Highlights On Several Underestimated Topics In Palliative Care
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Highlights on Several Underestimated Topics in Palliative Care by Marco Cascella Pdf
This book focuses on several underestimated topics in palliative care. Seven chapters have been divided into four sections: Ethical Issues, Volunteers in Palliative Care, Special Circumstances, and Prognostic Models in Palliative Care. The underestimated topics concern several ethical themes such as the Balance sheets of suffering, Good Death, Euthanasia, Assisted suicide, and the question of the 'Do not attempt resuscitation'. In addition, the role of volunteers, the approach to non-malignant diseases such as diabetes and Amyotrophic Lateral Sclerosis are also addressed. Finally, the features and utility of different tools in order to facilitate optimal decision making for both physicians and patients, are given in details. This book will aid several figures facing the daily challenges of palliative care. Clinicians, nurses, volunteers, students and resident trainees, and other professionals can find this volume useful in their very difficult but extraordinarily fascinating mission.
Suggestions for Addressing Clinical and Non-Clinical Issues in Palliative Care by Marco Cascella,Michael John Stones Pdf
Data from the World Health Organization indicate that about 40 million people worldwide require palliative care each year. We must face this enormous problem with appropriate welfare policies and training of up-to-date and competent personnel. In this context, a book that collects the experiences of authors with diverse backgrounds, and operating in different settings of palliative care, can be added to the many editorial products on the subject. Over five sections, this volume addresses such topics as palliative care in children, infants, and gynecologic oncology patients; the role of the caregiver; the use of drugs; and ethics, organization, and policy issues. Although this book should not be considered as an exhaustive treatise on palliative care, the many topics covered and the experience and competence of the authors involved make it a useful tool for those who are already experts in the field as well as those who are studying this field.
Palliative care is one of the most important factors in the fight against chronic diseases. It begins from the moment the patient is diagnosed, continues with curative treatment until death, and ends with care that supports the patient's family and other caregivers during the postmortem mourning process. In all these stages it is very important to improve the quality of life in patients, to relieve symptoms, and to support patients and their relatives in a dignified manner. This book includes basic information about palliative care, management of patient symptoms, support suggestions for psychological and social problems, needs of patients and their families, and how palliative care is handled in different countries. Written for healthcare professionals, students, and all interested readers, this book provides important information that can be used to improve the quality of life of patients as well as that of their families.
How to Be an Even Better Listener by Robert Mundle Pdf
Providing guidance and advice on the challenging art of listening, this book responds directly to the expressed learning needs of hospice and palliative care volunteers regarding their communication skills in end-of-life care. Listening can be mentally, physically, and spiritually exhausting, often highlighted in books about hospice and palliative care but never taking the spotlight. This accessible companion provides hospice and palliative care workers with a variety of helpful insights and suggestions drawn from a solid base of current theoretical concepts and clinical research. With personal reflections on being listened to, the guide includes strategies for becoming a more effective listener, as well as exploring the challenges of listening, the need for self-care and spiritual and ethical considerations. By expanding their own capacity for empathy, compassion and understanding the wider narrative of illness, hospice and palliative care volunteers will become even better listeners in their essential roles.
Smart and Secure Internet of Healthcare Things by Nitin Gupta,Jagdeep Singh,Chinmay Chakraborty,Mamoun Alazab,Dinh-Thuan Do Pdf
Internet of Healthcare Things (IoHT) is an Internet of Things (IoT)-based solution that includes a network architecture which allows the connection between a patient and healthcare facilities. This book covers various research issues of smart and secure IoHT, aimed at providing solutions for remote healthcare monitoring using pertinent techniques. Applications of machine learning techniques and data analytics in IoHT, along with the latest communication and networking technologies and cloud computing, are also discussed. Features: Provides a detailed introduction to IoHT and its applications Reviews underlying sensor and hardware technologies Includes recent advances in the IoHT, such as remote healthcare monitoring and wearable devices Explores applications of data analytics/data mining in IoHT, including data management and data governance Focuses on regulatory and compliance issues in IoHT This book is intended for graduate students and researchers in Bioinformatics, Biomedical Engineering, Big Data and Analytics, Data Mining, and Information Management, IoT and Computer and Electrical Engineering.
Interdisciplinary Pediatric Palliative Care by Joanne Wolfe,Pamela S. Hinds,Barbara M. Sourkes Pdf
Interdisciplinary Pediatric Palliative Care provides a uniquely integrated, comprehensive resource about palliative care for seriously ill children and their families. The field of palliative care is based on the fundamental principle that an interdisciplinary team is optimal in caring for patients and their families throughout the illness trajectory. The text integrates themes including goals of care, discipline-specific roles, cultural and spiritual considerations, evidence-based outcomes, and far more. It emphasizes the value of words and high-quality communication in palliative care. Importantly, content acknowledges challenging periods between team members, and how those can ultimately benefit team, patient, and family care outcomes. Each chapter includes the perspective of the family of a seriously ill child in the form of a vignette to promote care team understanding of this crucial perspective. This second edition is founded on a wealth of evidence that reflects the innovations in pediatric palliative care science over the past 10 years, including initiatives in clinical care, research, and education. Interdisciplinary Pediatric Palliative Care is appropriate for all pediatric palliative clinicians (PPC), including physicians, nurses, psychosocial clinicians, chaplains, and many others. All subspecialists who deliver care to seriously ill children, will find this book a must-have for their work. Advance Praise for Interdisciplinary Pediatric Palliative Care, Second Edition "This new edition is as much a testament to pediatric palliative care's remarkable evolution as a field as it is a quintessential playbook for providing the high-quality holistic and compassionate care that families with seriously ill children desperately want. Every page thoughtfully weaves together how interprofessional teams can contribute collaboratively to learning about and supporting the preferences, needs and priorities of the precious patients and families in their circle of care. It is a must read for all practitioners to enhance their palliative care understanding, appreciation and ability as a foundation for optimizing quality of life in practice." - Rebecca Kirch, JD, Executive Vice President of Policy and Programs, National Patient Advocate Foundation "This book offers a truly contemporary and comprehensive view of the entire field of pediatric palliative care. The focus on social determinants of health, cultural humility, and disparities in care could not be timelier, and the section highlighting conflict and conflict resolution should be required reading. The continued and purposeful inclusion of interdisciplinary clinicians in producing each chapter models the palliative care team itself-an approach in which all voices are necessary as we seek to provide the most compassionate care possible." - Rachel Thienprayoon, MD, MSCS, FAAP, FAAHPM, Associate Professor of Anesthesia, Medical Director, StarShine Hospice and Palliative Care, Cincinnati Children's Hospital Medical Center
Author : Timothy E. Quill,Franklin G. Miller Publisher : Oxford University Press, USA Page : 322 pages File Size : 47,6 Mb Release : 2014 Category : Medical ISBN : 9780199316670
Palliative Care and Ethics by Timothy E. Quill,Franklin G. Miller Pdf
Hospice is the premiere end of life program in the United States, but its requirement that patients forgo disease-directed therapies and that they have a prognosis of 6 months or less means that it serves less than half of dying patients and often for very short periods of time. Palliative care offers careful attention to pain and symptom management, added support for patients and families, and assistance with difficult medical decision making alongside any and all desired medical treatments, but it does not include a comprehensive system of care as is provided by hospice. The practice of palliative care and hospice is filled with sometimes overt (requests for hastened death in an environment where such acts are legally prohibited) and other times covert (the delay in palliative care referral because the health care team believes it will undermine disease directed treatment) ethical issues. The contributors to this volume use a series of case presentations within each chapter to illustrate some of the palliative care and hospice challenges with significant ethical dimensions across the three overarching domains: 1) care delivery systems; 2) addressing the many dimensions of suffering; and 3) difficult decisions near the end of life. The contributors are among the most experienced palliative care, hospice and ethics scholars in North America and Western Europe. Each has been given relatively free reign to address what they feel are the most pressing ethical challenges within their domain, so a wide range of positions and vantage points are represented. As a result, the volume provides a very diverse ethical exploration of this relatively young field that can deepen, stretch, and at times confront any simple notion of the challenges facing patients, their families, professional caregivers, and policy makers.
Textbook of Palliative Care Communication by Elaine Wittenberg,Betty R. Ferrell,Joy Goldsmith,Thomas Smith,Sandra L. Ragan,George Handzo Pdf
'The Textbook of Palliative Care Communication' is the authoritative text on communication in palliative care. Uniquely developed by an interdisciplinary editorial team to address an array of providers including physicians, nurses, social workers, and chaplains, it unites clinicians and academic researchers interested in the study of communication.
Evidence-Based Practice of Palliative Medicine - E-Book by Nathan E Goldstein,Christopher D. Woodrell,R. Sean Morrison Pdf
Using a practical, question-and-answer approach, Evidence-Based Practice of Palliative Medicine, 2nd Edition, helps you provide optimal care for patients and families who are dealing with serious illness. This unique reference focuses on patient and family/caregiver-centered care, highlighting the benefits of palliative care and best practices for delivery. The highly practical, user-friendly format sets it apart from other texts in the field, with concise, readable chapters organized around clinical questions that you’re most likely to encounter in everyday care. Uniquely organized using a question-and-answer approach, making it easy to find answers to common questions asked by practitioners and patients. Up-to-date, reader-friendly chapters explore interventions, assessment techniques, treatment modalities, recommendations and guidelines, communication techniques, and available resources for palliative care. Expanded discussions on hospice in every chapter, and a new emphasis on pediatrics, with increased material on pediatric malignancies, developmental delays, cystic fibrosis, and perinatal palliative care. New chapters on wellness of the palliative care practitioner, patients with opioid use disorders, telehealth in palliative care, health disparities, rural palliative care, caring for people with hematologic malignancies, integrative and alternative therapies, LGBTQ+ populations, mobile health technologies, and national palliative care implementation strategies. High-quality evidence gathered and reviewed by leading experts in palliative medicine, including clinicians, educators, and researchers across a broad range of disciplines. Numerous algorithms throughout help you make informed decisions, and “take-home” points in every chapter provide a quick summary of key content. Any additional digital ancillary content may publish up to 6 weeks following the publication date.
Adult Palliative Care for Nursing, Health and Social Care by John Costello Pdf
In this far-ranging textbook on palliative and end of life care, John Costello and a team of palliative care specialists take a patient-centred approach. Discussing palliative and end of life care across a range of diseases and illnesses, each chapter includes real-life case studies that focus on both the patient experience and the experiences of the family members of service users. Original in its approach to palliative and end of life care, Adult Palliative Care focuses on a range of non-cancer conditions. Thoughtfully balancing theory with practice, and interprofessional in its scope, Adult Palliative Care would benefit any health professional dealing with or working in the field of palliative and end of life care.
Collaborative Practice in Palliative Care by Dave Roberts,Laura Green Pdf
Collaborative Practice in Palliative Care explores how different professions work collaboratively across professional, institutional, social, and cultural boundaries to enhance palliative care. Analysing palliative care as an interaction between different professionals, clients, and carers, and the social context or community within which the interaction takes place, it is grounded in up-to-date evidence, includes global aspects of palliative care and cultural diversity as themes running throughout the book, and is replete with examples of good and innovative practice. Drawing on experiences from within traditional specialist palliative care settings like hospices and community palliative care services, as well as more generalist contexts of the general hospital and primary care, this practical text highlights the social or public health model of palliative care. Designed to support active learning, it includes features such as case studies, summaries, and pointers to other learning resources. This text is an important reference for all professionals engaged in palliative care, particularly those studying for post-qualification programmes in the area.
Communication in Palliative Nursing by Elaine Wittenberg,Joy V. Goldsmith,Sandra L. Ragan,Terri Ann Parnell Pdf
Communication in Palliative Nursing presents the COMFORT Model, a theoretically-grounded and empirically-based model of palliative care communication. Built on over a decade of communication research with patients, families, and interdisciplinary providers, and reworked based on feedback from hundreds of nurses nationwide, the chapters outline a revised COMFORT curriculum: Connect, Options, Making Meaning, Family caregivers, Openings, Relating, and Team communication. Based on a narrative approach to communication, which addresses communication skill development, this volume teaches nurses to consider a universal model of communication that aligns with the holistic nature of palliative care. This work moves beyond the traditional and singular view of the nurse as patient and family educator, to embrace highly complex communication challenges present in palliative care-namely, providing care and comfort through communication at a time when patients, families, and nurses themselves are suffering. In light of the vast changes in the palliative care landscape and the increasingly pivotal role of nurses in advancing those changes, this second edition provides an evidence-based approach to the practice of palliative nursing. Communication in Palliative Nursing integrates communication theory and health literacy constructs throughout, and provides clinical tools and teaching resources to help nurses enhance their own communication and create comfort for themselves, as well as for patients and their families.
Handbook of Nutrition and Diet in Palliative Care, Second Edition by Victor R. Preedy Pdf
Handbook of Nutrition and Diet in Palliative Care, Second Edition, is a comprehensive guide, providing exhaustive information on nutrition and diet in terminal and palliative care. It covers physical, cultural and ethical aspects, bridging the intellectual divide in being suitable for novices and experts alike. Following in the tradition of its predecessor, chapters contain practical methods, techniques, and guidelines along with a section on applications to other areas of palliative care. Each chapter features key facts highlighting important areas, summary points, and ethical issues. FEATURES • Use of cannabinoids in palliative nutrition care • Pain control in palliative care • Communications in palliative/end-of-life care: aspects of bad news • Anorexia in cancer: appetite, physiology, and beyond • Palliative care in severe and enduring eating disorders • Linking food supplementation and palliative care in HIV • Eating-related distress in terminally ill cancer patients and their family members • Palliative care of gastroparesis • Preoperative nutrition assessment and optimization in the cancer patient • Childhood leukemia, malnutrition, and mortality as components of palliative care • End-of-life decisions in persons with neurodevelopmental disorders • Resources: listing web sites, journals, books and organizations
Palliative Nursing by Elaine Stevens,Susan Jackson,Stuart Milligan Pdf
Palliative Nursing is an evidence-based practical guide fornurses working in areas of practice where general palliative careis provided. This may be in hospitals, nursing homes, dementiaunits, the community and any other clinical areas which are notclassified as specialist palliative care. This book first explores the history and ethos of palliativecare, and then looks at palliative nursing across various caresettings. It then looks at palliative nursing care for peoplewith specific illnesses, including heart failure, dementia, chronicobstructive pulmonary disease, cancer, and neurological conditions.Palliative care for children and young people is discussed, andthen the book finally looks at education and research in palliativenursing. Palliative Nursing will be essential readingfor all nurses working with palliative care patients in a nonspecialist role, i.e. in hospitals, primary care and nursing homes,as well as nursing students. SPECIAL FEATURES Explores the palliative nursing issues related to specificdiseases groups Written in the context of the new national tools, i.e. the endof life initiative, preferred place of care, Liverpool care pathwayand Gold standards framework. Each chapter includes practice points and cases to allow thepractitioner to undertake guided reflection to improvepractice Written by nurses for nurses Provides guidance for nurses working in all four countries ofthe UK
Palliative Care by Jean Lugton,Rosemary McIntyre Pdf
This title is directed primarily towards health care professionals outside of the United States. Palliative Care: The Nursing Role is an introductory text for nurses and other health care professionals who deliver palliative care across a range of settings. It lays a clear foundation of knowledge focusing on the needs and perspectives of patients and families who face the challenge of advanced, incurable illness. The style is highly accessible yet challenges readers to analyze key issues that present within palliative care. Covering the wide range of care provision in hospices, hospitals and patients' homes, the book draws widely from practice based examples to explain and expand upon theoretical issues. Research evidence underpins each of the chapters. Guided activities encourage readers to reflect, in a focused way, on their clinical experience and current practice. This new edition has been fully updated to reflect ongoing developments and shifting trends in palliative care education and practice. It will suit the needs of both pre and post-qualifying students seeking to develop their knowledge and is well suited to practitioners working within either generalist or specialist palliative care settings, or within acute or community settings as well as those studying a range of palliative care educational curricula. The authors have a wide range of experience in palliative care and all are actively engaged in practice and/or education. A clear, broad-based approach offers a thorough introduction for the non-specialist nurse. Written and edited by an experienced team of nurses working in this field, grounding it in current practice. Learning outcomes listed at the start of each chapter aid learning and comprehension. Reflective practice activities and an outline of CPD is especially useful for students working independently. Case histories, recommended reading lists, and references provide a solid evidence base for clinically based practice and facilitate further study. Thoroughly revised and updated to reflect changes in policy direction. A new chapter on pain and symptom management. Revised content reflects the recent shift in the evidence base concerning spirituality. Includes psychosocial issues of loss for the patient, their family, and careers.