Living With Learning Disabilities Dying With Cancer

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Living with Learning Disabilities, Dying with Cancer

Author : Irene Tuffrey-Wijne
Publisher : Jessica Kingsley Publishers
Page : 274 pages
File Size : 41,8 Mb
Release : 2010
Category : Family & Relationships
ISBN : 9781849050272

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Living with Learning Disabilities, Dying with Cancer by Irene Tuffrey-Wijne Pdf

Cancer.

How to Break Bad News to People with Intellectual Disabilities

Author : Irene Tuffrey-Wijne
Publisher : Jessica Kingsley Publishers
Page : 192 pages
File Size : 47,5 Mb
Release : 2012-09-15
Category : Social Science
ISBN : 9780857005830

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How to Break Bad News to People with Intellectual Disabilities by Irene Tuffrey-Wijne Pdf

This book offers unique and flexible guidelines that can be used by practitioners to ease the process of breaking bad news to people with intellectual disabilities. The guidelines, which are adaptable to individual communication ability and level of understanding, address the many complex needs of people with intellectual disabilities who can find understanding and accepting news that has a negative impact on their life a very difficult task. In the book, Irene Tuffrey-Wijne covers a range of different types of bad news, from bereavement and illness to more minor issues such as a change of accommodation, and offers highly practical and effective tips that will help carers and practitioners ensure that bad news is relayed as sensitively and successfully as possible. An easy-to-use and comprehensive guide, this book will be an invaluable resource of information for carers, health professionals such as doctors and nurses as well as families of people with intellectual disabilities.

EBOOK: Learning Disability

Author : Gordon Grant,Paul Ramcharan,Margaret Flynn,Malcolm Richardson
Publisher : McGraw-Hill Education (UK)
Page : 784 pages
File Size : 48,6 Mb
Release : 2010-05-16
Category : Health & Fitness
ISBN : 9780335238446

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EBOOK: Learning Disability by Gordon Grant,Paul Ramcharan,Margaret Flynn,Malcolm Richardson Pdf

"The editors have brought together a range of eminent contributors who present a range of issues throughout the life cycle. The book asserts that it hopes to 'assist readers to anticipate change and discontinuity in people's lives and think about strategies to support them' through the many challenges that they may face in their lives. In my view this book certainly does that and the editors and contributors are to be congratulated on the production of a relevant and contemporary text that I have no hesitation in both endorsing and recommending to all involved in supporting and or caring for people with learning disabilities." Professor Bob Gates, Project Leader - Learning Disabilities Workforce Development, NHS Education South Central, UK "The editors have gathered an authoritative faculty to present and discuss a range of contemporary issues; both practical and ethical. The text is well grounded in the lived experience of people with disability and draws on the evidence-base of contemporary science. Each chapter includes thought provoking exercises. This is a seminal text for students and practitioners, researchers and policy makers." Associate Professor Keith R. McVilly, Deakin University, Australia "I currently own a copy of the first edition and it has proved an invaluable resource time and time again. There is not an essay I complete that does not make reference to the book and I can consistently use it to reflect back on my practice as a student nurse and social worker. Having read several extracts from the new edition it does appear to include very high quality content covering learning disabilities over the lifespan ... if I were to personally recommend any book for budding or current learning disability professionals then this would be it." James Grainger, Student Nurse/Social Worker, Sheffield Hallam University, UK "I like the way it has primary and secondary information from a range of sources. The exercises in the book also get you to think about the situation in question which helps us think about our values and anti-oppressive practice ... This book really does start with the basics and having a learning disability from birth and the effects, to in depth knowledge and literature ... This book would be very helpful to me as it brings in literature policies and models from both a health and social side, which is important for my course and collaborative working." Laura Jean Lowe, Student Nurse, Sheffield Hallam University, UK "It is written with a clearly conveyed in-depth knowledge and in a way that has professional lived experience within the context of the work. The authors have taken into account the emotional, client-centred approach to the modern practitioner's practice ... The book gives a true wealth of good practice scenarios that can only help practitioners be good at what they do and aspire to be." Lee Marshall, Student Nurse, Sheffield Hallam University, UK With its spread of chapters covering key issues across the life cycle this text has established itself as the foundational primer for those studying the lived experiences of people with learning disabilities and their families, and outcomes achieved through services and support systems. Recognising learning disability as a lifelong disability, this accessible book is structured around the life cycle. The second edition is refreshed and expanded to include seven new chapters, covering: Aetiology Breaking news (about disability) and early intervention Transition to adulthood The sexual lives of women Employment Personalisation People with hidden identities With contributions from respected figures from a range of disciplines, the book draws heavily upon multidisciplinary perspectives and is based on the latest research and evidence for practice. The text is informed by medical, social and legal models of learning disability, exploring how "learning disability" is produced, reproduced and understood. Extensive use is made of real-life case studies, designed to bring theory, values, policy and practice to life. Narrative chapters describe, in the words of people with learning disabilities themselves, their lives and aspirations. They helpfully show readers the kinds of roles played by families, advocates and services in supporting people with learning disabilities. New exercises and questions have been added to encourage discussion and reflection on practice. Learning Disability is core reading for students entering health and social care professions to work with people with learning disabilities. It is a compelling reference text for practitioners as it squarely addresses the challenges facing people with learning disability, their loved ones and the people supporting them. Contributors Dawn Adams, Kathryn Almack, Dorothy Atkinson, Nigel Beail, Christine Bigby, Alison Brammer, Jacqui Brewster, Hilary Brown, Jennifer Clegg, Lesley Cogher, Helen Combes, Clare Connors, Bronach Crawley, Eric Emerson, Margaret Flynn, Linda Gething, Dan Goodley, Peter Goward, Gordon Grant, Chris Hatton, Sheila Hollins, Jane Hubert, Kelley Johnson, Gwynnyth Llewellyn, Heather McAlister, Michelle McCarthy, Alex McClimens, Roy McConkey, David McConnell, Keith McKinstrie, Fiona Mackenzie, Ghazala Mir, Ada Montgomery, Lesley Montisci, Elizabeth Murphy, Chris Oliver, Richard Parrott, Paul Ramcharan, Malcolm Richardson, Bronwyn Roberts, Philippa Russell, Kirsten Stalker, Martin Stevens, John Taylor, Irene Tuffrey-Wijne, Sally Twist, Jan Walmsley, Kate Woodcock

Death, Dying, and Social Differences

Author : David Oliviere,Barbara Monroe,Sheila Payne
Publisher : Oxford University Press
Page : 237 pages
File Size : 41,8 Mb
Release : 2011-09-15
Category : Medical
ISBN : 9780199599295

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Death, Dying, and Social Differences by David Oliviere,Barbara Monroe,Sheila Payne Pdf

This book examines access to specialist palliative care among different groups in society, and the ways of working with difference within such services.

Getting On With Cancer

Author : Veronica Donaghey,Jane Bernal,Irene Tuffrey-Wijne
Publisher : Books Beyond Words
Page : 87 pages
File Size : 54,9 Mb
Release : 2018-06-06
Category : Performing Arts
ISBN : 9781874439660

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Getting On With Cancer by Veronica Donaghey,Jane Bernal,Irene Tuffrey-Wijne Pdf

This book is designed to support people like Veronica, who become unwell and are diagnosed as having cancer. In this story, Veronica visits her GP, who refers her to a hospital consultant. She has a chest X-ray and then is admitted to hospital for an operation. After the operation, the consultant tells Veronica that she has cancer, but that "it's not all bad news", some cancers can be cured. She goes on to receive radiotherapy and then chemotherpay sessions. After the chemotherapy has finished, Veronica feels better. She is glad the treatment is finished. She hopes the cancer is cured. The story is divided into different sections highlighting the different experiences that cancer patients may have.

Art Therapy with Physical Conditions

Author : Marian Liebmann,Sally Weston
Publisher : Jessica Kingsley Publishers
Page : 336 pages
File Size : 52,9 Mb
Release : 2015-05-21
Category : Psychology
ISBN : 9780857009111

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Art Therapy with Physical Conditions by Marian Liebmann,Sally Weston Pdf

As the emotional components of physical illnesses become more recognised, there is a renewed interest in the potential of art therapy to help patients come to terms with injury, pain and terminal and life-long conditions. A wide range of experienced art therapists describe their work and its benefits to a variety of groups including those with cancer, debilitating conditions such as myalgic encephalopathy (M.E.) and ulcerative colitis. Physical conditions in combination with other factors such as homelessness or learning disabilities, and children with life-long and chronic conditions are also covered. The book includes discussion of spiritual and philosophical issues when mortality is faced, life change and adjustment issues, practical considerations and which models of practice art therapists find most helpful with various groups. This will be essential reading for arts therapists and students, as well as for professionals with an interest in psychological issues and wellbeing for patients with physical illness or long term conditions, such as psychotherapists and counsellors, complementary therapists, doctors, nurses and other healthcare professionals.

How to Break Bad News to People with Intellectual Disabilities

Author : Irene Tuffrey-Wijne
Publisher : Jessica Kingsley Publishers
Page : 195 pages
File Size : 54,5 Mb
Release : 2012-09-01
Category : Social Science
ISBN : 9781849052801

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How to Break Bad News to People with Intellectual Disabilities by Irene Tuffrey-Wijne Pdf

This book offers unique and adaptable guidelines that can be used by practitioners to ease the process of breaking bad news to people with intellectual disabilities. It provides effective tips and support that will help social workers, counsellors and caring professionals relay all types of bad news as sensitively and successfully as possible.

A Public Health Perspective on End of Life Care

Author : Joachim Cohen,Luc Deliens
Publisher : Oxford University Press
Page : 128 pages
File Size : 50,6 Mb
Release : 2012-01-19
Category : Medical
ISBN : 9780191628580

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A Public Health Perspective on End of Life Care by Joachim Cohen,Luc Deliens Pdf

Worldwide, more than 50 million people die each year and it is estimated on the basis of the conditions leading to death that up to 60% of them could benefit from some form of palliative care. It is a public health challenge to ensure that these people can access good palliative or end-of-life care. Pursuing good population health essentially also implies striving for a 'good enough death' and a good quality of care at the end of life. Safeguarding a good quality of the end of life for patient populations for whom it is appropriate requires a public health approach. In most developed countries ageing populations that increasingly die from chronic diseases after a prolonged -often degenerative- dying trajectory make up the public health challenges for palliative care. The very large baby boom generation will soon reach old age and can be expected to pose strong demands regarding the circumstances and care at their end of life. Only by applying a public health approach to palliative care (instead of individual patient perspectives), can societies successfully help to organize and plan end-of-life care in accordance with these aspirations. A Public Health Perspective on End of Life Care presents a synthesis and overview of relevant research and empirical data on the end of life that can bear a basis for a more systematic 'public health of the end of life'. The book focuses on population health, rather than clinical interventions or other aspects of individual health, and discusses studies using different methodologies (not only epidemiological research). The focus is on the quality of the end-of-life of populations, in particular from social sciences, environmental sciences, and humanities perspectives.

Am I Going to Die?

Author : Sheila Hollins,Irene Tuffrey-Wijne
Publisher : Books Beyond Words
Page : 66 pages
File Size : 53,5 Mb
Release : 2018-06-11
Category : Psychology
ISBN : 9781874439936

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Am I Going to Die? by Sheila Hollins,Irene Tuffrey-Wijne Pdf

This book tells the story of John, who has an intellectual disability. John is dying. The pictures follow him in his illness and his final days. They are designed to help the reader make sense of what is happening to them or someone they know who is ill. The pictures help them to ask questions or share their concerns.

Going Into Hospital

Author : Sheila Hollins,Angie Avis,Samantha Cheverton
Publisher : Books Beyond Words
Page : 87 pages
File Size : 49,6 Mb
Release : 2018-06-06
Category : Family & Relationships
ISBN : 9781784580681

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Going Into Hospital by Sheila Hollins,Angie Avis,Samantha Cheverton Pdf

We all worry about going into hospital. For people with intellectual disabilities there is the added fear of not being able to explain what is wrong, as well as not understanding what is happening. This book is designed to support patients like Martin and Mary, who are shown going into hospital, by explaining what happens to them there. Martin is having a planned operation and Mary is admitted as an emergency. Feelings, information and consent are all addressed. Ideally this book should be used to prepare someone before he or she goes into hospital. It will also be invaluable to hospital staff to use during consultations and before treatments, and to understand the needs of people with intellectual disabilities.

Narrating Midlife

Author : Christine Elizabeth Kiesinger,Lori West Peterson
Publisher : Rowman & Littlefield
Page : 238 pages
File Size : 40,6 Mb
Release : 2019-04-30
Category : Social Science
ISBN : 9781498584111

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Narrating Midlife by Christine Elizabeth Kiesinger,Lori West Peterson Pdf

Narrating Midlife: Crisis, Transition, and Transformation explores how managing and living through change at midlife is ultimately a communicative endeavor. Using autoethnography, contributors narrate midlife experiences as diverse as the empty-nest, sexual fluidity, mixed-retirement marriage, spousal abduction of a child, and cancer.

Dying in America

Author : Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues
Publisher : National Academies Press
Page : 638 pages
File Size : 50,5 Mb
Release : 2015-03-19
Category : Medical
ISBN : 9780309303132

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Dying in America by Institute of Medicine,Committee on Approaching Death: Addressing Key End-of-Life Issues Pdf

For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

The Disability Experience

Author : Hannalora Leavitt
Publisher : Orca Book Publishers
Page : 192 pages
File Size : 45,5 Mb
Release : 2021-04-13
Category : Young Adult Nonfiction
ISBN : 9781459819306

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The Disability Experience by Hannalora Leavitt Pdf

People with disabilities (PWDs) have the same aspirations for their lives as you do for yours. The difference is that PWDs don’t have the same access to education, employment, housing, transportation and healthcare in order to achieve their goals. In The Disability Experience you’ll meet people with different kinds of disabilities, and you'll begin to understand the ways PWDs have been ignored, reviled and marginalized throughout history. The book also celebrates the triumphs and achievements of PWDs and shares the powerful stories of those who have fought for change.

Palliative Care for People with Learning Disabilities

Author : Sue Read
Publisher : Unknown
Page : 170 pages
File Size : 53,9 Mb
Release : 2006-01
Category : Learning disabled
ISBN : 1856422186

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Palliative Care for People with Learning Disabilities by Sue Read Pdf

Aimed at practitioners, service managers and policy maker, this guide helps to transfer knowledge between the learning disability and palliative care 'communities' and play a part in helping people with learning disabilities to access high quality services at the end of their lives.

Learning Disabilities

Author : Bob Gates,Helen Atherton
Publisher : Elsevier Health Sciences
Page : 746 pages
File Size : 48,9 Mb
Release : 2007-01-01
Category : Medical
ISBN : 9780443101984

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Learning Disabilities by Bob Gates,Helen Atherton Pdf

This title is directed primarily towards health care professionals outside of the United States. It is the authoritative textbook for students of learning disabilities covering a wide variety of topics. It is relevant not only for nursing courses, but also for care workers, OTs, and other professional and non-professional carers. The new edition has been completely updated and includes the latest evidence for practice. There are new chapters which means the book provides comprehensive coverage of learning disablities throughout a person's life. There are also new contributors, including people with learning disabilities. Each chapter is supported by information on further reading and other resources.