Hospice Care For Children

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Hospice Care for Children

Ann Armstrong-Dailey,Sarah F. Zarbock
Hospice Care for Children Book PDF

Author : Ann Armstrong-Dailey,Sarah F. Zarbock
Publisher : Oxford University Press, USA
Page : 442 pages
File Size : 43,5 Mb
Release : 2001
Category : Medical
ISBN : 0195133307

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Hospice Care for Children by Ann Armstrong-Dailey,Sarah F. Zarbock Pdf

Children with life-threatening and terminal illnesses--and their families-- require a unique kind of care to meet a wide variety of needs. This book, the first edition of which won the 1993 Pediatric Nursing Book of the Year Award, provides an authoritative source for the many people involved in caring for dying children. It draws together contributions from leading authorities in a comprehensive, fully up-to-date resource, with an emphasis on practical topics that can be put to immediate use. The book covers the entire range of issues related to the hospice environment and is intended for all those who participate in the hospice-care process: physicians, nurses, social workers, teachers, clergy, family therapists, parents, and community service volunteers.

Oxford Textbook of Palliative Care for Children

Richard Hain,Ann Goldman,Adam Rapoport,Medical Director Paediatric Advanced Care Team (Pact) Adam Rapoport,Michelle Meiring
Oxford Textbook of Palliative Care for Children Book PDF

Author : Richard Hain,Ann Goldman,Adam Rapoport,Medical Director Paediatric Advanced Care Team (Pact) Adam Rapoport,Michelle Meiring
Publisher : Oxford University Press
Page : 535 pages
File Size : 53,7 Mb
Release : 2021-03-24
Category : Medical
ISBN : 9780198821311

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Oxford Textbook of Palliative Care for Children by Richard Hain,Ann Goldman,Adam Rapoport,Medical Director Paediatric Advanced Care Team (Pact) Adam Rapoport,Michelle Meiring Pdf

The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.

Pediatric Palliative Care

Betty R. Ferrell
Pediatric Palliative Care Book PDF

Author : Betty R. Ferrell
Publisher : Hpna Palliative Nursing Manual
Page : 161 pages
File Size : 44,8 Mb
Release : 2015-08-31
Category : Medical
ISBN : 9780190244187

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Pediatric Palliative Care by Betty R. Ferrell Pdf

'Pediatric Palliative Care', the fourth volume in the 'HPNA Palliative Nursing Manuals' series, addresses paediatric hospice, symptom management, paediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in paediatric palliative care.

Pediatric Palliative Care

Stefan J. Friedrichsdorf
Pediatric Palliative Care Book PDF

Author : Stefan J. Friedrichsdorf
Publisher : MDPI
Page : 253 pages
File Size : 54,8 Mb
Release : 2019-02-08
Category : Children
ISBN : 9783038973508

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Pediatric Palliative Care by Stefan J. Friedrichsdorf Pdf

This book is a printed edition of the Special Issue "Pediatric Palliative Care" that was published in Children

Children’s Palliative Care: An International Case-Based Manual

Julia Downing
Children s Palliative Care An International Case Based Manual Book PDF

Author : Julia Downing
Publisher : Springer Nature
Page : 290 pages
File Size : 54,8 Mb
Release : 2020-04-01
Category : Medical
ISBN : 9783030273750

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Children’s Palliative Care: An International Case-Based Manual by Julia Downing Pdf

This manual enables individuals working in children’s palliative care (CPC) globally to learn through engaging real-world cases. The aim is to provide a clinical case-based resource that is globally relevant and accessible to those working in CPC. Drawing on case histories from around the world that reflect key issues and elements of CPC, it provides a practical approach grounded in experience. It addresses multidisciplinary care in the management of children and their families; discusses cases from an international perspective, and shares examples from a variety of countries, utilising cases across a range of ages and conditions, demonstrating holistic care. It represents the first case-based manual on global CPC and is endorsed and promoted by the International Children’s Palliative Care Network (ICPCN). Children’s palliative care is a rapidly developing field, both in the UK and internationally. The provision of CPC varies considerably, with provision often being insufficient, and over 65% of countries having no recognised CPC service provision whatsoever. As such, while there are an estimated 21.6 million children who require palliative care, in many areas of the world, CPC is poor or non-existent, and children are treated like little adults without their distinctive needs being recognised or understood. There is also a dearth of literature on CPC, hence this clinical case-based manual fills a gap in the market, and is aimed at a global audience, making it a unique text in the field.

Palliative Care for Infants, Children, and Adolescents

Brian S. Carter,Marcia Levetown,Sarah E. Friebert
Palliative Care for Infants Children and Adolescents Book PDF

Author : Brian S. Carter,Marcia Levetown,Sarah E. Friebert
Publisher : JHU Press
Page : 769 pages
File Size : 42,7 Mb
Release : 2011-10-15
Category : Medical
ISBN : 9781421402130

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Palliative Care for Infants, Children, and Adolescents by Brian S. Carter,Marcia Levetown,Sarah E. Friebert Pdf

There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume. Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips. With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.

When Children Die

Institute of Medicine,Board on Health Sciences Policy,Committee on Palliative and End of Life Care for Children and Their Families
When Children Die Book PDF

Author : Institute of Medicine,Board on Health Sciences Policy,Committee on Palliative and End of Life Care for Children and Their Families
Publisher : National Academies Press
Page : 16 pages
File Size : 40,6 Mb
Release : 2003-10-30
Category : Medical
ISBN : 9780309182669

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When Children Die by Institute of Medicine,Board on Health Sciences Policy,Committee on Palliative and End of Life Care for Children and Their Families Pdf

This document is a brief summary of the Institute of Medicine report entitled When Children Die: Improving Palliative and End-of-Life Care for Children. Better care is possible now, but current methods of organizing and financing palliative, end-of-life, and bereavement care complicate the provision and coordination of services to help children and families and sometimes require families to choose between curative or life-prolonging care and palliative services, in particular, hospice care. Inadequate data and scientific knowledge impede efforts to deliver effective care, educate professionals to provide such care, and design supportive public policies. Integrating effective palliative care from the time a child's life-threatening medical problem is diagnosed will improve care for children who survive as well as children who die-and will help the families of all these children. The report recognizes that while much can be done now to support children and families, much more needs to be learned. The analysis and recommendations reflect current knowledge and judgments, but new research and insights will undoubtedly suggest modifications and shifts in emphasis in future years.

Dying in America

Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues
Dying in America Book PDF

Author : Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues
Publisher : National Academies Press
Page : 638 pages
File Size : 55,6 Mb
Release : 2015-03-19
Category : Medical
ISBN : 9780309303132

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Dying in America by Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues Pdf

For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

When Children Die

Institute of Medicine,Board on Health Sciences Policy,Committee on Palliative and End-of-Life Care for Children and Their Families
When Children Die Book PDF

Author : Institute of Medicine,Board on Health Sciences Policy,Committee on Palliative and End-of-Life Care for Children and Their Families
Publisher : National Academies Press
Page : 713 pages
File Size : 52,7 Mb
Release : 2003-02-09
Category : Medical
ISBN : 9780309084376

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When Children Die by Institute of Medicine,Board on Health Sciences Policy,Committee on Palliative and End-of-Life Care for Children and Their Families Pdf

The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.

Supporting the Child and the Family in Paediatric Palliative Care

Erica Brown,Brian Warr
Supporting the Child and the Family in Paediatric Palliative Care Book PDF

Author : Erica Brown,Brian Warr
Publisher : Jessica Kingsley Publishers
Page : 304 pages
File Size : 51,5 Mb
Release : 2007-06-15
Category : Family & Relationships
ISBN : 1846426596

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Supporting the Child and the Family in Paediatric Palliative Care by Erica Brown,Brian Warr Pdf

Supporting the Child and the Family in Paediatric Palliative Care provides a comprehensive overview of good practice in caring for terminally-ill children, young people and their families. Drawing from extensive personal experiences of working in paediatric palliative care, the author provides guidance on issues including symptom management and pain relief; cultural, religious and spiritual aspects of care; and the role of education for life-limited children. Addressing the importance of individual needs, the book looks at emotional, social and cognitive support at different stages of the illness, how parents and professionals can respond to children's own questions about death, and the impact of life-limiting illness on the whole family - including grandparents and siblings. The material offers helpful suggestions on how to support families in making informed choices during distressing periods, such as where their child will die and how to prepare for the funeral. This book is a practical and invaluable tool for nurses, paediatricians, hospice care staff, bereavement counsellors and all those caring for life-limited children.

Oxford Textbook of Palliative Care for Children

Richard Hain,Ann Goldman,Adam Rapoport,Michelle Meiring
Oxford Textbook of Palliative Care for Children Book PDF

Author : Richard Hain,Ann Goldman,Adam Rapoport,Michelle Meiring
Publisher : Oxford University Press
Page : 535 pages
File Size : 46,5 Mb
Release : 2021-07-27
Category : Medical
ISBN : 9780192554543

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Oxford Textbook of Palliative Care for Children by Richard Hain,Ann Goldman,Adam Rapoport,Michelle Meiring Pdf

The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.

Children's Palliative Care in Africa

Justin Amery
Children s Palliative Care in Africa Book PDF

Author : Justin Amery
Publisher : Unknown
Page : 448 pages
File Size : 44,7 Mb
Release : 2009
Category : Family & Relationships
ISBN : 9780199567966

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Children's Palliative Care in Africa by Justin Amery Pdf

Childen's palliative care has developed rapidly as a discipline, as health care professionals recognize that the principles of adult palliative care may not always be applicable to children at the end of life. The unique needs of dying children are particularly evident across Africa, where the scale of the problem is overwhelming, and the figures so enormous that they are barely comprehensible: over 400,000 children in Africa died from AIDS in 2003, and out of the 166,000 children a year diagnosed with cancer, 85% of these are in the developing world. Despite the enormous need, provision of children's palliative care in Africa is almost non-existent, with very few health workers trained and confident to provide care for dying children. The challenges of providing palliative care in this setting are different to those in more developed countries, contending with the shortage of physical and human resources in addition to the vast scope of the care needed. Written by a group with wide experience of caring for dying children in Africa, this book provides practical, realistic guidance by improving access to, and delivery of, palliative care in this demanding setting. It looks at the themes common to palliative care--including communication, assessment, symptom management, psychosocial issues, ethical dilemmas, end of life care, and tips for the professional on compassion and conservation of energy--but always retains the focus on the particular needs of the health care professional in Africa. While containing some theory, the emphasis is on practical action throughout the book. Children's Palliative Care in Africa provides health care professionals working in Africa, and other resource-poor settings, with the confidence, knowledge, and capacity to improve care for the terminally ill child in constrained and demanding environments.

When Children Die

Institute of Medicine,Board on Health Sciences Policy,Committee on Palliative and End-of-Life Care for Children and Their Families
When Children Die Book PDF

Author : Institute of Medicine,Board on Health Sciences Policy,Committee on Palliative and End-of-Life Care for Children and Their Families
Publisher : National Academies Press
Page : 712 pages
File Size : 46,5 Mb
Release : 2003-01-09
Category : Medical
ISBN : 9780309169479

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When Children Die by Institute of Medicine,Board on Health Sciences Policy,Committee on Palliative and End-of-Life Care for Children and Their Families Pdf

The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.

The Private Worlds of Dying Children

Myra Bluebond-Langner
The Private Worlds of Dying Children Book PDF

Author : Myra Bluebond-Langner
Publisher : Princeton University Press
Page : 298 pages
File Size : 44,6 Mb
Release : 2020-05-05
Category : Social Science
ISBN : 9780691213088

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The Private Worlds of Dying Children by Myra Bluebond-Langner Pdf

Winner of the Margaret Mead Award A classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly “The death of a child,” writes Myra Bluebond-Langner, “poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die.” In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child’s impending death. In contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children’s role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be willful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behavior surrounding death.

Textbook of Interdisciplinary Pediatric Palliative Care

Joanne Wolfe,Pamela Hinds,Barbara Sourkes
Textbook of Interdisciplinary Pediatric Palliative Care Book PDF

Author : Joanne Wolfe,Pamela Hinds,Barbara Sourkes
Publisher : Elsevier Health Sciences
Page : 514 pages
File Size : 49,5 Mb
Release : 2011-01-26
Category : Medical
ISBN : 9781437702620

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Textbook of Interdisciplinary Pediatric Palliative Care by Joanne Wolfe,Pamela Hinds,Barbara Sourkes Pdf

The Textbook of Interdisciplinary Pediatric Palliative Care, by Drs. Joanne Wolfe, Pamela Hinds, and Barbara Sourkes, aims to inform interdisciplinary teams about palliative care of children with life-threatening illness. It addresses critical domains such as language and communication, symptoms and quality of life, and the spectrum of life-threatening illnesses in great depth. This comprehensive product takes a first-of-its-kind team approach to the unique needs of critically ill children. It shows how a collaborative, interdisciplinary care strategy benefits patients and their families. If you deal with the complex care of critically ill children, this reference provides a uniquely integrated perspective on complete and effective care. Respect interdisciplinary perspectives, and provide the most comprehensive care. Use an integrated approach to address the physical, psychological, social, and spiritual needs of children and their families. Understand and heed your strengths and vulnerabilities in order to provide the best care for your patients. Recognize the necessity of linking hospital-based palliative care with community resources. Implement consistent terminology for use by the entire palliative care team. Access the full text online with regular updates and supplemental text and image resources.