category : Medical ISBN : 9780309376884
Mental Disorders and Disabilities Among Low-Income Children by National Academies of Sciences, Engineering, and Medicine,Institute of Medicine,Board on Children, Youth, and Families,Board on the Health of Select Populations,Committee to Evaluate the Supplemental Security Income Disability Program for Children with Mental Disorders Pdf
Children living in poverty are more likely to have mental health problems, and their conditions are more likely to be severe. Of the approximately 1.3 million children who were recipients of Supplemental Security Income (SSI) disability benefits in 2013, about 50% were disabled primarily due to a mental disorder. An increase in the number of children who are recipients of SSI benefits due to mental disorders has been observed through several decades of the program beginning in 1985 and continuing through 2010. Nevertheless, less than 1% of children in the United States are recipients of SSI disability benefits for a mental disorder. At the request of the Social Security Administration, Mental Disorders and Disability Among Low-Income Children compares national trends in the number of children with mental disorders with the trends in the number of children receiving benefits from the SSI program, and describes the possible factors that may contribute to any differences between the two groups. This report provides an overview of the current status of the diagnosis and treatment of mental disorders, and the levels of impairment in the U.S. population under age 18. The report focuses on 6 mental disorders, chosen due to their prevalence and the severity of disability attributed to those disorders within the SSI disability program: attention-deficit/hyperactivity disorder, oppositional defiant disorder/conduct disorder, autism spectrum disorder, intellectual disability, learning disabilities, and mood disorders. While this report is not a comprehensive discussion of these disorders, Mental Disorders and Disability Among Low-Income Children provides the best currently available information regarding demographics, diagnosis, treatment, and expectations for the disorder time course - both the natural course and under treatment.
Author : Chalotte Glintborg,Manuel L. de la Mata Publisher : Routledge Page : 133 pages File Size : 40,5 Mb Release : 2020-08-31 Category : Social Science ISBN : 9781000171624
Identity Construction and Illness Narratives in Persons with Disabilities by Chalotte Glintborg,Manuel L. de la Mata Pdf
This book investigates how being diagnosed with various disabilities impacts on identity. Once diagnosed with a disability, there is a risk that this label can become the primary status both for the person diagnosed as well as for their family. This reification of the diagnosis can be oppressive because it subjugates humanity in such a way that everything a person does can be interpreted as linked to their disability. Drawing on narrative approaches to identity in psychology and social sciences, the bio-psycho-social model and a holistic approach to disabilities, the chapters in this book understand disability as constructed in discourse, as negotiated among speaking subjects in social contexts, and as emergent. By doing so, they amplify voices that may have otherwise remained silent and use storytelling as a way of communicating the participants' realities to provide a more in-depth understanding of their point of view. This book will be of interest to all scholars and students of disability studies, sociology, medical humanities, disability research methods, narrative theory, and rehabilitation studies.
Special Brothers and Sisters by Monica McCaffrey,Annette Hames Pdf
Special Brothers and Sisters is a collection of real-life accounts from the brothers and sisters of children with special needs, disability or serious illness, ranging in age from 3 to 18 years. They explain, in their own words, what it's like to live with their siblings. There is a lot of advice available for parents of a child with a disability or illness, but very little about the important issue of educating their siblings about how they feel, and why they may behave differently from other children. These stories - from 40 different families - come with related tips to help siblings deal with some of the things that happen in their family lives. The book also provides a helpful glossary to explain, in child-friendly language, the disabilities and medical conditions mentioned, including: * ADHD * autism * cerebral palsy * cystic fibrosis * Down syndrome Special Brothers and Sisters is an engaging and educational collection that will enable young people and adults to share in the extraordinary experience of being a sibling of a child with special needs, a disability or serious illness.