Illness As Many Narratives

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Illness as Many Narratives

Author : Bolaki Stella Bolaki
Publisher : Edinburgh University Press
Page : 264 pages
File Size : 42,7 Mb
Release : 2016-02-02
Category : Literary Criticism
ISBN : 9781474402439

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Illness as Many Narratives by Bolaki Stella Bolaki Pdf

Illness narratives have become a cultural phenomenon in the Western world. In what ways can they be seen to have aesthetic, ethical and political value? What do they reveal about experiences of illness, the relationship between the body and identity and the role of the arts in bearing witness to illness for people who are ill and those connected to them? How can they influence medicine, the arts and shape public understandings of health and illness? These questions and more are explored in Illness as Many Narratives, which contains readings of a rich array of representations of illness from the 1980s to the present. A wide range of arts and media are considered such as life writing, photography, performance, film, theatre, artists' books and animation. The individual chapters deploy multidisciplinary critical frameworks and discuss physical and mental illness. Through reading this book you will gain an understanding of the complex contribution illness narratives make to contemporary culture and the emergent field of Critical Medical Humanities.

Illness as Narrative

Author : Ann Jurecic
Publisher : University of Pittsburgh Pre
Page : 194 pages
File Size : 41,5 Mb
Release : 2012-03-12
Category : Literary Criticism
ISBN : 9780822977865

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Illness as Narrative by Ann Jurecic Pdf

For most of literary history, personal confessions about illness were considered too intimate to share publicly. By the mid-twentieth century, however, a series of events set the stage for the emergence of the illness narrative. The increase of chronic disease, the transformation of medicine into big business, the women’s health movement, the AIDS/HIV pandemic, the advent of inexpensive paperbacks, and the rise of self-publishing all contributed to the proliferation of narratives about encounters with medicine and mortality. While the illness narrative is now a staple of the publishing industry, the genre itself has posed a problem for literary studies. What is the role of criticism in relation to personal accounts of suffering? Can these narratives be judged on aesthetic grounds? Are they a collective expression of the lost intimacy of the patient-doctor relationship? Is their function thus instrumental—to elicit the reader’s empathy? To answer these questions, Ann Jurecic turns to major works on pain and suffering by Susan Sontag, Elaine Scarry, and Eve Sedgwick and reads these alongside illness narratives by Jean-Dominique Bauby, Reynolds Price, and Anne Fadiman, among others. In the process, she defines the subgenres of risk and pain narratives and explores a range of critical responses guided, alternately, by narrative empathy, the hermeneutics of suspicion, and the practice of reparative reading. Illness as Narrative seeks to draw wider attention to this form of life writing and to argue for new approaches to both literary criticism and teaching narrative. Jurecic calls for a practice that’s both compassionate and critical. She asks that we consider why writers compose stories of illness, how readers receive them, and how both use these narratives to make meaning of human fragility and mortality.

The Illness Narratives

Author : Arthur Kleinman
Publisher : Hachette UK
Page : 336 pages
File Size : 40,8 Mb
Release : 2020-10-13
Category : Medical
ISBN : 9781541674608

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The Illness Narratives by Arthur Kleinman Pdf

From one of America's most celebrated psychiatrists, the book that has taught generations of healers why healing the sick is about more than just diagnosing their illness. Modern medicine treats sick patients like broken machines -- figure out what is physically wrong, fix it, and send the patient on their way. But humans are not machines. When we are ill, we experience our illness: we become scared, distressed, tired, weary. Our illnesses are not just biological conditions, but human ones. It was Arthur Kleinman, a Harvard psychiatrist and anthropologist, who saw this truth when most of his fellow doctors did not. Based on decades of clinical experience studying and treating chronic illness, The Illness Narratives makes a case for interpreting the illness experience of patients as a core feature of doctoring. Before Being Mortal, there was The Illness Narratives. It remains today a prescient and passionate case for bridging the gap between patient and practitioner.

Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts

Author : Gabriele Lucius-Hoene,Christine Holmberg,Thorsten Meyer
Publisher : Oxford University Press
Page : 384 pages
File Size : 45,9 Mb
Release : 2018-10-04
Category : Medical
ISBN : 9780192529411

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Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts by Gabriele Lucius-Hoene,Christine Holmberg,Thorsten Meyer Pdf

What is it like to live with an illness? How do diagnostic procedures, treatments, and other encounters with medical institutions affect a patient's private and social life? By asking these types of questions, illness narratives have gained a reputation as a scientific domain in medicine in the last thirty years. Today, a patient's story plays an important role in doctor-patient communication and the development of a healing relationship. However, whereas patient experiences have been well acknowledged, methodologically reflected upon and widely collected as research data, less consideration has been invested in exploring how they work in practice. Used in the context of diagnosis, treatment, and teaching, patient stories give us a new perspective on how healthcare could be improved. Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts highlights the problems, challenges, and opportunities we face when using patient perspectives in practice and research in a clear format to provide readers with a comprehensive overview of this field. It investigates the epistemological foundations and communicational properties of illness narratives, as well as the pragmatic effects of using them as clinical and educational instruments. Significantly, it presents new examples from patient intakes and interviews that illustrate the disparity in communication between patients and medical professionals. The studies in this book also evaluate the experiences of medical practitioners and students who consciously use patient narratives as a tool for improved communication and diagnosis. Divided into eight sections with practical examples for medical teaching and practice, this book covers the use of patient narratives in communication training and decision making across medicine and psychotherapy. In addition, it reflects on the ethical aspects of working with a patient's personal experience of their illness, reports on cultural differences across the globe, and analyses how patients' stories are used in politics and the media. Written by scholars from multiple disciplines across clinical and theoretical fields, this rich resource provides a critical stance on the use of narratives in medical research, education, and practice.

Narrative Research in Health and Illness

Author : Brian Hurwitz,Trisha Greenhalgh,Vieda Skultans
Publisher : John Wiley & Sons
Page : 456 pages
File Size : 42,9 Mb
Release : 2008-04-15
Category : Medical
ISBN : 9781405146197

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Narrative Research in Health and Illness by Brian Hurwitz,Trisha Greenhalgh,Vieda Skultans Pdf

This comprehensive book celebrates the coming of age of narrativein health care. It uses narrative to go beyond the patient's storyand address social, cultural, ethical, psychological,organizational and linguistic issues. This book has been written to help health professionals andsocial scientists to use narrative more effectively in theireveryday work and writing. The book is split into three, comprehensive sections;Narratives, Counter-narratives and Meta-narratives.

Health, Illness and Culture

Author : Lars-Christer Hydén,Jens Brockmeier
Publisher : Psychology Press
Page : 189 pages
File Size : 54,7 Mb
Release : 2008
Category : Medical
ISBN : 9780415988742

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Health, Illness and Culture by Lars-Christer Hydén,Jens Brockmeier Pdf

This collection of essays examines the interrelations between illness, disability, health, society, and culture. The contributors examine how "narratives" have emerged and been utilized within these areas to help those who have experienced d injury, disability, dementia, pain, grief, or psychological trauma to express their stories. Encompassing clinical case studies, ethnographic field studies and autobiographical case studies, Health, Illness and Culture offers a broad overview and critical analysis of the present state of "illness narratives" within the fields of health and social welfare.

Narrative and the Cultural Construction of Illness and Healing

Author : Cheryl Mattingly,Linda C. Garro
Publisher : Univ of California Press
Page : 302 pages
File Size : 46,5 Mb
Release : 2000
Category : Social Science
ISBN : 0520218256

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Narrative and the Cultural Construction of Illness and Healing by Cheryl Mattingly,Linda C. Garro Pdf

"A valuable collection. . . . The essays in the volume are all fresh, the result of recent work, and the opening chapter by Garro and Mattingly places the current trend in narrative analysis in historical context, explaining its diverse origins (and constructs) in a range of disciplines."—Shirley Lindenbaum, author of Kuru Sorcery "A good place to consult the narrative turn in medical anthropology. Thick with the richness and diversity and stubborn resistance to interpretations of human stories of illness. An anthropological antidote for too narrow a framing of the complex tangle of ways-of-being and ways-of-telling that make medicine a space of indelibly human experiences." —Arthur Kleinman, author of The Illness Narratives

The Wounded Storyteller

Author : Arthur W. Frank
Publisher : University of Chicago Press
Page : 280 pages
File Size : 49,8 Mb
Release : 2013-10-18
Category : Literary Criticism
ISBN : 9780226067360

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The Wounded Storyteller by Arthur W. Frank Pdf

Updated second edition: “A bold and imaginative book which moves our thinking about narratives of illness in new directions.” —Sociology of Heath and Illness Since it was first published in 1995, The Wounded Storyteller has occupied a unique place in the body of work on illness. A collective portrait of a so-called “remission society” of those who suffer from illness or disability, as well as a cogent analysis of their stories within a larger framework of narrative theory, Arthur W. Frank’s book has reached a large and diverse readership including the ill, medical professionals, and scholars of literary theory. Drawing on the work of such authors as Oliver Sacks, Anatole Broyard, Norman Cousins, and Audre Lorde, as well as from people he met during the years he spent among different illness groups, Frank recounts a stirring collection of illness stories, ranging from the well-known—Gilda Radner’s battle with ovarian cancer—to the private testimonials of people with cancer, chronic fatigue syndrome, and disabilities. Their stories are more than accounts of personal suffering: They abound with moral choices and point to a social ethic. In this new edition Frank adds a preface describing the personal and cultural times when the first edition was written. His new afterword extends the book’s argument significantly, discussing storytelling and experience, other modes of illness narration, and a version of hope that is both realistic and aspirational. Reflecting on his own life during the creation of the first edition and the conclusions of the book itself, he reminds us of the power of storytelling as way to understand our own suffering. “Arthur W. Frank’s second edition of The Wounded Storyteller provides instructions for use of this now-classic text in the study of illness narratives.” —Rita Charon, author of Narrative Medicine “Frank sees the value of illness narratives not so much in solving clinical conundrums as in addressing the question of how to live a good life.” —Christianity Today

Narrative Medicine

Author : Rita Charon
Publisher : Oxford University Press
Page : 285 pages
File Size : 50,8 Mb
Release : 2008-02-14
Category : Medical
ISBN : 9780195340228

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Narrative Medicine by Rita Charon Pdf

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The Illness Narratives

Author : Arthur Kleinman
Publisher : Basic Books
Page : 336 pages
File Size : 46,9 Mb
Release : 2020-10-13
Category : Medical
ISBN : 9781541674608

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The Illness Narratives by Arthur Kleinman Pdf

From one of America's most celebrated psychiatrists, the book that has taught generations of healers why healing the sick is about more than just diagnosing their illness. Modern medicine treats sick patients like broken machines -- figure out what is physically wrong, fix it, and send the patient on their way. But humans are not machines. When we are ill, we experience our illness: we become scared, distressed, tired, weary. Our illnesses are not just biological conditions, but human ones. It was Arthur Kleinman, a Harvard psychiatrist and anthropologist, who saw this truth when most of his fellow doctors did not. Based on decades of clinical experience studying and treating chronic illness, The Illness Narratives makes a case for interpreting the illness experience of patients as a core feature of doctoring. Before Being Mortal, there was The Illness Narratives. It remains today a prescient and passionate case for bridging the gap between patient and practitioner.

Well (Large Print 16pt)

Author : Lisa Kron
Publisher : ReadHowYouWant.com
Page : 138 pages
File Size : 44,5 Mb
Release : 2010-07
Category : Drama
ISBN : 9781458781291

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Well (Large Print 16pt) by Lisa Kron Pdf

The acclaimed writer/performer Lisa Kron's newest work is all about her Mom. It explores the dynamics of health, family and community with the story of her mother's extraordinary ability to heal a changing neighborhood, despite her inability to heal herself. In this solo show with other people in it, Kron asks the provocative question; Are we responsible for our own illness? But the answers she gets are much more complicated than she bargained for when the play spins dangerously out of control into riotously funny and unexpected territory.

Metagnosis

Author : Danielle Spencer
Publisher : Oxford University Press
Page : 393 pages
File Size : 43,9 Mb
Release : 2020-11-17
Category : Medical
ISBN : 9780197510780

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Metagnosis by Danielle Spencer Pdf

Bridging memoir with key concepts in narratology, philosophy and history of medicine, and disability studies, this book identifies and names the phenomenon of metagnosis: the experience of learning in adulthood of a longstanding condition. It can occur when the condition has remained undetected (e.g. colorblindness) and/or when the diagnostic categories themselves have shifted (e.g. ADHD). More broadly, it can occur with unexpected revelations bearing upon selfhood, such as surprising genetic test results. Though this phenomenon has received relatively scant attention, learning of an unknown condition is often a significant and bewildering revelation, one that subverts narrative expectations and customary categories. How do we understand these revelations? In addressing this topic Danielle Spencer approaches narrative medicine as a robust research methodology comprising interdisciplinarity, narrative attentiveness, and the creation of writerly texts. Beginning with Spencer's own experience, the book explores the issues raised by metagnosis, from communicability to narrative intelligibility to different ways of seeing. Next, it traces the distinctive metagnostic narrative arc through the stages of recognition, subversion, and renegotiation, discussing this trajectory in light of a range of metagnostic experiences-from Blade Runner to real-world mid-life diagnoses. Finally, it situates metagnosis in relation to genetic revelations and the broader discourses concerning identity. Spencer proposes that better understanding metagnosis will not simply aid those directly affected, but will serve as a bellwether for how we will all navigate advancing biomedical and genomic knowledge, and how we may fruitfully interrogate the very notion of identity.

Health, Illness and Culture

Author : Lars-Christer Hydén,Jens Brockmeier
Publisher : Routledge
Page : 190 pages
File Size : 54,7 Mb
Release : 2008-06-03
Category : Medical
ISBN : 9781135859053

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Health, Illness and Culture by Lars-Christer Hydén,Jens Brockmeier Pdf

This collection of essays examines the interrelations between illness, disability, health, society, and culture. The contributors examine how "narratives" have emerged and been utilized within these areas to help those who have experienced d injury, disability, dementia, pain, grief, or psychological trauma to express their stories. Encompassing clinical case studies, ethnographic field studies and autobiographical case studies, Health, Illness and Culture offers a broad overview and critical analysis of the present state of "illness narratives" within the fields of health and social welfare.

Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts

Author : Gabriele Lucius-Hoene,Christine Holmberg,Thorsten Meyer
Publisher : Oxford University Press
Page : 384 pages
File Size : 51,8 Mb
Release : 2018-10-04
Category : Medical
ISBN : 9780192529404

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Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts by Gabriele Lucius-Hoene,Christine Holmberg,Thorsten Meyer Pdf

What is it like to live with an illness? How do diagnostic procedures, treatments, and other encounters with medical institutions affect a patient's private and social life? By asking these types of questions, illness narratives have gained a reputation as a scientific domain in medicine in the last thirty years. Today, a patient's story plays an important role in doctor-patient communication and the development of a healing relationship. However, whereas patient experiences have been well acknowledged, methodologically reflected upon and widely collected as research data, less consideration has been invested in exploring how they work in practice. Used in the context of diagnosis, treatment, and teaching, patient stories give us a new perspective on how healthcare could be improved. Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts highlights the problems, challenges, and opportunities we face when using patient perspectives in practice and research in a clear format to provide readers with a comprehensive overview of this field. It investigates the epistemological foundations and communicational properties of illness narratives, as well as the pragmatic effects of using them as clinical and educational instruments. Significantly, it presents new examples from patient intakes and interviews that illustrate the disparity in communication between patients and medical professionals. The studies in this book also evaluate the experiences of medical practitioners and students who consciously use patient narratives as a tool for improved communication and diagnosis. Divided into eight sections with practical examples for medical teaching and practice, this book covers the use of patient narratives in communication training and decision making across medicine and psychotherapy. In addition, it reflects on the ethical aspects of working with a patient's personal experience of their illness, reports on cultural differences across the globe, and analyses how patients' stories are used in politics and the media. Written by scholars from multiple disciplines across clinical and theoretical fields, this rich resource provides a critical stance on the use of narratives in medical research, education, and practice.

The Soul of Care

Author : Arthur Kleinman
Publisher : Penguin
Page : 272 pages
File Size : 43,9 Mb
Release : 2019-09-17
Category : Biography & Autobiography
ISBN : 9780525559337

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The Soul of Care by Arthur Kleinman Pdf

A moving memoir and an extraordinary love story that shows how an expert physician became a family caregiver and learned why care is so central to all our lives and yet is at risk in today's world. When Dr. Arthur Kleinman, an eminent Harvard psychiatrist and social anthropologist, began caring for his wife, Joan, after she was diagnosed with early-onset Alzheimer's disease, he found just how far the act of caregiving extended beyond the boundaries of medicine. In The Soul of Care: The Moral Education of a Husband and a Doctor, Kleinman delivers a deeply humane and inspiring story of his life in medicine and his marriage to Joan, and he describes the practical, emotional and moral aspects of caretaking. He also writes about the problems our society faces as medical technology advances and the cost of health care soars but caring for patients no longer seems important. Caregiving is long, hard, unglamorous work--at moments joyous, more often tedious, sometimes agonizing, but it is always rich in meaning. In the face of our current political indifference and the challenge to the health care system, he emphasizes how we must ask uncomfortable questions of ourselves, and of our doctors. To give care, to be "present" for someone who needs us, and to feel and show kindness are deep emotional and moral experiences, enactments of our core values. The practice of caregiving teaches us what is most important in life, and reveals the very heart of what it is to be human.